Aspies, does it bother you to be lumped in with autistics?
The expression "lumped in" in this context sort of makes me cringe. It's disturbing how people with classic/Kanner's autism are often referred to as inferior in one way or another; and it's doubly disturbing when it is other people on the spectrum that see them like that, in spite of being essentially the same way themselves, only to a lesser extent.
I don't see why any strict line ought to be drawn between AS and classic autism. Both are part of the autistic spectrum, and the difference between them is quantitative rather than qualitative. All the more so that some people move up the spectrum as they mature, so that, while they may have matched the profile of classic autism as children, they appear to be AS later in adulthood, and may be diagnosed with just that if their childhood records are not looked into.
People will be people; the disorder doesn't define the personality.
For example, I get "down" when I see many people above me on the spectrum who do things that are impossible for me (apart from my stupidly high IQ and my ability to type fluently, I'm LFA in all accounts); I say to myself that '...they ain't autistic, this here is autistic.'
I do the same thing, just from a different part of the spectrum (it's erroneous no matter how and where our biases are applied).
I don't go around telling people about my diagnosis for the very reasons indicated in this thread. Sometimes I am NT-like, sometimes not. But in either case, if somebody expects me to do something I have trouble with, I will either suck up and do it or I will tell them 'no, this makes me uncomfortable' I will never say "oh I am aspie, this might cause problems and blablabla". Because really, all aspies and auties are different. And the fact that I am officially diagnosed is hardly relevant to anything. NTs can have the same difficulties as me, too.
KingdomOfRats
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I don't see why any strict line ought to be drawn between AS and classic autism. Both are part of the autistic spectrum, and the difference between them is quantitative rather than qualitative. All the more so that some people move up the spectrum as they mature, so that, while they may have matched the profile of classic autism as children, they appear to be AS later in adulthood, and may be diagnosed with just that if their childhood records are not looked into.
thats exactly it.
this is what am was trying to say as well.
am do not like being "lumped in" with those who assume are superior and have about as much understanding for the autism spectrum as the cruel type of NTs discussed so often on wp,but am do not want to be seperate from them like them do from am-and others,it is good how unique with experiences of autism this forum is,it makes no difference what the label is because ASD has the triad of impairments which they all meet-people with any ASD label share the core autistic problems,if do not want to be "lumped" with autism and do not want to be anywhere near auties, should think about stopping the use of the aspergers label onself,and wait until they bring out "social dyslexia".
That's sort of what I feel , because I was probably high-functioning aspergers as a child/young adult , who had succeeded so well that I seemed like an NT ! ! ( To those who didn't know better , which was almost everybody apparently ! !!)
BUT since exploding my main coping mech of not believing in real feelings inside other people I have moved "down" (! !
So to me it's very important that they remain part of same spectrum!! !
First, I'm new to all of this. I just thought I screwed up as a child, rather than suffering from AS or any other ASD. It's only recently that I really figured out I had AS, and looking back it's painfully obvious to me. Still, no one ever tried to diagnose me with autism as a child. We may all be somewhere on the spectrum, but our locations there are all vastly different.
A great example is the concept of "Rich people." Any number of people could be on the "rich-people spectrum." However there is certainly a big difference between a guy with $5 million and, say, Bill Gates with $50 billion or whatever he's worth these days. There are some who are getting richer, and some who are losing money no doubt. There are some who invest in stocks, others who inherited tons of money and some who are just famous actors or athletes. We can call them all "Rich People" but there is an enormous difference between them. Sub-groupings like "millionaire" and "billionaire" help, and further groupings of "old money" and "new money" help as well.
So I don't mind being lumped in with other people who are on the spectrum if it's taken that way, if someone is speaking in generalizations. I.e. "People who have Autistic Spectrum Disorders are likely to have social issues." But people should be aware of the enormous variety of people who are on the spectrum, and therefore be careful to distinguish non-verbal Autistics from the almost indistinguishable-from-NT AS folk, especially when talking to people who have little knowledge of autism or AS. This way people don't get the wrong idea when you tell them "I have AS" and they look it up somewhere and see the word autism. When I told my girlfriend about the fact that I have AS, I was very careful to point out that although it is an ASD, and I am on that spectrum, that I am at a different location than a non-verbal autistic. Of course that should be painfully obvious to people, but for some reason it usually isn't.
That's pretty long, but I guess the summary is I don't mind being lumped in with autistics, because we are all on that spectrum, but I do want to make sure that people also realize the differences that are present on the spectrum.
Crystalmirror
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I don't really mind being "lumped in" with autistic people, but I do resent being "lumped in" with people who have more serious mental illnesses (i.e. schizophrenia). Don't get me wrong, I know they are people with real feelings and all, but the mental health community in my town is mainly geared toward low-functioning people with mental illnesses, people who are almost ret*d rather than just mentally ill. That is what I resent.
nominalist
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Location: Lower Rio Grande Valley of Texas (born in NYC)
That was more of a problem in the past. In the DSM-I and DSM-II, there was no separate autism category. Autism was regarded as a trait of childhood schizophrenia (if you were a child) and of schizoid personality disorder (if you were an adult).
I was a child, so I was diagnosed with childhood schizophrenia.
My old child psychiatrist (long retired), whom I still phone every now and then (just to see how he is doing), apologized to me years ago for the diagnosis. (He agrees that I have AS.) However, the diagnosis was actually correct - given the categories in use at that time.
Cheers,
Mark
When it comes to education programs there is a great difference. But I still feel the same about titles. I think it comes down to the individual & there learning abilities. It's not fair to group young children in with other children who cannot communicate well. Being a kid is confusing enough. Kids should be given a test & sorted into programs based on their abilities. They did that for me to see where I was in education when I came to the states from England. British schools are light years ahead of American schools.
I was on an autistic spectrum message board where more of the posters were from the UK. They were generally more accepting of diverse weird personalities. I asked sbout it to someone who travels to the UK often. He said, yes, the UK is more accepting but then he insulted the UK and said it's because people in the UK aren't as driven to succeed as Americans are so they don't care if weirdos run the country.
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I wouldn't mind being in a group where autistics were also discussed, however I think it would be quite pointless to have a group for social interaction that was only open to aspies and those with autism, because of the wide array of differences and chasm between severity of symptoms.
As a teacher, I've found my favorite group to work with are the autistic children. Its a shame I didn't know it would be that way when I was still in school, then I would have gotten a special ed degree. But throughout school I was hearing about all those kids with severe symptoms and thinking "I hope they are never in my classroom." Then when I started subbing they began putting me in special ed and life skills classes because they didn't have enough special ed subbs. And I loved it. From talking with the other subs I seem to be the only one who enjoys life skills (a class people almsot entirely by kids with aspergers (severe) and autism.
I talked to a teacher who said that most of the teachers hated mainstreaming autistic people and hoped that they didn't get stuck with autistic students. One teacher said that the eccentric students are more work for her but they're good sparks for her classes to think more creatively.
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My daughter needs constant care. I'm hoping that I can make life for the care givers more fun. Sometimes they get together with other care givers and other autistic people needing care and decide where they all would like to spend the day, hiking in the mountains, going to the coast, fun adventures. They've created some fun for all. They don't get paid enough though.
I'm trying to find better ways to enrich the lives of care givers.
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Even explaining AS to someone can sometimes be difficult. Not everyone exhibits the same symptoms and some are better at functioning than others.
That's why it's a SPECTRUM disorder.
Yeah, it's hard to explain it to others. I just say that people on the spectrum are hyper aware, sometimes to the point of high anxiety or panic or just too distracted. They react in various ways to that hyper awareness.
Maybe it's not a good enougn explanation in a nutshell but I can;t come up with anything else.
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