Do you have to periodically "renew" your diagnosis

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EstherJ
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30 Dec 2012, 11:05 pm

Like, does it run out, or get "old?"

Just curious.



emimeni
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30 Dec 2012, 11:17 pm

It's probably a good idea to get another one anytime a new DSM edition comes out, whether it's an actual new edition or just a revision.


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EstherJ
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30 Dec 2012, 11:25 pm

Well, I'm not getting re-diagnosed 9 months after I just got diagnosed. The DSM 5 just has to deal with it. Perhaps my psychologist will just update my paperwork? I have no idea how this works.



btbnnyr
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30 Dec 2012, 11:25 pm

Colleges often require up to date diagnoses for accommodations. I think that I will get mine renewed to asd level 1 when new dsm comes out for best description of current functioning.



EstherJ
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30 Dec 2012, 11:35 pm

How hard is it to renew it?

Like, I've done the ADOS. So if they give me the ADOS again...well...I already know what they look for. Isn't it harder to go through the ADOS again objectively...kind of like taking an academic exam for the second time.....you know what to expect?



btbnnyr
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30 Dec 2012, 11:38 pm

I was just going to make an appointment with the psych who diagnosed me and ask her to put the new name and level in my paperwork and records.



EstherJ
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30 Dec 2012, 11:39 pm

thats a good idea....

but then how long does it last after that?



btbnnyr
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30 Dec 2012, 11:47 pm

It probably lasts 4evar, but schools have requirements for providing accommodations.

For eggsample, this from a university disability office for students with learning disabilities or ADHD:
Because the provision of all reasonable accommodations and services is based upon assessment of the current impact of the student's disabilities on his or her academic performance, it is in a student's best interest to provide recent and appropriate documentation. In most cases, this means that testing usually has been conducted within the past three years.

For psychiatric disorders, it's 6 months instead of 3 years, but autism would likely to be considered in same time frame as LD or ADHD, not psychiatric that changes more over time.



EstherJ
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31 Dec 2012, 12:09 am

Ok, that makes a lot more sense now.

I remember now for the GRE, you have to have it current within the last 5 years.



Simmian7
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31 Dec 2012, 12:27 am

wait...there's levels now? (wonder what level i would be)


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windtreeman
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31 Dec 2012, 12:43 am

Eh, the cost for the assessment at the place I was assessed is $1,500 for people without insurance. I can't imagine that a re-assessment would be required, especially since we're talking about a life-long neurological disorder. I totally believe btbnnyr and that some schools may require a more current assessment for accommodations but I think it's ridiculous; is someone with an autism spectrum disorder suddenly going to be cured? I also think that, even if your coping abilities improve to the point that the ASD no longer causes clinically significant impairment, your previous diagnosis should remain intact. Learning how to hide AS in social situations isn't growing out of it. Everything said, I can see people diagnosed at a very, very young age potentially needing a re-evaluation as your brain's neurological structure has changed sufficiently enough that I suppose, a very small portion could have 'grown out of it.'


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31 Dec 2012, 6:43 am

Yes, sometimes I must do it, but my brother must do it more than me.


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Raziel
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31 Dec 2012, 6:47 am

I wouldn't do it right now (maybe in the future), because I had far more trouble with my HFA-diagnoses than it helped me.

Shrinks in my country still have very little knowledge about ASD and it just caused me a whole bunch of trouble.


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31 Dec 2012, 7:19 am

btbnnyr wrote:
Colleges often require up to date diagnoses for accommodations. I think that I will get mine renewed to asd level 1 when new dsm comes out for best description of current functioning.


That's ridiculous. Autism is a lifelong disorder and you can't lose your condition. They should just make people get an up-to-date assessment for how their life is currently impacted in that case, not re-diagnosed.


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emimeni
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31 Dec 2012, 5:40 pm

EstherJ wrote:
Well, I'm not getting re-diagnosed 9 months after I just got diagnosed. The DSM 5 just has to deal with it. Perhaps my psychologist will just update my paperwork? I have no idea how this works.


Oh. You were that recently diagnosed. Never mind, then.

You're getting good advice from everyone else.


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EstherJ
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01 Jan 2013, 2:14 pm

emimeni wrote:
EstherJ wrote:
Well, I'm not getting re-diagnosed 9 months after I just got diagnosed. The DSM 5 just has to deal with it. Perhaps my psychologist will just update my paperwork? I have no idea how this works.


Oh. You were that recently diagnosed. Never mind, then.

You're getting good advice from everyone else.


It's ok - you were right on track, though.
My psychologist just did a short re-assessment so he could say to the place that I'm applying for accommodations for that he also confirmed my ASD.
He said that in the spring he is going to update the name of my diagnosis to ASD from Asperger's.

So I have to do nothing for at least a while. :D