Asperger's is a rare disorder...right?

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Kairi96
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13 Sep 2012, 7:48 am

I was unsure about this...
The psychiatrist that made my last diagnosis said to my mother that Asperger's syndrome it's a rare disorder... She didn't tell the exact ratio, but she said that it's rare... And I personally think it's true, since because of my mother's work I've known other kids with an ASD, and just few of them had AS. But I often see that people around the web say that Asperger's it's common.

Well, I live in Italy, where Asperger's syndrome is not very well-known, it's considered rare and just a few people who have it are diagnosed with it (in fact, I'm one of those few people).
Since the most of you live in the USA or in England, where AS is well-known, I wanted to ask you if it's really rare or if it's common.


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Mirror21
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13 Sep 2012, 8:03 am

It is not garden variety IMO, but it is not as rare and far between as people make it out to be, however some may be a great deal milder and thus go undiagnosed and unaccounted for.



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13 Sep 2012, 8:38 am

Mirror21 wrote:
It is not garden variety IMO, but it is not as rare and far between as people make it out to be, however some may be a great deal milder and thus go undiagnosed and unaccounted for.


That's a good way of putting it. I see a few people who are clearly Aspies but I doubt any have been diagnosed. As well, I couldn't be any more Aspie if I tried but I doubt any Dr. will take me seriously because I've adapted reasonably well in public and know hoe to mimic others. As well, since I work full time many people instantly say there is no possible way to be on the spectrum. Total BS! I also doubt that its a 'male' condition, just that female Aspies are much harder to spot until you know what to look for.

I would estimate about 1% of the population could qualify for a diagnosis but most can get through life with minimal help in spite of the difficulties.



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13 Sep 2012, 8:47 am

Prototypical Asperger's is actually quite rare.

Around 1 in 10,000 or so is a number I see often. This is the lack of social and emotional reciprocity and the intense interest that precludes doing almost anything else (plus the lack of showing and understanding nonverbal cues). Typical AS.

The 1 in 250 you see includes people with PDD-NOS ("Atypical Asperger's").

Autistic Disorder is often cited around 1 in 1,000.



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13 Sep 2012, 8:57 am

GiantHockeyFan wrote:
I would estimate about 1% of the population could qualify for a diagnosis but most can get through life with minimal help in spite of the difficulties.


That's about right +/- but in the past it was thought that Autism and also Aspergers is very rare and was often overlooked.


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13 Sep 2012, 9:09 am

Working in IT if I were to take a straw poll based on the people I hang around with online it'd probably be 30% or something stupid.. but then that's the paradox.. AS symptoms (intense interest to the exclusion of anything else, very literal thinking) make great programmers. Few of those would ever show up on any kind of official diagnosis because they wouldn't think to get one - and nor should they, they're doing very well in life (apart from having no social life, but that's hugely overrated).

I suspect getting a real accurate figure is almost impossible. Or necessary, TBH. It would help enormously if people were educated enough to realize the guy sat in the corner who seems to stare at you for too long isn't an axe murderer but might actually be a nice person who doesn't speak nonverbal.



Kurgan
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13 Sep 2012, 9:43 am

Actually, it's estimated that one in 56 American boys meet the criteria for an ASD. With that being said, PDD-NOS is probably far more common than Asperger's.

Also bear in mind that PDD-NOS is an umbrella term. It's severity can range from milder than Asperger's to extremely severe.



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13 Sep 2012, 10:36 am

Kairi96 wrote:
I was unsure about this...
The psychiatrist that made my last diagnosis said to my mother that Asperger's syndrome it's a rare disorder... She didn't tell the exact ratio, but she said that it's rare... And I personally think it's true, since because of my mother's work I've known other kids with an ASD, and just few of them had AS. But I often see that people around the web say that Asperger's it's common.

Well, I live in Italy, where Asperger's syndrome is not very well-known, it's considered rare and just a few people who have it are diagnosed with it (in fact, I'm one of those few people).
Since the most of you live in the USA or in England, where AS is well-known, I wanted to ask you if it's really rare or if it's common.


There is always the chance that in Italy it is under-diagnosed so their figures don't show the truth of the matter.

I believe there are a lot of undiagnosed people out there, also many misdiagnosed and in the mental health system for the wrong reason. There is a groundswell of females with AS coming up through the ranks and when the brain scan they are working on to diagnose AS and autism becomes part of the diagnostic procedure they will be overwhelmed with the numbers of Aspies out there, in my opinion.


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naturalplastic
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13 Sep 2012, 11:31 am

One child in 80- something like that- thats how many are born to be on the autism spectrum-which includes aspergers.

Is that rare enough to be considered "rare"?
Not sure.

Its 'rare' compared to tooth decay (100 percent of the population) and rare compared to left handedness (one in ten),comparable to ADHD, but common compared to hemophilia, or to cases of true permanent amnesia ( one or two cases a centurey for the whole human race).

I dunno- its a common rare condition. Or a rare common condition.



Last edited by naturalplastic on 14 Sep 2012, 10:56 am, edited 1 time in total.

pairal
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13 Sep 2012, 12:24 pm

Kairi96 said: "The psychiatrist that made my last diagnosis said to my mother that Asperger's syndrome it's a rare disorder... "

Maybe Asperger is a rare disorder (around 1 in 80) or maybe expertise on Asperger is a rare ability (1 in ...)


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1000Knives
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13 Sep 2012, 12:28 pm

I read ASD diagnostic rate was 1/100, compared to NVLD (my thing) being 1/1000.



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13 Sep 2012, 12:47 pm

My brother was commenting on the skyrocketing rates of Autism and I had to point out that nothing has changed: it's just more widely understood and actually taken seriously. For example, I've had multiple concussions thanks to bullies. If I played on a organized sports team I would be told to sit out today but back when I was a kid you were made fun by the coaches if you were suddenly finding it hard to stand and walk straight like you were just trying to get attention. Maybe people are realizing I wasn't trying to be a difficult child nor was I a 'class clown', I just didn't understand social cues and when I was told to act like everyone else I couldn't do it properly.

I would say it's still rare but not as rare as experts think. On that note, I H-A-T-E it when I'm told 'everyone is bullied' or 'everyone is socially awkward' or 'everyone has to struggle to find a job' as few even come close to the struggles I did!



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13 Sep 2012, 12:49 pm

AS itself isn't what I would call rare, but my AS type is rare. I'm an Aspie who have no trouble recognising body language, tone of voice, and other non-verbal expressions like that in general, and I learnt it from instinct too. Now, that is rare for an Aspie.

Also I'm an Aspie who doesn't read books. My mum and my brother does, they love reading, but I don't.


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Kairi96
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13 Sep 2012, 1:11 pm

whirlingmind said:

Quote:
I believe there are a lot of undiagnosed people out there, also many misdiagnosed and in the mental health system for the wrong reason.


Yes, I think this too. The fact is that those persons don't suspect they have AS because if you have a disorder, you often don't realize you have it.


GiantHockeyFan said:
Quote:
I H-A-T-E it when I'm told 'everyone is bullied' or 'everyone is socially awkward' or 'everyone has to struggle to find a job' as few even come close to the struggles I did!


Well, a lot of NT kids get bullied because they're socially awkward, but not every kid; and a lot of people without an ASD or every other condition struggle finding a job; but not everyone does.
However, there can be Aspies that easily find a job and others that don't... Just like NTs. I've known adult Aspies with very good jobs.


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SickInDaHead
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13 Sep 2012, 5:12 pm

I think AS is merely a range on a chart that everybody is on, like a frequency chart.


There are a lot of people who would never test + for AS, but have some of the pattern.


Thus to have AS or not may not be as binary 1 or 0 or "pregant or not pregnant".

Calling it a syndrome is probably not correct.

Here is a chart of what I am thinking about, to the left is "normal" or what we might call normal. To the right, AS and .... beyond?


|-----------------|----------------|---------------|------------|--------------|------------|--------------------------------|----------------------------|
Vegatable.......NT...................Dork.................Geek...........Nerd.................AS.....Engineering degree..........................PhD.............................Completely incoherent



:P



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13 Sep 2012, 11:23 pm

I read or was told that around 30% of people are somewhere on the spectrum, and I would agree with this


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