Does anyone NOT identify with Attwood's Complete Guide?

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btbnnyr
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22 Jun 2011, 1:56 pm

I have been reading Attwood's Complete Guide, and I find that I do not identify with most of his descriptions, especially the ones involving social and emotional issues. I know that each person with AS is different, so I want to find out if there are others here who do not identify with his descriptions.

In Chapter 3, Social Understanding and Friendship, Attwood describes children with AS as wanting to socialize and make friends, at least by the time they reach school-age, but not knowing how or going about it the wrong way. I feel that he has made a major assumption that children with AS do want to socialize, make friends, or feel left out if they cannot. In my case, I did not. Before the age of 10, I had no awareness of children or adults outside the home, no idea of socialization, no idea of friendship, and very little idea of speech and gesture as means of mind-to-mind communication, with decent reception and lack of expression. After, I picked up on these ideas, but still had no desire or need to socialize and make friends. Incidentally, I did make friends in high school and college, but could not keep with their levels of socialization, so I was always considered the weird one who only participated in group activities occasionally. In general, I was happy being alone then, I am happy being alone now, and I just do not have these massive amounts of social desires and needs that Attwood assumes that people with AS have and do not have the skills to satisfy, thus driving them into unhappy states of mind. Reading his descriptions, it feels to me like he is projecting his own desires and needs or the desires and needs of the majority of NTs onto autistic people. He assumes that lack of socialization is an inherently negative or unhealthy thing for us, and while that may be true for some, it is not true for all. Does anyone else feel this way?

In Chapter 7, Special Interests, Attwood goes on to hypothesize that children and adults with AS pursue their special interests as a way to compensate for lack of socialization and friendship. This rings absolutely false to me. The pursuit of special interests is not a withdrawal from hurtful social experiences, but the default setting. For me, special interests and intellectual activities have always been prioritized way above people, ever since I was old enough to pursue any activities, so there is no withdrawal from anything. Attwood again assumes that people with AS hold people at same priority as NTs do, so it is only after we have "failed" with people that we turn to our special interests. No no no! For me, special interests generate levels of happiness that no amount of successful social connection or friendship could possibly match. Does anyone else feel this way?

Throughout the book, Attwood uses the analogy of us having to learn a different culture and language to get along in the NT world. I do not doubt that, but I do doubt that we have the same desires, needs, and priorities as NTs. For me, the drive to learn the culture and language has only to do with the practicalities of everyday life, such as going to school or working at a job, and has nothing to do with me having those same desires, needs, and priorities and just lacking the skills to satisfy them.

I have other issues with other descriptions, but I want to find out if anyone who has read the book feels the same way as I do. Or if anyone who has not read the book identifies with what I described here. I do not have anything against Attwood, but I was surprised that I identified with so little of what he described.


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draelynn
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22 Jun 2011, 2:02 pm

No one book can decribe every single variation. Tony Attwood is usually very upfront about that in his prefaces. He usually speaks to what he has found as the most prevalent traits from his practice - but they are by not means the only traits in AS.

If you are looking for a book that describes you personally, I'm afraid you are going to have to write it.



btbnnyr
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22 Jun 2011, 2:10 pm

draelynn wrote:
No one book can decribe every single variation. Tony Attwood is usually very upfront about that in his prefaces. He usually speaks to what he has found as the most prevalent traits from his practice - but they are by not means the only traits in AS.

If you are looking for a book that describes you personally, I'm afraid you are going to have to write it.


I am NOT looking for a book that describes me personally. I am only looking to find out if other people on this forum have had experiences more similar to mine than the ones described in the book. No matter how much of an expert Attwood is, he is not autistic, so I want to hear about the experiences of the real experts here. Also, what did ring the truest in the book were the quotes and excerpts written by Hans Asperger.


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22 Jun 2011, 2:29 pm

I agree with everything you wrote. But, isn't a lack of interest in peers and relationships part of the diagnostic criteria? All I know is that while I do have some desire to socialize, it is extremely minimal as compared to other people. It seems as if most aspies here do fit the description in Attwood's book, but I don't think I'm one of them.


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22 Jun 2011, 2:33 pm

I don't really care about socializing. I mean I do it to some extent, and I do not hate it, but I could easily go without it for days at a time (and have).

I don't engage in my interests because of lack of socializing. If anything, my interests make it easier for me to not socialize. Also, a couple of my long-term interests actually required socializing, so I ended up interacting more rather than less while engaged in them.

I agree with Draelynn that any book is going to be filled with generalizations, but I do find it passing strange when someone decides that what a book or professional says must be true for everyone.



btbnnyr
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22 Jun 2011, 2:35 pm

SammichEater wrote:
I agree with everything you wrote. But, isn't a lack of interest in peers and relationships part of the diagnostic criteria? All I know is that while I do have some desire to socialize, it is extremely minimal as compared to other people. It seems as if most aspies here do fit the description in Attwood's book, but I don't think I'm one of them.


Yes, it seems that I am also more of an outlier in the AS population here, which is fine with me. I think the DSM criteria is something like failure to have relationships appropriate to developmental level, so it does not say whether the failure is due to lack of interest or lack of skills. It is a relief to hear that I am not the only one who lacks interest. I do enjoy engaging in long interesting conversations with people when these conversations occur, but I do not have much of a desire or need for them, and not having them does not affect me in any negative way.


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22 Jun 2011, 2:44 pm

I agree with your critiques, and I think they come from the fact that Mr. Attwood isn't actually autistic himself. He's trying his best, I suppose; but really, it's like writing about Japan when you've spent all your life living in the US and have only gotten to talk to immigrants from Japan for your information.

Books written by NTs about autistics should be taken with a grain of salt. Don't get me wrong: Many of these NTs are highly educated, and fascinated with autism or with neurology in general. They know a lot of stuff, they may be involved in research or have clients who are autistic, and they can offer an outsider's perspective. In fact, their work is invaluable to us, because NTs who know a lot about autism can serve as translators. But, without the experience of being autistic themselves, they can never give more than an NT viewpoint on autism.

We already have a lot of autistic people writing about themselves and their lives, but they for the most part are not psychologists, neurologists, or therapists; so they can talk about being autistic, but not about being an autism researcher, therapist, or special ed teacher for autistic students.

We need more autistic writers who can study autism professionally, in order to gain the experience that these NT writers have and offer the benefit of both the clinician's experience and the insider's perspective. There aren't too many of them, but with the disability rights movement allowing us better entry into schools and universities, I'm sure that many more such "insider" experts will start to emerge.


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22 Jun 2011, 2:49 pm

Verdandi wrote:
I do find it passing strange when someone decides that what a book or professional says must be true for everyone.


I also wonder if the professionals, even ones who have a lot of experience, can be prone to misinterpreting the communications of autistic people through the functions of their own minds, particularly their emotions, which may or may not be detachable from their intellectual analyses. In these cases, they would be in danger of presenting not only generalized but also inaccurate descriptions of the inner workings of the autistic mind and therefore the support systems that would help autistic people. For me, I can say that my emotions are detached from my analyses most of the time, but I do not know how true this is for other people. I think each person should be careful about what they let themselves believe or buy into from books written by autistic or non-autistic people.

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We need more autistic writers who can study autism professionally, in order to gain the experience that these NT writers have and offer the benefit of both the clinician's experience and the insider's perspective. There aren't too many of them, but with the disability rights movement allowing us better entry into schools and universities, I'm sure that many more such "insider" experts will start to emerge.


Totally! I am actually trying to become one of these researchers myself. I burned out massively in graduate school three years ago, but I am trying to go back now to get into autism/CNS research to finish my Ph.D. and slither into this field.


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22 Jun 2011, 2:50 pm

Yes, I see this as a valid question. Like you I found it difficult to identify with Aspergers as defined ny Tony Attwood's book. That said my girl friend found it informative about how things are from my perspective


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btbnnyr
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22 Jun 2011, 3:04 pm

Euclid wrote:
Yes, I see this as a valid question. Like you I found it difficult to identify with Aspergers as defined ny Tony Attwood's book. That said my girl friend found it informative about how things are from my perspective


I think the book would be helpful to NT parents and teachers to avoid constantly misinterpreting the verbal and non-verbal expressions of AS children. But they do need to be careful about how much socialization and friendship the children want, and how much would be too much and too stressful. I was very lucky to have parents who never ever pushed me into socializing that I would have failed at and perhaps developed comorbids of depression and anxiety to go along with AS. I did not socialize until I had osmosed a few social skills by the age of 14, so I avoided most of the failures that might have damaged my self-esteem if I had been pushed earlier and failed earlier. By age 14, I had enough logical reasoning skills to understand that failures in socialization were not the end-all be-all of my existence and that I had plenty of other skills to go along with my lack of skills in this area. At age 7, I do not think I had the logical reasoning skills to make this distinction, be objective about myself, and avoid internalizing the negative social experiences to make me a depressed and anxious child.


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22 Jun 2011, 3:05 pm

btbnnyr wrote:
Totally! I am actually trying to become one of these researchers myself. I burned out massively in graduate school three years ago, but I am trying to go back now to get into autism/CNS research to finish my Ph.D. and slither into this field.
Oh, good for you! I'm still an undergrad myself and I have no idea if I'll ever get my degree, but I've had a bunch of people recommend I should be in human factors psychology rather than biomedical engineering for that... I want to design rehabilitation equipment and I'm told (by the chair of the psych department, no less) that I'm really well suited for the neurology angle--if I switch now it'll mean an extra few classes, but I'd get to study neurology... it's SO tempting. I wish I could make up my own major and do both.


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22 Jun 2011, 3:13 pm

btbnnyr wrote:
I also wonder if the professionals, even ones who have a lot of experience, can be prone to misinterpreting the communications of autistic people through the functions of their own minds, particularly their emotions, which may or may not be detachable from their intellectual analyses. In these cases, they would be in danger of presenting not only generalized but also inaccurate descriptions of the inner workings of the autistic mind and therefore the support systems that would help autistic people. For me, I can say that my emotions are detached from my analyses most of the time, but I do not know how true this is for other people. I think each person should be careful about what they let themselves believe or buy into from books written by autistic or non-autistic people.


I hear you about emotions detached from analysis. I run into this problem with my therapist all the time when I try to explain my thought processes, limitations, etc. to her, and she hears them as emotionally negative when I am simply describing factual information to the best of my ability.

I disagree a lot with what Tony Attwood wrote in his book, although I will say it was invaluable to me in some ways, even if his attempts to explain autistic cognition fall flat.

btbnnyr wrote:
Callista wrote:
We need more autistic writers who can study autism professionally, in order to gain the experience that these NT writers have and offer the benefit of both the clinician's experience and the insider's perspective. There aren't too many of them, but with the disability rights movement allowing us better entry into schools and universities, I'm sure that many more such "insider" experts will start to emerge.


Totally! I am actually trying to become one of these researchers myself. I burned out massively in graduate school three years ago, but I am trying to go back now to get into autism/CNS research to finish my Ph.D. and slither into this field.


This is really important. There aren't many and we keep getting riddled with studies where researchers will scan an autistic brain and declare that they have determined that autistic people cannot daydream, but they never ask any autistic people about our daydreaming habits.



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22 Jun 2011, 3:15 pm

Callista wrote:
Oh, good for you! I'm still an undergrad myself and I have no idea if I'll ever get my degree, but I've had a bunch of people recommend I should be in human factors psychology rather than biomedical engineering for that... I want to design rehabilitation equipment and I'm told (by the chair of the psych department, no less) that I'm really well suited for the neurology angle--if I switch now it'll mean an extra few classes, but I'd get to study neurology... it's SO tempting. I wish I could make up my own major and do both.


Do! Do! We really need more of us in the field, because we are more capable asking the right QUESTIONS to get to the truths of the answers. Mostly because we are less likely to make hordes of faulty assumptions as faultily assumed through the NT observation of our outward behaviors. Much of what they say about us is what they themselves would think and feel if they were behaving like us. These explanations often have nothing to do with what we think and feel on the inside. What do you mean my routines are non-functional? They are totally functional to me and wonderfully helpful behaviors to reset my brain after overloads or to keep my brain operating at peak performance. In fact, I should develop more, not less, of them!


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22 Jun 2011, 3:20 pm

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This is really important. There aren't many and we keep getting riddled with studies where researchers will scan an autistic brain and declare that they have determined that autistic people cannot daydream, but they never ask any autistic people about our daydreaming habits.


I remember this study. I think they assumed that because we did not use the same parts of our brains to daydream as NTs did, that must mean that we did not daydream at all. Are they forgetting that we use the parts of our brains that recognize objects to recognize people and that recognize shapes to recognize letters? Does this mean that none of us recognize people or letters? Different brains, different brains! Dear researchers, back away from the assumptions and have a piece of cake and eat it too.


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22 Jun 2011, 3:27 pm

btbnnyr wrote:
Quote:
This is really important. There aren't many and we keep getting riddled with studies where researchers will scan an autistic brain and declare that they have determined that autistic people cannot daydream, but they never ask any autistic people about our daydreaming habits.


I remember this study. I think they assumed that because we did not use the same parts of our brains to daydream as NTs did, that must mean that we did not daydream at all. Are they forgetting that we use the parts of our brains that recognize objects to recognize people and that recognize shapes to recognize letters? Does this mean that none of us recognize people or letters? Different brains, different brains! Dear researchers, back away from the assumptions and have a piece of cake and eat it too.


Yes! And I read everything I could about that study (and I may have read the study itself) to determine if the researchers asked the autistic subjects a single question about whether they daydream, and could find no sign of it.

Every time I think about it I get frustrated. It's not the only study like that I've read, and there are so many.



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22 Jun 2011, 3:32 pm

btbnnyr wrote:
In Chapter 3, Social Understanding and Friendship, Attwood describes children with AS as wanting to socialize and make friends, at least by the time they reach school-age, but not knowing how or going about it the wrong way. I feel that he has made a major assumption that children with AS do want to socialize, make friends, or feel left out if they cannot. In my case, I did not. Before the age of 10, I had no awareness of children or adults outside the home, no idea of socialization, no idea of friendship, and very little idea of speech and gesture as means of mind-to-mind communication, with decent reception and lack of expression. After, I picked up on these ideas, but still had no desire or need to socialize and make friends. Incidentally, I did make friends in high school and college, but could not keep with their levels of socialization, so I was always considered the weird one who only participated in group activities occasionally. In general, I was happy being alone then, I am happy being alone now, and I just do not have these massive amounts of social desires and needs that Attwood assumes that people with AS have and do not have the skills to satisfy, thus driving them into unhappy states of mind. Reading his descriptions, it feels to me like he is projecting his own desires and needs or the desires and needs of the majority of NTs onto autistic people. He assumes that lack of socialization is an inherently negative or unhealthy thing for us, and while that may be true for some, it is not true for all. Does anyone else feel this way?


You have to consider the reason for the diagnosis as well. Look at all the threads of people who are depressed because they can't get a gf/bf. That would fit right into Attwood's description.

When I was younger I didn't care at all about other people. Now I do care more and I'm finding difficulties in avoiding mis-communications.

This website had some interesting data on the subject.

http://www.inthelight.co.nz/spirit/asbrainlink.htm