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ocdgirl123
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10 May 2011, 1:30 pm

I'm not talking about selective mutism or going non-verbal during meltdowns, I am talking about actually, being non-verbal. If so, what's it like? I have never actually met a non-verbal autistic person who would have the ability to write down what is is like for them, and I am curious to know what it's like.

Anyone?



Hands
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10 May 2011, 1:53 pm

I'm not non-verbal and I don't know anyone in real life or online who is. But a few weeks ago I watched this documentary called The Sunshine Boy which is mostly about non-verbal people with autism. Some of the people were able to explain what you are asking about very well.


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Akari_Blue
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10 May 2011, 1:56 pm

ocdgirl123 wrote:
I'm not talking about selective mutism or going non-verbal during meltdowns, I am talking about actually, being non-verbal. If so, what's it like? I have never actually met a non-verbal autistic person who would have the ability to write down what is is like for them, and I am curious to know what it's like.

Anyone?


I am and have always been non-verbal. I cannot speak, and at this point it is unlikely I will ever be able to. If you are interested, I have a journal online where I write about various things. The link to my journal should be on my profile.

I could not just tell you "what it is like" since I have no idea what it is like to not be non-verbal.

Akari



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10 May 2011, 2:03 pm

I too am not a non verbal. In fact most people say I'm too verbal! If you are interested in getting an insight into non verbal autistic people who can express their views through other means, I would highly recommend that you Research Carly Fleishmann. Carly cannot speak a word through her mouth, however she writes using a computer. She actually has more insight into my own condition then I do. She describes her thought processes and beliefs quite clearly. I think this is amazing.

A couple of news articles
http://www.youtube.com/watch?v=34xoYwLNpvw

http://www.youtube.com/watch?v=ATVxvVMN ... er&list=UL


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10 May 2011, 2:30 pm

I am not non-verbal myself and am more communicative than most, but I've known ("known of" is a better term) an Aspie for the past 18 months who is almost completely non-verbal, except perhaps with his family. In that time he has spoken a total of 9 words to me, mostly scripted replies, although I have gently tried to talk to him at times. This Aspie happens to be the person who unknowingly led me to my own awakening, realization and diagnosis that I myself am an Aspie. I can tell you from experience that it is truly heartbreaking to want so much to be able to communicate with someone who has such extreme difficulty with communications.

Hands, thanks for the tip about The Sunshine Boy. I just went looking for it (also by the longer name of A Mother's Courage: Talking Back to Autism) but could not readily find it posted online. I will keep looking.



ocdgirl123
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10 May 2011, 2:32 pm

Jellybean wrote:
I too am not a non verbal. In fact most people say I'm too verbal! If you are interested in getting an insight into non verbal autistic people who can express their views through other means, I would highly recommend that you Research Carly Fleishmann. Carly cannot speak a word through her mouth, however she writes using a computer. She actually has more insight into my own condition then I do. She describes her thought processes and beliefs quite clearly. I think this is amazing.

A couple of news articles
http://www.youtube.com/watch?v=34xoYwLNpvw

http://www.youtube.com/watch?v=ATVxvVMN ... er&list=UL


Neat! I think my friend told me about this person.



Reindeer
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10 May 2011, 2:36 pm

Well If someone is forcing me up in a corner I begin to fight :(
Really unpleasent when I have to, just thinking about it makes me sad.


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10 May 2011, 4:40 pm

I am semi verbal. I can make one word with lots of efot. not full sentences.



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10 May 2011, 5:02 pm

I am partially verbal. I can't speak for hours at a time on a daily basis, unrelated to meltdowns... sometimes days or weeks at a time. This has happened from my earliest memories (well before age 2). If I get SSI at my hearing next month, I will get an iPad and use it for portable communication. This may mean I'll speak even less, but I'd be infinitely more comfortable and less stressed out, so I think it would be good.