Please Help. (Autism, anger, & communication disorders)

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Mikomi
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05 Feb 2013, 1:49 pm

I debated whether to add my question to the parenting forum, or put it here. After much deliberation, I've decided this was the more appropriate location. Since it is a complex thing, I'm going to give an example/story of how what I am asking about happens. My question comes down to this: Is this typical of autism, or is something else going on here?

Son says or does something he shouldn't. Maybe it is throwing something at his sister, kicking an expensive toy, or saying something deliberately hurtful. He is given a time-out, where he stands and slams his head into the wall and mutters about how we all treat him unfairly, how horrible his life is, and how someone should just kill him. We don't talk like this, we don't watch junk tv, so it's a little shocking to hear this kind of stuff come out of my son's mouth.

We might say something like, "No one is being mean to you; time-out is a consequence of your actions. We do not (throw/kick/etc.)." Thing is, this just makes him angrier. The situation becomes wholly about us/the world being against him, and not about choices he made resulting in consequences. He does not seem to be able to make the connection that he controls the outcome by changing his beahvior. Instead, we get excuses like, "My anger controls me. When I get angry, I do these things." I explain that we cannot change our feelings, but we most definitely can change how we react to those feelings. I always say, "It's not how you feel, it's what you do with it." I've said these words so many times that I feel like I'm a recording on repeat. I've tried explaining it through social stories, playing it out with stuffed animals, giving examples. In theory, he totally seems to get it - but in the moment and even after the fact (you can fire him right back up at even the slightest mention), it's like it is just lost on him.

All of this said, his father is exactly the same. If my husband does something that bothers or offends me, and I bring it up in discussion (even later, even carefully), he tells me I am the problem, and I am actually the one hurting or offending him. When I ask how, he will invariably reply with something like, "By talking to me!" He actually, genuinely, truly equates some hurtful thing he has done with my discussing it in a respectful manner.

It is easy for me to say this all seems very selfish. It is impossible to deal with either of them when they are angry, and frustrating as hell. Nothing you say, no matter how you say it, will ever work. I have to swallow so much hurt and stress that I can't even begin to describe it. Now I have a fear that, if my son doesn't change and learn to accept some responsibility for his actions, he is going to grow up a very lonely person.

My daughter and I have AS. My husband and son are autistic. I guess there is no distinction anymore, per the DSM, but whatever. Son also has an expressive-receptive speech disorder, and I strongly suspect his father has the same. Is there hope? Can anyone relate? I am at my wits end.


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whirlingmind
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05 Feb 2013, 1:56 pm

I have a similar issue with my youngest daughter (HFA). I explain many times logically about reasons why things are unacceptable and she's highly intelligent, but it doesn't get me anywhere. My eldest (AS) says similar things to me, that I'm so "evil" and horrible for giving a totally justified punishment such as removal of a favourite activity. Children are naturally selfish anyway, because they don't understand things the way an adult does, but there is a lot more even than that going on with autistic behaviour. Emotionally the age is never up to the chronological age, so with autistic children the type of logic you get is akin to a two year old! My two believe they haven't done anything wrong no matter how bad they've been, and I'm always the bad/wrong/mean one for punishing their bad behaviour. From what I've read, you still have to give the same discipline to autistic children as NT children, they still have to learn their boundaries - perhaps it just takes them a whole lot longer, and boy, is it hard work.


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Valkyrie2012
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05 Feb 2013, 3:20 pm

When I get into an emotional state it becomes completely overwhelming for me. It no longer is just an emotional issue. Something happens to me where there is a physical feeling that comes over me that is so completely overcoming I just want it to stop. When this feeling happens I am not a nice person... I behave in ways I usually don't. I get aggressive, Something happens to my thinking, not sure how to explain it - I have been in your sons position and husbands position more times than I can count. I feel attacked and threatened and discussing things is all BAD BAD BAD. I say things that later when thinking back I think why in the world did I say that! This ugly feeling is not good. My mother and family hates it. But on the flip side - I hate it too! It is NOT a fun feeling to experience! Or a fun way to get your brain into.. because your thinking just isn't right when this feeling comes on!... it all feels JUST AWFUL and like the real you is in the backseat and are watching just out of reach of the controls of the car!

The same feeling comes over me when I am trying to do something and that something just isn't working out like it should. Same ugly feeling, same ugly reaction by me. I do not ever swear - unless that ugly feeling comes and then swear words quite forcefully come out.

I have worked so hard to change this - but it seems to be some sort of reaction to being emotionally overwhelmed or cognitively challenged. Catastrophic thinking maybe? But how it is plain thinking I don't know because the ugly feeling that comes over me is quite ugly and all consuming and seems to just take over my thought processes and my words. I don't get violent anymore or throw things... though I could if I didn't use so much restraint.

I don't know if this is what happens to your hubby and son or not... but it sounds like it to me....

When I reread what I wrote it makes me sad... I sound like a truly horrible person.



Mikomi
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05 Feb 2013, 11:59 pm

Valkyrie2012 wrote:
My mother and family hates it. But on the flip side - I hate it too!

When I reread what I wrote it makes me sad... I sound like a truly horrible person.


Okay, you do not, at all, sound like a horrible person! Please don't think that. If anything, I get quite the opposite impression of you. And, you have offered me some really valuable insight.

I realize that my son hates feeling how he feels when he is in those moments. I can see his struggle. His pain is nearly palpable. I am familiar with overwhelming emotions and how it can snowball, but I can reign it in when necessary. I don't think the little guy can. I hope the ability will come with time. Meanwhile, I'm looking for ways to help him. Whatever is happening, it is hard for all of us, including him. He is such a great kid, and has expressed how he feels like his emotions are more powerful than he is. I want him to feel that he is in control. Believing is a big part of success.


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06 Feb 2013, 1:16 am

Valkyrie2012 wrote:
When I get into an emotistatstate it becomes completely overwhelming for me. It no longer is just an emotional issue. Something happens to me where there is a physical feeling that comes over me that is so completely overcoming I just want it to stop. When this feeling happens I am not a nice person... I behave in ways I usually don't. I get aggressive, Something happens to my thinking, not sure how to explain it - I have been in your sons position and husbands position more times than I can count. I feel attacked and threatened and discussing things is all BAD BAD BAD. I say things that later when thinking back I think why in the world did I say that! This ugly feeling is not good. My mother and family hates it. But on the flip side - I hate it too! It is NOT a fun feeling to experience! Or a fun way to get your brain into.. because your thinking just isn't right when this feeling comes on!... it all feels JUST AWFUL and like the real you is in the backseat and are watching just out of reach of the controls of the car!

The same feeling comes over me when I am trying to do something and that something just isn't working out like it should. Same ugly feeling, same ugly reaction by me. I do not ever swear - unless that ugly feeling comes and then swear words quite forcefully come out.

I have worked so hard to change this - but it seems to be some sort of reaction to being emotionally overwhelmed or cognitively challenged. Catastrophic thinking maybe? But how it is plain thinking I don't know because the ugly feeling that comes over me is quite ugly and all consuming and seems to just take over my thought processes and my words. I don't get violent anymore or throw things... though I could if I didn't use so much restraint.

I don't know if this is what happens to your hubby and son or not... but it sounds like it to me....

When I reread what I wrote it makes me sad... I sound like a truly horrible person.


I am undiagnosed, but do the same sort of thing.
It is like being posessed or having a tic disorder. I can control it, if I remember to focus on my behavior. If I forget, later I want to crawl into a hole. It is so embarrassing.
I don't throw things anymore, either. I stopped when I saw my cats flinching when my hand drew up. They looked like they expected a blow. That freaked me out.

I don't think it is a problem relating to cognition, but instead to emotional regulation. I am unable to interpret my emotions. Some I like. Others I don't. Both kinds are unsettling. There is something utterly frustrating in not knowing your insides. I look at my core. Chaos is the void, but it's me. That's weird.



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06 Feb 2013, 2:49 am

Mikomi wrote:
Valkyrie2012 wrote:
My mother and family hates it. But on the flip side - I hate it too!

When I reread what I wrote it makes me sad... I sound like a truly horrible person.


Okay, you do not, at all, sound like a horrible person! Please don't think that. If anything, I get quite the opposite impression of you. And, you have offered me some really valuable insight.

I realize that my son hates feeling how he feels when he is in those moments. I can see his struggle. His pain is nearly palpable. I am familiar with overwhelming emotions and how it can snowball, but I can reign it in when necessary. I don't think the little guy can. I hope the ability will come with time. Meanwhile, I'm looking for ways to help him. Whatever is happening, it is hard for all of us, including him. He is such a great kid, and has expressed how he feels like his emotions are more powerful than he is. I want him to feel that he is in control. Believing is a big part of success.


Thank you for your encouraging words. I'm glad my sharing has been helpful for you. If I think of anything else to share I will come back and post it. Or if you have any questions...

I made a video... maybe you might find it helpful too? Just in case :)

[youtube]http://www.youtube.com/watch?v=SGifolcRXXE[/youtube]

Goodnight.



Mikomi
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06 Feb 2013, 11:31 am

That is an exceptionally good video, thank you for sharing it!

I'd say there is a spectrum within the spectrum when it comes to ToM. My daughter is highly empathetic, and I can be as well when I realize there is a need for empathy. I'm not necessarily intuitive enough to know when that is, and neither is she. We do very well when people verbally express a need for support, though, or if they specifically ask for us to consider their alternative point of view. My son and husband, on the other hand, tend to be exactly like the video describes. I think they truly struggle to realize there even IS another perspective, let alone make an effort to understand it. Trying to explain usually provokes anger, not understanding. My daughter and I are words people. We rely on words to understand what intuition would otherwise make obvious. Husband and son are not words people, although they get quite verbal when angry - right when you wish they wouldn't. This makes communication a painful struggle, to say the least.

It's a very complex thing, the autism spectrum. Every perspective I am fortunate enough to be introduced to is a gift of understanding.


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Chloe33
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06 Feb 2013, 11:42 am

Mikomi wrote:
I debated whether to add my question to the parenting forum, or put it here. After much deliberation, I've decided this was the more appropriate location. Since it is a complex thing, I'm going to give an example/story of how what I am asking about happens. My question comes down to this: Is this typical of autism, or is something else going on here?

Son says or does something he shouldn't. Maybe it is throwing something at his sister, kicking an expensive toy, or saying something deliberately hurtful. He is given a time-out, where he stands and slams his head into the wall and mutters about how we all treat him unfairly, how horrible his life is, and how someone should just kill him. We don't talk like this, we don't watch junk tv, so it's a little shocking to hear this kind of stuff come out of my son's mouth.

We might say something like, "No one is being mean to you; time-out is a consequence of your actions. We do not (throw/kick/etc.)." Thing is, this just makes him angrier. The situation becomes wholly about us/the world being against him, and not about choices he made resulting in consequences. He does not seem to be able to make the connection that he controls the outcome by changing his beahvior. Instead, we get excuses like, "My anger controls me. When I get angry, I do these things." I explain that we cannot change our feelings, but we most definitely can change how we react to those feelings. I always say, "It's not how you feel, it's what you do with it." I've said these words so many times that I feel like I'm a recording on repeat. I've tried explaining it through social stories, playing it out with stuffed animals, giving examples. In theory, he totally seems to get it - but in the moment and even after the fact (you can fire him right back up at even the slightest mention), it's like it is just lost on him.

All of this said, his father is exactly the same. If my husband does something that bothers or offends me, and I bring it up in discussion (even later, even carefully), he tells me I am the problem, and I am actually the one hurting or offending him. When I ask how, he will invariably reply with something like, "By talking to me!" He actually, genuinely, truly equates some hurtful thing he has done with my discussing it in a respectful manner.

It is easy for me to say this all seems very selfish. It is impossible to deal with either of them when they are angry, and frustrating as hell. Nothing you say, no matter how you say it, will ever work. I have to swallow so much hurt and stress that I can't even begin to describe it. Now I have a fear that, if my son doesn't change and learn to accept some responsibility for his actions, he is going to grow up a very lonely person.

My daughter and I have AS. My husband and son are autistic. I guess there is no distinction anymore, per the DSM, but whatever. Son also has an expressive-receptive speech disorder, and I strongly suspect his father has the same. Is there hope? Can anyone relate? I am at my wits end.


With both the father and your son having it, maybe the son could be modeling after his father? Also it would be good to try and maybe get some type of behavioral modification therapy for your son while he is still young. At a young age its hard for some to deal with their impulse control. There are many different types of therapy out there.
The thing is it sounds like you are doing fine when explaining to your son, who understands in theory, yet then he sees his dad doing the same behavior. Then it's like a vicious cycle starts all over again.
Your husband would have to hopefully try and correct his own behavior so that he can help his son learn to control his own impulses in behavior.
It's hard as he might see dad do something, and thus thinks it's alright. So it might be confusing for him in that sense.
Since your son has Expressive-Receptive speech disorder, is it possible he would be willing to try different ways to talk and get out his emotions maybe by drawing, doing artwork, or writing? The E-R speech disorder likely might make it harder for your son when he is misbehaving and then hinder his understanding of the why and hows. He is modeling after dad it sounds like. I wish you luck with this.
If you could find therapy maybe there? The younger you get them into therapy the better off it can be i think.
Are there other children or kids that live around you? (Random, yet its possibly your son is picking up filthy words from them, or maybe his dad if he didn't realize he was being overheard?)



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06 Feb 2013, 2:27 pm

Thanks, Chloe. It is difficult with my husband modeling a behavior I wish to nip in the bud with my son. Husband was on anxiety meds, but quit because he doesn't think he needs them. He's been an insufferable prick ever since. He blames me for all of his issues, says if he knew it was autism, he would never have gotten into a relationship. He is no longer willing to work on himself. It is sad, because by marriage and having children, he has created a life that requires him to be in it. He quit. What can I do but pick up the pieces? God knows I have enough of my own problems to fix, I can't fix him. No one is perfect, but they only suck when they quit - which he has. It hurts all of us. I mean, my dad had MAJOR issues when I was growing up. But he OWNED it, and I can accept that, and we are very close. My mother had issues, and she just blames others for all of the problems, and I hate her. I could never fogive her unless she asked forgiveness. Ownership, not the struggle, is what matters. Effort, love, trying.

I hate behavior modification therapy. It feels like dog training. I HATE it. I do not want to do that to my son. (I'm not judging others, please don't take it that way anyone, ok?) It's just not what I wanted for him. But if my husband keeps doing what he does and refuses to accept responsibility and keeps blaming me, our son will do the same, and I have no choice. I'm getting depressed writing this :/

Before we knew of autism, I felt like a bad mom. I felt like something was off, but I had no idea what or how to help. Learning about autism was a catalyst for me to improve how I interacted with my children and husband, and give them what they needed versus what the world said was correct. My husband seems to have used it as an excuse to give up. And I feel devastated.

Sorry. Just venting. I want to help all of them, and myself. I feel like I am carrying everyone. Who is carrying me? Weight of the world.


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Valkyrie2012
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06 Feb 2013, 3:24 pm

Mikomi wrote:
Thanks, Chloe. It is difficult with my husband modeling a behavior I wish to nip in the bud with my son. Husband was on anxiety meds, but quit because he doesn't think he needs them. He's been an insufferable prick ever since. He blames me for all of his issues, says if he knew it was autism, he would never have gotten into a relationship. He is no longer willing to work on himself. It is sad, because by marriage and having children, he has created a life that requires him to be in it. He quit. What can I do but pick up the pieces? God knows I have enough of my own problems to fix, I can't fix him. No one is perfect, but they only suck when they quit - which he has. It hurts all of us. I mean, my dad had MAJOR issues when I was growing up. But he OWNED it, and I can accept that, and we are very close. My mother had issues, and she just blames others for all of the problems, and I hate her. I could never fogive her unless she asked forgiveness. Ownership, not the struggle, is what matters. Effort, love, trying.

I hate behavior modification therapy. It feels like dog training. I HATE it. I do not want to do that to my son. (I'm not judging others, please don't take it that way anyone, ok?) It's just not what I wanted for him. But if my husband keeps doing what he does and refuses to accept responsibility and keeps blaming me, our son will do the same, and I have no choice. I'm getting depressed writing this :/

Before we knew of autism, I felt like a bad mom. I felt like something was off, but I had no idea what or how to help. Learning about autism was a catalyst for me to improve how I interacted with my children and husband, and give them what they needed versus what the world said was correct. My husband seems to have used it as an excuse to give up. And I feel devastated.

Sorry. Just venting. I want to help all of them, and myself. I feel like I am carrying everyone. Who is carrying me? Weight of the world.


Venting is good! I am happy you liked my video. I am more like you in the bit where you say learning about autism helped you be a better mom. For me, that realization came too late and my ex took my kids away from me. I am a better Mom now when I have my kids with me. It has brought about me not trying to behave like an NT mom and failing miserably. My ex finally just told me... "you are not a bad Mom.. you are just a DIFFERENT kind of mom and I do not understand you."

I have used it to better myself and grow. In a lot of ways I see my kids are on the spectrum too... but my ex does not believe in "syndromes" so it is difficult there. I still judge myself as NT according to my boyfriend and he says that needs to stop.

I am sorry your husband found the answers as reasons to give up. I did a denial thing at first that was quite huge.. but soon as I didn't deny anymore it all became a gift of knowledge. Maybe your husband is still in denial somewhere in his heart? Big ouchie what you say about him not wanting marriage and such if he had known sooner. Trouble is - even if he hadn't known sooner all his issues were still there and he still chose to marry you so I think he sounds like he found a way to "hurt you to get even" in the way he believes you have hurt him. If that makes sense.

I wish I had more advice for you to help you with your son. I think maybe the rule bound thinking thing can cause a lot of issues for you. If your son has not made it against the rules to hit others in his "personal rule guide book" (it is how I think of my own rules in my life) and he can't grasp why he should take it on board as a rule he will probably always keep hitting. What I am going to say next is probably going to sound awful to lots out there... and that is fine... but it worked and I have no regrets having done it.

My daughter would hit her brother. He is of the type that has no clue how much force he is using... he breaks stuff without meaning to continually.. anyhow.. he gets in trouble if he hits her back. I was in the endless loop of their fights and one day I turned to her brother after she hit him and told him - the next time she hits you, you have my permission to hit her back. I then took him aside and let him know I didn't really mean it, just want her to think I meant it. Hitting has become a non issue. She has taken the no hitting rule on board now.

Maybe that won't work for other people but it sure worked in my family. Sorry it isn't better advice.



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06 Feb 2013, 8:14 pm

Mikomi wrote:
Thanks, Chloe. It is difficult with my husband modeling a behavior I wish to nip in the bud with my son. Husband was on anxiety meds, but quit because he doesn't think he needs them. He's been an insufferable prick ever since. He blames me for all of his issues, says if he knew it was autism, he would never have gotten into a relationship. He is no longer willing to work on himself. It is sad, because by marriage and having children, he has created a life that requires him to be in it. He quit. What can I do but pick up the pieces? God knows I have enough of my own problems to fix, I can't fix him. No one is perfect, but they only suck when they quit - which he has. It hurts all of us. I mean, my dad had MAJOR issues when I was growing up. But he OWNED it, and I can accept that, and we are very close. My mother had issues, and she just blames others for all of the problems, and I hate her. I could never fogive her unless she asked forgiveness. Ownership, not the struggle, is what matters. Effort, love, trying.

I hate behavior modification therapy. It feels like dog training. I HATE it. I do not want to do that to my son. (I'm not judging others, please don't take it that way anyone, ok?) It's just not what I wanted for him. But if my husband keeps doing what he does and refuses to accept responsibility and keeps blaming me, our son will do the same, and I have no choice. I'm getting depressed writing this :/

Before we knew of autism, I felt like a bad mom. I felt like something was off, but I had no idea what or how to help. Learning about autism was a catalyst for me to improve how I interacted with my children and husband, and give them what they needed versus what the world said was correct. My husband seems to have used it as an excuse to give up. And I feel devastated.

Sorry. Just venting. I want to help all of them, and myself. I feel like I am carrying everyone. Who is carrying me? Weight of the world.


It's good to vent, it's true. I feel bad for your situation. If only your husband could find the will to try taking anti anxiety meds again maybe it would help. If only your husband could be convinced to help, if only for your son and daughters' sake at least.

Behavior Mod therapy was a bad example, i've witnessed it too it's horrible. However different strokes for different folks and if it works, great.
Sometimes the hard part is trying all different things or methods until we find out what works.

The key is within fixing your husband. You used learning about Autism to the best of your abilities and grew from it, and your husband used it as an excuse to give up. There's seems like an underlying depression with him at all there? At least for the kids' sake you would think he would want to learn so that he can feel better. It's possible he's very depressed and got into a rut. I'd really suggest him to get back on the anti anxiety meds, i am on ones and they really help me.