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littlelily613
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21 Sep 2011, 6:40 pm

I am just wondering how often verbal people with autism become non-verbal as adults? Or does it never (or very rarely) happen?


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SuperTrouper
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21 Sep 2011, 7:09 pm

I've been told by someone who knows their stuff that, in the absence of medical conditions, it "generally" doesn't happen.

I fluctuate from completely nonverbal to somewhat verbal to verbal enough to get by.... but I'm no chatterbox, ever.



glider18
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21 Sep 2011, 7:35 pm

Sometimes I am more talkative than other days. But I think that is true of most people regardless of being autistic or NT. At the school where I teach, I share a room with another Title teacher. She likes to talk a lot when I'm in there. Some days I talk ok with her, and others I wish she wouldn't talk because I don't want to talk. But I can't imagine myself ever becoming nonverbal to the point of no talking. As SuperTrouper mentioned in her post upon what she heard from "someone who knows their stuff," it is not likely that a verbal autistic would become nonverbal.


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21 Sep 2011, 7:44 pm

It's possible for at least some autistic people to lose skills (sometimes over and over again - Jim Sinclair described losing "how to read" several times). Unfortunately, professionals seem unaware of or don't take autistic burnout (adult regression, sudden decompensation, etc) very seriously.

I have periods from a few hours to a day or so at a time where I am not able to speak, and often I am not able to speak clearly or have a meaningful conversation, although I've always been like this. I am nowhere near Supertrouper as far as having verbal difficulties goes, although they do seem to be worse over the past year. It may just be I am paying more attention.



aspie48
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21 Sep 2011, 7:44 pm

not talkin for a while is common but losing ability to talk would be weird



SuperTrouper
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21 Sep 2011, 7:51 pm

Well, I wouldn't call it weird, per se. It's just another trait of my version of autism. I don't call it "weird" when an Aspie never stops talking...



Verdandi
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21 Sep 2011, 7:56 pm

aspie48 wrote:
not talkin for a while is common but losing ability to talk would be weird


Do you mean permanently, temporarily, or both?

Doesn't seem weird to me when I am unable to speak at all - or at best I can manage a few echolalic phrases. It's just...my brain.



aspie48
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21 Sep 2011, 8:02 pm

i meant like for a long time. i guess stress depression or anxiety might do it temporarily yeah.



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21 Sep 2011, 8:06 pm

I was non-verbal as a child, as an adult experiencing a degree of regression I can feel it creeping back...

...my regression comes as a result of unemployment, due to unemployment I've lost all my friends so apart from my boyfriend I have limited interaction with other people, in fact if not for my boyfriend I could probably go weeks without talking to anyone (wow, that's depressing). But I do notice when I'm amongst other people I'm a lot less verbal, when shopping for groceries I'm completely non-verbal.

It's not that I don't want to talk or a loss of skills, it's more like that I forget...I remember the feeling as a child, it wasn't that I didn't want to talk or didn't understand language, I just didn't understand how to talk, to physically open my mouth or how to have conversation, I didn't know the feeling of talking or the feeling of being driven to talk. Get what I mean?

I don't think I'd ever become non-verbal again, because now I know how to talk, how to actually open my mouth and make words, but my verbalisation could drop as I forget how to have conversation.


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aspie48
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21 Sep 2011, 8:26 pm

Bloodheart wrote:
I was non-verbal as a child, as an adult experiencing a degree of regression I can feel it creeping back...

...my regression comes as a result of unemployment, due to unemployment I've lost all my friends so apart from my boyfriend I have limited interaction with other people, in fact if not for my boyfriend I could probably go weeks without talking to anyone (wow, that's depressing). But I do notice when I'm amongst other people I'm a lot less verbal, when shopping for groceries I'm completely non-verbal.

It's not that I don't want to talk or a loss of skills, it's more like that I forget...I remember the feeling as a child, it wasn't that I didn't want to talk or didn't understand language, I just didn't understand how to talk, to physically open my mouth or how to have conversation, I didn't know the feeling of talking or the feeling of being driven to talk. Get what I mean?

I don't think I'd ever become non-verbal again, because now I know how to talk, how to actually open my mouth and make words, but my verbalisation could drop as I forget how to have conversation.

is the bf employed? and when did u learn to talk. sorry for random curiosities



Verdandi
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21 Sep 2011, 8:29 pm

aspie48 wrote:
i meant like for a long time. i guess stress depression or anxiety might do it temporarily yeah.


What does it to me is overload. Anxiety or depression don't impact how much I can talk, but they may impact my willingness to talk.



Burnbridge
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21 Sep 2011, 8:32 pm

I am frequently non-verbal. Can only communicate through gestures, monosyllables
and grunting. Even when I am very verbal, my speech is marked with odd stops in the
"wrong" places, as my mind translates the ideas into words. Writing is much easier
for me because I can stop and think at any time and edit what I want to say


to demonstrate,
let's in this post put a carriage return
whenever there was a long pause in my thinking"

Quote:
I am frequently non-verbal.
Can only communicate
through gestures, monosyllables
and grunting.
Even when I am very verbal, my speech is
marked with
odd stops in the
"wrong"
places, as my mind
translates the
ideas into words.
Writing is much easier
for me
because I can stop and think at any time
and edit
what I want to say


is poetry, no?



Apple_in_my_Eye
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21 Sep 2011, 8:51 pm

I'm aware of someone who lost speech in adulthood (30's IIRC). Apparently that "autistic catatonia" condition is involved. I don't know any other details, though.



Bloodheart
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21 Sep 2011, 8:53 pm

aspie48 wrote:
Bloodheart wrote:
I was non-verbal as a child, as an adult experiencing a degree of regression I can feel it creeping back...

...my regression comes as a result of unemployment, due to unemployment I've lost all my friends so apart from my boyfriend I have limited interaction with other people, in fact if not for my boyfriend I could probably go weeks without talking to anyone (wow, that's depressing). But I do notice when I'm amongst other people I'm a lot less verbal, when shopping for groceries I'm completely non-verbal.

It's not that I don't want to talk or a loss of skills, it's more like that I forget...I remember the feeling as a child, it wasn't that I didn't want to talk or didn't understand language, I just didn't understand how to talk, to physically open my mouth or how to have conversation, I didn't know the feeling of talking or the feeling of being driven to talk. Get what I mean?

I don't think I'd ever become non-verbal again, because now I know how to talk, how to actually open my mouth and make words, but my verbalisation could drop as I forget how to have conversation.

is the bf employed? and when did u learn to talk. sorry for random curiosities


Yes, boyfriend is employed.
He's actually about to start working at my old job, with all my old friends, which will be....interesting.

I started to become verbal at around 7.
I still didn't talk much to people, my mother often comments that in all my life I've only ever said a hand-full of words to my family, and that even at home I rarely talked to her or my dad. Up until around 13 I'd often bark or howl like a dog instead of talking, I'd talk in silly voices or accents and I would often sing silly songs instead of talk - this is something else I notice when regressing as an adult, I'm talking in a childish girly voice again and making more odd little noises.


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littlelily613
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21 Sep 2011, 9:14 pm

Verdandi wrote:
Unfortunately, professionals seem unaware of or don't take autistic burnout (adult regression, sudden decompensation, etc) very seriously


Yes, I was kind of thinking along the lines of this burnout that you are mentioning. I am verbal, and I am not close to nonverbal right now (although I often don't feel the need to talk, and am VERY quiet in social situations). Lately, I have been having absolutely horrendous meltdowns--some lasting 12 hours. I have been having types of shutdowns I don't even remember experiencing before. During these times, my ability to speak and/or to articulate things diminishes drastically (sometimes I am trying to saying something, I know what I want to say--but I don't think verbally--and I just won't come out of my mouth, so I get really frustrated. I've been giving a lot of angry-sounded 'I don't know's lately when people are asking me what I am trying to say), and anyway, that is why I wondered if it was a possibility to lose that ability entirely (even if only temporary).


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Burnbridge
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21 Sep 2011, 9:24 pm

Lily, that did hapen to me when I was in my early thirties, before my neices got diagnosed AS and I had NO IDEA what the crap was wrong with me.

I had a total burnout, where I could barely speak at work. Wass lots of social pressures I couldn't understand / cope with. I cook for a living, so speaking is optional, but eventually I lost the ability to read as well and had to quit working. Spent couple months on the porch, staring into space. "not thinking," in words anyway. Creeped out the roomates pretty good.

But I came out of it eventually, so to speak. A few years down the road, I fairly functional. But maybe I'm just better at not making friends who want to pressure me into "telling them what I think" all the freaking time.

It is incredibly frustrating though, when someone asks what you're thinking/feeling, and you're thinking nonverbally. "Deep, gritty, maroon" as a color thought is generally not an accepted mood that people want to discuss.


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