THIS is how I've been treating myself w/ miraculous results.

Post Reply New Topic

The only thing I don't get about the naysayers in this thread is why knock it w/o trying it in the least bit to find out for yourself? Or at least use the various diagnostic tools I've presented to see if you, too, have a case of candidiasis that's causing or amplifying your autism symptoms?

It makes absolutely no sense to me to call bs on what I've shared w/o having some basis in reality to do so, ie trying it and disproving my claims vs. just calling them bs with nothing but your own negative attitude on which to base your call.

I know I sound like a broken record, but this has literally improved every aspect of my life and by all rights it should help a tremendous number of us considering it's said that 70% of us on the spectrum are salicylate sensitive. But again, it doesn't affect me any if you're not interested in trying to improve your health and well being. I'm merely offering what has worked miraculously for me. It's your call whether you try it and see if it benefits you or not. Myself, I'll carry on doing as I'm doing and my life will continue to get better and better, and I'll get healthier and wealthier for it and be able to pursue the goals I have in life & business vs. frustratingly spin my wheels as all of these symptoms screw me over.

It just doesn't make any logical sense to call bs on something you haven't even tried. It also doesn't make any sense to me that anyone who suffers from these symptoms wouldn't be willing to try damned near anything in order to reduce or eliminate them so that they can carry on with living life. That's just my take on it.

And you can call my claims grandiose all you want, but they are in fact very very real & I have changed dramatically over the last 6 months. Many people in my life have noticed it & I still continue to improve.

^^^
Wait your turn.

I still haven't tried PX 90 yet....

...and a modicum of research online on some of your basic claims.



Said by who? [Citation Required]



Aaaaand, this is where you come off like an Amway huckster or a testimonial on one of those late night infomercials. Sorry, but that IS how you're coming across... "What have you got to lose? It might just improve your life! It did for me!"

FWIW, I'm not claiming it hasn't helped you, and it might help others. But the way you're coming across is putting others off. Personally, you're coming across exactly like the nutraceuticals pyramid marketing scam I got talked into a decade ago. The guy made similar claims to you. A couple of grand later, no difference to my life. Five years before that, I bought into the claims of a homeopath. That didn't work either. Did nothing to fix the physical issues that were ailing me at the time.

So yeah... there's nothing you're claiming here that I haven't heard someone claim before, and I've been burnt twice.

Here's the difference:

I want nothing from you. I'm not selling anything. I don't want your money.

I'm simply sharing what has worked for me in ways I'd never have imagined possible because I'd like others to get the same benefits for themselves.

See the difference? There's nothing in it for me if you do this and get happier and healthier. But there's potentially an entire new life of happiness and opportunities in it for you/whomever tries it and achieves similar results.

My point, which you seem to be missing is this:

Your motives may indeed be entirely altruistic. Between the fact that you're giving off the vibe of an Amway huckster, or a true believer, and the science doesn't appear to back up your claims (I did some actual research), I don't trust what you're saying.

Like I said, I'm not discounting that something in it worked for you, but my experience with similar claims and the vibe you're giving off, means I'm not going to try it, because I think what you've got here is a self-diagnosis + bad science + the placebo effect.

what science doesn't appear to back my claims? Feel free to share & refute anything I've said.

Self diagnosis - check - as I've been transparent about the entire time I've been on this forum.
Bad science - do tell. ???
Placebo effect - not in the slightest.

So, you've tried different things that aren't this and they didn't work for you and so that's your basis for assuming this won't work and so you won't try it.. have I got that about right? How does that make any sense whatsoever? Perhaps your symptoms haven't destroyed your life like they did mine to the point where you'd try anything to improve yourself. Maybe that's a part of it. It just seems strange to me that you'd read my story of how well this is working for me and then decide that it sounds too good to be true so there's no way you're going to try it and prove or disprove it for yourself, you'd rather just assume it won't work and continue suffering from symptoms that this could possibly alleviate for you. Very strange.

Ah, no. You're a true believer. Your anecdotal evidence will trump (in your mind) any of the links I present that refute your assertions. Then this becomes a game of link ping-pong where I refute stuff, you assert that XYZ is wrong because of "page of links", and this goes around forever.



In a nutshell, close enough.

You had the symptoms of something that may or may not have been an Autistic Spectrum Disorder. You've taken a shotgun approach to improving your health, and over a six month period it's done something that appears to have alleviated the symptoms of what may or may not be ASD. On the basis of your *experience* of this "miraculous" "cure", you assert that everyone should try a mish-mash of naturopathic remedies mixed with bits and pieces of scientific claims for something that may not even be related to ASD.

If you can't understand why, based on that, I don't want to spend six months of my life trying your miracle cure, it really doesn't matter what I say to you.

I'm happy that you're in a better place, but I've ridden this forum ride before, and I'm getting off now.

peace, out.

Leaky Gut Syndrome is a scientifically known and scientifically measurable problem. All celiacs all have leaky guts. However, those who are gluten intolerant, people who get celiac-type reactions to gluten but who do not actually have celiac disease, do not. Look up "Gliadin, zonulin and gut permeability: Effects on celiac and non-celiac intestinal mucosa and intestinal cell lines" in googlescholar and open the pdf for free access to the paper.
What I've read about when guts knowingly become leaky, like when you've got dysentery, or when you have celiac disease, it seems to me that a leaky gut is probably a favorable response to not being able to digest things in a regular, proper way, through active transport channels that exist in healthy, intestinal cells. Like your body knows you're not absorbing enough nutrients and so then decides to help fix that problem. (In fact, I theorize that this is why many celiacs experience a common phenomenon at around the 1 month mark of being gluten free, where they start to feel crappy. Because the gluten itself causes the leaky gut, absorption of necessary nutrients is more likely to happen. But since it takes time for the gut to heal once gluten free, there's a period of time when there's probably heightened malabsorption, and it's just a matter of time for the bodies stored vitamins and minerals to become depleted. This will go away once the intestines are healed enough to work properly again and the food you eat is actually being nutritive once again.)

I have not read about a systemic candida infection increasing gut permeability, although to be fair I have not looked into it either.

Last edited by cavernio on 28 Nov 2013, 4:18 pm, edited 1 time in total.

What he OP says about being able to view the small intestine is also correct. The only way that I know of to see it is by a pill-cam, and I dunno where you're from, but the Canadian medical system doesn't seem to be using them. I've had a colonoscopy and a biopsy of the very top of the small intestine for celiac disease, but unfortunately there was just no way to see how badly damaged my entire small intestine was or wasn't.

The few years before I got the blood test for celiac disease I was getting desperate to be diagnosed with something USEFUL, and I too came across the idea that a damaged gut can cause mental problems. (I feel that it's important to say that my actually intestinal problems from celiac disease were minimal, I have fewer bowel issues than my husband who doesn't have anything wrong with his.) I didn't go as gung-ho as goldfish has, because I quite frankly didn't have the discipline to try something that I didn't know would actually help. Especially not when food was one of my only pleasures in life! Anyways, I tried to get tested for parasitic infections in my digestive tract, didn't happen, so I ordered some anti-parasitic drugs online (got it off a vet site, same drug used in dogs and people in 3rd world countries) and gambled that I actually got what I ordered. They didn't seem to do anything although they made me loopy. I then tried some generic, anti-parasitic treatments and did notice something, white pieces in my stools upon taking it, that weren't there before, but maybe it just made me not digest my food or something.

In any case, had I not read about the same sort of things that goldfish had, I never would have made the connection between my gut and my mental health and other physical symptoms, like hurting hands and feet, mood swings, and hot flashes, and I never would have gotten tested for celiac disease. And while I still dislike that soooo many people act SO CERTAIN that they have candidiasis or other phenomenon that have no proper test for them, (although as mentioned, there ARE proper tests for candida) there's something to be said for trying something out to see if it works. And even more to be said when IT DOES WORK.

For anyone who doubts how serious a candida infection can be, or how serious a food intolerance can be, in terms of mental issues, all you have to do is find the droves of people who feel a million times better curing or dropping a food item. The celiac forum for instance has had stories of people who suffered from sensory distortions their whole life until stopping gluten. Nearly everyone on the forum will have a downward turn of mood if as a symptom of gluten ingestion (once they've been gluten free for awhile of course...it's not uncommon to find people like me, who, when starting out their diet, don't notice any significant difference in their symptoms.) I myself used to have explosive meltdowns, oh, weekly or so, even though I was hardly interacting with people, but not so much anymore.

As far as how goldfish is getting upset that some people are antagonistic to him, can you blame him? If YOU thought you'd found a way to help an entire forum of people, wouldn't you be more than a little upset that people think it's too difficult to try?

And the argument that 'Oh, medical science would know by now that that's the cause of x if it were that simple' is BS. It's quite plainly an appeal to authority and is in complete contrast to, well, the way I see medicine these days. Just because we now have microbiology doesn't mean we suddenly see and understand everything under our noses. Rather, people are generally vehemently adamant against the idea that things we commonly know and enjoy, like delicious foods, could possibly be causing us problems.

Importantly, while there is little positive proof of what goldfish has presented, there also isn't disproof of it either. Systemic candida infections DO exist, and they HAVE been found only fairly recently to exist in other parts of the digestive tract, like the esophagus, because people finally bothered looking there. It seems rather implausible that a candida infection WOULDN'T affect the small intestine.
Most importantly though, there's nothing to say that a developmental disorder could not have been caused by some sort of infection or food intolerance that your mother had or that you had as a developing infant. Nor is there anything that outright says that an autistic brain could not, at least in part, rewire itself properly if given a chance to. The 'fact' that the brain is hardwired is long gone, the fact is that it is plastic and can even overcome serious structural damage if conditions are right.

What goldfish is suggesting about curing autism, although implausible, is possible.

... possible, maybe - but extremely unlikely.

Without valid and relevant material evidence to support the claims, there is no reason to grant them any credibility.

Sure there is. If you're desperate for a cure for something, you'll try anything.
Most of humanity pretty much didn't rely on any sort of proper science for any sort of medical treatment for most of it's lifetime. Anecdotes are still information, yet we still managed to know that willowbark tea, aspirin, took away pain, and that snakebites helped schizophrenics (risperidon...or however it's spelled.)
Of course, we also used leeches...

Hello goldfish, I was interested by your post.

However, about half way through your post, some of the things you said rang major alarm bells with me. Apologies if these things have already been said, because I did not read page 2.

Two things in particular:

1) You mention applying a special ointment to your feet because "feet absorb salts better". This is a common claim, but it is not supported by science at all. Your skin is essentially impermeable. This is why we have a digestive system. Otherwise we'd just smother our skin in food. We excrete salts through special glands, as well as in our urine and faeces.
2) You mention "detox". Again, this is nearly always used by people who don't actually know very much about the human body, but want to pretend they do- such as the "natureopaths" and such that you consulted. "Detox" doesn't mean anything, scientifically. Our kidneys are very good at filtering out harmful substances. When you say detox, do you refer to the renal system?

Then you mentioned doctors having their education funded by the pharmaceutical industry. This, again, rang alarm bells. I have several friends training to become doctors, and I myself am in training to become a biologist (which includes education in physiology, biochemistry, and nutrition) and none of us are being funded by Big Pharma. We have to pay for our own education, and our universities rely on donations from almuni. Nobody knows what we are being lectured on, and our teachers would not fail to investigate something that could potentially win them a Nobel prize.

Most of what you said has all the hallmarks of pseudoscience, and you did not consult doctors, preferring to speak to "alternative practioners" who frequently show a total disregard for "what is real"- read up on homeopathy. This discredits your claims.

I am going to second Cavernio on Gluten issues and celiac disease causing both physical and mental symptoms.

I have a brother with celiac disease and I also had a mother with IBS but whom was never tested for Celiac Disease herself (when my brother was tested it was not routine to test the rest of the family although my mother showed classic symptoms of the disease...distended abdomen, no fat on arms and legs, digestive problems, nervous system symptoms etc). My mother and other brother also had Diabetes type 2. My dad on the other hand had symptoms of autism and may have been diagnosed as autistic as a child (unsure).

However both celiac disease and diabetes can result in mood symptoms, behavioural symptoms and physical symptoms.

I am personally trying to remove gluten again after putting it back in recently. Both gluten grains and cows dairy can result in my experiencing some or all of the following:

Bloating, abdominal pain, flatulence, pale stools (clay coloured), diarrhea, mood swings, migraines, rubber band snapping sensation under my skin, vertigo, peripheral neuropathy (numbness in finger tips/loss of sensation in fingertips), inability to tell hot from cold sensation wise, numb patches of skin, nausea, dizziness when upright, acid reflux, mood swings, brain fog, memory loss, cognitive dysfunction, blurry vision, flashing lights in front of my eyes, fatigue, muscle pain and what I call brain glitches which basically consist of short lived temporary episodes that manifest in one of 3 ways:

1 Burning rubber smell, deja vu that gives me goose bumps, a funny feeling in my stomach that rises up and washes through me along with a sensation of fear (diagnosed as panic attacks after a dr listened to my symptoms but which to my mind differ from anxiety attacks in that they were the same each time, they were self contained, lasted no more than a minute, stopped themselves and could be followed by missing time/memory loss/no consciousness of what happened next/short glitch in the time line no more than a few minutes long as though I just stepped into a time machine and moved forwards instantly).

2 A sudden inability to read...I can see the words and can speak them but its like reading German when I don't know the language. This too can be followed by a very short period of missing time or sudden diarrhea).

3 Alice in wonderland syndrome ( as I call it) where suddenly I seem taller and the furniture seems smaller. It is like I drank the wrong potion.

The brain glitches are also aggravated by certain drugs (antidepressants, codeine, alcohol etc) and lack of sleep as well as gluten consumption. They can also interfer with sleep but in the form of muscle spasms. I had huge problems with that when I quit antidepressants a few years ago. Not only was I waking at night briefly because my muscles were going into spasm before blacking out again I was waking up so confused I hardly knew who I was, covered in drool, with a bitten tongue/cheek and covered in bruises I had no idea how I ended up with....

Can still get those now around my period and also when I up gluten consumption along with an increase of coloured flashing lights in my field of vision..something that usually accompanies my brain glitches when they appear.

My migraines also come with visual disturbances, but black and white ones, not coloured blue balls of light in my peripheral vision.

Oh and I also twitch after gluten consumption as well...ie eyelid, face, fingers, hand...(can cause me to drop things).

it is like my nervous system goes awol when I consume gluten.

Dairy mostly just makes me fart and causes my abdomen to bloat along with giving me soft stools if I eat too much of it. I get on better with goats dairy than cows.

I took gluten, cows dairy (excluding my ice cream on saturdays), and processed foods out and my physical symptoms have pretty much gone away..or go away if I don't slide and end up eating sandwiches for lunch again. Yet at one point I was so ill I could hardly get out of bed.

It took nearly 2 years for most of those symptoms to reverse though and the neurological ones have taken longer.

My sleep is only just returning to normal after years of insomnia. At one point I could only sleep for 2 hours a night, now I am up to 7 to 8. Not bad for me.

Oh and there are studies to show that a gluten free diet has benefited some schizophrenics!! !! In some schizophrenics their symptoms bascially went into remission when gluten was removed from their diet. I researched this for some years on and off due to the presence of Celiac disease in my family.

Last edited by bumble on 28 Nov 2013, 6:01 pm, edited 1 time in total.

Also you repeatedly called "GMOs" "poison". This is unhelpful.

Firstly, GMOs are not one thing. The statement "animals eat meat" is not particularly useful, because not all animals eat meat. You should qualify your statement. Ideally, you should specify- "maize with gene c1gn4 (made up) produces a protein which can cause an allergic response in people with nut allergies" is useful information. "Some GMOs have pesticide resistance, which allows farmers to spray large amounts of pesticide, which has been shown to cause condition X" is also a useful statement.

Secondly, it is nearly always wrong.
Here are some review articles on the safety of GMOs:
http://www.geneticliteracyproject.org/w ... -20131.pdf
and a popular account of that article: http://www.realclearscience.com/blog/20 ... afety.html

and here is a cool infographic: http://www.geneticliteracyproject.org/w ... d-GMOs.pdf

I have to say that I think the approach goldfish has used is overly complicated and probably impractical for most people to maintain. I also won't claim it cures autism but elements of his diet may well have beneficial effects that are more than just palcebo effect.

I have had staggering improvements in physical symptoms that were making me so sick that I was pretty much unable to get out of bed for 2 years, let alone go out every day. I kept telling my drs I felt horribly ill and they just kept blaming depression or anxiety. Eventually, sick and tired of odd symptoms such as numb patches of skin, inability to stay upright, migraines, fatigues, muscle spasms, brain glitches, abdominal bloating, diarrhea, pale stools etc I decided to try a dietary approach to see if it would help, especially as I have celiac disease in my family and it can cause many of those symptoms.

I basically went over to my own version of the paleo diet...no fancy supplements in my diet plan, I just removed processed foods, artificial sweeteners, medications, MSG, gluten grains, cows dairy etc.

Basically I ate/eat meat, fish, nuts, seeds, veg, eggs, fruit all cooked fresh from the meat and veg aisle and not form a cardboard box down the frozen section of the supermarket. If possible I buy from local farmers or butchers instead of Sainsbury. I also quite smoking, stopped all medications and tend to avoid alcohol (I never used any kind of recreational drugs so did not need to remove those). I limit caffeine.

It has worked wonders and in the last few months I have not only been able to get out of bed but I have been out most days of the week and have managed to regularly attend the gym and swim.

i still get issues with my menses but if you are male this should not affect you lol

I did do trial runs where i took things out and put them back in again to monitor my reaction and know from 5 plus attempts to reintroduce gluten that it gives me problems. Also removing the things I did resulted in symptoms disappearing that I was never expecting to disappear such as palpitations, wheezing etc. I thought these were anxiety symptoms myself...apparently not as I still get stressed but no longer experience such things (as long as i stay off gluten). I was expecting it to clear most of my digestive issues but not things like twitches, shortness of breath etc.

I can't speak as to the potions and lotions goldfish used but I wouldn't rule out the power to diet to make significant difference to a person's mental, emotional and physical health.

And ok the improvement in wheezing might have been from quitting smoking but I doubt it was that alone. The last time I quit smoking for a year and half but continued to consume gluten etc I never had such a dramatic improvement in my wheezing attacks (wheezing was not constant...it came and went..along with a bad cough and difficulty breathing...also diagnosed as panic attacks by drs). Although when I was younger before i got my psychiatric diagnosis two drs said it was asthma and gave me an inhaler.

*shrugs*

drs diagnose everything as psychiatric. I once had a sinus infection for two years due to an allergy to duck feathers that gave me rhinitis and lead to chronic infection. it also gave me splitting headaches. For all that time my drs insisted it was psychiatric and even called me a hypochondriac. After pushing for all that time I finally got a referral to an ENT. He pushed a probe up my nose, a load of pus shot down, he sat back quickly and said "oh you have an infection"

Well no s**t sherlock I thought (id been trying to tell them for 24 months that my sinuses were infected...i could not breath through my nose for crying out loud and my dr prior to that had refused to examine me).

They pencilled me in for surgery, found the allergy and voila...problem solved.

Well I still get some minor rhinitis but it no longer gets infected, i just keep getting a runny nose. But it's not as bad as it used to be.