Aspie solidarity is a big fat myth
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 68
Gender: Male
Posts: 39,637
Location: Long Island, New York
Oppression Olympics are toxic and an important reason for the lack of Aspie/Autistic solidarity.
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“Self Acceptance is a process not a performance”
“You are autistic enough. And you always have been”
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.
Most people would probably see me as high functioning. I have a job, my own house, can drive and live independently, but I certainly don't feel high functioning for much of the time. But because I have those things and I am female I was largely overlooked by the medical community who simply chose to label my problems as depression over and over. Still, at least at the age of fifty three I did finally get a diagnosis although there still isn't much in the way of help. In any case I prefer to leave what little help there is available to those who are even more in need.
In the meantime I still have to cope with the everyday problems of being a woman in a man's world. Some of these intersect with my ASD issues due to stereotypes about gender roles, whilst others are problems faced by all women every day.
I am expected to be socially available in a way that males usually are not. People try to start conversations with me all the time even when I make it obvious that I don't want to talk. I am expected to smile all the time even at random strangers. I am expected to look pretty for the benefit of the male gaze. On all of the forums I have been on I have had to put up with utterly moronic "get back in the kitchen" type comments.
I have been groped by strangers and have had men put their hands inside my jacket to touch my breasts. I have had random men (one who was almost certainly on the spectrum) think it is OK to put their arms round me as if I was their personal property. I have had a man thrust his crotch against the back of my head (whilst I was crouching down doing something important at work) and then invite me to turn around as he had something for me.
I have had a male work colleague think that kissing me without my permission was an appropriate way to wish me a happy new year. I have had men spit at me for taking away men's work from them (I work in a job which was regarded as a male occupation for many years).
I am largely shunned by other women because I don't function in the way they do. I have had only one real friend in my fifty three years of life and only one relationship, which ended long ago.
I could go on. As I said some of these things are the result of being an autistic woman, some are just the sort of things all women have to put up with every day.
Despite outward appearances my life is frankly s**t at times. My apparent high functioning comes at a huge cost in personal resources which some days I just don't have. It's exhausting. I get through by sheer bloody mindedness (it's my only talent), only too aware that my life could go completely tits up any day.
I would love to be able to devote some of my personal resources to helping other people less fortunate than myself, but actually I don't have any resources to spare. In any case I don't have any nuggets of wisdom or advice to pass on. I can't see any answers to many of the issues people on this forum have so I don't say anything. It doesn't mean I don't care or can't sympathise, or that I feel above some other people just because I don't comment. It's just that I can't think of anything helpful to say.
This idea that autistic women have it easier is really wearing a bit thin. As I said, my life is often s**t. Sometimes that's because I am autistic, sometimes it's because I am a woman, sometimes it's a combination of both. I'm not saying that it is necessarily harder for women than it is for men. It is probably just different. But the idea that apparently high functioning women have it easier and can't relate to, or sympathise with, the problems experienced by people elsewhere on the spectrum, both male and female, is both nonsense and frankly offensive.
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Autism is not my superpower.
Honestly 'high functioning' doesn't really bother me. Yes I am married and have kids and work part time but there are other autistic people out there who seem to handle kids better than me and have gone to college and gotten a degree, make more money than me, done lot of stuff I haven't done and have easily gotten a job while it's the opposite for me, made it through school with little help and not drop out, manage to grow up in a dysfunctional environment and still turn out fine. But 'high functioning' still doesn't bother me and I apply it to myself.
There are also none autistic people out there too who also struggle in life due to an impairment they have and they still live on their own and have been married, have kids, have a job. The term high functioning can be applied to anyone of any disorder. I consider my husband high functioning even though he can't work anymore and he didn't get married until he was 34 and I was his first girlfriend ever. I've described other kids from my class room as high functioning from when I was 3-6 years old, then after that there were lot of kids in my class who were lower functioning and my parents finally got me out of that class when I was 8. I was only treated like I was slow and low functioning because of my language delay so everyone assumed I was low functioning until I was tested again. Then they discovered I was profoundly language delayed and they had been holding me back and denying me an education but then they tried to say I didn't need special ed anymore. I remember I had to catch up in my education by going to special ed for like 20 minutes a day and do first grade school work when I was in mainstream full time.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
I regret the male/female comparison, I should have researched more and not made that point.
What I am saying in this thread is I feel as someone who is dependent on the help of a social worker, and other professionals, I am embarrassed to talk about my problems here. I simply don't find many people here I relate to or who identify with what I have to say.
So many threads I posted got no replies, and it annoys me so many other people's don't either or get 1 or 2 replies.
I blame the forum design as making the problem so much worse. I've said before there are too many sub-forums. It makes the site look dead because let's say 20 topics are created in a day, only a few are in the main forum which looks too sleepy, and the ones in the sub forums only affect a niche audience. If the number of sub-forums was reduced to 10 the forum would look more sleek, be easier to navigate and topics would be more lively.
Merge TV and Games.
Merge School and Work.
Merge Random and Off the Wall.
Delete Bipolar etc. Conditions. People may as well discuss that in general.
Delete getting to know each other. It will help the site look less sleepy if introductions are posted in the general discussion.
Delete Social skills and Making friends. That is obviously something most people need help with anyway. It may as well be discussed in general discussion where it will get more replies.
Merge Adult Autism and In Depth Adult discussion.
Delete Health, fitness and sport. It is so, so quiet. People would answer more about health questions in the main discussion or the random or members discussion sub-forums.
Merge news and politics, and autism politics. All these people debating Trump on the politics forum would benefit from topics about autism, to actually focus n something we have more chance to change rather than just talking big political debates.
CockneyRebel
Veteran
Joined: 17 Jul 2004
Age: 51
Gender: Male
Posts: 121,252
Location: In my own little country
In the meantime I still have to cope with the everyday problems of being a woman in a man's world. Some of these intersect with my ASD issues due to stereotypes about gender roles, whilst others are problems faced by all women every day.
I am expected to be socially available in a way that males usually are not. People try to start conversations with me all the time even when I make it obvious that I don't want to talk. I am expected to smile all the time even at random strangers. I am expected to look pretty for the benefit of the male gaze. On all of the forums I have been on I have had to put up with utterly moronic "get back in the kitchen" type comments.
I have been groped by strangers and have had men put their hands inside my jacket to touch my breasts. I have had random men (one who was almost certainly on the spectrum) think it is OK to put their arms round me as if I was their personal property. I have had a man thrust his crotch against the back of my head (whilst I was crouching down doing something important at work) and then invite me to turn around as he had something for me.
I have had a male work colleague think that kissing me without my permission was an appropriate way to wish me a happy new year. I have had men spit at me for taking away men's work from them (I work in a job which was regarded as a male occupation for many years).
I am largely shunned by other women because I don't function in the way they do. I have had only one real friend in my fifty three years of life and only one relationship, which ended long ago.
I could go on. As I said some of these things are the result of being an autistic woman, some are just the sort of things all women have to put up with every day.
Despite outward appearances my life is frankly s**t at times. My apparent high functioning comes at a huge cost in personal resources which some days I just don't have. It's exhausting. I get through by sheer bloody mindedness (it's my only talent), only too aware that my life could go completely tits up any day.
I would love to be able to devote some of my personal resources to helping other people less fortunate than myself, but actually I don't have any resources to spare. In any case I don't have any nuggets of wisdom or advice to pass on. I can't see any answers to many of the issues people on this forum have so I don't say anything. It doesn't mean I don't care or can't sympathise, or that I feel above some other people just because I don't comment. It's just that I can't think of anything helpful to say.
This idea that autistic women have it easier is really wearing a bit thin. As I said, my life is often s**t. Sometimes that's because I am autistic, sometimes it's because I am a woman, sometimes it's a combination of both. I'm not saying that it is necessarily harder for women than it is for men. It is probably just different. But the idea that apparently high functioning women have it easier and can't relate to, or sympathise with, the problems experienced by people elsewhere on the spectrum, both male and female, is both nonsense and frankly offensive.
Thanks for your perspective.
I regret the male/female comparison, I should have researched more and not made that point.
What I am saying in this thread is I feel as someone who is dependent on the help of a social worker, and other professionals, I am embarrassed to talk about my problems here. I simply don't find many people here I relate to or who identify with what I have to say.
So many threads I posted got no replies, and it annoys me so many other people's don't either or get 1 or 2 replies.
I blame the forum design as making the problem so much worse. I've said before there are too many sub-forums. It makes the site look dead because let's say 20 topics are created in a day, only a few are in the main forum which looks too sleepy, and the ones in the sub forums only affect a niche audience. If the number of sub-forums was reduced to 10 the forum would look more sleek, be easier to navigate and topics would be more lively.
Merge TV and Games.
Merge School and Work.
Merge Random and Off the Wall.
Delete Bipolar etc. Conditions. People may as well discuss that in general.
Delete getting to know each other. It will help the site look less sleepy if introductions are posted in the general discussion.
Delete Social skills and Making friends. That is obviously something most people need help with anyway. It may as well be discussed in general discussion where it will get more replies.
Merge Adult Autism and In Depth Adult discussion.
Delete Health, fitness and sport. It is so, so quiet. People would answer more about health questions in the main discussion or the random or members discussion sub-forums.
Merge news and politics, and autism politics. All these people debating Trump on the politics forum would benefit from topics about autism, to actually focus n something we have more chance to change rather than just talking big political debates.
No one should be telling you to get a job if you are not able to (and no one knows what you are or aren't able to do but you). High Functioning in autism means having an IQ over 70. It does not mean someone functions highly in life or even adequately. In order for an adult female (I only know about females) in the UK to get a referral for an assessment she will have to prove to a doctor that she has not been functioning very well at all for a long time.
I am high functioning, I live alone, I can't work more than 16 hrs a week, my sister has cut me from her life, I have no friends (other than on WP) and I've never had a relationship.
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Petition against Amazon selling 'make downs extinct' t-shirts. And other hate speech paraphernalia.
I regret the male/female comparison, I should have researched more and not made that point.
What I am saying in this thread is I feel as someone who is dependent on the help of a social worker, and other professionals, I am embarrassed to talk about my problems here. I simply don't find many people here I relate to or who identify with what I have to say.
So many threads I posted got no replies, and it annoys me so many other people's don't either or get 1 or 2 replies.
I blame the forum design as making the problem so much worse. I've said before there are too many sub-forums. It makes the site look dead because let's say 20 topics are created in a day, only a few are in the main forum which looks too sleepy, and the ones in the sub forums only affect a niche audience. If the number of sub-forums was reduced to 10 the forum would look more sleek, be easier to navigate and topics would be more lively.
Merge TV and Games.
Merge School and Work.
Merge Random and Off the Wall.
Delete Bipolar etc. Conditions. People may as well discuss that in general.
Delete getting to know each other. It will help the site look less sleepy if introductions are posted in the general discussion.
Delete Social skills and Making friends. That is obviously something most people need help with anyway. It may as well be discussed in general discussion where it will get more replies.
Merge Adult Autism and In Depth Adult discussion.
Delete Health, fitness and sport. It is so, so quiet. People would answer more about health questions in the main discussion or the random or members discussion sub-forums.
Merge news and politics, and autism politics. All these people debating Trump on the politics forum would benefit from topics about autism, to actually focus n something we have more chance to change rather than just talking big political debates.
No one should be telling you to get a job if you are not able to (and no one knows what you are or aren't able to do but you). High Functioning in autism means having an IQ over 70. It does not mean someone functions highly in life or even adequately. In order for an adult female (I only know about females) in the UK to get a referral for an assessment she will have to prove to a doctor that she has not been functioning very well at all for a long time.
I am high functioning, I live alone, I can't work more than 16 hrs a week, my sister has cut me from her life, I have no friends (other than on WP) and I've never had a relationship.
Thanks for your input. I agree time differences are a problem. I have sometimes delayed posting a thread until late at night here in England because I know that's when the General Autism Forum finally gets more lively because Americans start coming on.
I appreciate you sticking up for me about the job issue.
Again that is why I believe it is so important to have very few sub-forums in order to keep a sense of hustle and bustle and to create a social buzz, a hive of activity. The internet runs on "atmosphere". If a forum is really quiet the atmosphere isn't conducive to people wanting to post much.
Sometimes I feel scared to post because it is so quiet. It makes people more self conscious.
saveferris reported himself and I've removed that, however, this kind of posts, which serve as a provocation, is also forbidden by the forum rules:
If some posts are regarded as sexist it's advisable to report instead of making accusatory posts.
I don't like seeing posters ignored, so I try to contribute something if I can.
This isn't always easy because I'm restricted in a lot of ways because of being on mobile.
Sometimes it's impossible to read posts properly especially if they are lengthy and detailed.
And then I feel I can only post something short before I lose what I've written by the constant freezing logging out.
So I tend to stick to known threads were people will forgive me if I look like an idiot.
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It's like I'm sleepwalking
This isn't always easy because I'm restricted in a lot of ways because of being on mobile.
Sometimes it's impossible to read posts properly especially if they are lengthy and detailed.
And then I feel I can only post something short before I lose what I've written by the constant freezing logging out.
So I tend to stick to known threads were people will forgive me if I look like an idiot.
You've done your fair share of contributing, I never thought you came across as an idiot. You are very likeable. Long posts can be an issue.
Maybe moderators should enforce paragraphs on some posters who don't use them, for their own benefit. If a post is long in particular I don't see how people are going to read it without plenty of paragraph breaks. Perhaps some members who have the patience and time to read long posts could reply with too long, didn't read synopsis replies to help other users too.
I've had social skills classes.
I experience the world differently to most people. I have fallen in love with my GP once and went to an appointment and I cried for 5 minutes while I told her how beautiful she was and how we needed to run away together to defeat the system that was conspiring against us.
At this point the social worker and NHS staff etc. Have accepted I am just not like most people.
I've had social skills classes.
I experience the world differently to most people. I have fallen in love with my GP once and went to an appointment and I cried for 5 minutes while I told her how beautiful she was and how we needed to run away together to defeat the system that was conspiring against us.
At this point the social worker and NHS staff etc. Have accepted I am just not like most people.
What made you fall in Love with her? Was it just that she was the woman most in your life?
I've had social skills classes.
I experience the world differently to most people. I have fallen in love with my GP once and went to an appointment and I cried for 5 minutes while I told her how beautiful she was and how we needed to run away together to defeat the system that was conspiring against us.
At this point the social worker and NHS staff etc. Have accepted I am just not like most people.
What made you fall in Love with her? Was it just that she was the woman most in your life?
I called a local service that said it gave counselling to people. They asked me a bunch of questions including are you depressed a lot etc?
So after I gave the answers they were concerned and called my new GP clinic. I had never even visited any doctors there. And I get this call out of the blue one day while imnout waking, feeling lonely, this beuatiful, kind, female voice asking me to come see her because I might need help.
I say to her I'm probably times don't worry. Then she calls me back 10 minutes later insisting I see her. I felt she was strangely drawn to me. Then when I meet her she is unbelievably attractive. And she is listening to what I'm saying when most people don't usually so I feel love and I have this special connection. And that is how it began and for 2-weeks I fought the feeling and had insomnia every night. In the end I had to tell her.
I have so often been invisible to women that it is sometimes overpowering when one shows an interest.
I cried the last time I went to the doctors. I was allowed to explain what was wrong with my wrist without being stopped or rushed. I was so shocked at having got to the end of my explanation that my eyes started leaking.
It's quite common to develop feelings for your doctor (not to your extent perhaps, fifasy) or nurse, that's why they are barred from reciprocating. It sounds like your doctor was nice, and while she was seeing you in a different way to how you were seeing her, at least she sounds as if she was worthy of the affection you had for her.
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climate change petition, please sign
Petition against Amazon selling 'make downs extinct' t-shirts. And other hate speech paraphernalia.
