Page 1 of 2 [ 17 posts ]  Go to page 1, 2  Next

JustinsDad
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 7 May 2012
Gender: Male
Posts: 69
Location: Pittsburgh

30 Aug 2012, 1:30 pm

Could somebody please explain to me me why my 8yo PDD-NOS/MR son who has sensory/ADHD and is nonverbal is deliberately hurting himself? Since last fall he has been banging his head and putting his feet through walls and windows and for the past couple of months he has been tearing at his wrists and hands with his teeth, drawing blood and leaving scars. It's so bad that I fear he may have concussed himself at least once. He's already on Abilify and has been institutionalized once briefly but these behaviors seem to be persistent. Is it the medication? He's had a revolving door of 20 or more therapists both at home and in school this past year alone so is it the inconsistency? Could it be his little brother demanding more attention and showing a resentment toward his brother? Could it be we as parents not knowing how to deal with the almost nonstop behaviors that are wearing down on our emotions? What could it be?



mljt
Deinonychus
Deinonychus

User avatar

Joined: 18 Aug 2012
Age: 34
Gender: Male
Posts: 353

30 Aug 2012, 1:41 pm

It could be a whole number of things. The children I work with (most of whom have autism as well as other learning difficulties) will self harm for a variety of reasons.

Some will do it in order to get their own way, because families/carers etc in their past have given in when they start doing this.
Some will do it simply because they're so distressed.
Some do it because it's learned behaviour.
Some get so frustrated if they're not understood, particularly if they're non verbal.
Some do it because of changes in environment which makes them upset, for instance in loud places or if a lot of people suddenly come into the room.

It sounds like it could be any of the issues you mentioned. If all those are happening at once, it may explain why he's doing it. Have you noticed things which trigger this behaviour?
Maybe start keeping a diary. Note changes in routine, behaviour before and after, incidents with his brother, changes in environment.
Does he have any other way of communicating? PECs? Makaton? Reference objects? See if you can introduce these into his communication.
What calms him down? We use different spaces in the school, for instance a sensory room, when some children are distressed. It's got padded floors and walls which means kids can roll around without hurting themselves. It also has soothing lights and music. This may not be possible in your home but try to create a space which has toys/activities which calm him and is away from the rest of the house, which also has a lot of soft things so he doesn't hurt himself so much.



lady_katie
Veteran
Veteran

User avatar

Joined: 16 Jul 2012
Gender: Female
Posts: 575

30 Aug 2012, 1:55 pm

I don't know if there's any truth to this, and I'm very new to the concept of having AS (I'm 99% sure I have it, but didn't know it). When I was a child, I put my head through a few walls. I used to hit my head on the floor, and cut myself on purpose. Now as an adult I dig my nails into my head and bite my knuckles. I have scars as well.

I've always done this because it stops the over stimulation. My best guess is that it forces my brain to switch from "I'm going crazy with input" to "ouch that hurts" or "I think that's going to leave a mark" mode. When I'm feeling over stimulated, just about anything is better than having to deal with it, especially if it's when I'm trying to make sense of something emotional that happened (like when my parents would verbally abuse me).

The best I've been able to do to control this for myself, is to avoid becoming overstimulated in the first place. Or...if I feel like I'm starting to get overstimulated, I'll try to take a walk or a bath or watch a TV show or something. Anything that helps me to stop thinking so rapidly.

I hope that helps you. Like I said, these are just my own interpretations of what happens to me. I started concluding a lot of that before I even knew about my AS...so I really don't know what a professional would have to say.



legomyego
Deinonychus
Deinonychus

User avatar

Joined: 31 Mar 2012
Age: 34
Gender: Male
Posts: 313

30 Aug 2012, 1:56 pm

well 20 plus therapists is definitely not a good thing....

1 probably isn't >< they tend to like to mess with your head.

abilify is not a drug i trust....

i use clonazepam aka klonopin for agressive meltdowns or shutdowns.
though this drug comes with its own vices....(as do all drugs)



daydreamer84
Veteran
Veteran

User avatar

Joined: 8 Jul 2009
Age: 39
Gender: Female
Posts: 5,001
Location: My own little world

30 Aug 2012, 2:12 pm

mljt wrote:
It could be a whole number of things. The children I work with (most of whom have autism as well as other learning difficulties) will self harm for a variety of reasons.

Some will do it in order to get their own way, because families/carers etc in their past have given in when they start doing this.
Some will do it simply because they're so distressed.
Some do it because it's learned behaviour.
Some get so frustrated if they're not understood, particularly if they're non verbal.
Some do it because of changes in environment which makes them upset, for instance in loud places or if a lot of people suddenly come into the room.

It sounds like it could be any of the issues you mentioned. If all those are happening at once, it may explain why he's doing it. Have you noticed things which trigger this behaviour?
Maybe start keeping a diary. Note changes in routine, behaviour before and after, incidents with his brother, changes in environment.
Does he have any other way of communicating? PECs? Makaton? Reference objects? See if you can introduce these into his communication.
What calms him down? We use different spaces in the school, for instance a sensory room, when some children are distressed. It's got padded floors and walls which means kids can roll around without hurting themselves. It also has soothing lights and music. This may not be possible in your home but try to create a space which has toys/activities which calm him and is away from the rest of the house, which also has a lot of soft things so he doesn't hurt himself so much.


This is very good advice. I'll just add that you mentioned in your post that he has sensory issues so I would pay particular attention to what sensory stimulation (or lack there of) he experiences just before he self injures. It could be a reaction to over stimulation or an aversive sensory stimulus. You also mentioned the drug he's talking. I'm diagnosed with AS and ADHD inattentive type and as I said in another thread Ritalin did make me extremely anxious and moody -I was put on it when I was 13 and my mom took me off it after 2 months because of the strong reaction I had to it- and I was on the lowest possible dose. I now take Strattera which has helped me maintain focus and doesn't have such an adverse effect on my mood (Strattera is a non-stimulant ADHD med). Perhaps you should talk to his doctor about changing his medication and seeing if that changes his behaviour. I'm not sure if I had more self injurious behaviour during that time...I don't really remember what it was like to be on those meds. I only self injure (scratching my arms, punching my legs until they bruise) when I'm having a meltdown....for me it's often because of rage at myself for doing something wrong/failing/not coping etc. but it can also serve as a distraction from bad feelings and too much stimulation.



CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 49
Gender: Male
Posts: 113,561
Location: Stalag 13

30 Aug 2012, 10:05 pm

Some also do it as a form of self-punishment after being reprehended by their parents because they feel that they've been bad, therefore they should hurt themselves.


_________________
Who wants to adopt a Sweet Pea?


legomyego
Deinonychus
Deinonychus

User avatar

Joined: 31 Mar 2012
Age: 34
Gender: Male
Posts: 313

31 Aug 2012, 12:42 am

CockneyRebel wrote:
Some also do it as a form of self-punishment after being reprehended by their parents because they feel that they've been bad, therefore they should hurt themselves.


i can attest to this...though doesn't have to be related to being reprehended....someone could just think they did something wrong without anyone's knowledge and self injure....



AspieOtaku
Veteran
Veteran

User avatar

Joined: 17 Feb 2012
Age: 42
Gender: Male
Posts: 13,051
Location: San Jose

31 Aug 2012, 3:57 am

legomyego wrote:
CockneyRebel wrote:
Some also do it as a form of self-punishment after being reprehended by their parents because they feel that they've been bad, therefore they should hurt themselves.


i can attest to this...though doesn't have to be related to being reprehended....someone could just think they did something wrong without anyone's knowledge and self injure....
This why I hurt myself is due to self punishment if tormented by others while doing it well it can lead to making things worse and as a result this scar on my right wrist. Image


_________________
Your Aspie score is 193 of 200
Your neurotypical score is 40 of 200
You are very likely an aspie
No matter where I go I will always be a Gaijin even at home. Like Anime? https://kissanime.to/AnimeList


chris5000
Veteran
Veteran

User avatar

Joined: 9 Aug 2012
Age: 33
Gender: Male
Posts: 1,599
Location: united states

31 Aug 2012, 3:01 pm

I used to punch myself in the head I dont know why I did it would just happen. It still happens rarely when im really stressed.



Bunnynose
Sea Gull
Sea Gull

User avatar

Joined: 17 May 2012
Age: 67
Gender: Female
Posts: 200

31 Aug 2012, 4:29 pm

JustinsDad wrote:
Could somebody please explain to me me why my 8yo PDD-NOS/MR son who has sensory/ADHD and is nonverbal is deliberately hurting himself? Since last fall he has been banging his head and putting his feet through walls and windows and for the past couple of months he has been tearing at his wrists and hands with his teeth, drawing blood and leaving scars. It's so bad that I fear he may have concussed himself at least once. He's already on Abilify and has been institutionalized once briefly but these behaviors seem to be persistent. Is it the medication? He's had a revolving door of 20 or more therapists both at home and in school this past year alone so is it the inconsistency? Could it be his little brother demanding more attention and showing a resentment toward his brother? Could it be we as parents not knowing how to deal with the almost nonstop behaviors that are wearing down on our emotions? What could it be?


Dang. That's awful. A kid whose only means of communication is through self-abuse and harm.

According to this autism wiki, PDD-NOS/MR children seldom develop the ability to speak. And having MR means your son is likely not able to form thoughts or to communicate them coherently. Plus it appears he is persistent in repeated self-harm. My sympathies to you and your wife.

I'm no diagnostician, but if he cannot communicate distress or pain, how do you know when he is ill or suffers from allergies? And I doubt that he has this rare genetic disorder, but what kinds of genetic testing has he undergone recently?



daydreamer84
Veteran
Veteran

User avatar

Joined: 8 Jul 2009
Age: 39
Gender: Female
Posts: 5,001
Location: My own little world

31 Aug 2012, 4:49 pm

legomyego wrote:
CockneyRebel wrote:
Some also do it as a form of self-punishment after being reprehended by their parents because they feel that they've been bad, therefore they should hurt themselves.


i can attest to this...though doesn't have to be related to being reprehended....someone could just think they did something wrong without anyone's knowledge and self injure....


That is what I was trying to describe.....I'll just get angry at myself for being selfish about something (not being a "good person") or failing at something and start hurting myself. The odd thing for me is that it often is after I'm reprimanded for something by my mom and then I'll scream back at her, "blow up" on her as she says or say something mean and then I'll be mad at myself for my reaction to her(not the original reprimand) and will hurt myself. I've never head banged or punched my head though.....I'm usually sitting down and I'll punch at my legs or scratch at my arms.....sometimes I'll use objects (like a nail file) to cut my arms....



puddingmouse
Veteran
Veteran

User avatar

Joined: 24 Apr 2010
Age: 37
Gender: Female
Posts: 8,777
Location: Cottonopolis

31 Aug 2012, 6:45 pm

CockneyRebel wrote:
Some also do it as a form of self-punishment after being reprehended by their parents because they feel that they've been bad, therefore they should hurt themselves.


I still self harm in this way (and also when I'm generally distressed).


_________________
Zombies, zombies will tear us apart...again.


Cogs
Veteran
Veteran

User avatar

Joined: 12 Feb 2012
Age: 32
Gender: Male
Posts: 852

01 Sep 2012, 12:12 am

Dont know what your sons reasons are for self harming. I self harm to reduce the frustration, tension, stress, emotions, deprssion, rage etc. that i feel. Self harm produces natural opaites (painkillers) which make it easier to cope with how I'm feeling. Hurting myself also causes me to feel greater control over the situation and what I feel.


_________________
No one will tell me who and what I am and can be.


Rascal77s
Veteran
Veteran

User avatar

Joined: 12 Nov 2011
Age: 46
Gender: Male
Posts: 2,725

01 Sep 2012, 12:43 am

I didn't self hurt, I just destroyed everything around me when I was his age. I think your son is more severe than most of the people here but I can at least tell you what I felt when I was his age. When I would become stressed from sound, lights, or forced contact I would feel 'bad'. I'm not sure what I was feeling exactly, just 'bad'. I would have a difficult time thinking and it felt like my brain was itching, I just can't describe it in any other way. I know it's not possible for a person's brain to actually itch. There's no way to scratch it and it just builds. The inability to think and that feeling in my brain caused me to try to destroy everything around me to try to stop that feeling. I had almost no control over it. Over a long period I gradually gained control over it and I rarely get that feeling now, but it still happens once in a great while. I just have enough control now to not damage people when it does happen, but doors, walls and other objects are fair game.

I don't know what to tell you other than interview the mental health professionals before you take your son to see them, if possible. It's a numbers game and eventually you'll find the one that can help you. The fact that you're seeking advice on a internet forum is a testament to how ineffective these doctors were. You may have a situation where you'll never be rid of the behavior but be able to reduce it significantly. In any case, researching the therapists is as important as researching the condition. Don't give up.



daydreamer84
Veteran
Veteran

User avatar

Joined: 8 Jul 2009
Age: 39
Gender: Female
Posts: 5,001
Location: My own little world

01 Sep 2012, 12:43 am

To the OP: you might also try posting this in the Parenting section and then you might get replies from other parents who have had to deal with similar situations although I think this thread is important too because some people here who do self injure are describing why we do and giving you some possible reasons your son might.



League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,205
Location: Pacific Northwest

01 Sep 2012, 1:15 am

Some do it out of frustration because they have all these feelings inside them and they get overloaded with them or don't know what to do with them. I still feel like banging my head or hitting it when I get that upset. I just cry and scream instead and throw things or slam things or hit things.


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed.

Daughter: NT, no diagnoses.