People with milder forms of autism struggle as adults

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Verdandi
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30 Mar 2012, 1:11 am

EXPECIALLY wrote:
The data that is there for people to see pertains to diagnosed Aspies. I'm pretty sure I made it clear that I was talking about sucessful Aspies who go without diagnosis in the first place.


And what are you trying to say about them?

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Everything you're saying is about you, is my point. Nobody said you didn't fail at 3 jobs and that it wasn't because you were legitimately disabled. It happens and quite frequently among diagnosed autistics.


I provided data about myself as a counterpoint to people theorizing that growing up without a diagnosis makes you more likely to be able to do all of these things.

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If I had responded to you're OP saying the data on diagnosed autistics was wrong you'd have reason to point out all of the instances where that is not the case. I responded to someone who said they didn't believe there could be large population of undiagnosed successful autistics.


Given the extremely high numbers of unemployed diagnosed autistics, it is nearly a statistical impossibility to have a large population of undiagnosed successful autistics. You may as well be looking for unicorns. This doesn't mean there isn't a population of successful autistics who are diagnosed and undiagnosed, but the likelihood of "no diagnosis" correlating to "success" strikes me as extremely low, since many of the problems that contribute to unemployment are things that are going to happen regardless of diagnosis.

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FWIW it is actually said that up to 80% of people with AS are unemployed but nothing like that was even implied in the link you quoted, not to mention the data is from one study. If "A new study had suggested" that there were a large group of successful undiagnosed autistics living among the population I doubt very seriously you would have lent any credence to it. So that is spin.


The numbers I quoted are from here: http://www.angelfire.com/amiga/aut/employment.html

As for the link I quoted, it said exactly that:

Quote:
In fact, people diagnosed with pervasive developmental disorder-not otherwise specified (PDD-NOS) are no more likely to marry or have a job than those with more disabling forms of autism, according to a Norwegian study published online in June in the Journal of Autism and Developmental Disorders.


And here is the Norwegian study referenced:

http://www.ncbi.nlm.nih.gov/pubmed/21713590

Quote:
We followed 74 children with autistic disorder (AD) and 39 children with pervasive developmental disorder not otherwise specified (PDD NOS) for 17-38 years in a record linkage study. Rates of disability pension award, marital status, criminality and mortality were compared between groups. Disability pension award was the only outcome measure that differed significantly between the AD and PDD NOS groups (89% vs. 72%, p < 0.05). The lower rate of disability pension award in the PDD NOS group was predicted by better psychosocial functioning. The lack of substantial differences in prognosis between the groups supports a dimensional description of autism spectrum disorder, in line with proposed DSM-V revision.


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And you spun me by implying that succesful people with ADHD are working at the top of major corporations by suddenly abandoning your list of criteria that makes one successful in favor of a dramatic new definition that was sure to prove me wrong :P


What the hell are you talking about? I mentioned the CEO of Jet Blue because he has ADHD. I haven't changed my definitions.

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I don't read threads all the way through that are more than 3 or 4 pages so I don't know what replies you're talking about and I'm sorry if I misinterpreted you but I did make it clear that I was talking about people with disabilities other than autism and as you keep relating every thing I say back to yourself I'm just guessing that you're taking this personally ;)


All I saw you mention was ADHD, and how your sister is "giving up on life."

Christ, you're so keen on telling me what I really mean and what I must be thinking, why don't you just have a conversation with yourself? Might be more productive for both of us.



Lonermutant
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30 Mar 2012, 1:13 am

I think the reason is that in Norway, at last, they give the AS diagnosis to a lot of kids and youth with an 70-85 IQ because it's regarded as "kinder" and "less stigmatizing" as well as a way to get more resources in school.



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30 Mar 2012, 1:18 am

auntblabby wrote:
what about all those highly successful aspie types on wall street and silicon valley/microsoft meadow? how do THEY do it? i read someplace that children who had hellish childhoods but grew up to be successful adults had one thing in common- tested IQs above 140. presumably these were NT individuals, and i don't know much more IQ brain horsepower an autist would need to compare to this, but just for the sake of a thought experiment let's put it at some level higher than 140. maybe they should've done a study just comparing those super IQ autists with a control group of NTs. just a thought.


I think that is just a stereotype. I think that it's a link between IQ and social skills.



TheSunAlsoRises
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30 Mar 2012, 1:31 am

It's clear to me, now.


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Dillogic
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30 Mar 2012, 2:17 am

I'll give that one big duh.



EXPECIALLY
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30 Mar 2012, 2:29 am


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TheSunAlsoRises
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30 Mar 2012, 2:42 am

:wink:

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EXPECIALLY
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30 Mar 2012, 2:46 am

:P


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OJani
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30 Mar 2012, 3:16 am

Verdandi wrote:
I provided data about myself as a counterpoint to people theorizing that growing up without a diagnosis makes you more likely to be able to do all of these things.

I presume you'd agree that providing data about yourself doesn't takes much away from the validity of that theory.



Verdandi
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30 Mar 2012, 3:20 am

OJani wrote:
Verdandi wrote:
I provided data about myself as a counterpoint to people theorizing that growing up without a diagnosis makes you more likely to be able to do all of these things.

I presume you'd agree that providing data about yourself doesn't takes much away from the validity of that theory.


Well, the only support for the theory was people providing data about themselves or this guy they know.

So I don't see how it has much validity.



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30 Mar 2012, 4:02 am

I read that it's actually often harder for those who get by in the early years without a diagnosis (school), and by the time they hit "adulthood" (end of high school and what that brings), there's possibly an accumulation of academic failures and definitely no provisions in place.... Enter diagnosis and...it all being too late, so enter stacking boxes or a government pension.

Taken from the Autism Foundation in my state.



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30 Mar 2012, 5:03 am

Verdandi wrote:
In the UK 12% of people diagnosed with AS and 2% of people diagnosed with autism are employed. Given the numbers of people diagnosed with each, the odds of finding an undiagnosed population that has a much higher employment rate is vanishingly low.


This says the baseline rate for employed AS people is 12%. It doesn't say much about the actual rate. We would need to wait until this current generation of children are grown up.



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30 Mar 2012, 5:29 am

They often do yeah, as they are too 'normal' to be given adequate support, yet have too many problems to function with the rest of the people in society. I feel they (we) often 'slip through the net' and people don't immediately see they (we) have such problems and therefore can or do not sympathise with us or, more importantly, help us. This is my experience anyway.

I so often wish I was way more profound so my difficulties were obvious. I know it seems harsh, but I feel if I have autism, why can't it be the kind that people will help with? It seems a particularly unfair balance for mildly autistic people, and I struggle way too much with the sorts of things the vast majority of people see as no problem at all (especially with work and finding / keeping jobs. I can't seem to be able to do it at all. Also organising all my finances is very difficult too and my parents do almost all of that for me). I really feel lost as a person sometimes.


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Last edited by rabbitears on 30 Mar 2012, 5:32 am, edited 2 times in total.

Verdandi
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30 Mar 2012, 5:31 am

fraac wrote:
This says the baseline rate for employed AS people is 12%. It doesn't say much about the actual rate. We would need to wait until this current generation of children are grown up.


We need to wait for what, precisely?

Also, your "baseline rate" and "actual rate" comments are splitting hairs. If what you have been proposing could possibly be true, it would be reflected in existing data. We wouldn't have to wait for yet another generation to grow up in order to know for sure that being autistic does not generally bode well for one's outcomes, because that information is available now, across numerous studies with empirical data. Yes, a lot of people have gone undiagnosed, but there is no particular reason to assume their life trajectories are going to be different just because they were not diagnosed. The "they were taught they couldn't do anything" explanation is bunk at best - it's grasping at straws.

If you can support yourself, that's great. More power to you. You don't have to validate that by trying to prove that a majority of autistic people are in a similar position. Odds are that they aren't, and it is much better to take a realistic stance and acknowledge that fact.



fraac
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30 Mar 2012, 5:37 am

No one said anything about the majority. The amount is unknown. We would have to wait until children being diagnosed now, or within the last ten years, are of employment age to have a good idea about the actual number. And that wouldn't necessarily say much about the actual number in the past.



Verdandi
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30 Mar 2012, 5:40 am

fraac wrote:
No one said anything about the majority. The amount is unknown. We would have to wait until children being diagnosed now, or within the last ten years, are of employment age to have a good idea about the actual number. And that wouldn't necessarily say much about the actual number in the past.


The current statistical samples are large enough that it would be deeply surprising to anyone who understands statistics and how they apply to human populations if the complete population of autistic adults was measurably better off than the currently measurable population. Which is why I said you were grasping at straws.