How is Asperger a Disability or a Disorder?
[And for the curious, how did you find it?[/quote]
I couldn't put words together until I was 4, and wasn't comfortable talking until I was in my late 20's. I have always had extreme tactile sensitivity. I can't stand to touch most surfaces. If someone forced me to rub my hand on the carpet more than a few times I would probably want to bang my head against the wall (fortunately that's never happened). I was born very fragile and particularly verbally abused during my middle school years. I was 5' 10" in eighth grade and weighed 120 pounds. I did find that I had access to alot of nervous energy that enabled me to challenge and defeat the big guys in arm wrestling. I was never physically abused. I took the verbal abuse as a reality that if I didn't find a way to change whatever was wrong with me, I was never going to make it in life.
I started an exercise and tennis obsession and gained some level of confidence in high school, but still couldn't figure the social stuff out. I was also obsessed with going to the beach. The environment there had a wonderful calming effect on my nerves. At this time in my life I craved light and spent as much time as possible outside. I usually had a remarkable ability to laser focus in school or work and could remember almost everything as long as I took notes that no one could read except me. When I got home I could hardly muster the focus to do homework or read any of the school books. I was lucky tests back in those days mostly consisted of multiple choice questions. I had a very difficult time organizing my thoughts to write or present any kind of oral presentation. My classroom memory served me well enough that I was usually at the top of my class.
My purpose from elementary school through high school was to learn to be normal and find a girl friend. I never got a steady one. People let me know I was odd but it was much better than middle school. Back in those days, we were commonly referred to as nerds. There were not many that I could identify; probably about 5 out of a class of 380. I never met a person with tactile sensory issues until I was 45 years old. I had no idea why I had it and nobody could tell me why until Google came along. My sister has Aspergers. She has always had anxiety issues but was not born with any sensory issues. I had a supportive family and dreamed of a good future.
I went to the local college found a steady girl friend and things went great for about a year. I lost the girlfriend and had a hard time accepting the change. Most of the folks at the local college were the people I went to high school so I still felt connected and survived.
From there I went to a larger University, lost my connections with the people I knew, and the structure I was familiar with. I felt lost and totally disconnected from the world. From the time I was 16 on through college I worked a night job as a janitor in buildings after working hours.so there were no connections there. I went on to develop some strange problems with my energy level; hard to walk up hills, etc. This is when I really started feeling defective and didn't feel like I deserved to be here.
I was determined to feel better. I started running in the heat of the day and one day the feeling just went away and I gained a feeling of energy and optimism fueled by my regained health. I focused on school, exercise; got the confidence, along with a few beers, to go to bars, mainly watching girls, eventually meeting a few girls. I finished college with 3 degrees: anthropology, health, and social sciences interdisciplinary. (thought I could learn about social stuff; can't learn it through books).
I had no idea what I was going to do next. I managed to get a job at a Military Bowling Center. A menial job, but a great place to learn about people that had plenty of routine and structure. I didn't make alot of money, but it was a government job with good benefits. It took a few years, but after studying and interacting with thousands of people I finally felt fully comfortable in the world.
I found a wonderful wife (customer where I worked) with a tremendous amount of common sense that has kept me grounded and put up with my quirks for 20 years. I eventually became manager of the Bowling Center, a Community Activities Director for the base, and finally, Athletic Director of the Base. I found supervising people difficult, and would not of done it, if given a choice.
Computers came along and I was highly valued for my computer skills, loyalty, and honesty. I had no interest in Bowling as a sport, Community Activities, or Team Sports in Athletics, but had an intense focus to learn the role I was expected to play. I continued to exercise and try to get out in nature as much as possible to deal with the daily adrenaline release required to play roles I was not suited to play.
I started to have sensory problems with my sight and hearing. Eventually it got to the point where I could not bear light or sound. I had to go on sick leave, and got diagnosed on the Autism Spectrum. I think the aging process and almost constant overstimulation from adrenaline release damaged my nerves and moved me down on the Spectrum; I can certainly say that the sensory issues with sight and sound are much worse than the touch issues.
The eighteen years I spent at the Bowling Center were like heaven for me. Especially, when I was in a non-supervisory position. The social skills I gained made me feel connected to the whole world. The pay wasn't great but it was a place where I could learn to love people,and finally feel comfortable in my own skin.
I just think as I got older, I found it somewhat easier to socialize and I was initially diagnosed with classical autism when I was a toddler but I started talking when I was 3 or 4. I was mainstreamed at school in the 2nd grade. School has been hell for me and I was rediagnosed as HFA in 10th grade. Now, I'm just a semester or two away from finishing a bachelor's in MIS. IMO, I've done much better in 7 years of college than I have in 12 years of public primary/secondary education. My biggest struggle has been socialization but I'm doing better in that department as I got older but I still I'm missing out by not ever having a girlfriend and being a virgin at 25. Despite my aloofness, I crave social interactions. I don't have the extreme fixation on special interests or being in my own world. I don't have the sensory or spatial issues some people have here, well I hate roughness and screeching sounds.
I've overcome some great odds against me. Now my biggest odds is are I ever have more than a handful of friends, will I ever find that special someone and eventually get married, and will I find a meaningful means of employment?
If Asperger's syndrome was not a disorder it would never have been added to the autistic spectrum. You wouldn't have a name to describe your traits.
It's a disorder because some people can be impaired by it and have difficulty in their life that they need the diagnoses for some extra support.
_________________
My band photography blog - http://lostthroughthelens.wordpress.com/
My personal blog - http://helptheywantmetosocialise.wordpress.com/
Exactly.
Sometimes, the people who says "AS is not a disabilitie nor a disease, it is a difference" seems to forget that this was the status quo pre-1994 (and probably even IS, because probably the majority of Aspies are undiagnosed) - people with AS were "simply" considered "weird" or "eccentric".
And, attending to the number of threads/posts in this forum about undiagnosed aspies struggling to get a diagnosis, this was not a very good situation for them.
This is my 1st post here, so be gentle.
I'm having trouble understanding why Asperger is being called a Disability or a Disorder. Asperger seems to be a boon.
4 days ago, a friend of mine sent me an online Asperger test. I got 40 out 50. I was initially a bit surprised it was that high. But not that surprised. I remember reading a discussion on human genetics where someone referenced an article on Wired that claimed that most the engineers and their children in Silicon Valley had Asperger. (So I was already aware of the notion of aptitudes for engineering, mathematics, and science being associated with Asperger.)
After that I started reading about Aspies, and was surprised just how closely it seems to describe me.
I also took the rdos test, which gave me a nice little graph.
After taking these tests, I actually started wondering if the test was like a horoscope. I.e., when you read a horoscope, even one that's not for your sign, it is written in such a way that it always seems to apply to you... I wondered if these Aspie tests were the same as horoscopes, in that if anyone who took them came out as Aspies.
I sent the test to some friends (who are NOT engineers, mathematicians, or scientists) and they all scored very strongly as Neurotypicals. So, that suggested to me there could be something to the test.
I've been reading and reading about Asperger, since 4 days ago. Reading threads in this forum. Reading articles on the Internet. For example....
I've seen the Neanderthal theory. Based on what I got out of reading about that theory, there is not enough evidence to convince me. Which doesn't make it false. It just means there isn't enough evidence. To me it seems that it may be a romanticism. Or perhaps an attempt to create a mythology. I think it's a nice story that people would like to be true. But until there's "enough" evidence, I'll remain skeptical.
I've also seen the extreme male brain theory. It's interesting. But I need to read more about it, before I'll have an opinion.
But getting back to the online test. I was actually surprised by some of the questions. Surprised because they seemed to be asking about things that seemed so "unique" to me.
From my reading of Aspies I get the impression that the vast majority of people in the Asperger range have high IQs. I get the impression that many have unique abilities, even for intelligent people. (Like being very good at counting. Or being more rational than most.)
If my impression is correct -- if Asperger is associated with higher intelligence -- then how can it be called a Disability or a Disorder?
Am I missing something?
Asperger's is a disorder to the extent that it produces a serious social dysfunction. We have to live in society in a reasonably smooth and workable manner. Any condition or state which prevents that can be considered a disorder.
ruveyn
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