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Why are people here so against a cure for those who need it?

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rapidroy
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07 Apr 2013, 9:13 pm

DVCal wrote:
So many people on the spectrum suffer terribly, they have no ability to communicate. Many of them lack any meaningful cognitive function, they just sit around making noises, rocking, playing with their hands, just existing, not actually living. How can you oppose a cure that would help these people.

Even many of us so called higher functioning people want a cure, we see damage that autism has caused us and want to be rid of it. How can you work to deny us a cure.


Actually DV Cal, I'm against a full cure, not helping some negitive symptoms. LFA people can and do live fulfuling lives I beleave, it helps If people get there act together and engages the people, gives them text to speech devices and education of some type etc. instaid of holding out in false hope for a cure. Failure to do so can help create the person you discribe I think, I beleave I sadly know some.

To an NT person i'm sure i'm seen as a narrow minded, lonely, nothing of a person, i'm not though as I have a pretty exciteing life tailored to my brains needs and wants. Its easy for myself to look at someone with LFA in the same way as a NT looks at me, I have a feeling this is simply not accurate though. Its important to note that autism is something your born with so while we may envy someones abillity we have never actually experenced it for ourselves so we therefore don't miss having it.



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07 Apr 2013, 9:21 pm

Tyri0n wrote:

I do think, however, that stem cell treatment could improve executive functioning/cognitive functioning and communication skills, as well as anxiety/depression. That's about all it would change, particularly in adulthood. I don't think it would change anything about you, really. So it wouldn't be a cure in the traditional sense.


It's not a cure at all. It's treatment, if it's possible.

If it changes my perceptions and how I think, then it would probably change quite a lot about me. I am pretty certain that this is not something someone else can tell me is true or not true about myself.



Tyri0n
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07 Apr 2013, 9:32 pm

Verdandi wrote:
Tyri0n wrote:

I do think, however, that stem cell treatment could improve executive functioning/cognitive functioning and communication skills, as well as anxiety/depression. That's about all it would change, particularly in adulthood. I don't think it would change anything about you, really. So it wouldn't be a cure in the traditional sense.


It's not a cure at all. It's treatment, if it's possible.

If it changes my perceptions and how I think, then it would probably change quite a lot about me. I am pretty certain that this is not something someone else can tell me is true or not true about myself.


It wouldn't. Jeremy Lowey had NLD so bad, he met the criteria for Asperger's as well. Once he cured himself with stem cell therapy, he was just the same person. He just functioned better. He would be the first to tell you that nothing about him was different except his anxiety and his functioning. You may check out this page here:

https://www.facebook.com/pages/Nonverba ... 1765890257



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07 Apr 2013, 9:58 pm

I don't have NVLD, and I am autistic. I am not sure any generalizations applicable to him would be applicable to autistic people.



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07 Apr 2013, 10:27 pm

DVCal wrote:
So many people on the spectrum suffer terribly, they have no ability to communicate. Many of them lack any meaningful cognitive function, they just sit around making noises, rocking, playing with their hands, just existing, not actually living. How can you oppose a cure that would help these people.

Even many of us so called higher functioning people want a cure, we see damage that autism has caused us and want to be rid of it. How can you work to deny us a cure.


Ok, well first off, there is no cure, and there likely won't be within any of our lifetimes. Second, people can't stop science from evolving into what will be or lack thereof, it's a natural process that has hundres of thousands of people involved in it, so if there ever could be a cure, no-one could stop the discovery even if they wanted to (without shoving the entire world back to the dark ages), and they certainly cannot stop other people from taking action to use said cure, should it ever be made.

Also, no-one has the right to define what "actually living" is for other people, you don't know that all severe autistics actually suffor or are even conscious of the world around them, some aren't. Who are we to say that what we see is defined as "just existing"? How do we know that someone with severe symptoms aren't happy? We don't, to put it simply, and we as individuals have no right to dictate anything to those in such cases, I'm sure some of them (if they're conscious of their surroundings) have defined life on their own and are living it the way they feel it should be lived, in the best way they can.

The reason so many of us are against us getting cured, is because we're tired of trying things that don't work, and we're tired of holding onto a false sense of hope for a real cure to be found.
We've accepted who we are and we know that nothing will change that. We've moved on with our lives and are not dwelling much on what holds us down, instead we make life what we can of it.
We've faced current reality and accepted the hand that we've been dealt.
Maybe that's not for everyone, but when i faced facts, it set me free, and now I can live my life the way I feel I can, based on what I can do. Yes, there will always be a downfall, but holding onto false hope for a cure is only a waste of my time, and that's time I'd rather spend in the pursuit of real happiness, not some dream that will likely not happen for years.
----------------------------------------------
I'm sorry if my views/opinion offend anyone, it happens with every post, but the fact is, no-one ever really agrees with me, so I'm just going to leave my views as is, take from it what you all will.


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08 Apr 2013, 8:28 am

I am not a genius, I'm just average in most things I do, and underaverage in the rest.

I sure wish there was a cure, and if I was clever enough, I would spend the rest of my life working on a cure, not so much for myself, but for people in the generations to come who suffer from this awful s**t.

The way I see it, not everybody on the spectrum suffers with AS/Autism. It depends on their personality and the way they view their condition. Like I'm one who suffers with it because it holds me back from doing all the things I want to do in my life. I want to work somewhere where I'm under a lot of pressure to deal with the public all day long. I want to dress up and go out clubbing week-end nights with a pile of other young people of my age. I want to do all those sorts of things, but I obviously wouldn't enjoy myself because of this sh***y AS that gets in the way. I may be able to work on achieving some of these things, but my visibly odd ways in my personality and the way I am won't really change. And no, people aren't stupid - they can all see there is something wrong with me (especially women, not so much men), and I don't want people seeing me that way. I don't want to be odd. I am too self-aware and not lacking enough social skills to feel OK with appearing odd, if that makes sense. Just today I went out to see my friend, and I had every c**t look at me when I got on and off the bus like I was some f*****g freak, and I called them c***s in my head as I walked past the f*****g little unempathetic little c***s, wondering why the f**k NTs get to be called empathetic when it's clear they lack empathy, as they don't understand how f*****g self-conscious they were making me feel today. I came home crying. I really don't want to put up with this s**t for the rest of my life, like I said I am too self-aware and too socially-orientated to be singled out like this I am getting really pissed off.

So yes, I wish there was a cure - only for those that hate having AS or Autism. If you are an Autistic or Aspie that likes being stared at by unempathetic c***s that don't even know you, and are intelligent enough to have special interests to focus on and get a good-paying career out of, and confident in yourself over what you want to do, and enjoy being alone, then that's fine with me. But I'm talking about Aspies And Autistics who really want to be part of NT society and are feeling fed up with the way people are treating them but at the same time being expected by the government to function in normal society but struggling to do so at the same time.


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Tyri0n
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08 Apr 2013, 9:39 am

Joe90 wrote:
I am not a genius, I'm just average in most things I do, and underaverage in the rest.

I sure wish there was a cure, and if I was clever enough, I would spend the rest of my life working on a cure, not so much for myself, but for people in the generations to come who suffer from this awful sh**.

The way I see it, not everybody on the spectrum suffers with AS/Autism. It depends on their personality and the way they view their condition. Like I'm one who suffers with it because it holds me back from doing all the things I want to do in my life. I want to work somewhere where I'm under a lot of pressure to deal with the public all day long. I want to dress up and go out clubbing week-end nights with a pile of other young people of my age. I want to do all those sorts of things, but I obviously wouldn't enjoy myself because of this sh***y AS that gets in the way. I may be able to work on achieving some of these things, but my visibly odd ways in my personality and the way I am won't really change. And no, people aren't stupid - they can all see there is something wrong with me (especially women, not so much men), and I don't want people seeing me that way. I don't want to be odd. I am too self-aware and not lacking enough social skills to feel OK with appearing odd, if that makes sense. Just today I went out to see my friend, and I had every c**t look at me when I got on and off the bus like I was some f***ing freak, and I called them c**** in my head as I walked past the f***ing little unempathetic little c****, wondering why the f**k NTs get to be called empathetic when it's clear they lack empathy, as they don't understand how f***ing self-conscious they were making me feel today. I came home crying. I really don't want to put up with this sh** for the rest of my life, like I said I am too self-aware and too socially-orientated to be singled out like this I am getting really pissed off.

So yes, I wish there was a cure - only for those that hate having AS or Autism. If you are an Autistic or Aspie that likes being stared at by unempathetic c**** that don't even know you, and are intelligent enough to have special interests to focus on and get a good-paying career out of, and confident in yourself over what you want to do, and enjoy being alone, then that's fine with me. But I'm talking about Aspies And Autistics who really want to be part of NT society and are feeling fed up with the way people are treating them but at the same time being expected by the government to function in normal society but struggling to do so at the same time.


Try noopept and aniracetam. They are easy to get in the UK. A lot of my surface social interactions have gotten easier on them, and I don't have timing issues in conversations as much. Long-term use potentiates the effect. It's not going to make me NT because I'm crazy in other areas. But it helps a lot with processing, which IMO causes a lot of weird social interactions in many people with autistic tendencies.

Autistic behaviors are caused by excessive connections between some areas of the brain and a shortage of connections in other areas. Therefore, you need to stimulate connections between the sparse areas if you are going to see improvement. This can be done with behavioral modification as well as substances that stimulate BDNF and NGF.

Also, NT women are overrated. Just make friends with men, and you'll be fine. :-)



rayearthen
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08 Apr 2013, 5:57 pm

jellybaby wrote:
Has anyone read flowers of algernon?
In this book a mentally ret*d man is cured of his retardation and he suddenly becomes extremely intelligent. But he was happier before the surgery that "cures"
I would suggest that for anyone who has strong opinions about a cure for autistism. It deals alot with the consequences and morals about changing someones brain.


lol my first thought was homer with the crayon jammed up his nose. Ah the simpsons, you taught me so much without me ever realizing it.



rapidroy
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08 Apr 2013, 6:22 pm

rayearthen wrote:
jellybaby wrote:
Has anyone read flowers of algernon?
In this book a mentally ret*d man is cured of his retardation and he suddenly becomes extremely intelligent. But he was happier before the surgery that "cures"
I would suggest that for anyone who has strong opinions about a cure for autistism. It deals alot with the consequences and morals about changing someones brain.


lol my first thought was homer with the crayon jammed up his nose. Ah the simpsons, you taught me so much without me ever realizing it.


I almost mentioned this last night, glad I was not the only one thinking this. I take it that Simpsons episode was based on that book?



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08 Apr 2013, 6:42 pm

rapidroy wrote:
rayearthen wrote:
jellybaby wrote:
Has anyone read flowers of algernon?
In this book a mentally ret*d man is cured of his retardation and he suddenly becomes extremely intelligent. But he was happier before the surgery that "cures"
I would suggest that for anyone who has strong opinions about a cure for autistism. It deals alot with the consequences and morals about changing someones brain.


lol my first thought was homer with the crayon jammed up his nose. Ah the simpsons, you taught me so much without me ever realizing it.


I almost mentioned this last night, glad I was not the only one thinking this. I take it that Simpsons episode was based on that book?


Looks like it. That shows been running so long id be more surprised to find something they HADN'T referenced over the years.