What are the upsides and downsides of a diagnosis?

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swbluto
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06 May 2011, 8:48 pm

So, I'm looking into getting an evaluation and I was wondering what are the upsides and downsides of *having* a diagnosis of autism/HFA/Aspergers? The cost issue of the evaluation isn't an issue I'm concerned with, it's the potentially much larger long-term costs of such a diagnosis and usage of that information.

How does it affect employers? Does a diagnosis of autism generally improve or decrease your likelihood of being hired in the event that you actually do have autism and you share that diagnosis with your employer? Does it affect how you are treated in the company (Are fellow employees more understanding of your difficulties and tend to be more accommodating instead of regarding you as the local a**hole, or would they be that much more likely to treat as you as a pariah with *that* disease) by coworkers and your boss?

How confidential are diagnoses kept in the USA?

What would be the longterm wisdom of sharing a diagnosis with a teacher of a group-based course? I mean, sure, he might be willing to make accommodations so that you aren't sand-bagged by your team mates or, if you are, he might make sure it won't significantly affect your grades, but will the knowledge leak out into the "business world" now that your fellow student peers and teacher knows about it and thereby potentially endanger your future employability?

What about health and car insurance companies and how that might affect premiums?

What about the wisdom of sharing a diagnosis with someone you're in love with? Would they tend to be more understanding, or would there be a greater likelihood of being categorized into an "unacceptable category" thereby risking the ruining of the relationship? (I already read about this happening once on WP.) Is there an optimal time to 'share it', such as possibly after you've legally shackled him/her through marriage?

I'm just curious about all the longterm impacts of a diagnosis, and wondering if a diagnosis is at all worth it.



ooOoOoOAnaOoOoOoo
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06 May 2011, 9:13 pm

It doesn't affect my premiums. In fact, my driving record is so spotless I could eat a slice of pepperoni pizza off it.



Dinosaw
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06 May 2011, 10:56 pm

I'm curious about this as well. I'm posting here so I can watch the responses.


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07 May 2011, 12:00 am

Dinosaw wrote:
I'm curious about this as well. I'm posting here so I can watch the responses.


Seconded


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07 May 2011, 12:56 am

swbluto wrote:
How does it affect employers? Does a diagnosis of autism generally improve or decrease your likelihood of being hired in the event that you actually do have autism and you share that diagnosis with your employer? Does it affect how you are treated in the company (Are fellow employees more understanding of your difficulties and tend to be more accommodating instead of regarding you as the local a**hole, or would they be that much more likely to treat as you as a pariah with *that* disease) by coworkers and your boss?

How confidential are diagnoses kept in the USA?


HIPAA says your medical records are confidential. You don't have to disclose diagnoses to employers or potential employers.

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What would be the longterm wisdom of sharing a diagnosis with a teacher of a group-based course? I mean, sure, he might be willing to make accommodations so that you aren't sand-bagged by your team mates or, if you are, he might make sure it won't significantly affect your grades, but will the knowledge leak out into the "business world" now that your fellow student peers and teacher knows about it and thereby potentially endanger your future employability?


I can't really say whether or not it would leak out. You don't have to tell your teacher you're autistic. You can list the specific difficulties you need accommodations for.

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What about health and car insurance companies and how that might affect premiums?


Currently, autistic spectrum disorders are considered a pre-existing condition and mean you will be excluded from getting health insurance until it's no longer legal to do that.

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What about the wisdom of sharing a diagnosis with someone you're in love with? Would they tend to be more understanding, or would there be a greater likelihood of being categorized into an "unacceptable category" thereby risking the ruining of the relationship? (I already read about this happening once on WP.) Is there an optimal time to 'share it', such as possibly after you've legally shackled him/her through marriage?


This is something you have to handle on a case-by-case basis. Everyone is different of course, but it's up to you to work out whether you want to be someone you wouldn't trust to know that you're autistic. I'm not saying either way is better, by the way. I think people deserve the right to decide what to tell their SOs, and that just being an SO does not entitle anyone to full and complete knowledge of your life.

That's the best I can say because I have no experience with disclosing autism in potential relationships. I have, however, had relationships, and I don't think it's possible to make a hard and fast rule.

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I'm just curious about all the longterm impacts of a diagnosis, and wondering if a diagnosis is at all worth it.


Does it impair you? Do you need accommodations? What do you want out of a diagnosis?



League_Girl
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07 May 2011, 1:51 am

swbluto wrote:
So, I'm looking into getting an evaluation and I was wondering what are the upsides and downsides of *having* a diagnosis of autism/HFA/Aspergers? The cost issue of the evaluation isn't an issue I'm concerned with, it's the potentially much larger long-term costs of such a diagnosis and usage of that information.

How does it affect employers? Does a diagnosis of autism generally improve or decrease your likelihood of being hired in the event that you actually do have autism and you share that diagnosis with your employer? Does it affect how you are treated in the company (Are fellow employees more understanding of your difficulties and tend to be more accommodating instead of regarding you as the local a**hole, or would they be that much more likely to treat as you as a pariah with *that* disease) by coworkers and your boss?

I would recommend using a different email address you never use online so that way if they try and google your email address, the autism forums won't pop up, especially this one.

They can discriminate against you if they somehow find out you have autism before hiring. But with a diagnoses, you can qualify for voc rehab or any companies that is for people with disabilities.

I would also say it depends on the job. Some bosses are understanding and some aren't. My last two seemed understanding even though I never told them I had AS but they acted like they knew. I just figured they were open minded people. But my office clerk was ignorant and didn't seem to believe my issues were real because he thought I didn't use common sense and expected me to be psychic and have a savant memory.


How confidential are diagnoses kept in the USA?

Your DX is never disclosed without your permission but it is not kept private from the government so it can make you not being able to join the army or air force or the NAVY.


What about health and car insurance companies and how that might affect premiums?

When you are employed, your diagnoses will not stop you from getting health insurance through them. It sure does not stop you from getting car insurance because I have it so I know. But if you decide to buy health insurance, it will stop you from getting it.


What about the wisdom of sharing a diagnosis with someone you're in love with? Would they tend to be more understanding, or would there be a greater likelihood of being categorized into an "unacceptable category" thereby risking the ruining of the relationship? (I already read about this happening once on WP.) Is there an optimal time to 'share it', such as possibly after you've legally shackled him/her through marriage?

That depends. My ex's didn't seem to understand me that well. The first one wouldn't even try because he thought he knew all about it just by seeing how I act but he still didn't understand. My ex had the effort to read about it but he still didn't seem to understand and was dismissing my issues as "That's not AS" acting like I can't have co morbid conditions nor other conditions even though I told him I also have anxiety and ADD and learning issues and you can have other disabilities besides AS. He also used this place like a bible for what is AS and then not accepting my quirks and interests because they were too "childish" because lot of aspies on here didn't have childish interests and then they did, it was with technical stuff like Legos or Knex so he found that acceptable but not Barbie or Franklin or Clifford the Big Red Dog or Spongebob or any cartoons and Disney :roll: But yet he acted like he wanted me to be NT and acted like he wanted me to change. He also acted like I was mentally challenged.

But my current husband accepts me for who I am and he read about AS too but only twice and then never again. But he still understands me.



I'm just curious about all the longterm impacts of a diagnosis, and wondering if a diagnosis is at all worth it.


Do you need any accommodations or services like with help with getting a job through voc rehab or something or getting Social Security?

Do you want to know for sure if you are on the spectrum?

Do you need to be understood and the only way to be taken seriously is if you have a label?






kfisherx
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07 May 2011, 1:55 am

Unless you have some specific agenda in mind for a dx, I would say to not get one. I had mine removed officially. That said, I disclosed at my workplace and am very open about it. I just don't think it needs to be on anything official. :)



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07 May 2011, 2:02 am

kfisherx wrote:
Unless you have some specific agenda in mind for a dx, I would say to not get one. I had mine removed officially. That said, I disclosed at my workplace and am very open about it. I just don't think it needs to be on anything official. :)


You got rid of your AS DX?



ooOoOoOAnaOoOoOoo
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07 May 2011, 2:10 am

Hmm. Interesting.



Conspicuous
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07 May 2011, 5:47 am

As far as letting your coworkers know of your diagnosis, I am still working on that one. I, of course, don't have an official diagnosis yet and that changes things considerably, but some concepts will be similar.

Since realizing I have Asperger's, I've experimented a little with telling coworkers about it and have generally gotten either disbelief or positive results. A couple people have tried arguing the point and a couple have been accepting. Luckily, I've had one coworker, a fellow manager, who is very supportive. I've explained it to her and she understands most of it. She agreed to try to explain things to me when I don't understand and I've agreed to try to fix problems when she brings them to my attention. So far, this has helped tremendously because one of my biggest problems was lack of social feedback due to my inability to read facial expressions and body language. Should you choose to disclose your diagnosis to your coworkers, I hope you find someone as supportive.

As for bosses, I haven't told any of my bosses yet because they all hate me and it would just give them more ammunition. I hope to keep that status quo until I get an official diagnosis.



swbluto
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07 May 2011, 6:24 am

Conspicuous wrote:
As for bosses, I haven't told any of my bosses yet because they all hate me and it would just give them more ammunition. I hope to keep that status quo until I get an official diagnosis.


So, as a general rule, if they hate you and are in a position to use that information against you, then don't share it? But, if they like you and that information could ease the workplace dynamics, it's generally acceptable?

Haha. That sounds like it act'd some kind of 'intensifier' - the 'good' relationships become better and the 'bad' relationships become worse. So, only let the people whom you have a good relationship know. However, if the people whom you have a good relationship talk with the people whom you have a bad relationship with (Or they talk to someone else who in turn talk to the people whom you have a bad relationship with), then they'll eventually know since word travels fast...

So it sounds like it probably wouldn't be wise unless they were trusted with that information. Thinking about the previous posts, it might be better instead of revealing a sort-of-well-known label to just let them know of the symptoms. I'm not sure if giving the symptoms a label could actually help, and if I did, maybe a euphemism would be better? Like, oh.... well, ADD sounds less stigmatized and shares many of the same symptoms, so that sounds better. :lol: (I'm having doubts about that particular label's effectiveness... I'm not sure if "I have ADD" gets the "I can't read facial expressions and take things literally" message across effectively.)



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07 May 2011, 7:13 am

'Intensifier', I think you're on to something there.

We should remember that a professional diagnosis can be useful where there is personal doubt about one's condition, as I have some additional issues aside from just ASD that a professional could help me alleviate.

Regarding employment, there are several 'recommended' or 'optimal' career paths that are discussed at length in numerous threads on this site as well as elsewhere on the internet. Here is an interesting article that I ran into regarding one computer firm's decision to focus their hiring on autistic candidates, as it is theorized that the traits associated with ASD make the individuals more suitable for the kind of work involved:

Software Company Only Hires People With Autism


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07 May 2011, 9:23 am

Dinosaw wrote:
'Intensifier', I think you're on to something there.

We should remember that a professional diagnosis can be useful where there is personal doubt about one's condition, as I have some additional issues aside from just ASD that a professional could help me alleviate.

Regarding employment, there are several 'recommended' or 'optimal' career paths that are discussed at length in numerous threads on this site as well as elsewhere on the internet. Here is an interesting article that I ran into regarding one computer firm's decision to focus their hiring on autistic candidates, as it is theorized that the traits associated with ASD make the individuals more suitable for the kind of work involved:

Software Company Only Hires People With Autism

Thanks for sharing that article! I found it very interesting. I hope more companies become open to employing people with Asperger's.


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07 May 2011, 9:24 am

Once you disclose information about your ASD to any of your coworkers, it'll be no secret any more. Furthermore, my experience suggests that with time you have a strong chance to be accepted as you are.

In the past I have fought with some of my colleagues, but - perhaps I was fortunate - I was eventually accepted by my employer and my boss. I feel they accept me somehow (hope it will last) and know by their instinct what can be expected from me, what are those things I need assistance or support with, and also they seem to be patient when I don't do something up to the standard, maybe being able to sense the relation to my condition.

So, it might be a special region-based decision of mine, I won't disclose information of my future-DX to anybody at my workplace. (They have to find out about this website first.)


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07 May 2011, 10:13 am

League_Girl wrote:
kfisherx wrote:
Unless you have some specific agenda in mind for a dx, I would say to not get one. I had mine removed officially. That said, I disclosed at my workplace and am very open about it. I just don't think it needs to be on anything official. :)


You got rid of your AS DX?


Yes. No official paperwork for me. I still receive all the benefits at work from the DX (protection from ADA, etc) but do not have to worry about medical benefits in my future. There really is NO benefit in the US for an official version of a DX if you are employed and independent. It can only harm IMHO under those circumstances...



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07 May 2011, 10:37 am

swbluto wrote:
...The cost issue of the evaluation isn't an issue I'm concerned with...


Cost is an issue for me. I look at the diagnosis as a cost/benefit analysis since I would have to pay for it myself. What benefit do I get? Job placement services? No. Any kind of help? I have seen no treatment plans in anything I have read that would make any substantive difference. Contact with the mental health world? That does not excite me.

I'm really interested in the responses to this thread. Please keep them coming. What are the the benefits/drawbacks of a diagnosis beyond cost?

I happen to work for a small company and do stuff no one else knows or wants to know, so they'll keep me while it lasts. But what about after that?