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Joined: 1 Dec 2006
Age: 36
Gender: Male
Posts: 323

18 Jul 2015, 4:48 am

I was wondering whether this is a common problem.
I have this since my teen years. Whenever I wake up, I have pain all over my body (not that it will go away afterwards). It's not like muscle tension or anything. I think it's rather psychological or neurological or something.
It's either pain or I just can feel my body too much which feels like pain.
In the past years I was taking huge doses of Antipsychotics (mainly Zyprexa) and along having no affect and being a zombie and such I also had no pain. Now my doc suggested to stop that and the pain is back. I'm seriously thinking about going back on Zyprexa.
The interesting thing is, whenever I'm really REALLY busy, I don't feel that. But as soon as I stop (like standing up to going to the toilette) the pain strikes back. It's everywhere.
Do you know this? is there something that can be done?

Aspie score: 131 of 200
NT score: 34 of 200
Possibly Aspie (diagnosed by an autism expert, doc moves abroad, forced to change docs and all say it's schizophrenia NOS or schizo-affective disorde or personality disorders. initial doc was a colleague of uncle Simon btw. you do the math.). (edit: by Uncle Simon I mean Simon Baron Cohen. Just to clear things up.)


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Joined: 4 Feb 2014
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Posts: 66,560
Location: Queens, NYC

18 Jul 2015, 6:46 am

Try taking ibuprofen.


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Joined: 21 Aug 2011
Age: 38
Gender: Male
Posts: 3,217

18 Jul 2015, 7:02 am

Hmm, it might be that distraction is something that could help you to feel alot less of that.

I get alot of nerve and tendon pain myself, which are all sorts of "fun", in that half the time I might feel it in, say, my arm, but the actual spot it's coming from is in my shoulder/neck. I get this stuff really frequently, am quite prone to it.

Now, I do take medications for this, which are Cyclobenzaprine and Tramadol (I was told to think of this one as a super-strong version of Ibuprofen), both are very strong pain meds. They do their job, but not all the time, and while I'm constantly on the cyclo-whatsit, I cant just take the Tramadol continuously, so there are still times where I'll have quite a bit of pain.

But I've found that if I just go and DO things, the pain either stops or I just dont notice it anymore... not sure which. Doesnt matter which, really. Of course, there's limitations to this; if my arm is getting flared up, and I do things to aggravate it, I'll get the pain regardless of distraction, but other than that... this really does help.

Have you tried looking into actual pain meds? Or at least getting some testing done to make sure of what it is? I had a few MRIs for mine, to fully determine the cause and whatnot (which also found some arthritis in my neck, that was a "fun" little discovery, sigh...), which is probably a big part of why I'm on these meds that actually have an effect.

Either way, good luck with that, I know how freaking aggravating it can be to deal with constant pain that wont just leave you alone.


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Joined: 26 Jul 2010
Gender: Female
Posts: 3,831

18 Jul 2015, 7:25 am

I have fibromyalgia in addition to getting migranes (and being somewhere on the BAP.) They are neurological, not psychological, conditions - and they are not infrequent co-morbidities with autism. I used to think it was a made-up sort of thing, but it is an actual condition and there is a specific way to diagnose it. I tend to ache kind of like one does just before a serious bout of the flu.

There are other conditions that can cause all-over achiness that may have other impacts on your health, so seeing a doctor is important: you want to see a rheumatologist. Other conditions can include things like rheumatoid arthritis, lupus, chronic fatigue takes a professional to sort out the symptoms (I went undiagnosed for years even though I'd talked to my regular doctor: you need a specialist.)

The good news is that there are several good, if imperfect, treatment protocols. The one that works for me is treatment with antidepressants, which works for me in other ways as well; there are specific antidepressants that have better effects than others (Cymbalta, specifically, but there are others,) but you have to go through a trial-and-error process that's kind of annoying; that is also the case with anti-seizure meds that can help. OTC pain medication can help, and they also have specific pain meds by prescription. I also tend to experience "emotional blunting" with SSRI meds, so I am on Wellbutrin, which doesn't have those side effects for me (but I really, really have to watch my blood pressure.) The fact that psychiatric medications helped you in the past might indicate that this is something to look at.

You also need to rest and pace yourself, and most importantly to make sure you are sleeping appropriately: sleep apnia or other sleep issues can exacerbate fibromyalgia (well, and pretty much anything else.) Exercise is important, too - but you need to find something that won't wear you out and exacerbate your symptoms.

Snowy Owl
Snowy Owl

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Joined: 16 Jul 2015
Age: 60
Posts: 149
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18 Jul 2015, 11:20 am

My guesses are drug side effects and/or damage, fibromyalgia, food intolerances/allergies, or just not taking care of yourself (like months without basic sleep, eating, etc).

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