How Did Your Diagnosis Process Go?
For those of you who have been professionally diagnosed, how did the whole process go?
Here are some questions you might like to answer in your responses:
-Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
-Did it take more than one session or appointment?
-Did it take going to 1 doctor or more?
-How old were you when you were diagnosed?
-Was getting diagnosed difficult for you or easy?
Thanks! Looking forward to the feedback.
I just did this in December. We looked up a psychologist who specialized in Asperger's evaluation. The first one we contacted said she was going to cost a great deal of money, but she knew of a specialist who would be covered by our insurance plan, so she referred us. The second doctor agreed to evaluate me. I went for one preliminary visit, and answered some questions. A couple of weeks later, I went for another visit and was given an envelope full of tests for different types of conditions, something like 500 multiple choice questions. The next week, I took the completed forms back. She gave me a few further tests in person, including the Rorschach ink blot test, which I failed (!). Then it was Christmas, and in January, she mailed the results of her evaluation to us. It was an easy process, not traumatic at all. I am 51 years old.
Here are some questions you might like to answer in your responses:
-Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
-Did it take more than one session or appointment?
-Did it take going to 1 doctor or more?
-How old were you when you were diagnosed?
-Was getting diagnosed difficult for you or easy?
Thanks! Looking forward to the feedback.
I went to a psychiatrist and my mom didn't even know I had it but she knew I had something and it was undiagnosed. She took me to my first shrink and it took her almost a year to figure out what I maybe have and my mom said she wanted a professional to look it over so she recommended a psychiatrist. Then my mom took me to him
It took us lot of sessions
It took for my shrink to think I may have it and then I was taken to a psychiatrist who specialised in autism
I was 12
Difficult because I had hearing loss when I was a baby so it was hard to tell what behavior was autism and what behavior wasn't and what part of my behavior I had now was caused by being deaf and what is the AS
-Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
The doctor was aware of my reason for being there, because my daughter's neurologist sent me to him. They work in the same healthcare system. It was a neuropsychologist.
-Did it take more than one session or appointment?
Yes.. It was said to be fairly obvious the first visit, but I took an IQ test, EQ test, he tested my fine motor skills, interviewed friends/family, and questioned me extensively.
-Did it take going to 1 doctor or more?
Just one, but it was noticed by the school when I was a child, two of my daughter's neurologists, and the family doctor.
-How old were you when you were diagnosed?
22, though I would have been diagnosed as a child had my father not told the school to leave me alone. They suggested that I be evaluated two separate times. Both times my father (who has severe AS and denies it), said that AS does not exist.
-Was getting diagnosed difficult for you or easy?
It was a struggle to find the right professional. I was lucky that my daughter's neurologist noticed my traits and was direct in asking. He was also willing to help me find a doctor for myself.
Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
I went to my psychologist who I was seeing to get help with social anxiety at the time. But then I found out she couldn't give an official diagnosis, though she said she could. So I got a referral from my GP to see a psychiatrist.
Did it take more than one session or appointment?
For both psychologist and psychiatrist it took one session. The psychologist already had about 4 months of notes on my behaviour and my mum gave some history. The psychiatrist asked similiar questions to my mum.
Did it take going to 1 doctor or more?
See above.
How old were you when you were diagnosed? 22 first time, 23 second time.
Was getting diagnosed difficult for you or easy?
Somewhere in the middle for me. I got diagnosed before the first session was over but I had to wait a long time for an appointment and I always had this doubt that I had AS, even though now such a notion is ridiculous to me.
_________________
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-Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
The latter, I didn't even know what Asperger's was until then.
-Did it take more than one session or appointment?
There was only one session.
-Did it take going to 1 doctor or more?
See above
-How old were you when you were diagnosed?
I was 15 years old.
-Was getting diagnosed difficult for you or easy?
I was in a state of shock at first, but after doing research I found that it fit me best. On a scale of 1 to 10, I was described as a 1.
Diagnosed as HFA as a child, involved interviews with occupational therapist, balance / co-ordination tests, social tests ie. basket weaving etc.
Diagnosed a AS and Depression last year by a psychologist at Minds and Hearts, involved facial recognition test, questionnaire and two hour interview. She said i have all the pieces of the puzzle as far as AS is concerned and possibly other co-morbids. Wants me to keep coming back for therapy re depression etc. but that costs money i dont have.
-Did it take more than one session or appointment?
-Did it take going to 1 doctor or more?
-How old were you when you were diagnosed?
-Was getting diagnosed difficult for you or easy?
- I'd never even heard of Asperger's Syndrome before a doctor told me she thought I had it.
- It was one session, yes.
- I went to 3 doctors - the regular doctor who gave my initial diagnosis, my psychiatrist confirmed it and I saw an autism specialist who confirmed it as well.
- I was 15 years old when I was diagnosed.
- It was fairly easy to get a diagnosis, once someone finally realized there was more that was wrong with me besides OCD and anxiety.
-Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
I specifically sought out someone with experience diagnosing Asperger's in adults. It was a psychologist.
-Did it take more than one session or appointment?
Yes, 2 sessions.
-Did it take going to 1 doctor or more?
No, only 1 psychologist.
-How old were you when you were diagnosed?
35.
-Was getting diagnosed difficult for you or easy?
No, just answering some questions, taking a test, and going over some documentation I had (school records, online test results, etc.). It was more difficult finding someone with the right experience to do the diagnosing.
my parents took me to a psychiatrist when I was 8 or 9. i talked to him for a few minutes - he pretty much just told me I had aspergers and threw some drugs in my face. one appointment. this was before the whole self-diagnosing thing really caught on so I guess that had something to do with it.
-Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
I was evaluated for Autism, not specifically Asperger's. I hadn't heard of Asperger's before the assessment.
-Did it take more than one session or appointment?
Yes, it took about 3 sessions with several doctors.
-Did it take going to 1 doctor or more?
Hehe, it took several. I don't remember how many.
-How old were you when you were diagnosed?
I was 21, nearly 22
-Was getting diagnosed difficult for you or easy?
Was it difficult or easy to take in or was the process leading up to the diagnosis difficult or easy?
Either way, no it wasn't. It went pretty smoothly, albeit very slowly. It took several years before anything happend. And it wasn't difficult to accept, I had already accepted that there might be something "off" about me, the diagnosis simply gave it a name.
_________________
Chances are, if you're offended by something I said, it was an attempt at humour.
i was suspected to be autistic from a very young age.
as a baby, i did not respond to my parents facial expressions, and i did not cry except when i was hungry or discontent. i never cried for company or attention.
i was limp to hold and many people dropped me because i did not provide the muscular assistance by tensing my muscles to aid them in holding me. (i still can not "dance" with anyone)
i did not babble or follow anyone with my eyes.
if they waved an object around, i did not follow it with my eyes.
i was taken to a doctor who did some tests and said that i probably had autism, but i was too young to diagnose (6 months). it was established that i had no brain malignancies or other life threatening cranial conditions, so the urgency for explanation receded to a normal level.
i was diagnosed with standard autism at 3 years old.
i paid no attention at all to other people or their attempts to communicate with me, and i learned nothing from them and did not speak.
i was found not to be significantly mentally ret*d because i was able to open puzzle boxes to retrieve something i wanted that i saw inside them.
i also did not exhibit gross motor incoordination.
at primary (elementary) school i was in special learning classes (OL (i do not know what that stands for)), but i was given the curriculum that was standard for my chronological age in mathematics and science and geography. i was learning at a normal level, but i was grossly inadequate with respect to co operative communication with peers or teachers.
due to the fact that i did not pay attention in any way to what i was told, it became more and more difficult to keep me in a mainstream school even though i was in special education classes. i did not obey any command i was given and i did what i pleased, and if i was obstructed i became hostile. the teachers and therapists devised a way to keep me under some form of precarious control. it was fortunate for me that i was interested in solving puzzles and remembering data, so they fed me copious amounts of school work that i liked to do.
i was not able to be taught by them how to do the mathematics for example, so they provided me with questions and answers to those questions until i worked out my own way of obtaining the answers to questions by deduction.
then they just gave me the questions, and i liked to solve them in the same manner of deduction that i found by comparing the earlier questions to the answers.
in this way i survived in the mainstream (albeit special ed) until year 7.
in year 7, i had to go to high school, and i was completely swamped by the requirements of being obedient and flexible. i was also made a mockery of by other children and my retaliatory response meant that i could no longer stay in a normal school.
i was moved to an adolescent psychiatric unit where i was schooled by academic nurses. i boarded there for a few years, and i was used as a study specimen for the formation of the definition of "asperger syndrome" when the condition was being defined for the DSM.
my psychiatrist was a specialist who was researching autism, and she had a few students that also sat in on my daily consultations and took notes and compiled ideas to investigate further.
my iq was found to be above average, yet my level of connection to the world was severely deficient, and my psychiatrist developed many scenarios to test me in.
i very much enjoyed my consultations every day at 4pm (except weekends). it was then that i learned how to describe accurately how i was thinking. i wanted very much for them to write the correct observations of me, so i refined my descriptive style to a point where i could clearly tell them how i thought. they were all so attentive to every word i said and i felt like i was important.
after a a few years, there was a community backlash against my school/hospital (rivendell adolescent unit) after a media story, because it was a stately mansion that was owned by the governor of NSW in 1882 (thomas walker estate), and it was a national heritage building with watchtowers and a cathedral and it was huge and opulent on 100 acres of land with gardens and stables etc, but only had 19 disabled kids resident in it. i was diagnosed only as HFA at that point because it was before 1994.
my doctor said i was asperger, but i could not be diagnosed at that time.
so i had to go back to mainstream schools when i was 16 and i went to 6 more normal schools because i was expelled from every one of them after a few months.
i was diagnosed in 1996 after i was caught drink driving 3 times in rapid succsession, and my solicitor read my medical records and asked that i get a formal diagnosis as it was possible to be officially diagnosed at that time.
i had 4 consultations with the psychiatrist and he spoke to my parents and sisters, and he had my school reports and my earlier reports from rivendell (which carried the most weight).
he showed me videos and put a laser scanner helmet on my head that shone a light into my eye to trace where i looked when watching the videos.
i also did the rorschach tests, and i was quite unimaginative i think.
one of my answers as to what i saw was that an ink bottle had fallen over next to a mirrored wall (it is all that i could think of), and the bottle had been removed.
i was given pictures of scenes where i had to describe what was going on.
one picture i remember was of a burning barn, and a man had his fingers in his hair while talking to a young boy outside the barn.
i was asked to provide a dialogue.
my most imaginative interpretation was "blast! if it is not bad enough that the barn is burning down, it seems that i also have nits!! !"
anyway, i was diagnosed as borderline HFA/AS, and due to the iq test, i was on the asperger side.
whatever i am too verbose and that is the end.
MONKEY
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Joined: 3 Jan 2009
Age: 32
Gender: Female
Posts: 9,896
Location: Stoke, England (sometimes :P)
Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
My mum took me to a paediatricion because she suspected I was on the spectrum somewhere and she suspected AS the most. I didn't know what I was there for, I was never told untill after the diagnosis.
-Did it take more than one session or appointment?
There were a few meetings with the paediatrician both at the "child development centre" and at home. I saw other people too.
-Did it take going to 1 doctor or more?
I don't know, I think it was just the one. But I did see a few psychologists shortly after the diagnosis.
-How old were you when you were diagnosed?
11 and I was in year 6 (last year of junior school)
-Was getting diagnosed difficult for you or easy?
In the middle, some parts were easy and some were hard.
_________________
What film do atheists watch on Christmas?
Coincidence on 34th street.
-Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
I was actually getting counselling for depression at the time, during the second session the counsellor said she thought I had Aspergers Syndrome. This was the first time I'd ever even heard of Aspergers.....there had been other signs as I was growing up though. When I was 2 I was taken for evaluation by child psychologists who decided I was frustrated by how slow my body was compared to my mind (this was in 1979, before Hans Asperger's work was translated into English)
-Did it take more than one session or appointment?
Well, 2 sessions with my counsellor to bring up the possibility, then 3 sessions with a clinical psychologist who confirmed it.
-Did it take going to 1 doctor or more? No, just the 1 clinical psych.
-How old were you when you were diagnosed? I was 30.
-Was getting diagnosed difficult for you or easy? For me, quite easy, after my counsellor told me what she thought, I went to my GP to ask for a referral to get it confirmed or denied either way, I couldn't live with not knowing for certain. I had to write out why I thought I may have it, how this had come up in the first place etc, 6 weeks later I got my referral to see the psych, and after another 6 weeks of visits (3x fortnightly) I was diagnosed as having mild Aspergers syndrome.
One was at a special centre for this kind of thing, the second was at my school.
I never felt different to everyone, and I was rigid in my thinking and I couldn't see other people's viewpoints, so I couldn't see what exactly made me different from others.
-Did you go to a mental health pro/ doctor asking them to evaluate you for Asperger's OR did the doctor identify you had it before you knew/suspected it?
I self-diagnosed, then at my next annual physical, asked my GP about being evaluated for AS. She determined that, since it is a developmental disorder (not a mental illness), I should be evaluated by a psychologist. She gave me the contact info for a nearby clinic of psychology & I called. They had a psychologist on staff whose specialty is adults & adolescents with autistic spectrum disorders. I set up an appointment to begin the evaluation.
-Did it take more than one session or appointment?
It took approximately 3.5 sessions to get through his list of about 150 questions. The questions were almost identical to the Aspie quiz - http://rdos.net/eng/Aspie-quiz.php - After completing the questions in the fourth session, he gave me his diagnosis.
-Did it take going to 1 doctor or more?
One doctor was sufficient.
-How old were you when you were diagnosed?
50
-Was getting diagnosed difficult for you or easy?
It was very easy. I just had to answer a bunch of questions truthfully & be myself.
_________________
"I am likely to miss the main event, if I stop to cry & complain again.
So I will keep a deliberate pace - Let the damn breeze dry my face."
- Fiona Apple - "Better Version of Me"
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