ASAN vs. Autism Speaks

Post Reply New Topic

I think that another element of Autism Speaks' cultural currency is that they play to cultural fears about disability and parental anxieties especially. Autistic people (nearly always children) are typically props upon whom they hang their rhetoric, rather than people who have their own subjectivity and needs.

It seems that at the least, their public face relies heavily on the "tragedy" of autism. I think this is where they lose a lot of people on the spectrum. Autism can indeed be devastating to individuals and families. But painting an entire spectrum with a single color sort of destroys the concept of a spectrum.

Mom and pops are part of the public relations formula. However I don't wish to be insulting toward you. You simply are unaware of my market saturation where I live. It is in a control area quite good. The corporate modality differers from the mom and pop though each haver similarities. My focus is not on corporate and business but individual people within the community. I cannot go into the approach much more specifically but as the experiment has succeeded for one project there is another under way. People are nice but this envy idea which some part of ASAN are portraying of me with regards to the accomplishments is part of my possibility assessment of the general population so my ego (self) will be removed as it has been considered a risk as it is for everyone in public relations. It will be removed from literature as already planed some months ago and was only needed as a person with autism for a certain awareness effectiveness initially.

All in all if I study something and think long and hard about the ethics, causal potentials and differing population thinking styles in final approach the formula seems to work out. I do get allot of help from some folks but corporate entities dictating the facilitations of the organizations behavior is in violation of the Lanterman Act as it transitions to a self-advocacy platform as well. I got to always be thinking of these things otherwise I'm in ethical violation.

As an organization ASAN seems to have furthered the positivity agenda within government policy but before ASAN that sort of thinking was already arising. We know that positivity improves outcomes. However with concern to the law and human rights in general personal dignities do not supersede the right to treatment and it's pursuits. It's a basic conclusion based on the law..

Of course. Autism speaks is founded by an NT couple who learned about Autism when their grandson became negatively impaired by the disorder. They see Autism through that lens and they are attacking that (very specifically) narrow viewpoint of the spectrum. IMHO that part of autism does need to go away (IE: cured). I mean, you don't see blind people standing on the corner advocating against curing blindness. Autism IS damning to many, many people and in ways that are very tragic. Let's do everything we can to do away with that aspect of it.

THAT image IS the thing that the "public" is aware of and is starting to get behind and in large numbers. To me that is a good thing in one way. What the public does not yet know in any real sense is the number of high functioning (not on benefits for support of otherwisie noticable at a glance) people that are also autisitc and how we are who we are because of our ASD, not despite our ASD. Temple Grandin leads the path in showing the world this side of the story and ASAN has an agenda also of showing this side of the story. The other thing the public does not know is the sheer number of higher functioning indiviuals living amongst them and how they need to adjust to accept us. That is the other thing ASAN is trying to teach. This too is a good thing.

Both need to exist.

The hope is that the other side of the story is considered while the cure is being sought. ASAN believes that Autism Now does not have that focus yet and so is protesting that aspect of their company. They want to see autistic represenation on their board. All good stuff.

I am able to positiviely influence parents that are pro-autism-speaks all the time. They love positivity and the media already does show positive examples. Given autism is a spectrum the cure modality does not imply a whole person who is diagnosed with autism is defective. Autism is a label and others assume it to be an identity.

There are better approaches that do not alienate people. It takes longer, more work and more public relations research and experimentation but few then are emotionally harmed. I have a certain kind of ethical requirement based on the law I have to follow called the Lanterman Act which is also based on federal laws. I cannot protest to effect others dignity as an agency model to prevent treatment research as an organization. That does not mean it is unlawful for you or others to do it but was I not in my position I'd choose a more effective approach then shocking people that care, love and just want to help.

I hope my future papers that will be distributed by mail to over 200 organizations related to autism nationally and available online at http://www.autismselfadvocacynetwork.com and http://www.autismadvocacynetwork.com will help people emotionally and in quality of life in the long run. Short term solutions to get attention don't always lead to the best long term outcomes. Trust is a big thing and I don't think ASAN with it's approaches has earned respectability considering the vast spectrum of autism. This to is part of a formula and I'd hope the papers could help those involved in ASAN to understand and respect everyones opinions better so as to work toward a common goal. I'm not the savior of the autism community nor is ASAN.

ci... I am many things, but envious of you is not one of them. Nor am I affiliated with ASAN so you can stop with the generalization/sterotyping. I may not stroke your ego with my words but you seem to do that just fine on your own so I see little need. I am not saying that what you are doing is wrong only that in perspective of these other giants, it still is not a player.

The rest of your post has so many contradications and unfounded opinions (or single percpetiveness) that I will not respond. Suffice that we are on different planets.

You are envious enough to continue to attack my ego which I don't even care because it simply is reflect and deflecting your ego. It is really not productive. I have allot of confidence and when I set to do something I usually succeed. When I write I don't think about the N.T and aspie idea I think about human nature, public relations examples of ASAN and the needs of self-esteem. If you were interested in understanding me and intellectually moving forward you would not attack me ego which does not really work on me. The purpose is to improve outcomes and this is a service that cannot put me first.

I think you may underestimate me. It's for me to prove. I will prove it when it is most appropriate and not simply to prove it at the time.

You had said you are a moderator of an ASAN group. I am not understanding how you are not affiliated now. Which reminds me again why I don't take much at face value. Even people in portrayed intents there is always a deep seeded reason why those intents exist which reveal true intents. Life is the science of figuring life out.

?? Dude, are you NT??

I said NOTHING that is attacking of your ego. I simply said that your ego is big enough without me stroking it. You have PLENTY of ego. What you lack is perspective.

Just the facts bro. No attack , no emotion and no hidden intent so don't read between the lines.

Proves another point everyone is the N.T unless they think from a certain perspective. It's like bashing someone for thinking for themselves, saying then your not one of them and then saying well I meant nothing by it. Everyone has emotions and if you want to say my ego is big then remark about your not stroking my ego you are implying an insult. Again this does not effect me.

Comparative: Someone calls someone stupid then another person says why did you call that person dumb. Then the person making the remark then says well I didn't call the person dumb and I didn't insult them was just not an emotion so don't think I am insulting them.

No I am not one of you, I am like me and myself in my life. Uniquely me like you are uniquely you.

????

Venus/Mars

Have not yet been accused by anyone of hidden intent or meanings who was on the spectrum (once but they immediately backed down) I mean what my words say very literally and I do not abstract like making leaps from dumba@@ to A@@hole . All the words have specific meaning. That is my disability but obviously cannot communicate with you so long as you insist that my words are intending some meaning I do not mean to convey.

No hiding behind your disability to insult others and then accuse them of being stereotypical is scapegoating. I never use my disability as an excuse others use that excuse for me and I don't like it one bit. The point is you have an ego like I have an ego. You don't like something I have said and reacted to make me think I am less then what I believe I am for a reason. You may not explain that reason as you make assumption of me as I of you in this non-productivity but it does not make me a person without autism as you implied by asking if I was of the N.T modality (simply an N.T). Ultimately your not going to be honest with me and use excuses to create an unproductive conversation.

well im not 100% sure what you mean.but i think if i have it right, i agree with your post.autism speaks gets a bad rap from asan militants.i dont think autism speaks is all that and a bag of chips,but i dont think there's anything wrong with it.i think the asan is sometimes hypocritical,but i respect its esencial mission

I try to write for different learning styles based on what I know of interactions in offline life. If you need to understand something specific let me know. If minds were as simple as 1+1 = 2 in shared mind spaces that include then people could not lie to others, lie to themselves or believe in anything.

Nathan Young

I have tried several times to not engage with you in this manner because you keep misinterpreting what I say. Let's agree to disagree at this point and remain respectful about it.

ASAN isn't militant. Really.

So... yeah. ASAN is basically a branch of the disability rights movement that specifically focuses on autism. There's nothing militant about it--they have never asked for anything more than equality and the right to speak for themselves. They are advocating for supporting autistics so that we can live in the community rather than being separated. Neurodiversity is not some kind of supremacist movement--it's the idea that people with different brains, people with developmental disabilities like autism, can be accepted as equals in our society and contribute to the world in their own way, rather than being seen as people who should not exist. The "cure focused" autism advocacy is highly damaging--it tends to lead to believing that until there is a cure, autistic lives cannot be worthwhile.

The fact is, there are many more important things than not being disabled: Equality, self-worth, and the right to be your own person and think the way you were meant to think. In fact, disability need not be thought of as a negative thing at all. Autism rights advocates are only following where others have gone before... the deaf community, wheelchair users, visually impaired people, intellectually disabled people... It's about time autistics joined in.