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Solvejg
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10 May 2011, 12:31 am

My dx date has been moved forward. In 2 days time i will be dxed as a HFA!

I am not sure how i feel. :?

stories of others dxed as autistic in Adulthood please!


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Callista
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10 May 2011, 1:03 am

What you have always been won't change.

You will however have more information about yourself, because you will know whether the label "autistic" applies to you and by extension whether you have similar traits as a large group of other people.

It's a little odd thinking about yourself as "autistic" at first. You may have to deal with self-directed prejudice against disabled people, if you didn't consider yourself "disabled" before (many of us do have to deal with that, because autism is an invisible disability and we grow up not realizing that this is a description that fits us.)

On the other hand, it can be nice to have that label, because having one word for it means not having to scrape together a huge description every time you try to think about it.

All in all, it's a good thing in the long run to know whether you are autistic, especially if you need significant amounts of help (which is true for most autistics, at least in childhood). Many of us blunder along without any help for a long time, burning out or just performing way below our potential, when rather simple adjustments would let us use our skills effectively.

And of course it lets you put yourself squarely into autistic culture and autistic pride, though you could do that without a diagnosis, of course--many people do, since autistic culture isn't really based around the diagnosis--a diagnosis asks "Are you significantly impaired?" and many people who are culturally autistic are not, despite their having more in common with diagnosed autistics than with NTs.


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23 May 2011, 2:51 am

I just got my diagnosis. Since there's no clear definitions about HFA against Aspergers I fall in-between both categories. Though since I do have some weird properties such as the ability to learn/pattern social behaviour and adapt (albeit, with a lot of effort) I'm told it's more of a HFA then AS.

Honestly, I feel free. Finally an answer as to why I feel as an outcast. I'm also told I have a huge self-defence mechanism of finding anyone not interesting. I will work on the things that I learned from the diagnosis (I got a full explanation on everything) I got tips how to best study and how not to (lots of visual/writing, don't even try with audio). And I learned I have a horrible working memory and quite a bit of attention difficulties.


I'm quite sad my IQ is estimate at around 109 only, on a global scale, though the individual parts are interesting. I scored horribly on working memory/attention tests while I scored a lot on analytical/spacial/logical tests (few points short of being classes as 'supergifted'. I know and I feel that I can do so much more, since I've been stuck for years, my cognitive abilities rusted. I know for sure that my potential has yet to be reached. If I do an IQ test in 5 years, (I plan to study 5+ years at least) I'm sure I can score a lot higher.

All in all, I learned a lot. Exactly what I wanted out of the diagnosis, answers. I now know some things are impossible for me, I know which things. I also know what things I have trouble with and what I can change.

Very enlightening.



cyberdad
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23 May 2011, 3:01 am

Solvejg wrote:
My dx date has been moved forward. In 2 days time i will be dxed as a HFA!

I am not sure how i feel. :?

stories of others dxed as autistic in Adulthood please!


The one and only reason you would be DX'd as HFA is if you had a speech delay.



cyberdad
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23 May 2011, 3:05 am

Guilliman wrote:
I'm told it's more of a HFA then AS. I'm quite sad my IQ is estimate at around 109 only, on a global scale, though the individual parts are interesting. I scored horribly on working memory/attention tests while I scored a lot on analytical/spacial/logical tests (few points short of being classes as 'supergifted'. I know and I feel that I can do so much more, since I've been stuck for years, my cognitive abilities rusted. I know for sure that my potential has yet to be reached. If I do an IQ test in 5 years, (I plan to study 5+ years at least) I'm sure I can score a lot higher


My HFA daughter is well above her NT peers on all academic indicators except verbal. The current IQ test is very heavily skewed against non-verbal learners.



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23 May 2011, 3:06 am

See I fit in both columns, I didn't really have speech delay issues, but I do have a better visual/spacial processing ability then one would fit in AS. I also do not have huge issues with motor skills (but still some) then one would expect with AS.

I read not all things are the same with everyone who has AS or HFA. Which does explain why there's still ongoing debate whether they are the same or should remain two separate diagnoses.


cyberdad wrote:
My HFA daughter is well above her NT peers on all academic indicators except verbal. The current IQ test is very heavily skewed against non-verbal learners.

I read this too. Verbal parts of the tests influence the results a lot.



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23 May 2011, 3:21 am

cyberdad wrote:
Solvejg wrote:
My dx date has been moved forward. In 2 days time i will be dxed as a HFA!

I am not sure how i feel. :?

stories of others dxed as autistic in Adulthood please!


The one and only reason you would be DX'd as HFA is if you had a speech delay.


Speech delay is not a requirement in the autism or PDD-NOS critieria. AS is HFA as far as life courses and outcomes go.

As I understand nearly everyone diagnosed with AS probably fit the criteria for autism or PDD-NOS, and per the original criteria should be diagnosed with those in preference to AS, but often AS is diagnosed in preference to other things, especially in adulthood.

I believe there's at least one regular here who started speaking very early who was diagnosed with PDD-NOS.

I'm mostly being pedantic here. You are correct that the lack of a speech delay will probably mean an AS rather than autism diagnosis.



cyberdad
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23 May 2011, 5:29 am

Verdandi wrote:
Speech delay is not a requirement in the autism or PDD-NOS critieria. AS is HFA as far as life courses and outcomes go.
As I understand nearly everyone diagnosed with AS probably fit the criteria for autism or PDD-NOS, and per the original criteria should be diagnosed with those in preference to AS, but often AS is diagnosed in preference to other things, especially in adulthood.
I believe there's at least one regular here who started speaking very early who was diagnosed with PDD-NOS.
I'm mostly being pedantic here. You are correct that the lack of a speech delay will probably mean an AS rather than autism diagnosis.


I'm not sure about PDD-NOS, you may be correct. But DSMIV the typology for HFA is typically IQ>70, early delay in speech or pragmatic language. Further the addition of hyperlexia traits plus HFA indicate good prognosis when combined with speech therapy and school integration.

The speech delay is a problematic diagnosis because my daughter was actually talking from 10 months of age and using simple pragmatic speech at 3. However she has tended to use echolalia as the preferred method acquiring pragmatic speech.



cyberdad
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23 May 2011, 5:33 am

Guilliman wrote:
I read not all things are the same with everyone who has AS or HFA. Which does explain why there's still ongoing debate whether they are the same or should remain two separate diagnoses.


DSMV will absorb AS under the HFA umbrella, the data indicates that any non-verbal autistic person with an IQ>70 will learn to use language eventually.



Verdandi
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23 May 2011, 5:57 am

cyberdad wrote:
I'm not sure about PDD-NOS, you may be correct. But DSMIV the typology for HFA is typically IQ>70, early delay in speech or pragmatic language. Further the addition of hyperlexia traits plus HFA indicate good prognosis when combined with speech therapy and school integration.


I don't believe HFA is actually mentioned in the DSM-IV. And the talk about language delays is a bit more detailed:

DSM-IV-TR wrote:
The impairment in communication is also marked and sustained and affects both verbal and nonverbal skills. There may be delay in, or total lack of, the development of spoken language (Criterion A2a). In individuals who do speak, there may be marked impairment in the ability to initiate or sustain a conversation with others (Criterion A2b), or a stereotyped and repetitive use of language or idiosyncratic language (Criterion A2c). There may also be a lack of varied, spontaneous make-believe play or social imitative play appropriate to developmental level (Criterion A2d). When speech does develop, the pitch, intonation, rate, rhythm, or stress may be abnormal (e.g., tone of voice may be monotonous or inappropriate to context or may contain questionlike rises at ends of statements). Grammatical structures are often immature and include stereotyped and repetitive use of language (e.g. , repetition of words or phrases regardless of meaning; repeating jingles or commercials) or idiosyncratic language (i.e., language that has meaning only to those familiar with the individual's communication style). Language comprehension is often very delayed, and the individual may be unable to understand simple questions or directions. A disturbance in the pragmatic (social use) of language is often evidenced by an inability to integrate words with gestures or understand humor or nonliteral aspects of speech such as irony or implied meaning.


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The speech delay is a problematic diagnosis because my daughter was actually talking from 10 months of age and using simple pragmatic speech at 3. However she has tended to use echolalia as the preferred method acquiring pragmatic speech.


There's more than one kind of speech delay. I believe other posters have described having delayed speech while appearing to have early or normal speech due to hyperlexia and echolalia. The above quote from the DSM-IV-TR describes several possibilities, including echolalia.



Callista
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23 May 2011, 6:57 am

Quote:
I don't believe HFA is actually mentioned in the DSM-IV.
It's not. "HFA" is not formally defined. It's simply what a doctor says when you fit his idea of "high-functioning", which could be anything from being able to feed yourself to being completely independent.

Regarding classic autism diagnosis: It is actually possible to be diagnosed with classic autism and have absolutely normal speech, on time and communicative just like an NT child's speech, if you have unusual or absent imaginative play.


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cyberdad
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23 May 2011, 8:05 am

Verdandi wrote:
There's more than one kind of speech delay. I believe other posters have described having delayed speech while appearing to have early or normal speech due to hyperlexia and echolalia. The above quote from the DSM-IV-TR describes several possibilities, including echolalia.


Ok thanks Verdandi. I think I've been reading too much in a short space of time and have induced a Deese-Roediger-Mcdermott effect of "false memory".



CockneyRebel
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23 May 2011, 8:38 am

I wasn't diagnosed as an adult, but I was diagnosed with HFA at the age of 5 and a half.


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23 May 2011, 9:55 am

Technically speaking, wouldn't it be that in two days you will go in for an assessment and perhaps be diagnosed with autism or aspergers? There is no formal designation of HFA. You will either get Aspergers, classic autism, or PDDNOS, if the psych agrees with you that you are on the spectrum. I was diagnosed just a couple months ago at the age of 26, although I knew about the possibility since I was around 21. My official label was Aspergers; however, I did not know I had a significant speech delay/regression. I will be going next month for another evaluation at another. That is not to change the label, but because I had issues with the original clinic I went to (long story, but I can't get a report from them for my student loan purposes, so I am going somewhere else). If they are going to give me the correct diagnosis at this new place, I will be labeled with autism due to my speech delays. I consider myself to be on there severe end of HFA. I say I am HF because I am verbal now, go to school, work about 10 hours a week (sometimes quite a bit less, sometimes a bit more). I am severe though because most of my symptoms are very prominent, I cannot sustain conversation with people, I cannot make friends, and I am not independent (and do not know if I ever will be). Still HFA and LFA are just clarification labels. Really, all people with classic autism just have autism, and that is what they are diagnosed with.



Hauge
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01 Jul 2011, 12:45 am

When i got my dx, i were told that the difference between AS and (HF)Autism were, if speach before two years birthday and IQ in the normal to high range you'd be dx'd AS. Else (HF)Autism...


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Verdandi
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01 Jul 2011, 12:48 am

Hauge wrote:
When i got my dx, i were told that the difference between AS and (HF)Autism were, if speach before two years birthday and IQ in the normal to high range you'd be dx'd AS. Else (HF)Autism...


This was covered earlier in the thread. Some diagnosticians believe this, but that's not actually what the criteria say.