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Pandora_Box
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14 Dec 2010, 8:25 pm

I didn't know where to put this, but I have two brothers. One is a member on this site and he's what I suspect is on the spectrum, though mom and dad are having a fit with him and don't believe that he may have Aspergers. I had to get diagnosed when I moved out. My other brother doesn't have Aspergers instead he's had sever autism all his life. [we're talking Rain Man kind of autistic....not the math thing and not the exaggeration of it, I'm just trying to explain what I mean by this]
Its brought some challenges, because my dad has had Aspergers all though a more mild case then either of my brothers. But both of my brothers are attached to me, because unlike my parents I understand a little more. I can bring some information to my middle brother who I believe is on the spectrum. And I can assist the other one.
Well my mom called and told me that my brother started acting up, after I visited for the holidays for a week. Its kind of hard. I wish I had the finances to take him.
I'm not sure how to advise my mom to deal with his fit about only wanting me, he's stopped accepting dinners from mom and dad again because I'm not around.

Then I got the other one, who's having trouble because mom and dad can't seem to consider that maybe he has Aspergers. You'd think that after me, and then with the second one being actually autistic they'd consider it, but they don't. Instead they laugh at him the way they laughed at me.

Anyone else have siblings on the spectrum?

How do you deal with yourself and try to help out the family?

Can you even help out in this kind of situation?



Pandora_Box
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14 Dec 2010, 10:22 pm

hahahaa. I'm sorry for the double post, but I realized I should have made the title: Some of us May have Them.

Because...well hahahaa...not everyone has them.



jagatai
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14 Dec 2010, 10:57 pm

Pandora_Box wrote:
hahahaa. I'm sorry for the double post, but I realized I should have made the title: Some of us May have Them.

Because...well hahahaa...not everyone has them.


Actually neither my brother nor I had siblings. :D


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Pandora_Box
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14 Dec 2010, 10:59 pm

jagatai wrote:
Actually neither my brother nor I had siblings. :D


hahahahahahaa.

This embarrassing.


But in all seriousness, I'm not sure how to convince the other to let mom and dad help him out. He wants my help.

And the middle child is clamoring for my assistance as well.

I sometimes think, "don't they have parents for this? oh wait....one refuses the services of.....the other is a young adult still learning the wonderful ways of the world"



menintights
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14 Dec 2010, 11:07 pm

How old are your brothers?

In any case, you can help them out by teaching them independence. You can't be there for them forever.



Pandora_Box
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14 Dec 2010, 11:10 pm

menintights wrote:
How old are your brothers?

In any case, you can help them out by teaching them independence. You can't be there for them forever.


Well one is already 19.

The youngest is fourteen and has some functional issues, sadly.



anbuend
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14 Dec 2010, 11:31 pm

My brother is also autistic. We're about as opposite as you can get and still be on the same spectrum though. I mean we have a few things in common, but mostly we're opposite.

That's why it didn't surprise me when I read a study showing that... okay they took autistic and nonautistic kids. They rated each kid on a scale of 1 to 3 on each trait. (1 being doesn't have it or barely has it, 3 being has it extremely or most of the time, 2 being in the middle). And what they found was something that surprised them. They were assuming that on a given trait, autistic people would, say, mostly cluster towards 1, while nonautistic people would cluster towards 3, or vice versa depending on the trait. But what they actually found, was that nonautistic people would tend towards 2, and autistic people would tend towards both 1 and 3 but not 2. So we tend to go both extremes in any given area without much room in the middle. It's an oversimplification but it still explains a lot of things.

In my family's case my brother is the one who gets by without extra services (although many things in his life aren't great at all, he's uninsured and has had a lot of problems with employment), whereas I need lots and lots of services every day in order to survive.

Our other brother is not autistic, but may have a few traits (like often using a monotone voice -- it's hard to find anyone in our family who's totally "normal"). My dad is autistic, my uncle on my mom's side is autistic, and so are lots of more distant relatives. (And there are some who may be but we don't really know, especially women. I'm the only woman in the family where it's incredibly obvious that I'm autistic, and oddly enough in my case it's more obvious than with any of the men.)

And to clear up any confusion I use 'autistic' for all categories of autistic rather than using all the separate clinical terms. Technically my brother specifically identifies as AS despite my preference for not using that term specifically. And I'm diagnosed as autistic. But that doesn't explain the huge differences between us. I've found that there are people in all of the official categories who are quite similar to me, and people in all the categories who are quite different from me. Same with my brother. Oh well, soon enough it'll all be one category and then we can just look at the differences and similarities between us without that specific terminology getting in the way.


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Pandora_Box
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14 Dec 2010, 11:53 pm

anbuend wrote:
My brother is also autistic. We're about as opposite as you can get and still be on the same spectrum though. I mean we have a few things in common, but mostly we're opposite.

That's why it didn't surprise me when I read a study showing that... okay they took autistic and nonautistic kids. They rated each kid on a scale of 1 to 3 on each trait. (1 being doesn't have it or barely has it, 3 being has it extremely or most of the time, 2 being in the middle). And what they found was something that surprised them. They were assuming that on a given trait, autistic people would, say, mostly cluster towards 1, while nonautistic people would cluster towards 3, or vice versa depending on the trait. But what they actually found, was that nonautistic people would tend towards 2, and autistic people would tend towards both 1 and 3 but not 2. So we tend to go both extremes in any given area without much room in the middle. It's an oversimplification but it still explains a lot of things.

In my family's case my brother is the one who gets by without extra services (although many things in his life aren't great at all, he's uninsured and has had a lot of problems with employment), whereas I need lots and lots of services every day in order to survive.

Our other brother is not autistic, but may have a few traits (like often using a monotone voice -- it's hard to find anyone in our family who's totally "normal"). My dad is autistic, my uncle on my mom's side is autistic, and so are lots of more distant relatives. (And there are some who may be but we don't really know, especially women. I'm the only woman in the family where it's incredibly obvious that I'm autistic, and oddly enough in my case it's more obvious than with any of the men.)

And to clear up any confusion I use 'autistic' for all categories of autistic rather than using all the separate clinical terms. Technically my brother specifically identifies as AS despite my preference for not using that term specifically. And I'm diagnosed as autistic. But that doesn't explain the huge differences between us. I've found that there are people in all of the official categories who are quite similar to me, and people in all the categories who are quite different from me. Same with my brother. Oh well, soon enough it'll all be one category and then we can just look at the differences and similarities between us without that specific terminology getting in the way.


Well in my first post I explain my youngest is a very Rain Man like autistic. However, not so exaggerated and hollywood made. But you get the point.

He tends towards some odd behaviors, like if a wall has bumps, he'll spend hours looking at the wall. My mom and dad never know how to deal with him. He has meltdowns in public and he has several sensory problems.

I try to work with him on his level, where as mom and dad tried to work against him and on their level to established dominance as parents. I guess the reason he wants me is because he seems to think I "understand".

Truth is, I understand and at the same I have no clue...the wall thing....that's just one thing that's a little...well ya know. I couldn't stare at a wall for hours with such interest as he has.

I don't know how to explain to him he needs to let mom and dad work with him. But I also don't know how to get mom and dad to work with him.

It feels like trying to tell a wave not to part.



AriNecromare1213
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14 Dec 2010, 11:58 pm

I have a similar problem my parents don't take me or my sister seriously. They don't understand how hard it is to function in todays society because of differing circumstances. It was different for them back in the day, but for some reason they think I should be able to share their mind set and I can't. They don't understand how frustrated they're making my sister (Not Diagnosed as Autistic or aspergers, but I can still see similarities between us from when i was growing up.) and how stressed out they're making me. They want me to spend 8 hours a day doing job related crap and I'm gonna tell you that I can't even get through a job application without getting super stressed. I think of a Job Interview and shudder. Ugh...
TL;DR I got Similar probrems.


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Pandora_Box
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15 Dec 2010, 1:29 am

AriNecromare1213 wrote:
I have a similar problem my parents don't take me or my sister seriously. They don't understand how hard it is to function in todays society because of differing circumstances. It was different for them back in the day, but for some reason they think I should be able to share their mind set and I can't. They don't understand how frustrated they're making my sister (Not Diagnosed as Autistic or aspergers, but I can still see similarities between us from when i was growing up.) and how stressed out they're making me. They want me to spend 8 hours a day doing job related crap and I'm gonna tell you that I can't even get through a job application without getting super stressed. I think of a Job Interview and shudder. Ugh...
TL;DR I got Similar probrems.


I wish I could do more for my brothers. I feel I don't do enough.



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15 Dec 2010, 9:48 am

Staring at walls doesn't sound too weird to me. I used to do it all the time as a kid. Not only are the patterns in the wall itself interesting, but if you stare long enough at one spot, your retina projects fairly vivid sparkly colors on it, and then you can find patterns in the colors. If your eyes are still enough everything can go white-grey too, which made it especially useful in times of overload. It still takes almost nothing to entertain me, I never get bored unless something else is wrong (like I'm sick or in pain or something). And that's saying something because I currently live in bed due to physical impairments. I don't stare at walls anymore but I stare at (or through) other things.


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15 Dec 2010, 3:32 pm

anbuend wrote:
Staring at walls doesn't sound too weird to me. I used to do it all the time as a kid. Not only are the patterns in the wall itself interesting, but if you stare long enough at one spot, your retina projects fairly vivid sparkly colors on it, and then you can find patterns in the colors. If your eyes are still enough everything can go white-grey too, which made it especially useful in times of overload. It still takes almost nothing to entertain me, I never get bored unless something else is wrong (like I'm sick or in pain or something). And that's saying something because I currently live in bed due to physical impairments. I don't stare at walls anymore but I stare at (or through) other things.


My parents have a problem with it. They think he should be more normal. Though....I don't think that will ever occur.

My parents kind of don't believe in autism and they do.

On some level they think its just a cop out and the ability to have a diagnosis of behaving against society. So we can have a cause to not behave like society.



CockneyRebel
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15 Dec 2010, 3:40 pm

My sister is NT.


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15 Dec 2010, 3:45 pm

No one in my family is on the spectrum. My dad has traits and my little brother has at least four of them. But I think I have better social skills than my dad because I learned and I care more than he does. He was just a role model to me about how not to act. Things he did I didn't like I don't do myself. And other things he does I don't think is even social issues related. It's just him.


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Pandora_Box
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15 Dec 2010, 7:04 pm

League_Girl wrote:
No one in my family is on the spectrum. My dad has traits and my little brother has at least four of them. But I think I have better social skills than my dad because I learned and I care more than he does. He was just a role model to me about how not to act. Things he did I didn't like I don't do myself. And other things he does I don't think is even social issues related. It's just him.


So, do you think that my brothers can do this?

Even though neither of my parents are on the spectrum...well my dad said that when he was a kid blah blah. But he's earned to be a social chameleon and what not.



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15 Dec 2010, 7:34 pm

anbuend wrote:
Staring at walls doesn't sound too weird to me. I used to do it all the time as a kid. Not only are the patterns in the wall itself interesting, but if you stare long enough at one spot, your retina projects fairly vivid sparkly colors on it, and then you can find patterns in the colors. If your eyes are still enough everything can go white-grey too, which made it especially useful in times of overload. It still takes almost nothing to entertain me, I never get bored unless something else is wrong (like I'm sick or in pain or something). And that's saying something because I currently live in bed due to physical impairments. I don't stare at walls anymore but I stare at (or through) other things.

A bumpy wall to me is more fascinating than staring at a work of art, which has some hidden meaning in it I care very little about.
I see those sparkly colours too. I thought I had eye problems. I keep thinking Newton had to damage his eye to see those colours but all I have to do is stare for awhile.


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