The earlier you're diagnosed the better the outcome ?

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firemonkey
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06 Feb 2020, 7:23 am

Is that true or false ?



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06 Feb 2020, 8:24 am

Hello,

From my perspective, and having received a late evaluation, I think I can say that it is better to have it when you are a child. Why is that? I think that after struggling a lot with myself during these years without understanding well why I didn't click with anyone, all my particularities that I have been hiding the best I could, etc., if I had had an early evaluation, I would have found a meaning to things, I wouldn't have fought against me and the rest, and I wouldn't be disoriented now as I feel. Everyone will have an experience behind them, so I encourage other users to share their opinion.

Thanks for reading


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firemonkey
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06 Feb 2020, 8:38 am

I will say my situation is complicated by having a severe mental illness , that I believe most here don't have . That, by itself, can have a negative impact on how well a person does .

Compared to many here I could accurately be described as an out and out failure .



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06 Feb 2020, 8:38 am

No, it is likely that some very exclusive doors would have been closed. Most people don't get to go through those doors so why should someone with a disability even consider walking up to them?



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06 Feb 2020, 9:10 am

BTDT wrote:
No, it is likely that some very exclusive doors would have been closed. Most people don't get to go through those doors so why should someone with a disability even consider walking up to them?


I agree. There is a stigma about being on the spectrum that follows you once you are diagnosed and is disclosed to others. It changes how others see you and not in a positive way. Too many people just do not understand. It can end careers before they can be started.

In my own chemistry department, I have witnessed other professors discriminate against those on the spectrum (former students). I work with PhDs that seem to have never left junior high based upon their behavior. What do you think would happen if they suspected a coworker was also on the spectrum? (blood in the water) Unfortunately, I cannot report them to the administration because my boss is one of the worst offenders.



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06 Feb 2020, 9:26 am

It's about community support. Whether or not a person is diagnosed, is there a supportive community. If they are diagnosed, is there a supportive community? I would like that the community supports a person regardless of diagnosis and especially with diagnosis, but that is not always (or even usually) so.

Warning trigger: There is a high rate of self harm in the female population of ASD. I would like to see that statistic by those diagnosed at the time or not. In my personal experience: my undiagnosed ASD-like cousin is dead (and it was a close call for me) and my diagnosed ASD neighbor has community supports in place and is getting through (seemingly better).

I feel for those folks who are diagnosed or not and have little support.



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06 Feb 2020, 9:42 am

Not necessarily true.

It can be said that mild autism---especially Asperger's---is not usually evident until a child reaches at least preschool age; whereas more severe autism tends to start being evident in late infancy-early toddlerhood.

It is better for a relatively high-functioning person to have clarification through a relatively early diagnosis, though. Undiagnosed people in adulthood might be confused about what is causing their "symptoms," so they feel like they're "in the dark." They feel befuddled, and wonder whether they are "defective" in some way.



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06 Feb 2020, 9:46 am

SharonB wrote:
It's about community support. Whether or not a person is diagnosed, is there a supportive community. If they are diagnosed, is there a supportive community? I would like that the community supports a person regardless of diagnosis and especially with diagnosis, but that is not always (or even usually) so.

Warning trigger: There is a high rate of self harm in the female population of ASD. I would like to see that statistic by those diagnosed at the time or not. In my personal experience: my undiagnosed ASD-like cousin is dead (and it was a close call for me) and my diagnosed ASD neighbor has community supports in place and is getting through (seemingly better).

I feel for those folks who are diagnosed or not and have little support.


I had little support when living in Essex . A person who is just seen as a non -acute person with a severe mental illness gets very little professional help and support in the UK . The nearest (step) relative was about 9 miles away but I hadn't seen her for quite a lot of years .

My youngest stepdaughter was instrumental in helping me to move to Wiltshire . I get quite a lot of support from her primarily, and also my granddaughters .

My youngest stepdaughter could never be called a bookworm , but she's a lot more astute , and observant , than any medical professional I've seen .



Last edited by firemonkey on 06 Feb 2020, 9:47 am, edited 1 time in total.

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06 Feb 2020, 9:46 am

I wasn't diagnosed with Moderate ASD until 2018, and I'm in the midst of an ADHD diagnosis right now.

I feel like earlier diagnoses would have helped me through school but I don't know. I might be idealising. I don't think there were many accommodations or special programs for children when I was in Primary in the 1970s. I wouldn't have wanted a label but it would have been nice to understand myself better. As it was, I learned to self-hate and to assume I was defective somehow. I could tell I wasn't "a real person" (that's what I thought everyone else was -- I seemed like an imposter).


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06 Feb 2020, 10:13 am

kraftiekortie wrote:
Not necessarily true.

It can be said that mild autism---especially Asperger's---is not usually evident until a child reaches at least preschool age; whereas more severe autism tends to start being evident in late infancy-early toddlerhood.

It is better for a relatively high-functioning person to have clarification through a relatively early diagnosis, though. Undiagnosed people in adulthood might be confused about what is causing their "symptoms," so they feel like they're "in the dark." They feel befuddled, and wonder whether they are "defective" in some way.


I'm completely agree with your comment, I feel now as you described, totally in the dark, lost. I guess it's just a matter of time, once things settle down.


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magz
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06 Feb 2020, 10:21 am

SharonB wrote:
It's about community support. Whether or not a person is diagnosed, is there a supportive community. If they are diagnosed, is there a supportive community? I would like that the community supports a person regardless of diagnosis and especially with diagnosis, but that is not always (or even usually) so.

Warning trigger: There is a high rate of self harm in the female population of ASD. I would like to see that statistic by those diagnosed at the time or not. In my personal experience: my undiagnosed ASD-like cousin is dead (and it was a close call for me) and my diagnosed ASD neighbor has community supports in place and is getting through (seemingly better).

I feel for those folks who are diagnosed or not and have little support.

When my therapist asked me if it would make a difference for me if I was diagnosed as a child, I thought for a moment and then I decided it would have helped me if I was understood as a child. If my issues were recognized as valid.
I completely agree that it's not about diagnosis, it's about support.


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06 Feb 2020, 10:40 am

Unless you have an effective treatment approach, early diagnosis, IMHO, is not effective and may be an unnecessary crutch for the Aspie.

And IMHO there are very few effective treatment options today.


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firemonkey
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06 Feb 2020, 10:41 am

magz wrote:
I completely agree that it's not about diagnosis, it's about support.


But if you're not diagnosed will you get that support from health professionals ?



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06 Feb 2020, 10:49 am

firemonkey wrote:
magz wrote:
I completely agree that it's not about diagnosis, it's about support.

But if you're not diagnosed will you get that support from health professionals ?

In many cases, the supporting person does not need to be any professional. Recognizing that e.g. your sensory issues are real and adressing them - adjusting lights, allowing you to spend your time alone, to squeeze under a weighted blanket or to carry a comfort toy with you - require no diploma.
On the other hand, some professionals seem to try to "fix" autistic children so they don't show symptoms and this may be traumatic for the kid - I'm talking rather about the "milder" end of the spectrum where the symptoms are less obvious and a temptation to "make the child normal" may arise.


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06 Feb 2020, 11:00 am

My mom provided me with lots of support. My brother had to go to a lot of social activities like the Boy Scouts as well as martial arts training to defend himself. I did not. A casual observer would think the opposite. That I wasn't getting any support!



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06 Feb 2020, 11:11 am

You can also look at it from the opposite direction, and ask what the chances are of a good outcome if you're diagnosed very late. At 64, I currently can't see any way to make up for what I've lost, and missed out on, but even a decade or two earlier might have made a huge difference.