American Professor Couple Identify Major Cause of Autism

Post Reply New Topic

From the article linked in the OP:

"The researchers found out that certain bacteria in the mother’s digestive tract can develop immune cells that directly influence the baby’s brain cells development."

It seems that the sole reason that the professors (adds to their legitimacy) made such a miraculous discovery is that they want to sell you their cure. The more people they convince; the more money they stand to make.

A lot of this could be placebo without proper controls. I’m only talking about your case btw and not mice.

They're selling something?

Where in the article does it state or suggest that?

I don't recall reading about anyone selling any cure.

Except it isn't. 4+ years of maintaining a pretty good balance, with ups and downs explained by illness, antibiotics, lack of sunlight, dietary changes/laziness etc, but in general 4+ years of successfully treating ASD in a way that allows me to function ever better in the social & work worlds.

I've been accumulating both health & wealth, too. I have an ever growing circle of friends & balanced social life like I never had in my life before. Same goes for my ability to work with others at my job(s), too. And also for my bank account balances, which have grown significantly. In every way I am better off for having treated my symptoms in the way that I do - these results are not placebo effects. They are all very real and easily observed. And again, I have zero reason to fabricate them since there's nothing it it for me to make any of this stuff up.

^ It's an autism forum.

We like to question and debate.

As it is, your anecdotes aren't enough for us to believe you've found a "cure" for autism. My microbiology professor even said that the study of gut bacteria and its effect on the rest of the body is extremely new, and not ready for definitive claims.

If you don't understand why a forum of anonymous people aren't accepting your statements as medical facts, then your "autism" may not be as "cured" as you believe. Plus, we've had numerous mountebanks come through here selling "fantastic diets."

Okay, so feel free to question and debate all you want - but ideally there'd be some sort of forward moving discussion vs. continuing to flog a dead horse w/ the exact same questions & forum members somehow magically expecting the truth or facts to have materially changed in some way so as to extract a different answer.. that's the odd part to me. But whatever floats your boat, I suppose, even if it's asking the same question over and over again.

For the who knows how many-ieth time, I've never ever EVER once said I found a "cure." I have been completely transparent about what I've done to successfully TREAT, manage, control, and minimize my ASD symptoms.

So, somehow the words your microbio proff said completely invalidate my personal experience as I've shared it with the forum? I think not. It's one thing to say "it's a new area of study, we're really not sure yet." and completely another to say "we don't know much about it yet, but we certainly without a doubt do know that no one can possibly have any definitive claims about it." Just because your proff doesn't have anything definitive to say about it doesn't mean no one else in the world does. Just saying. Because this is a forum where we like to question and debate - so there's my next debate point.

What I don't understand is what anyone gets out of being so biased & negative towards anything I've had to share about my experiences as if they're all made up fantasy and cannot possibly be true or fact. For a good couple of years or so I was just as miserable as most of you, go read my posting history for confirmation. Then my tune changed significantly when I changed via diet/supplements and I've been sharing what I've done to create that change ever since. Nothing more, nothing less. But it seems that due to the symptoms of rigid black and white thinking, as well as only accepting new information from accredited experts in their field, that by and large the vast majority here opt not to believe a word I say. Oh well, it's to their own detriment to wait another 5, 10, 20 years for someone to tell them they're allowed to change their diet as it may help them lessen the suffering of their symptoms. Also, for the countless-ieth time: I never was, and still am not, selling anything. I've shared freely for the benefit of anyone who'd care to learn from what's worked for me & have it work for them. That's it, that's all.

Anyone choosing not to treat their symptoms is free to choose not to, it just makes no sense to expend so much time and energy calling me a fraud, or a liar, or a "snake oil salesmen" with zero evidence to support any such statement.

Anyways, I've got social things to go do and be happy celebrating my grandmothers 96th birthday this evening. ttyl forum

Right, lets repeat this to you again, Mr. Goldfish. If your diet cured you of autism, you did NOT have autism. Sorry to burst that bubble. You cannot cure people of being themselves. It is not an illness. You do come across as having obsessional traits, though. You may be looking at some other diagnosis.

More than 10,000 pages read about the subject (including "The Complete Guide to Asperger's Syndrome and 2 extremely relatable ASD autobiographies) & over 35 years lived as an Aspie.. I'm 100% certain of my own diagnosis.

Not sure how many times I have to repeat myself, but here it goes again: I have never ever once claimed to have cured my Autism. I have stated the facts that there is a digestive system/enteric nervous system component to ASD and that it is treatable via diet, supplements, and intestinal cleanses. I know all of these to be fact because I've been doing them for myself for more than 4 years now and the result is minimized ASD symptoms and a dramatically improved quality of life.

I don't care what label you want to give ASD tbh. If you don't want to call it an illness and prefer to label it as an ailment, or a malady, or a disease, or a disorder (actually, that's what the D in the acronym stands for, so maybe it's the most appropriate label.) the simple fact of the matter is that it adversely affects those who have it & it can in fact be treated, managed, and controlled.

If you choose to believe that you are "yourself" and not negatively affected by ASD symptoms stealing your happiness, then by all means, carry on believing that & living your life as you see fit without changing anything that might treat your symptoms. That's your choice to make, but it doesn't mean that symptoms are not treatable.

Like almost everyone else on the spectrum, I do have some obsessive traits.. including responding to those who respond to what I share about how I treat my symptoms with their negativity & insults, despite the fact that others show an unwillingness to accept anything other than what they choose to believe. I suppose I have faith that somewhere out there someone may benefit from learning that their condition, sorry, "disorder," is in fact treatable. Fortunately for me, I'm often able to use my obsessive nature to my advantage in accomplishing goals of various types vs. allowing it to distract me from living a life I want. Yay for obsessions!

”except it isn’t” from a scientific research stand point,anecdotal evidence isn’t reliable. The research subject saying it isn’t placebo effect isnt how science works.

So you haven’t been diagnosed? If you haven’t been diagnosed, your basically someone not diagnosed with autism,saying they have been cured of “autism” and offering proof by giving anecdotal evidence and saying they haven’t been effected by the placebo effect.

...except it is how I live my life and relay my experiences of it here on these forums for the last 4+ years. I've never ever once stated that I've conducted a scientific study complete with empirical evidence, N sample size, x% accuracy within +/- whatever# etc.

Can you see the difference between me being transparent about what I've done for myself and what the results have been & someone making unsubstantiated scientific claims with zero data to corroborate their claims? I can. That's why I know why I don't have laboratory data. I've never conducted a scientific study and never claimed to have.

All that said, I know what my experience of life and symptoms were, what I did to influence change upon them, and what the outcome was & continues to be. Those are the things I've shared. Besides simply not believing what I've consistently said for 4+ years for whatever personal reason, not one person has provided any proof that my statements are false/lies/hoax/fabricated etc - only their insults with nothing to back up their statements. It's been 4+ years and I'm still waiting for even one person who says I'm lying to please prove that I am beyond their own statement of "because I don't believe you." Heck, that's why my signature used to read "Just because you don't believe me doesn't make me a liar." for at least 2 or 3 years here.

We are a critical lot here on WP...take the scrutiny as weighing up the strengths/weaknesses of your ideas

Sorry if you have already said but what changes did you make to your diet?

Something else I need to address for the countless-ieth time?

I've been completely transparent about the fact, like many on these forums, that I am self diagnosed. I never wanted an official diagnosis. I did not want the stigma of it from others nor weighing on my own mind nor on my medical records for anyone to ever use against me in any way. I also didn't want one, especially during the worst of times for my symptoms, because an official diagnosis would have meant I took one massive leap forward in terms of admitting defeat and that I'd never function normally or work again and would be stuck on some sort of welfare program for the rest of my life. Sure, in hindsight that's horrible depressive thinking & I could have been drawing $6xx/month for the few years I couldn't work, but there was No Fing way I was doing anything that put me into that mental position of accepting my fate as sealed - done, over, forget about ever having any kind of future. That was not an option - not welfare, not an official diagnosis - none of it. And I'm GLAD I drew those very hard lines in the sand and refused to cross them. I persisted, I eventually figured out what was causing all my symptoms to be so amplified, and learned & did what I needed to in order to heal and function as a nearly normal member of society. Had I been the "F it, just give up and accept your fate, loser." type, then maybe I'd have a rubber stamped diagnosis & an extra $18K of taxpayer funded income - BUT - then I wouldn't have what I have now, a working treatment protocol and a better quality of life for the rest of my life, which could be another ~60 years or so. Way rather have that. Regardless, I can read and comprehend information. I know my diagnosis just as well as anyone else. I don't need anyone else to tell me what I already know about being an Aspie any more than I need anyone else to tell me I'm gay. I just know, the same as the rest of you know yourselves and that your diagnosis - whether official or self, is correct.

Of course we're a critical lot & I know that if I didn't know that others criticism and black and white rigid thinking about only accepting information from accredited experts (MD) is all symptomatic of ASD thinking patterns I'd have probably told y'all to F off about 4 years ago instead of hanging around to continue to communicate about any of this.

Dietary changes: All of them. Everything. I literally put myself on a nearly 100% medicinal diet (and supplements etc) & was extremely strict about it for the first year or so, then slowly relaxed it a bit over the last couple years & just sort of maintain w/o going hardcore on the herbs/oils/spices etc that were used in the beginning.

I shared it all in a thread here 4+ years ago in November of 2013. Long story short: I was excited to share with the group what had changed my life so dramatically for the better, and the average response was that I was a liar, it was a hoax, and I'm selling something.. except I have no incentive to lie, there continues to be zero evidence that this is a lifelong hoax perpetrated by me since birth and I've never ever offered anything for sale, not advice, not epsom salt lotion, not medicinal herbs, not supplements or probiotics - nothing. I've simply said here's how I was, here's what I did about it, and here's how I am now. Try these things for yourself with items you can buy at your local grocery & health food stores. That's it that's all. Fortunately since that post in 2013 there have been studies on the intestinal link to ASD, studies like the one in the article of this thread's OP, studies of probiotic treatments on ASD mice etc. So, those with the resource to prove what I already know are slowly but surely unravelling the science behind it and sharing it with the world, too. But WP still, for the most part, likes to say I must be lying about my experience because it wasn't a controlled scientific study. Ooooookay.. because there's so much in for me to perpetuate a lifelong hoax! But, I know the value of what I've learned and done, so, continue to share it for those who'd care to read it and learn from it, discuss it, do some of it for themselves or others etc. People do PM me about it all from time to time & I do reply. That's why it's worth it to put up with being called names or insulted by those who think I'm making all this up. It's worth the annoyance of a hundred disbelievers if it helps just one person improve their health and well being.

edit:

If you truly want to know what I did for dietary changes and such, feel free to PM me.

Even though I am professionally diagnosed I have defended well researched self diagnosis on WP. I do not understand your fear of stigma from others. Unless it is different in Canada you do not have to tell anybody of your diagnosis. If you fear the diagnostic report getting into the wrong hands a possible option is to request the clinician diagnose you sans diagnostic report.

I never remotely thought of my diagnosis as a give up and accept your fate as a loser statement. I thought of the “symptoms” as these are things I have a lot of difficulty with not things I can’t do. My diagnosis is a guideline, a map that says these are the things you need to be aware of, be cautious about, find coping mechanisms for, these are things that are my strengths I should develope them more etc.