Anyone in the UK feel like me!

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Just wondering!...How many people from the UK use this site?
I have been diagnosed withAS a few yrs ago ,but as yet have had not much help with all the problems related to my condition
After searching for information on help for people with AS in the UK i found out that the UK is doing nothing to help people with AS
Adults with AS get refered to Mental health in the UK..who by the way know nothing about AS and how to help people that suffer from this condition.
Is there anyone in the UK on this site that feels like me about the lack of help for adults in the UK that suffer from Aspergers.

I wish that all the adults in the UK that suffer a lonely and isolated life with NO HELP would come together and challenge their local councils to get them some help..anyone interested in doing this?

This site helps people like me to understand that i am not alone with this problem..but i get so angry when i think that the UK goverment is doing nothing to help people with AS and is willing to leave family members to cope with the huge burden that is put on them. SHAME ON THE UK GOVERMENT.....GET US SOME REAL HELP

I'm in the UK and I know what you mean.

Councils have a statutory duty under the Autism Act to provide support but most aren't actually doing it.

http://www.autism.org.uk/working-with/a ... dance.aspx

"Local authorities and the NHS:

Should provide autism awareness training for all staff

Must provide specialist autism training for key staff, such as GPs and community care assessors

Cannot refuse a community care assessment for adults with autism based solely on IQ

Must appoint an autism lead in their area

Have to develop a clear pathway to diagnosis and assessment for adults with autism

Need to commission services based on adequate population data."

I attended Autism Strategy meetings with my local Council and the only thing to come out of it was me setting up a support group for adults on the autistic spectrum which I ran while the council paid for the hire of the room at a local day centre, tea/coffee at meetings and my admin costs ie stationary for printing meeting agendas etc. I've stopped running the group now as it was too big a strain on me but a person from the local voluntary sector council took over the running of the group so it's still going.

You often have to set up your own support group in other words.

really its about time WP got a UK forum for all us brits.

i wouldnt exepect the government to care much as this is probably the most evil government we have ever had in modern britain.

i have had an interesting time trying to get diagnosed. my GP fobbed me off. my second GP referred me to mental health who suggested i had tinnitus but referred me on to the next stage. The next guy i saw was some sort of psycologist but was a specialist in sex therapy (that was an interesting experience i can tell you.) he then referred me to the ADHD specialist who then referred me to another psycologist. that was 4 months ago and im still waiting for an appointment with said psycologist.

I actually think the UK has got it right. None of us have AS, it's actually just "a bit of social anxiety" and we should all be referred for CBT.

But seriously, anyone in the UK who manages to get a diagnosis has done well. Personally, I was told "Yes, it sounds like you may well have AS, but it's not worth trying for a diagnosis as it can be quite difficult to get one". Difficult? My whole life is difficult.

That is right that AS people get no support and would be accused by allistic people of trying to seek attention but expected to pay for other people's support and for services you do not use. At the same time seeing people with other conditions getting the support they need and shown compassion unlike for anyone at the top end of the developmental disability spectrum. Mental health services are about as much use as a chocolate coffee mug and do not offer anything that is relevant to people on the autistic spectrum. even getting a job would be difficult due to having to try to perform in a job interiew only to be turned down.

Here employee selection could be done in a similar way to the building trades to avoid the difficulties interpreting non verbal communication.

If councils are not providing services for Asperger syndrome adults then that is a criminal offence. If anyone thinks that AS people predominantly do not contribute to society or have 'something to offer then one could as allistic people 'what have you contributed to Aspergia? That is a real difficult concept for them to emapthise with because then they have not contributed anything to Asperger syndrome people collectively just try to incite neurobigotry and play one community against another. It is correct that Asperger syndrome peoples services in the UK are a joke. They also have their apologists and excuses to carry on doing the same things.