Do you get seizures?

Post Reply New Topic

Does anyone here get seizures. I get those myoclonic seizures around the shoulders and down my arms as well as my legs at times. I cannot count the myoclonic seizures most people get as they are about to fall with sleep or just waking up like that a jolted with an electric prod because I get that "electric prod" numerous times throughout the day, even when I am wide awake at times.
I had pet mal or absence seizures when I was a child. I have never had any grand mal seizures to the best of my knowledge.

There are few people here (or used to be here) who have seizure disorders comorbid with theri AS/ASD, but I'm not one of them.

As usual for me, I would have liked a bit more options. I used to have Epillepsy as a kid, with absent seizures, and I got my first true fit at the age of about ten. Curiously enough, while at the hospital, it was a nurse who suggested that I had AS, due to my odd walking style at the time. Then I went on medication for three years.

Trust me, it is NOT handy for your parents when thay can't tell whether your having an AS daydream or having an absent seizure.

I have epilepsy

I have Neocortical Temporal Lobe Epilepsy, very very mild, undxed. I have refused to get any EEGs because I am able to keep them under control without medications or a dx.

My symptoms:
*buzzing
*vertigo/dizziness
*white flashes
*color spots (rare)
*tinnitus
*knocking sounds
*motor tics in my left arm, torso, and neck

My seizures only occur when I am tired or energy-drained. Thankfully, they occur mostly while I'm getting drowsy in bed or at home in general. I can avoid more severe seizures by having some white noise going (my triggers are all auditory) and if that doesn't stop it, if a seizure starts I can put on some headphones and play music for about 5-10 minutes and the seizure stops and if it comes back it is usually less severe.

My seizure activity goes up when I am stressed in life (makes sense as stress and seizures are both GABA-related). Come graduate school, I may need to actually start taking some meds to quell the seizures because my stress will undoubtedly increase tenfold. But until then, I handle them on my own with nonmedicinal methods.

I don't know if I have ever had any seizures at all, or at least none that I can recall. My oldest son has Autism and he has Complex Partial Seizures... or what is called Temporal Lobe Epilepsy as he's on meds for it as they would occur several times a day and not isolated.

What do people do when they have so called "absence siezures". I've heard a little about them, but I don't want to say I have them unless someone else can corroberate what I have to say.

I have "episodes" that happen a lot at here at school where it seems like my brain totally shuts down for a short period of time, How long I can't say, but usually for a couple of seconds. Everything suddenly becomes really distant to me. I can still see and hear, but I'm not perceiving anything. I can see something, but not make out what it is. I can hear something, but not understand what is being said. That part is most agravating becasue I'll miss out on that part of the lecture and then be lost.

As a kid my parents told I would blank out a lot and they would do the old hand wave infront of my face to get me back to earth.

Does this sound familar to anyone.

Yeah that happens to me a lot as well not sure what it is but its never been harmful other than making people look at me a bit odd or think I was being rude because I wasnt listening so I havent worried about it.

I have a friend who I suspect may be an Aspie. Every so often her body will spasm as though she's been given an electric shock. I sometimes do this when I am lying in bed trying to get to sleep - I've always associated it with my body "unwinding" - but my friend does it in the daytime as well. Is this fairly common? Anything to worry about?

I love her a great deal and it's hard not so say "Are you ok?" even though I think this gets on her nerves

I'm not certain. I get strange moments lasting from a couple of seconds to a couple of minutes where I feel like I'm in two places at once, like a layer of another world laid over the real one and making everything look strange, or where things seem both very close up and very far away at the same time. I don't know if these are any kind of seizure. I suspect they're not, because I'm 100% aware of everything while it's happening and can analyze the feeling, which is quite fascinating as well as being strange.

I think I may have possibly had temporal lobe seizures as a child, I would often get strange sounds and smells followed by kind of an absence attack where I felt like I'd left my own mind.

Have abscenses and grand mal seizures but those ones don't happen often,gp maxed tegretol SR dose.

I think it can be hard to differentiate (without an EEG) between an absence seizure and just a microsleep/shutdown.

I know for me I have these and for awhile I wondered if they were absence seizures. But since they come with no other neurological symptoms and since I know I have TLE and it's relatively rare for two different types of epilepsies to occur together, I've concluded my staring episodes are just microsleeps and sensory shutdowns.

Scoots, if somebody can distract you out of one of those, I'd say it's a fair sign it's just a microsleep/sensory shutdown. But if they feel like you can't control them and they're bothering you, you may wish to seek out a professional opinion and get an EEG (especially a carry-round 24/48 mini EEG which you can take home with you in case they are seizures and are more difficult to pinpoint during a single appointment period).

Btw, an important notice for female epileptics: If you're on any birth control and antiepileptics, the antiepileptics can render the birth control useless.

I found this out just yesterday when I went to get my shot (I get bc medicinally for PCOS) and enquired into that when they were asking me a whole load of standard questions about what I take, if I drink, if I smoke, etc..