*trainig for first responders & ER staffs - please help*

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JSBACH
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22 Jun 2019, 5:37 pm

Hey skibum,
Thanks for creating this thread. Raising awareness is always a good thing. I've been wanting to contribute for days, but I'm to tired to write an elaborated response.

I can only speak from my experience with a medical environment, since I don't have encounters with law enforcement.

Most important:
A doctor/nurse/... has to say what they are going to do, and do what they have said!


For example: when taking blood pressure, have them explain: I'm going to put this cuff around your upper arm, the cuff is going to inflate, this creates pressure and might be uncomfortable, after 5 seconds the machine is going to beep... and so on.

I always request they explain what they are doing, otherwise I get nervous.
___________
Staff can't be understanding if they don't know you're autistic. Best is to not assume anything, and just ask the patient. Although I am generally speaking not open about my diagnosis, upon asked, I always reply honestly.

When taking am MRI, I had to write a form. In a certain part I was asked "other medical conditions" I wrote ASD, aversion to loud noise. I already brought my own earplugs to the appointment, but the staff had earplugs ready and was extra patient and caring!
_____
There is nothing so assaulting than having to sit in a busy emergency waiting room with flickering tube lights, noise of other people etc. Don't take sensitivities lightly!

Last time I was waiting in a hospital before it was my turn, I was getting severely overwhelmed. I asked if I could wait somewhere else: not possible. I also couldn't put on earmuffs, because they only announced verbally whose turn it is... If I had shut down, I might still be waiting to get help because I wouldn't be able to hear my name anymore!
__________
As a last thing: be specific about waiting time! Don't say to a patient: I'll be back to you soon, say: I'll be back to you in 25 minutes!
__________

Hope this helps, skibum!
I'm way to tired to write more in a foreign language, but I hope what I have written is comprehensible. If not, let me know and I'll get back to you in the next couple of days.

All the best,
JSBACH


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Dear_one
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22 Jun 2019, 6:39 pm

I don't consider them teachable. They already do their jobs so badly, I just avoid them. If I need the police, I get an NT to back me all the way or just run. The medical bureaucrats treat my sleep disorder as a discipline problem - they can't even treat a simple fracture without causing far more damage.



IsabellaLinton
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11 Jul 2019, 9:45 am

I'm just checking in to see how your project is going, skibum. I haven't seen any new posts. Are you still looking for input?

Hugs,
Is


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skibum
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13 Jul 2019, 7:02 pm

Hey everyone. I have some updates for you. Thank you so much for your input and yes, as much input as possible is great. I will have to post more in a little while. This is been a very overwhelming time for me. That is why I have not been able to be here. Sorry about that guys. I am really struggling with just basic survival right now but hopefully I will be strong enough soon to come and post and update you on my progress. Thank you all so much for supporting this effort.


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skibum
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13 Jul 2019, 7:02 pm

Big hugs back to you Isabella


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