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Are you insulted by anti-vaccine rhetoric?
Yes, who I am is not a mistake 67%  67%  [ 34 ]
Yes, who my child/loved one is is not a mistake 2%  2%  [ 1 ]
No, I believe vaccines caused my autism 2%  2%  [ 1 ]
No, I believe vaccines caused my child/loved ones autism 4%  4%  [ 2 ]
Unsure/Other/No opinion 25%  25%  [ 13 ]
Total votes : 51

Xinro
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12 Apr 2011, 10:51 pm

Today, while browsing over a website related to my obsession (cults), I ran across an article by a woman with many children with autism. In it, she started spouting anti-vaccine rhetoric. Vaccinations is one of my pet peeves and I'm always really insulted when people start railing against them and saying that autism is caused by them, because it's like telling me I'm a medical mistake. I checked out her website, and then sent her an email. Name has been omitted for obvious reasons.

Quote:
Hi (name),

I found your website through an article you published on (website) and wanted to commend you for your strength in raising so many children, especially so many with mental disorders and autism. It's really amazing that you've been able to run a home successfully with that much going on.

I'm a 19 year old girl with a form of high functioning autism called Asperger's Syndrome. Even with the challenge of a late diagnosis and little time for intervention, I've been able to graduate highschool and go off to college and live on my own for two years while learning so much about the world and how I live in it. I can understand that you and many other parents with lower-functioning autistic children need to find a reason for what happened and not blame yourselves. Many see some link between vaccinations and the onset of autism, as the time most vaccines are given is very close to when autism becomes apparent. I also wanted to make you aware that many of us with autism find this insulting.

Who I am is not a mistake caused by medicine. My personality is not a medical fluke or a chemical reaction - I am exactly the way I am supposed to be. My quirks, my traits, my interests and my way of existing in this world was not caused by some "poison" put into me. I am a perfectly healthy, happy human being who happens to have different challenges in my life than others. The fact that I was vaccinated or not does not change the fact that I have autism, and it did not cause it. I really hope you're aware of how hurtful it is to many of us high-functioning autistics and aspies to tell us that we are mistakes and that we should be "cured". If there was a cure in the world, I would refuse it because I love me. I'm happy, I'm confident and I'm exactly who I should be.


The trend of blaming vaccines for difficulties is profoundly disturbing to me. There are children who do have allergic reactions to them, that's well known, but there are children who have never touched a vaccine and are very, very autistic. I understand your pain at having so many children with these problems and your need to find a cure. Still, there's so much research being done which is saying that autism is genetic. The fact that you have five children with autism and other disorders should suggest that your genetics have a susceptibility to it, or even that they have some susceptibility to allergies related to vaccines. This doesn't mean you're bad or that you're cursed or anything. It just means that it's another disease with runs in your line, just like thyroid problems run in mine.

I do fully support natural living and diet intervention for autism like the GF/CF diet. I myself turn to well-researched herbs on occasions when I feel they'd be beneficial. Our world is as healthy and vibrant as it is today because we've been able to wipe out so many diseases through vaccinations. Still, that doesn't mean that they're gone. Like any true evil, they lurk and will strike when we're least expecting. More children are dying from rare diseases which we thought were long gone because their parents fail to immunize them properly. I can see pushing them back a few years, allowing more time in between the vaccines for the child's system to process them and check for allergic reactions, but I don't think this will stop the rise of autism. Something very big is going on in our world, bigger than us. There's a reason for all this autism, something we can't comprehend yet.

I hope that you're able to love your children as who they are, and I really wish there was more information in the world about how people with autistic disorders feel about vaccinations and who they are. There are a lot of opinions on all sides and very few facts in places.

Sincerely,

(Me)


I'm wondering how many of you really agree with the boldfaced part of this? Am I alone in feeling insulted by the anti-vaccine forces, or are people with me? I just sent this email, so there's no reply yet, but I'll keep you updated if I hear back.

((If this discussion doesn't belong here, please kindly inform me or move the post elsewhere - I checked the rules and it didn't say anything, so I'm assuming I'm good.))



littlelily613
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12 Apr 2011, 11:33 pm

I believe I was this way my entire life. I don't believe vaccines made me autistic. I've had boosters, and I am not more autistic after getting them. I think it is a cop-out for people who feel guilty and need a place to stick the blame. I am who I am, and it is no one's fault. People seem to be able to respect all kinds of diversity except for neurodiversity.....



daydreamer84
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13 Apr 2011, 12:50 am

ohhhh I hate these anti-vaccine people...............the research on vaccinations has been discredited...........some of it was even falsified. I have to go to bed soon so I can't look up the details on this in my psych books but I will later. It has been shown that the data used for the original study that indicated that mercury in vaccinations led to autism and started this ridiculous belief has been falsified! No scientific evidence supports this theory now....and it has been investigated extensively.

Autism is at least 80% heritable. The concordance rate for identical twins is between 61-90% and for fraternal twins 0-20% (LeCouteur et al, 2006). That makes autism more heritable than schizophrenia or bipolar disorder (Nicholson and Szatmari, 2003). Also ironically the chance that a child born to mom who has rubella will have autism is 10 times greater than that in the general population. This just shows the smaller contribution of non genetic prenatal influences but also that people who don't get vaccinated (the MMR vaccination which was implicated in one of those theories _may actually have more of a chance of having a child with autism (if they have the genetic predisposition to it) .....not less! ohhh irony :D

I am insulted and also alarmed by the ignorance of some people 8O

Feel free to use any of these stats if you want to.



Solvejg
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13 Apr 2011, 1:26 am

i am anti vaxx, i will be back once my children are in bed to explain.


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pensieve
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13 Apr 2011, 1:32 am

Santa Claus gave me autism.


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AriNecromare1213
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13 Apr 2011, 2:49 am

pensieve wrote:
Santa Claus gave me autism.


I'm starting to consider this as truth for myself. I was born in December and my father does resemble Santa Claus A LOT.


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KBerg
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13 Apr 2011, 4:45 am

Well, I am offended at it. But I'm not offended at it because I find it insulting to me personally or some how belittling autism. I'm offended at it because it's got crap science that was manipulated and falsified to produce a specific result behind it and yet the people who claim it to be the holy truth try to justify their stance with it being scientifically proven. While religiously rejecting every scientific principle or practice that could possibly prove their one truth about vaccines to be false.

I'd be less offended at an argument of "Autism is caused by demons. The holy father spoke to me and told me so" because at least that's an argument founded entirely in religion. It offends me that the people ignoring all the evidence to the contrary can't at least have the decency to go with religion, which tends to just not care if science says it can prove it wrong. I have no patience or sympathy for people who believe in that falsified crap. Kids used to die or be crippled from these diseases in the thousands every year, in many less developed countries they still do.



Solvejg
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13 Apr 2011, 4:50 am

Solvejg wrote:
i am anti vaxx, i will be back once my children are in bed to explain.


Solvejg wrote:
I have 2 children who are not vaccinated. I planned to vaxx and my son even had his first vaxx. It is what happened after that vaxx that stopped us ever vaxxing again.

He had a severe anaphylaxis reaction and ended up in hospital. Due to his young age (2 months) the excess fluid that his body produced to fight off the reaction bust his hydroseal and also pooled in his abdomen and around his brain. We almost lost him. He has had no more vaxx's including the booster for the one vaxx he did have so effectively he is unvaxxed now. My daughter has never had even one. The risk for us is too great.

I am not anti-vaxx. I am now delayed vaxx. I think vaxx's are good as they provide herd immunity but they should be delayed so the schedule starts at around 1 year of age, not 6-8 weeks old. In some countries the vaxx schedule starts at birth!

I think my son's autism is unrelated to his vaxx reaction but i think he has some other cognitive issues caused by it.


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KBerg
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13 Apr 2011, 5:07 am

But see, that's a reason we can understand. That's a concern and a realistic fear that you have that's founded in a very real and very serious previous incident. I don't think we would consider you anti-vaccination, not in the 'vaccinations cause autism, parents should not vaccinate their kids because it will give them autism' sense that offends us. And I'm sorry to hear that, must have been horrible to go through, and with him being so very young too it must have been terrifying. :-(



pensieve
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13 Apr 2011, 7:14 am

AriNecromare1213 wrote:
pensieve wrote:
Santa Claus gave me autism.


I'm starting to consider this as truth for myself. I was born in December and my father does resemble Santa Claus A LOT.


Hey me too and my dad had a big bushy beard.

I better go warn Jude Law (he was born on the 29th) because he might be a carrier of the Santa Claus virus.
Now I know why elves growth is so stunted.



But seriously, I grow tired of the emotionality of the anti-vaccine crusade. If they stood up in a rational manner and had some actual science to back it up with and were less subjective about it I might consider listening to their argument.


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Xinro
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13 Apr 2011, 8:18 am

So I got a reply from the person this morning, and I wasn't expecting anything different. I won't put the whole thing here for their privacy, but I'll give you all a synopsis:

- They have multiple children with autism and one parent with AS, as well as an older daughter who was recently diagnosed with it.
- Apparently they don't see the difference between severe autism and AS and treat everyone on the spectrum the same.
- The issues AS, even the very mild, causes hinders people and they need to be cured because it's disruptive to their lives. Autism is frustrating and upsetting.
- There's no such thing as a genetic epidemic, though there is a possibility of predisposition.
- Vaccines aren't the only problem - environmental issues and the way we live is toxic and creates autism.
- Vaccines never worked in the first place, our immune system is a "God-given gift" and science can't beat it, but can be "naturally stimulated" to work properly.
- "I am glad that you are happy with your Aspergers and have found the balance with your own life. Please realize that people get offended also when accused of trying to help their children like it is a bad thing.... I know what you are trying to say, but not everyone can live with their condition."

The last part particularly pissed me off. The problem with these anti-vacciners is that they only ever see it as a problem which needs to be cured. Not once in the email did she mention the beautiful, wonderful things about AS, the advantages it gives and the amazing insight we have. I hate it when people only see the bad parts of AS, only the sensory issues and the social problems, and they never look deeper to see through our eyes. They become martyrs. "Oh, woe is me, I'm burdened with this, pay attention to me". BS. AS is what you make it. I've turned what they see as lemons into my lemonade. Yeah, I have issues from AS that can make things tough, but I have so many great things too, and I feel so bad for this person's children. They'll never know the beauty of what they can accomplish.



zer0netgain
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13 Apr 2011, 8:20 am

Considering the money and lies behind the non-stop wave of vaccinations being pushed on kids (at ever younger ages), I see significant credibility to the possibility that MANY (not ALL) autism cases COULD be the result of toxins in the vaccinations harming neurological development.

Those claiming vaccinations can't cause autism can have their funding traced right back to the Big Pharma interests who don't want to be held accountable for the multitude of harms their drugs DO cause patients of all ages around the world.

The effort to discredit anyone saying vaccinations cause harm is so money-centered and it's all a shouting match for attention rather than impartially examining the evidence being presented.

FDA says vaccinations are safe...they also endorse aspartame, which IS a poison killing people, but big money got it approved. Pardon me if I choose not to trust what the FDA has to say as gospel.

Perhaps my having AS would have happened no matter what. I certainly was born early enough when the number of vaccinations was much lower and not given at such young ages. The explosion in autism cases happened since they started cranking out more vaccines and giving them at younger ages.

A similar comparison can be made with abortions and breast cancer. It is a known medical fact that a terminated pregnancy (stillborn or abortion) messes up the natural rhythms of a woman in pregnancy. These disruptions increase the odds of having cancer later in life. We have an explosive rate of growth in the number of abortions being performed in the USA, and about 20 or so years later, we see an explosion in breast cancer among women. No further studies are being done on this (political hot potato), but I question if the two are related. Because of the political ramifications, no scientific study of this relationship is ongoing (to what I know), but if having abortions does vastly increase the risk of breast cancer later in life, should not women be warned of this danger?



Xinro
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13 Apr 2011, 8:31 am

zer0, everything you've just said has been discredited time and time again. I'd also appreciate if you didn't attempt to hijack the thread with abortion controversy. That's a topic for another thread. Please go ahead and start it, but don't try to inject it where it doesn't belong.



zer0netgain
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13 Apr 2011, 8:35 am

Xinro wrote:
zer0, everything you've just said has been discredited time and time again.


"Discredited" by established money interests. For every person they try and paint as a fraud, there are dozens more saying the same thing, with their own research, that doesn't get attacked.



leejosepho
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13 Apr 2011, 8:41 am

Xinro wrote:
Quote:
I am exactly the way I am supposed to be.

That is an emotional-philosophical-religious statement that might or might not be true.


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Xinro
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13 Apr 2011, 9:45 am

zer0netgain wrote:
Xinro wrote:
zer0, everything you've just said has been discredited time and time again.


"Discredited" by established money interests. For every person they try and paint as a fraud, there are dozens more saying the same thing, with their own research, that doesn't get attacked.


Hey, dunno if you're aware, but money is kind of needed to perform major scientific research which is accurate and credible. If a guy sitting in his basement said he's found a cure for autism, I'm going to have to say he's a kook. Major scientific studies require grants or even, *le gasp* money from drug companies. That's just how the world works. You might not like it, but if we're going to have innovation and information, we're going to need money, and sometimes that might come from somewhere you don't like.

I'd rather be alive and have AS than be dead from polio any day.