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aspiesandra27
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01 Mar 2013, 11:48 am

Would like to please know where people who have been formally diagnosed with ASD, went to for this, and how long did it take them from start to completion of the process?



whirlingmind
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01 Mar 2013, 12:11 pm

I wasn't diagnosed in London, but The Maudsley in London (http://www.national.slam.nhs.uk/service ... ismclinic/) is specialist at diagnosing ASCs and your GP can refer you:

https://www.national.slam.nhs.uk/referr ... al/?step=1

Here is a list of the process: http://www.national.slam.nhs.uk/service ... nic/faq-2/

You have the right to an assessment, so if your GP tries to fob you off, he can't (I've heard of people being told there are no services for adults with autism, there is no budget, they don't need one etc. and it's all rubbish). Here are some useful links:

http://www.autism.org.uk/about-autism/a ... dults.aspx
http://www.autism.org.uk/working-with/a ... ategy.aspx
http://www.nice.org.uk/CG142

You could print off relevant things to take to your GP, and you could complete the AQ10 to take along to your GP appointment, as it is a GPs screening tool: http://docs.autismresearchcentre.com/tests/AQ10.pdf

Best of luck.


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DX AS & both daughters on the autistic spectrum


aspiesandra27
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01 Mar 2013, 12:40 pm

OMG whirlingmind, thank you so much. You are right. I have been tried to be fobbed off so many times, the mai one being the budget. I am now (and after having to change GP surgeries all together) in the process of getting this new GP to do the referral. I have had telephone conversations from members of staff at Maudsley who have taken pity on me and have now spoken to this new GP. But this has been a battle for almost a year, in between surgeries, psychiatrists, etc. I spoke to a specialist (private) in ASD ont he phone once (I was at a really low point) and she told me which tests to do, to take them to my GP and that that would help him to get moving. She even offered to speak to him too. I know the tests don't serve as a diagnosis, but my scores clearly indicate I have ASD. That dotor also asked me a number of questions (45 minutes on the phone) and at the end said she was sure I have ASD.

The reason I am so keen on a diagnosis, is because my workplace is failing to see that they are not accommodating my needs. And obviously I would like to know. I have for the greatest part of my life thought I was just a freak. A freak who belonged nowhere.

I am really grateful for this. Thanks for answering. :)



whirlingmind
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01 Mar 2013, 12:53 pm

You're so welcome. I had a hell of a fight myself so I totally sympathise. It's the same old story everywhere with the discrimination against girls and women with ASCs:

http://www.forbes.com/sites/emilywillin ... st-autism/
http://sfari.org/news-and-opinion/news/ ... study-says

...don't get me started!

Don't give up!


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aspiesandra27
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01 Mar 2013, 1:27 pm

whirlingmind wrote:
You're so welcome. I had a hell of a fight myself so I totally sympathise. It's the same old story everywhere with the discrimination against girls and women with ASCs:

http://www.forbes.com/sites/emilywillin ... st-autism/
http://sfari.org/news-and-opinion/news/ ... study-says

...don't get me started!

Don't give up!


I just read these, thanks! :D

This is so useful and informative.

Not only are we struggling with a disorder that is yet to be fully discovered, but we suffer prejudice as women. :cry: