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AspieUtah
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29 Apr 2016, 7:26 am

ASPartOfMe wrote:
...I believe the perception of mass trendiness is much more real and harmful then the reality of it. Self diagnosers at seem to often fight back against the accusations which makes sense as a person who self diagnosed would tend to be more of a go getter type. But it should be noted users temporally or permently left WP during the Sienfeld bruhaha. There always people coming on asking if they are autistic. In the last few years the question is often immediately followed up by a defensive caveat. Why is this even neccasary? This makes me wonder how many people are intimidated from even asking. Much more then trendy fakers asking the question I believe. It is nice to say one should not be worried about what others think don't let a few people get to you. Autistics are often negative thinkers and go into negative loops where they think the worst scenariois are reality. How many REAL AUTISTICS reading this constantly who could have been helped are bieng sent back into thier I am forever broken mentality because if charactor flaws not autism, and view thier wondering if they are autistic as another example of why they are a bad person.

Well written! It seems, then, that the self-identification question will always linger at least until there is a definitive genetic test for autism (unlikely considering the ranges of characteristics, comorbids and severities). I accept the reality of the lingering question, but I wonder why a little research by the question's proponents doesn't inform them that it is a honeypot of impossible-to-answer ramifications ... not least of which is the emotional harm it causes to autists, diagnosed and self-identified.


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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


RinpocheMacGuffin
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29 Apr 2016, 7:50 am

I have & will continue to use the term 'Aspie' to describe myself, in public. Not like a badge of honour, but sometimes as a course of explanation but usually in the context of needing it as a short cut to help others understand. For example, living in a small place, it doesn't take long for people to figure out you have a different way about you & sometimes those ways have lead to what they see as bizarre behavior. Often the easiest way to inform them is the use of a well recognized ASD term. Once informed I have found they are more adaptive & understanding, the result becomes a smoother integration across the community.
Before my neighbors knew me & saw cops outside on 3 occasions, various medical staff in & out, the talk around town was terrible guess work that resulted in fantasy scenarios made up about what was going on, who I was, & further ostracization & discrimination. Through using my Aspie/ASD label I was able to increase their awareness, & put them back in reality. They now look out for me rather than avoid me. I'm indifferent to the term, but if life is a toolbox, it's a tool that should be used, not over used or used to justify bad behavior, but to enlighten people around you swiftly. In a world without the need for labeling everything, where people just coexisted side by side we wouldn't have to use our diagnosis to subdue inherently random speculation from onlookers. We are so much more than our diagnosis & cooler & more complex than our tags. If NT's want to tag themselves because it's trendy...I'll take that as a compliment. They just want to be part of a superior race. :P


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AspieUtah
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29 Apr 2016, 7:53 am

RinpocheMacGuffin wrote:
I have & will continue to use the term 'Aspie' to describe myself, in public. Not like a badge of honour, but sometimes as a course of explanation but usually in the context of needing it as a short cut to help others understand. For example, living in a small place, it doesn't take long for people to figure out you have a different way about you & sometimes those ways have lead to what they see as bizarre behavior. Often the easiest way to inform them is the use of a well recognized ASD term. Once informed I have found they are more adaptive & understanding, the result becomes a smoother integration across the community.
Before my neighbors knew me & saw cops outside on 3 occasions, various medical staff in & out, the talk around town was terrible guess work that resulted in fantasy scenarios made up about what was going on, who I was, & further ostracization & discrimination. Through using my Aspie/ASD label I was able to increase their awareness, & put them back in reality. They now look out for me rather than avoid me. I'm indifferent to the term, but if life is a toolbox, it's a tool that should be used, not over used or used to justify bad behavior, but to enlighten people around you swiftly. In a world without the need for labeling everything, where people just coexisted side by side we wouldn't have to use our diagnosis to subdue inherently random speculation from onlookers. We are so much more than our diagnosis & cooler & more complex than our tags. If NT's want to tag themselves because it's trendy...I'll take that as a compliment. They just want to be part of a superior race. :P

Brilliant!


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Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


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29 Apr 2016, 11:08 am

I like the term Aspie because sometimes when my speech is impaired it's just easier for me to say. Pure and simple, no complicated attachments to the word whatsoever. But since the DSM removed the Asperger's diagnosis I tend to just say Autism or Autistic or ASD now to describe myself just because my diagnosis says that since I was diagnosed after the official removal of the word "Asperger's". But to me it's just a word like any of the other words. I can't decide for others what it means to them and I can't stress worrying about what it means to them. I still use the word ret*d but never as a derogatory statement, never to put anyone down but only to mean what it actually, clinically means. I use it for myself as well to describe my emotional and mental capacities. People will decide whatever they want a word to mean and that is their choice, but as long as they understand what I mean when I say it, that is all that matters to me.


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29 Apr 2016, 11:41 am

Huge numbers of neurotypical youth thinks it's "cool" to be thought of as having a condition called "aspergers"?

I find that hard to believe.

And even if that were true the claim that that would somehow hurt real autistics is also hard for me to believe.

You will have to massively back up both claims for me to even begin to take this subject seriously.



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29 Apr 2016, 4:32 pm

Apple_in_my_Eye wrote:
ASPartOfMe wrote:
spinelli wrote:
Yup. I just see and hear so many people doing as you said. I still think it's thought of as a cool trend. Those that are truly affected by autism aren't too interested by much of the "aspie" craze.

It appears to be an attention seeking device and excuse for bad behavior as you suggested. Perhaps they are NTs that just didn't make the popular crowd or sociopaths. I also hear women self dxing their husbands as "aspie" merely because they are more introverted or controlling.

Yes there are people that want an ASD label. Why?


I said those were stereotypes. Stereotyping is assuming without evidence most or all members of a group have certain characteristics. In bieng on this site since 2013 and reading numourous comment sections since that time while I have seen Aspie supremacists and excuse makers most use the label as an explanation, or to for the first time in thier life to find out there are others like them and to find out they are not inherantly charactor flawed. That the was the original intent of the people who coined and publicized the term. That the bad characteristics of some self identifying aspies have been used to successfully tarnish an entire group of people not with one but with numourous sometimes contradictory stereotypes has been a very harmful thing.

Arguments that Aspergers was never real, just Autism, or that in the wake of revelations in the book "In a Different Key" Hans Asperger was not a person a condition should be named after, never mind identified with are valid. Stereotyping a group of people is never right.


Please, are mentally ret*d people treated poorly because of the self identified people making them look bad? Are all forms of mental illness stigmatized because high-schoolers think it's cool to be bipolar?

Humans always marginalize minority groups no matter what anyone in the group (real or not) does. All that crap would get said even if every aspie (real or not) was a saint.

Also amusing is how people use themselves as the absolute point of reference for others' "realness." I've been seeing that since 1994 which tells me it really doesn't have anything to do with history.


Minority groups are stigmatized and others are accused of not bieng pure enough, light skinned are not really black, bi-sexuals are not really lesbian(sexuality is usually self identified and there was a lesbian chic thing a few years back). I have read three books and articles by reporters who have covered rights movements who claim the level of disagreement and invective within the Autistic " community' is unique. Outsiders do a lot of damage. We are doing a great job of completing thier work.


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29 Apr 2016, 4:46 pm

Amiri Baraka, who used to be known as LeRoi Jones, all of a sudden embraced the Black Power Movement.

As a result, he left his white wife. He is black.



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29 Apr 2016, 5:04 pm

kraftiekortie wrote:
Amiri Baraka, who used to be known as LeRoi Jones, all of a sudden embraced the Black Power Movement.

As a result, he left his white wife. He is black.
That's sad. I get it why he would though. I really do but I just think it's so sad that things come to that. When I was in college, one of the colleges I went to was an African American university and so many of the students were all about that sort of mentality. I understand and sympathize with their understanding and where it comes from but I still find it very sad. I am black and one of my siblings is white and I can't imagine life without him. It would tear me apart to not be close to him. I also have a lot of white cousins and Asian cousins as well from mixed marriages. And my grandfather was white and I believe one of my grandmothers was mostly white as well. It really makes me sad to hear about these racial tensions and what they do to people. I understand and respect the history and I get it but it still makes me sad.


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