The reason the notion of autism spectrum should be offensive
Yes, I'm actually better functioning than my NT co-workers.
Which makes it real easy to fit in, but I also recognize that what works for the low functioning also works for higher functioning autistics. Though there is also the issue of access. If you are wealthy you can just buy adaptations typically not available to those lower on the spectrum, like a well maintained car with keyless door locks. And you can afford housing with fewer triggers than most.
I am also doing better than other NTs out there too and better than my NT cousins and Bipolar cousin.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
Yes, I can cross the street in a way that *my mom* thinks is unsafe (not waiting for green light, or not waiting for some distant cars to pass) but that has nothing to do with being fixated on my thoughts and a lot more to do with the fact I see how fast the cars move, I know how fast I run, and I am completely confident I can run across the street before those cars get even close, so why wait if I don't have to? My mom tells me "what if the driver gets disracted and forgets to slow down", but what she doesn't get is that I never expect the driver to slow down, I am basically assuming the driver will drive at the exact same speed they are already driving, and, given that speed, I can safely cross the street before they get there. Now, the fact that I actually *run* across the street should tell you that I am not being totally disracted the way you described: if I were so disracted, how come I remember to run?! And also: if I have even slightest doubt the cars are too close or moving too fast, I would wait till they pass (I remember times when I was waiting for quite a while while crossing the freeway for example). Once again, my mom probably doesn't know it, she thinks I do things exact same way in all situations since thats the stereotype of Asperger. Well, not true. I run across the street only when cars are driving slow enough and are far enough away. I know exactly what I am doing, I am just doing it my own way, not my mom's way.
NTs do this all the time too. I see it all the time in my city. Just watch for traffic and if you know you have enough time to cross, do it. It's also legal too just as long as you don't stop traffic. It just sounds like your mom uses your diagnoses against you than seeing you as a person so I think that contributes to your opinion here about the whole ASD thing.
Now, those meltdowns don't put me in danger. Notice how I said I choose whom to send the message to? I wouldn't send it to someone who would get me in trouble.
That is why it's a spectrum. Everyone's meltdowns are different. Some just curse and swear when they have one, mine are crying and screaming and yelling and I don't run out in traffic either.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
Her name came from the fact that there were many rats in some institutions she was forced to stay in.
Why "king" rather than "queen"? Did she have gender dysphoria?
Because they are interested in the topic.
As long as forum rules are not being broken I have no idea why diagnostic classifications of autism is an inappropriate topic in an autism forum.
I know that, but it's one of those topics where everybody has a different opinion and then arguments happen and then rules end up getting broken.
I think this would fall under disability politics is why.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
I haven't heard of that research, but the relation between autism and OCD sounds quite likely just from pure behaviorist point of view. I would associate OCD with Asperger specifically rather than autism spectrum at large, since it doesn't have speech delays. I would also suspect the same might be true with OCPD (not to be confused with OCD: OCPD is a personality disorder -- which is what letter P stands for -- while OCD is an anxiety disorder).
Not anymore. They made OCD its own category now. It's no longer an anxiety disorder is why because they found out their anxiety is caused by OCD, not the other way around. Like how autism can cause anxiety but it's not an anxiety disorder.
Thats quite interesting. Is there a general tendency in DSM 5 to prefer single-entity categories? It seems the case with autism and OCD, but I don't know about the rest of the DSM 5: I only studied DSM back in the 90-s when it was DSM 4.
Her name came from the fact that there were many rats in some institutions she was forced to stay in.
Why "king" rather than "queen"? Did she have gender dysphoria?
Her user name was actually KingdomOfRats.
I haven't heard of that research, but the relation between autism and OCD sounds quite likely just from pure behaviorist point of view. I would associate OCD with Asperger specifically rather than autism spectrum at large, since it doesn't have speech delays. I would also suspect the same might be true with OCPD (not to be confused with OCD: OCPD is a personality disorder -- which is what letter P stands for -- while OCD is an anxiety disorder).
Not anymore. They made OCD its own category now. It's no longer an anxiety disorder is why because they found out their anxiety is caused by OCD, not the other way around. Like how autism can cause anxiety but it's not an anxiety disorder.
Thats quite interesting. Is there a general tendency in DSM 5 to prefer single-entity categories? It seems the case with autism and OCD, but I don't know about the rest of the DSM 5: I only studied DSM back in the 90-s when it was DSM 4.
I read it in a book about OCD called "The Man Who Couldn't Stop" and David Ward said it was changed in the DSM-5. I haven't looked at it. Plus I recall reading about it somewhere online too. They have discovered different forms of OCD like hoarding disorder.
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Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.
Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.
Things like rainman not understanding the concept of money or the world around him not necessarily indicate a lack of intelligence but a lack of experience. If he taken into hospital at a young age and never had to do his own shopping, then how would he know about money? He doesn't understand the world because he has not been part of the world and no-one has taught him. Most of what he has learned has been from TV.
First of all, its just a theory, it wasn't actually proven that isolation is a sole reason.
Secondly, if this theory is right, why don't the doctors simply teach autistics everything they need to be taught hereby convert ALL of low functioning into high functioning. Since this doesn't work, it seems to imply that there is more going on than simple lack of information.
It's harder to teach adults than it is to teach a child. That is why we do early intervention. Back in those days, kids with disabilities didn't have that right because people believed they were doomed for life and will always be that way and they can't evolve. People still thought that way even in the 1980's because my parents were being told I would never learn to talk or take care of myself and I would always need someone to take care of me and I would be in a institution. My in laws were told the same about my husband in the 1970's but they refused to believe it. Rain Man wasn't given that chance as a little boy.
I was first officially diagnosed in 1995 (with Asperger), but I had a question mark diagnosis back in 1985 (autism question mark) and was given play therapy back then. So from the fact that they gave me play therapy it seem to imply they did believe I could be taught -- although the group that was doing it was very rare, outside of that group the diagnosis was unheard of.
But could it be that the belief that autistics are unteachable affected me in a different way -- namely, my parents were oversheltering? So I started school in 1987, and then, in the early 1990-s, they were taking us to backpacking trips, all kids went by themselves, I always went with my parents. Also, in the 1998-2001, I did my college undergrad, and I went close to home. I left home for grad school in 2001, and my mom was against it, but she couldn't stop me. Thats when my social problems started. So maybe oversheltering envirenment as a child has made things worse for me as an adult.
I actually mentioned it to my mom a few months ago, but she didn't agree with me. She still doesn't think she did anything wrong when it comes to being over-protective.
I haven't heard of that research, but the relation between autism and OCD sounds quite likely just from pure behaviorist point of view. I would associate OCD with Asperger specifically rather than autism spectrum at large, since it doesn't have speech delays. I would also suspect the same might be true with OCPD (not to be confused with OCD: OCPD is a personality disorder -- which is what letter P stands for -- while OCD is an anxiety disorder).
Not anymore. They made OCD its own category now. It's no longer an anxiety disorder is why because they found out their anxiety is caused by OCD, not the other way around. Like how autism can cause anxiety but it's not an anxiety disorder.
Thats quite interesting. Is there a general tendency in DSM 5 to prefer single-entity categories? It seems the case with autism and OCD, but I don't know about the rest of the DSM 5: I only studied DSM back in the 90-s when it was DSM 4.
I read it in a book about OCD called "The Man Who Couldn't Stop" and David Ward said it was changed in the DSM-5. I haven't looked at it. Plus I recall reading about it somewhere online too. They have discovered different forms of OCD like hoarding disorder.
Its interesting you mentioned hoarding is a form of OCD. Back in the DSM 4, hoarding was one of the symptoms of OCPD. So its kind of interesting you say its OCD rather than OCPD, I was always intrigued by the relation between those two disorders.
But, in any case, the correlation between hoarding and OCPD under DSM 4 wasn't great. The DSM 4 criteria for OCPD had total of 8 symptoms and hoarding was just one of them. You need to have 4 out of 8 for a diagnosis of OCPD. So its easily possible for the hoarder not to have OCPD diagnosis if hoarding is the only thing they do, and its also possible to get OCPD diagnosis without hoarding by having the other symptoms.
I was kind of wondering why people kept talking about hoarding being a disorder if it wasn't actually found in DSM 4. I was sort of thinking: were they really thinking about OCPD, or were they talking about a disorder they were thinking of inventing that wasn't invented yet? Interesting to know that in DSM 5 its actually is there.
By the way, I am a hoarder.
KoC also wrote: "have been diagnosed with learning disability [UK definition of intelectual disability]". So in that case intellectual disability used in that way may not have meant IQ under 70 the way it does in the US I guess. I would probably have a similar diagnosis in the UK if that's how it works. Academically I range from above average to below average depending on what I'm being tested on. In math especially I test below average. Reading and writing is above average. Or was as I've probably caught up to that level age wise.
Under the DSM 4, "mental retardation" and "learning disorder" are two separate entities and, in fact, in order to be diagnosed with learning disorder the mental retardation has to be ruled out. I haven't seen DSM 5, but I do know that "intellectual disability" is an equivalent to "mental retardation", so if DSM 5 retained learning disability then "intellectual disability" and "learning disability" would be two separate entities.
In UK they use ICD 10, no? So are you saying ICD 10 lumps those two things together?
KOR stated that she was, at one time, diagnosed with "severe learning disability" (the same as the US's "intellectual disability," but that she was reassessed and diagnosed with "mild learning disability."
This happened with Ezra, too. He was "Severe" when younger, but is now "moderate-severe," Level 2.
Yes I have those questions too. I mean, you were the one who told me you are like rainman. So those questions naturally arize as a result of you telling me that.
I was using your rainman analogy as I understood it. Like doesn't mean identical. Similar but different.
Those differences are big enough for you not to be considered "similar". Thats the point I was trying to make.
But you seem to be aware of your problems. So then why would you need a supervision? You mentioned you would wonder across the street in front of a car. But, the fact that you mentioned that, implies that you know this is something you shouldn't do. But if you know you shouldn't do it, why would you do it? Also, what would have happened if you are left in the house alone? There are no cars in the house. So what would you be doing? And if you know its bad to do, why would you do it?
Some descriptions I give of myself are from what I have been told about myself rather than from self awareness.
Others might have misunderstood you. As in, maybe you were doing those things just fine, you were simply doing them on your own way, and since it looked so unusual to others, they thought you didn't know what you were doing, which was a misunderstanding on their part.
You mean food or what? Are you not able to find it by yourself?
What kind of accident would you have while you are at home? Were you having a lot of those accidents, or were NT-s just worried that you might?
As far as I'm concerned you probably shouldn't.
So then you agree with me that autism spectrum should be split up into several entries?
That might also imply that when others are telling you that you can't manage on your own they are wrong because they judge you by your outside appearance which doesn't match your actual skills.
If you re-read my original post, you will find that is exactly what I been saying. But I view it as a problem. I mean, if you say that social skills is a prime symptome and mental retardation is a secondary while you are talking about profoundly ret*d kid, what you are implying is that having social skills problems is even worse than being profoundly ret*d. Well, thats what I am against.
Now, what I am proposing is replacing the diagnosis "autism with intellectual impairment" with a diagnosis "intellectual impairment with autistic features". Change the accents, thats what I am trying to say.
Here is an analogy that would illustrate this point. I don't know about DSM 5, but as far as DSM 4 is concerned, there is a diagnosis "bipolar disorder with psychotic features" and also "schizoaffective disorder". The former is mostly bipolar and a little bit of psychosis, the latter is mostly psychosis and a little bit of bipolar. Hence, they are classified in the separate sections: the former is classified with mood disorders, the latter with psychotic disorders. Now, its entirely possible that those two disorders are part of the same spectrum: after all, they both include both mood and psychotic component, the only issue is how much of which. But that didn't stop them from being classified separately. I propose to do the same thing with autism.
In other words, what I am saying is this. There is an autism spectrum ("requiring minimal support", "requiring moderate support", "requring extensive support") and there is a mental retardation spectrum ("mild", "moderate", "severe", "profound"). So, since we have both spectrums, we have a choice to make in terms of where to classify the people that are both autistic and ret*d: should they be classified on the autism spectrum or on the mental retardation spectrum? Currently they are classified on autism spectrum as "autism with intellectual impairment"; I am proposing to re-classify them into the mental retardation spectrum as "mental retardation with autistic features".
You missed the context of where pain was mentioned. Basically, you brought up cancer analogy and said that cancer can also range from its mild forms to people screaming in pain, yet it is all cancer. In other words, pain in case of cancer is analogous to mental retardation in case of autism. In other words, I weren't talking about literal pain in case of autism, I was only focusing in this analogy.
In any case, what I was trying to say is that, in case of cancer, pain is a consequence of cancer; but, in case of low functioning autism, the mental retardation is *not* a consequence of bad social skills. Thats why, for cancer, it makes sense to make cancer a primary diagnosis, but in case of low functioning autistics it doesn't make sense to talk about bad social skills as primary feature.
As mentioned above “severe” autism does not automatically mean mental retardation. There is nothing in the manuals I know of preventing clinicions from diagnosing somebody as intellectually disabled with autistic features. I know of a person whose diagnosis is depression with autistic features. As I said earlier it is a matter of clinicions not applying the manuals correctly. Automatically diagnosing the intellectually disabled as autistic is not the fault of the current labling system. Automatically lableing a bright kid with social issues as ASD is not the fault of the current lableing system. We can and should rename some labels but mislableing and misdiagnosing will always go on. The severe autism as retardation idea comes from functioning labels which is defined by intellectual impairment. The proffessionals are moving away from functioning labels because it bieng realized the intelligence and severity issues are not same.
In this case, said "misuse" appears quite widespread, given the number of severely ret*d people diagnosed as primarily autistic.
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