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akar4
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11 Dec 2013, 4:08 pm

Does anyone else have nervous system issues? I get muscle spasms all over my body and have really bad nerve pain. For example, my hands begin to ache and then hurt very bad when using them - even if I'm just stirring something. After an auto accident in the late 90's that had given me severe whiplash and tore the muscles in the right side of my back, the pain continues when it would have been gone in a neurotypical person. It's very uncomfortable to painful everyday. My 7 yr. old daughter has the same problems already and I rarely ever speak of them so she's cognizant of it without my influence. Also, our hands get (as she calls it) "tickly" when we get nervous (sometimes just randomly) and are virtually useless. Anybody have similar issues and have you had any diagnoses from a neurologist?



Soccer22
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11 Dec 2013, 4:15 pm

I have muscle spasms all over my body too. They are very annoying. Mine started about 6 years ago, just days after getting a series of vaccines (not sure if it's related). I also have some weakness when brushing my hair and teeth, etc. I'm not sure what's the cause of all this, but it's annoying and a little scary.

I also have problems with pinching my nerves easily in my neck.



akar4
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11 Dec 2013, 4:20 pm

Thanks for sharing. I also have this strange thing where my muscles "lock up" when I hyperextend them. It is excruciating! For example, sometimes the muscles under my chin do it when I yawn. The muscles are so hard that if feels like a golf ball under my skin - it's that hard and it HURTS! My arm, leg and back muscles do it, too. Anybody else? Anybody see a neuroligist about this stuff? Is this related to autism?



Willard
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11 Dec 2013, 5:41 pm

akar4 wrote:
sometimes the muscles under my chin do it when I yawn.


I have that. It's a muscle cramp. Very painful.


Years of spending my days swaying side-to-side stimming, shifting my weight from one foot to the other and back again have destroyed the nerves in my feet and ankles.


And here's a weird one I have never figured out: If I haven't eaten anything for a couple hours and my palate is clear, and I take a bite of something either particularly sweet or salty - my entire lower jaw will cramp up for a second or two. Hurts like hell. I mentioned it to a dentist recently and he and his assistant stood looking at me (as Bill Hicks once said) "like a dog that's just been shown a card trick." Clearly they had no idea what I was talking about.



Dan_Undiagnosed
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12 Dec 2013, 4:24 am

Willard wrote:
And here's a weird one I have never figured out: If I haven't eaten anything for a couple hours and my palate is clear, and I take a bite of something either particularly sweet or salty - my entire lower jaw will cramp up for a second or two. Hurts like hell.


I've had my mouth water before when I haven't eaten all day and my jaw actually aches for a couple of seconds. Sounds like what you're talking about except this is just before I take a bite. I've also had twitches all over my body since my adolescence and I have this weird spot on my back under my right shoulder blade that really hurts now and again. That's also come and gone since my teens. It used to be so bad I couldn't sit in an L shape with my legs perpendicular to my torso, like sitting up on a lounge with my legs stretched out straight, because this spot on my back would be in agony.



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12 Dec 2013, 5:01 am

Only with loud sudden noises. I do involuntary moves when a loud sudden noise occurs, like my arms just spaz out and my whole body just jumps, sometimes making the whole chair move if I'm sitting on one that's not too heavy. It makes me ill. Then people want to know why being in an environment where a loud sudden noise may occur causes distress for me. Even if I sort of know the noise is coming, if I have it in my head that I don't like the noise, my nerves will react strongly to it. Like dogs barking loudly or bells ringing. That's why I couldn't work in a school - I would just be constantly looking at my watch waiting for the next bell to go and worrying about it, which will make others think I'm weird. It also alienates me because I like to get away from a bell if I'm near one and I know it's going to ring, which then makes people think I'm being unfriendly or unsociable, and I do like socialising with colleagues. But I have found that my distress with loud sudden noises like bells seems to be one of the things people don't seem to understand, and they just laugh at me or think I should be ''past'' that ''silliness'', as though it's only a fear for little kids.


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akar4
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12 Dec 2013, 2:59 pm

Does anyone else think that the nervous system issues need to be addressed? It seems to me that the researchers and doctors are so busy trying to figure out how to make us neurotypical in our thinking/behaviors that they neglect the physical suffering that (I believe) is related to autism.



arielhawksquill
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12 Dec 2013, 5:42 pm

It sounds kind of like neuropathy. It isn't a known symptom of autism, and can be treated with medications like Neurontin.

http://en.wikipedia.org/wiki/Peripheral_neuropathy



akar4
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13 Dec 2013, 12:13 pm

They put me on Lyrica - after about 18 mo. it shut my nervous system down! I was hospitalized for 5 days, in and out of consciousness, severe tremors and my blood sugars were out of control - rising and dropping incredible amounts in very short amounts of time. It took 10 months to recover. It seems logical, however, that non-neurotypical people would have nervous system disorders; as if we're wired incorrectly, no?



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13 Dec 2013, 11:05 pm

My Aspie fiancé kicks and jerks a lot at night. It seems to be involuntary and he doesn't wake from it. He is very flinch when it comes to loud, sudden noises. He gets startled really easy even if the noise happens over and over again. In other words, he doesn't get used to it, so he has the same reaction every time.



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14 Dec 2013, 1:49 am

Medical marijuana helps my youngest son with much of his neurological pain [he calls the pain "the burns"] Neurontin did not help him at all [nor did any other drugs] My understanding is that he was the second minor in the state of Colorado to receive the "pink card." [he is now an adult]

For neurological pain it is best to buy an Indica strain rather than a sativa or mix. Also, organic and one that has been "flushed" 2 to 3 times more than most cannabis is.

Because of my sons' "celebrity status", when he was younger, we used to get the best cannabis for neurological calming in the world for free or nearly free. Because of regulations passed a few years ago, cannabis of that quality is nearly impossible to be found for any price. Thankfully my son's condition has improved to the extent that he does not so greatly need the "best of the best."



PeterHoping44
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14 Dec 2013, 5:42 pm

Try altering your diet to one that has more vitamins and minerals; I think you will feel better if you stay off the sugary laden foods and caffeine containing beverages that are very addictive. Also, booze, stimulant drugs and junk food can be contributing to those feelings of unrest. I also think that bananas are good for nervous health, as they have potassium. A lack of this mineral I find can make you feel very anxious. I'm not sure that eating healthy will cure all the issues, but it can be helpful to cut out junk from your shopping menu.



Drehmaschine
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23 Dec 2013, 2:00 am

I get the twitches in my legs, but just where you can see the skin twitching. My arms get locked up if I move in certain positions and I have intense sharp pain in my right index finger to the point I literally do not use it. It would be interesting to know why as it seems nobody else I know has these problems.