Semantic Pragmatic Disorder - Newbie here!

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Pixel
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18 Jan 2006, 5:12 pm

Hello,

I posted this in the parent's area, and BeeBee helpfully suggested I put it somewhere more general, so I'm reposting!

I found this place because of Dr. Phil, of course. My 4 year old son doesn't have Asperger's. At least, I don't think he does. But he has been diagnosed with Semantic Pragmatic Disorder, which depending on who you ask either is or isn't an ASD. It has very similar manifestations, but if it is Autism it seems to be very high functioning.

Do any of you have experience with this disorder? My questions are about future prognosis for a happy, normal life. I'm especially interested in hearing from people who are young adults - what is it like for you coping with this, and do you consider yourself to be living a happy, productive life. What are your struggles?

I would be eternally grateful to anyone who can share this with me. My greatest fear is that my little guy will struggle all of his life and not make significant social connections. Right now, he's adorable and sweet and affectionate and everyone loves him, but I know that the world is more forgiving of babies with disabilities than it is forgiving of teens and adults. When you're not little and cute anymore, it's a little harder.

I don't need any technical advise about therapy and tests and whatnot - we've already been through that and he is getting excellent speech and occupational therapy. What I'm desperate to hear is personal stories from people living with the issue.

I have often seen Asperger's and SPD come up in the same articles, and I know that they are different disorders that share many of the same issues. I hope that some of you won't mind posting your situations!

Thanks, and it's nice to meet all of you.

Pixel



MsTriste
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19 Jan 2006, 12:37 am

Perhaps if you posted some information on SPD, it would be helpful. I, for one, have never heard of it.



Pixel
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19 Jan 2006, 9:32 am

Oh, gee, I never thought of that. SPD is Semantic Pragmatic Disorder. Here is a snippet from one of the few websites I've found about it:

Quote:
The term 'semantic pragmatic disorder' has been around for nearly l5 years. Originally it was only used to describe children who were not autistic.

Features it includes are:-

delayed language development
learning to talk by memorising phrases, instead of putting words together freely
repeating phrases out of context, especially snippets remembered from television programmes
muddling up 'I' and 'you'
problems with understanding questions, particularly questions involving 'how' and 'why'
difficulty following conversations
Children with this disorder have problems understanding the meaning of what other people say, and they do not understand how to use speech appropriately themselves.

Soon both research and practical experience yielded two important findings:

Many people who definitely are autistic have this kind of language disorder.

Most of the children diagnosed as having semantic pragmatic disorder do also have some mild autistic features. For example, they usually have difficulty understanding social situations and expectations, they like to stick fairly rigidly to routines, and they lack imaginative play.
For a while some language therapists maintained there was still an important difference between children with semantic pragmatic disorder and children who were truly autistic. They believed the autistic features seen in children with semantic pragmatic disorder were only a result of their difficulty with language.


Not featured in this article, but also a sign, is that some children with SPD have hyperlexia. I was a very early reader myself, but as far as I know am not autistic. I mention this only because I suspect that whatever genetic influence it was that caused me to be an early reader may be the same one that made my son have this disorder?

Just an example - I had no idea that my son had a problem because when he was 2, he was quoting entire scenes from movies, verbatim, with the intonation and timing of the original scene. I actually thought he was gifted! It was later, when I realized that although he had a huge vocabulary, he never initiated a "conversation". It was all quotes from something else.

To this day, although he is much much better (and he's only 4, so I have high hopes), he cannot answer questions that start with "why".

A good way to understand SPD is this: They have difficulty answering the W questions. Who, what, where, why, when?
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21 Jan 2006, 4:38 pm

I'm sure there are a fair number of Aspie and HFA members on here who fit that criteria (but since it's part almost part and parcel of the diagnosis anyways, I would hesitate in saying anyone here is diagnosed with SPD).

Since SPD is a part of many ASDs, I guess we could answer as to how we do with an Autistic Spectrum Disorder as a whole. As with any individual, there's always hope that that person can live the life they want and be happy-- with the proper support and environment. It's also the personality of the person, him/herself, which can make or break a good life. Helping your son with developing any inherent optimism he has will no doubt aid in him getting through the tough times he will have in his life since we all have those, disorder or not. Helping him use his gifts to aid in his overcoming any deficits he has is another good skill.

He may very well have a hard time, especially in school, since it's hard to know exactly how children will treat him and how he'll react.

I can only generalize since I'm not very well acquainted with SPD without a full ASD diagnosis, but it's different from person to person. Each ASDer is so individual that I can only help but assume the same is for SPDers and the rest of the human race. It's a bit of luck, a bit of genetics and optimism, and a bit of supportive parenting and feeling of acceptance.

I know that's not very specific, but since there's so many examples of people with various disorders succeeding or not succeeding, it leads me to conclude there's something more there than the label which accounts for happiness and that person's feeling of "success" in life. And so I can't give you any answers about the prognosis of a happy life other than "I don't know". Come to think of it, I don't really think anyone can say.

But I can tell you that I am pretty happy with my life and look very forward to proceeding along it. And I'm sure there's others out there similar. Hopefully your son will be one of them.


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