DSM5 ASD "Essentially Everyone Gets In"

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Rascal77s
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13 Dec 2012, 6:52 am

I don't care what your political beliefs are, if you are connected to autism in any way you should be jumping for joy about the affordable care act.



Verdandi
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13 Dec 2012, 7:45 am

Rascal77s wrote:
I don't care what your political beliefs are, if you are connected to autism in any way you should be jumping for joy about the affordable care act.


Right. It means that one cannot be denied insurance just for being diagnosed autistic (pre-existing condition). The ACA is not very good, but it's an improvement over what we had previously.



Ettina
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13 Dec 2012, 12:23 pm

It's still a paltry excuse for healthcare compared to what Canada has.

Seriously, guys, get out of the feudal era already. :)



jacked
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13 Dec 2012, 3:36 pm

I was thinking about this lately.

Really diagnosis does no good for me now. It was supposed to help in school.

Why not label us Visual Spatial or Auditory or what ever else helps describe our learning prerequisite
That way they can come up with a curriculum to actually teach us instead of just pushing us into a room.

If we had Visual Spatial learning centers would the NT's have a disorder?
Could we push them in a room and make them watch a strobe light of images until they get passing grades?

hmm, not a bad idea.



aghogday
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13 Dec 2012, 3:53 pm

Verdandi wrote:
This could mean that, or she could be referring to the research the DSM-5 changes were based on, in which it was found that the majority of people diagnosed with AS should have been diagnosed with autism.


Quote:
Most people who use Asperger’s would not have met the DSM-IV criteria, so they’re using the term already as a colloquial term. And that’s fine. I don’t think anyone wants to take that away, it just isn’t a medical diagnosis. If someone needs someone to cut them slack, whether they have Asperger’s or not, that’s something they need to negotiate with their spouse.”


I hope not, because if so she would also be referring to those individuals looking for someone to cut them some slack to negotiate that with their spouse. It was bad enough that she suggested that a person that could meet the diagnosis for Asperger's without a medical diagnosis would need to negotiate it with their spouse if they were looking for someone to cut them some slack, instead of amplifying the need for them to have availability and access to a diagnosis for potential needed therapies and/or support. She sounded more like "Michael Savage" to me in that comment, than a DSM5 working group member, if one is familiar with Michael Savage's infamous quote about people with Asperger's being spoiled brats and not having any real medical disorder or need of therapy and/or supports.

She has to know that research doesn't support her similar statement about "whether they have aspergers or not" those looking for someone to cut them some slack need to negotiate with their spouse". It appears to me that she has grown weary of criticisms over the DSM5 from some people that she may personally question their self-diagnosis and or diagnosis. From the article it bears noting that in fuller context she followed Michael Carley, who has made more than one "Aspie elitist" public comment. That's just my opinion, one would have to ask her for greater clarification. The looking for slack needing to negotiate it with one's spouse is indefensible, as far as I can see, coming from one of the lead professionals from the DSM5 working group.

That's something I would expect from Michael Savage, but he got called out on his statement addressed at children. And that's probably part of the reason why; Savage's comment was addressed at children, instead of the "invisible" adults on the spectrum that are usually only recognized if one finds their way into an online autism community, blog, or facebook site. It also goes to show that he is likely not aware the adults exist either, as he too probably would have took a shot at the adults, if he was aware they exist. That may yet be to come, if he reads New York Magazine, as that magazine provided greater public purview of a type of notorious awareness of adults on the spectrum.



OJani
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13 Dec 2012, 5:41 pm

Verdandi wrote:
This could mean that, or she could be referring to the research the DSM-5 changes were based on, in which it was found that the majority of people diagnosed with AS should have been diagnosed with autism.

The following sentence in the text "If someone needs someone to cut them slack, whether they have Asperger’s or not, that’s something they need to negotiate with their spouse.” indicates that she thinks otherwise. Colloquially Asperger's refers to high functioning or mild autism. This is how most people see it anyway. In their minds there are no such things as HFA or PDD-NOS, only low to moderate functioning autism and Asperger's as a mild form of it. The context defines how the term should be interpreted. Assumption is made that the former group is already given slack, as they are most likely diagnosed.



Verdandi
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13 Dec 2012, 6:19 pm

Y'all are reading far more emotion and offensiveness into this than I am. I don't know if that means you're wrong or I'm wrong, so I'm going to leave this alone.



Rascal77s
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13 Dec 2012, 6:24 pm

Verdandi wrote:
Rascal77s wrote:
I don't care what your political beliefs are, if you are connected to autism in any way you should be jumping for joy about the affordable care act.


Right. It means that one cannot be denied insurance just for being diagnosed autistic (pre-existing condition). The ACA is not very good, but it's an improvement over what we had previously.


Not just denied but parents having to decide between feeding the kids or insuring them. You probably know more about this than I do but I believe part of the ACA forces insures to cover mental health also.



Verdandi
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13 Dec 2012, 6:31 pm

Ettina wrote:
It's still a paltry excuse for healthcare compared to what Canada has.

Seriously, guys, get out of the feudal era already. :)


Did the US reach the feudal era? That's almost worthy of a celebration.



Tuttle
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13 Dec 2012, 6:56 pm

So this sentence that you are discussing - context?

I know half of my immediate response to it, but it needs context.



Verdandi
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13 Dec 2012, 7:08 pm

The first post in the thread is the full context.



Tuttle
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13 Dec 2012, 7:24 pm

I mean the "Most people who use Asperger’s would not have met the DSM-IV criteria, so they’re using the term already as a colloquial term. And that’s fine. I don’t think anyone wants to take that away, it just isn’t a medical diagnosis. If someone needs someone to cut them slack, whether they have Asperger’s or not, that’s something they need to negotiate with their spouse.”

quote.



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13 Dec 2012, 7:52 pm

She has to be referring to the [extremely] vocal self-diagnosed crowd, the ones who make an "identity" out of the label. She also alludes to the all too common facet of self-diagnosing your partner, crowd.

I don't think it's appropriate for her to talk about these things, rather, she should just stick to tangible facts and avoid any non-clinical question. She's a professional after all.

It's a product of the whole, "geek syndrome" thingy, IMO, which is also purveyed by those with the disorder (*cough*, Temple). What the author said is really just a backlash at that (IMO again).



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13 Dec 2012, 9:24 pm

Here's the link again, to the page that has that quote. It's towards the end.

http://nymag.com/news/features/autism-spectrum-2012-11/index6.html


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13 Dec 2012, 10:58 pm

Here's a quote from Susan Swedo, another person in the workgroup:

Quote:
Swedo said a small but vocal group of adult patients identify themselves as having Asperger’s and seek to have the condition recognized for its impairments, but also for its strengths. These adults, some of whom refer to themselves as “Aspies,” find representation in Web sites such as Aspie.com and registered vehement opposition to being “lumped in” with individuals with autism, she said.

But Swedo responds that the definition by which many of these adults identify themselves did not meet the criteria for Asperger’s as indicated in DSM-IV anyway. “Our response is that they may continue to self-identify according to their own definition,” she said.


GRASP had a meeting with the workgroup to recommend against the DSM-5 and keep AS, but the workgroup didn't follow the recommendations.



Dillogic
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14 Dec 2012, 12:34 am

Big, big backlash, especially with that coming from two members of the group.

The "small but vocal group" seriously must have annoyed them enough so as to speak about it (especially proclaiming that said group don't have it anyway).