Am I "worse" now that I know about AS?

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mvaughn32
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04 Oct 2011, 11:53 am

Now that I have an explanation, is it possible that my behaviors are worse, or am I just more aware of what's going on? Am I just "too sensitive" as I've heard others say to me?

I'm having a particularly hard time with what few relationships I have right now, more so than before I knew about AS. I'm not sure what the cause could be, but I feel like I am being abused and taunted even more than before, although nobody knows about the AS except one relative who hasn't discussed it in detail with me, and hasn't mentioned it to anyone else.

Talking about it with family is not an option yet. I just fear that I will be dismissed and/or picked on even more if I bring it up.

Any advice?



Last edited by mvaughn32 on 04 Oct 2011, 3:41 pm, edited 2 times in total.

League_Girl
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04 Oct 2011, 1:20 pm

You could just be more aware so it seems like you got worse.



alexi
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04 Oct 2011, 3:00 pm

Hi,
Verdandi found this article some time ago that talks about getting "worse". The original link no longer works, but this is the same article stuck on someone elses site. http://americanaspergers.forumotion.net ... ic-article

I felt (and still feel 10 months later) the same as you.



mvaughn32
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04 Oct 2011, 3:28 pm

alexi wrote:
Hi,
Verdandi found this article some time ago that talks about getting "worse". The original link no longer works, but this is the same article stuck on someone elses site. http://americanaspergers.forumotion.net ... ic-article

I felt (and still feel 10 months later) the same as you.


Thank you, that helps! I'm having changes due to age and hormones that I think are a big part of it.



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04 Oct 2011, 3:29 pm

I have gotten worse.

Before knowing about AS: "If I try hard enough, maybe they'll think I'm normal."

After knowing about AS: "I don't care any more. They should know I'm an aspie, and they'll just have to deal with it."

I can convince myself that I have sensory issues, need to stick to a routine, and can't look people in the eyes. The mind is an extremely powerful weapon. In reality, it's just as easy for me to convince myself that I don't have these problems.

If there's a change of plans, I'm going to be slightly upset. I can take this mild disturbance and exacerbate it. But I can also tell myself that it doesn't matter and everything is going to be alright. And guess what happens then? It's no problem, I'm cool with it.

Thinking I have AS has undoubtedly caused me to become more aspie-ish. There's no doubt about that. I'm really glad I've become diagnostically agnostic.

That being said, I was under a lot of stress over the past few months, which could also explain some of that. But, I may very well have been stressing myself out. If I didn't think I was an aspie, I would have thought "no problem, I can do this." But, instead, I thought "this isn't an aspie friendly situation, I'm going to be screwed."


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mvaughn32
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04 Oct 2011, 3:38 pm

Nobody knows about me yet, because I literally have zero friends (Facebook doesn't count) and my family probably isn't ready for it. They've already called me weird all my life, what would change if I had a diagnosis?

On the other hand, my 12 year old nephew is going to be tested in a couple months, so either way I'm going to look like a jerk if I say anything now, or if I say something after he is tested and is dx'd an aspie.

I have never succeeded at pretending to be normal, but I am at the point where I no longer care what anyone thinks. I'm just starting to understand why I've been so anxious and depressed all my life, and it's a relief, but also makes me angry. I feel like I've wasted my life being misdiagnosed and not given the chance to work around my "weirdness" all these years.



SammichEater
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04 Oct 2011, 6:49 pm

mvaughn32 wrote:
On the other hand, my 12 year old nephew is going to be tested in a couple months, so either way I'm going to look like a jerk if I say anything now, or if I say something after he is tested and is dx'd an aspie.


I have failed to understand your reasoning behind this statement.


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mvaughn32
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04 Oct 2011, 6:55 pm

SammichEater wrote:
mvaughn32 wrote:
On the other hand, my 12 year old nephew is going to be tested in a couple months, so either way I'm going to look like a jerk if I say anything now, or if I say something after he is tested and is dx'd an aspie.


I have failed to understand your reasoning behind this statement.


Yeah, I see that didn't make any sense. I have actually heard of people in families getting into fights because one person is diagnosed with something, then another family member is diagnosed right around the same time, thereby "stealing" the first one's dx. I know it sounds ridiculous, but also sounds like something that my family would do.

I didn't think of it myself, but I guess I'm paranoid about it now. Or, it's just an excuse my brain is trying to use to keep this a secret for as long as possible.



twich
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04 Oct 2011, 7:15 pm

mvaughn32 wrote:
SammichEater wrote:
mvaughn32 wrote:
On the other hand, my 12 year old nephew is going to be tested in a couple months, so either way I'm going to look like a jerk if I say anything now, or if I say something after he is tested and is dx'd an aspie.


I have failed to understand your reasoning behind this statement.


Yeah, I see that didn't make any sense. I have actually heard of people in families getting into fights because one person is diagnosed with something, then another family member is diagnosed right around the same time, thereby "stealing" the first one's dx. I know it sounds ridiculous, but also sounds like something that my family would do.

I didn't think of it myself, but I guess I'm paranoid about it now. Or, it's just an excuse my brain is trying to use to keep this a secret for as long as possible.


It could be a bit of both. But what if you were to quietly mention to a few people who would take it well (hopefully your parents are in this group) and say something like "Let's not make a big deal of it since my nephew is struggling with this right now, he needs our support, maybe if I need support I can come to you for a while, and eventually open it up to them" OR when he gets diagnosed, give them a bunch of resources that have helped you, and if they ask how you knew about all of these things, say something like "I have AS, you didn't know?" or "Well, I know they helped me a lot when I got a diagnosis" or something more or less subtle?



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04 Oct 2011, 7:37 pm

I think you are just more aware.

For me, it was awareness but also feeling comfortable with having the symptoms. I didn't hold back stimming and realised I could make routines make me more organised.
I did undergo a regression though due to developing epilespy, having no appetite and forcing myself into situations I knew that were too stressfull for me. I had to build all my skills up again. I've still not completely recovered. And my sensory issues are insanely bad now.


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Wayne
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04 Oct 2011, 7:45 pm

SammichEater wrote:
I have gotten worse.

Before knowing about AS: "If I try hard enough, maybe they'll think I'm normal."

After knowing about AS: "I don't care any more. They should know I'm an aspie, and they'll just have to deal with it."

I can convince myself that I have sensory issues, need to stick to a routine, and can't look people in the eyes. The mind is an extremely powerful weapon. In reality, it's just as easy for me to convince myself that I don't have these problems.

If there's a change of plans, I'm going to be slightly upset. I can take this mild disturbance and exacerbate it. But I can also tell myself that it doesn't matter and everything is going to be alright. And guess what happens then? It's no problem, I'm cool with it.


Until it happens a few more times and then you flip out for "no reason". At least that's been my experience.

Now I subject myself to less of it, and I don't feel as guilty, and I flip out far less. I tense up more (or at least notice myself tensing up more), but I can stay away from the red zone.

Maybe I act a little more autistic just because I'm consciously reducing my exposure to "normal" stuff that gets to me.



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04 Oct 2011, 7:45 pm

SammichEater wrote:
Before knowing about AS: "If I try hard enough, maybe they'll think I'm normal."

After knowing about AS: "I don't care any more. They should know I'm an aspie, and they'll just have to deal with it.""


No kidding. My thoughts exactly.

My whole life, I've tried to learn about people and fit in. Now I'm more inclined to look at a big social situation and say "meh, i'm just not into that."

But all in all, I feel a lot better about life, now that i know i'm AS. More accepting of myself. Less wanting to hammer my square peg into the round hole.

Oh, sweet contentment, how I know thee well...


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Verdandi
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04 Oct 2011, 8:08 pm

alexi wrote:
Hi,
Verdandi found this article some time ago that talks about getting "worse". The original link no longer works, but this is the same article stuck on someone elses site. http://americanaspergers.forumotion.net ... ic-article

I felt (and still feel 10 months later) the same as you.


Here's the current autistics.org link:

http://archive.autistics.org/library/more-autistic.html

The library is now http://archive.autistics.org/library - lots of good stuff there.



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04 Oct 2011, 8:13 pm

At the same time I investigated whether I was autistic, I was in an extremely stressful, overloading environment, so I was becoming more autistic from stress at the same time I was investigating. Plus I gave up some coping mechanisms that cost me too much energy for too little return, which also gave the appearance of being more autistic online. I also think increased awareness made a difference.

I was worried that I was creating the symptoms and making them fit, but then I had people tell me I was doing things I did not really know I was doing that also fit. I stopped worrying about it and figure I will be as autistic as I am, and it doesn't matter if circumstances increase or decrease visible behavior/symptoms.



mvaughn32
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04 Oct 2011, 8:20 pm

twich wrote:
It could be a bit of both. But what if you were to quietly mention to a few people who would take it well (hopefully your parents are in this group) and say something like "Let's not make a big deal of it since my nephew is struggling with this right now, he needs our support, maybe if I need support I can come to you for a while, and eventually open it up to them" OR when he gets diagnosed, give them a bunch of resources that have helped you, and if they ask how you knew about all of these things, say something like "I have AS, you didn't know?" or "Well, I know they helped me a lot when I got a diagnosis" or something more or less subtle?


The only person I've mentioned it to so far is my stepsister, whose son is my nephew. And that was only because she saw that I joined a group on Facebook and was wondering why. Her mom (my stepmom) knows about him getting tested but not about me, so we're all doing this secret keeping thing right now. I need to end all this, but it's just a horrible stressful time right now, which is making things worse, and my husband has no idea. He just thinks I'm completely nuts. I don't know how to approach the subject at all.

I'm sure things will settle eventually. I'm just in a panic phase and I don't know what to do next.