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Autisticgamer
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17 Mar 2013, 1:55 pm

Does anyone know where I can get arm splints or somthing similar to help stop me punching hurting myself
I will explain

I have self injourous behaviour disorder as a part of my autism
I often brutally punch my head with my fists and open hands or my legs (my hands knuckles have bust open before and are all scarred)

I also bite my self and if anyone knows protection for that will be helpful

It is jsut that restraint isn't always nice imagine how it would feel if all pepole did was yank your arms and grab you and pull at you it isn't nice that way all the time

My mum has taked to pepole we are in the Uk no support no one listens

I get £400 month DLA disability living allowance which I often spend on sensory equipment or things to make me more independent

I can talk but my speech is limited

I am 19 girl

I have extreme sensory issues that involve using the toilet and underwear which means I wear tena pants I am not embaresed about it because it is who I am I do not know any different

I am currently being moved to a residential care home soon

If possible can you put the pictures in the page instead of links if not thats ok to

Thanks



Autisticgamer
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17 Mar 2013, 10:50 pm

Sorry If posted wrong place but duno where to buy stuff like that



chris5000
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silentlyvela
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17 Mar 2013, 11:30 pm

What about something like padded gloves or mittens?



2wheels4ever
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17 Mar 2013, 11:36 pm

If you can, I would try to learn what triggers the SI and focus on ways to control the influences that drive you to self injure; it's certainly not something you do when you're happy (I hope). I started channeling the blows to my lower body which helped a lot, then I got off the medication that was amplifying a lot of the stressors causing me the meltdowns, which cut down on the compulsion significantly


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Autisticgamer
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18 Mar 2013, 8:15 am

silentlyvela wrote:
What about something like padded gloves or mittens?


I duno where to find that either



Autisticgamer
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18 Mar 2013, 8:16 am

chris5000 wrote:


That helps thank you



Autisticgamer
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18 Mar 2013, 8:18 am

2wheels4ever wrote:
If you can, I would try to learn what triggers the SI and focus on ways to control the influences that drive you to self injure; it's certainly not something you do when you're happy (I hope). I started channeling the blows to my lower body which helped a lot, then I got off the medication that was amplifying a lot of the stressors causing me the meltdowns, which cut down on the compulsion significantly


Ok thanks



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18 Mar 2013, 8:45 am

I agree with 2wheels4ever. I know of a young man who would hit big holes in his head, but who stopped doing this after his triggers were recognized and could be avoided.



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18 Mar 2013, 12:56 pm

Apparently, gymnasts often use plastic cast 'cause they tend to get their arms injured all the time, something like that might be helpful.
Otherwise, it probably boils down to reducing those meltdowns to a minimum via therapy/medication.



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18 Mar 2013, 1:19 pm

No kidding; I'd hate to be restrained. Actually, I *do* hate to be restrained, though it hasn't happened to me since I was a child. I would just panic and struggle until I was so exhausted I couldn't move any more.

So... let's see. Options.

Well, first of all, mittens or similar would do the job, but they'd also stop you from using your hands, which is no good unless you use it for night-time. At night, you wouldn't need to use your hands, and it might be more comfortable.

If you hit your head, you could wear a helmet instead of using arm splints, so that when you hit your head you wouldn't hurt yourself. I read that you are also hurting your hands, so you might want a helmet that is padded on the outside as well.

Arm splints... I don't know where to find them, but I'm pretty sure a doctor who treats joint and bone problems might be able to help you; or else an occupational therapist. You would want ones that hold your elbows at a comfortable position, so that you won't punch your head; and you'll want to take them off sometimes so that your muscles in your arms don't get weaker.

Quote:
I have extreme sensory issues that involve using the toilet and underwear which means I wear tena pants I am not embaresed about it because it is who I am I do not know any different
Good for you. Don't ever let anybody make you feel ashamed. Disability is not something to be ashamed of or pitied; it's just a normal part of your life.

I agree with the people who are talking about finding out why you hurt yourself and what might be changed so that you do not hurt yourself as much. Keeping yourself from physical harm is naturally important, but if you can protect your head, then all you've got left are minor injuries to your hands and arms, and that means you have some time to figure things out. Try to figure out what makes you more likely to hurt yourself, whether it's too much sensory input, or emotions overloading you, or socializing too much, or even just thinking too hard or being forced to talk too much.

If you're going into a care home, you and your mom will want to make sure that you know their policy on restraint. You say you don't like it, and I don't blame you. Ironically, people have been badly hurt because they were restrained too roughly or by people who didn't know how to do it safely, and if you can stay away from needing restraint at all, that would be the safest thing to do. Talk (write?) to your mom. You want to work together, because sometimes they don't listen to the person with the actual disability (which is stupid but happens a lot), so your mom might need to back you up so they'll actually listen. You want non-restraint alternatives, preferably ones which you can control--you can decide when you need arm splints or a helmet and when you're okay and you don't. You are the one who has lived with your particular type of autism your whole life and you know more about it than anybody else; so they should listen to you.


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18 Mar 2013, 11:17 pm

I agree with Callista, I also saw your meltdown video and maybe i'm going to make a fool of myself here however it appears you have a real proplem with frequent and violent meltdowns more so then any other autistic person I know or have read up on. If my view is right their has to be something triggering this as meltdowns don't just happen for no reason right? Maybe you just need to upload more happy videos so I don't get the wrong idea. I would honestly look into ways to curb the meltdowns though and start by looking to what starts them in the first place as you appear to be trying to mask/deal with something that creates distress/overload in your life.



Autisticgamer
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18 Mar 2013, 11:57 pm

Callista wrote:
No kidding; I'd hate to be restrained. Actually, I *do* hate to be restrained, though it hasn't happened to me since I was a child. I would just panic and struggle until I was so exhausted I couldn't move any more.

So... let's see. Options.

Well, first of all, mittens or similar would do the job, but they'd also stop you from using your hands, which is no good unless you use it for night-time. At night, you wouldn't need to use your hands, and it might be more comfortable.

If you hit your head, you could wear a helmet instead of using arm splints, so that when you hit your head you wouldn't hurt yourself. I read that you are also hurting your hands, so you might want a helmet that is padded on the outside as well.

Arm splints... I don't know where to find them, but I'm pretty sure a doctor who treats joint and bone problems might be able to help you; or else an occupational therapist. You would want ones that hold your elbows at a comfortable position, so that you won't punch your head; and you'll want to take them off sometimes so that your muscles in your arms don't get weaker.

Quote:
I have extreme sensory issues that involve using the toilet and underwear which means I wear tena pants I am not embaresed about it because it is who I am I do not know any different
Good for you. Don't ever let anybody make you feel ashamed. Disability is not something to be ashamed of or pitied; it's just a normal part of your life.

I agree with the people who are talking about finding out why you hurt yourself and what might be changed so that you do not hurt yourself as much. Keeping yourself from physical harm is naturally important, but if you can protect your head, then all you've got left are minor injuries to your hands and arms, and that means you have some time to figure things out. Try to figure out what makes you more likely to hurt yourself, whether it's too much sensory input, or emotions overloading you, or socializing too much, or even just thinking too hard or being forced to talk too much.

If you're going into a care home, you and your mom will want to make sure that you know their policy on restraint. You say you don't like it, and I don't blame you. Ironically, people have been badly hurt because they were restrained too roughly or by people who didn't know how to do it safely, and if you can stay away from needing restraint at all, that would be the safest thing to do. Talk (write?) to your mom. You want to work together, because sometimes they don't listen to the person with the actual disability (which is stupid but happens a lot), so your mom might need to back you up so they'll actually listen. You want non-restraint alternatives, preferably ones which you can control--you can decide when you need arm splints or a helmet and when you're okay and you don't. You are the one who has lived with your particular type of autism your whole life and you know more about it than anybody else; so they should listen to you.

Thanks that helps
We do have a helmet but its all chewed up from how much I hit it its a foam sort of one



Autisticgamer
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18 Mar 2013, 11:59 pm

rapidroy wrote:
I agree with Callista, I also saw your meltdown video and maybe i'm going to make a fool of myself here however it appears you have a real proplem with frequent and violent meltdowns more so then any other autistic person I know or have read up on. If my view is right their has to be something triggering this as meltdowns don't just happen for no reason right? Maybe you just need to upload more happy videos so I don't get the wrong idea. I would honestly look into ways to curb the meltdowns though and start by looking to what starts them in the first place as you appear to be trying to mask/deal with something that creates distress/overload in your life.


I don't realy understand what you mean or what you are asking me exactly



rapidroy
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19 Mar 2013, 7:41 am

Ok then, to the point. From what you post here it appears you meltdown alot more then most people with autism, fix the thing(s) in your life that makes you do it and there will be no/reduced meltdowns or frequent need to be restrained.