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iSpy
Snowy Owl
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21 May 2013, 3:43 am

I posted this last year http://www.wrongplanet.net/postp4571759 ... t=#4571759 that I lost my voice due to having lots of Simple partial seizures. To this day it has been gone.
I lost my voice on Feb 17th 2012.

I have got use to it but it still sucks. And I get very upset at times. My dr's say's that I will never talk at all.
What gets me is that they put it down as that I am Non Verbal due to that I have Autism and not do to the seizures.
I got my notepad out and asked why? and all I get from them is due to your pass history and that the seizures are due to you having Autism so the Autism is why you can not talk. :? :? :? :? that makes no sense at all to me. Or maybe I am the first person at my age (I be 40 in June.) to have there Autism go regressive and take my voice. And that makes no sense and can never happen. lol I say my Dr is the one that has gone regressive. :lol:


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I am diagnosed with level 3 Autism
I am borderline low functioning & have an IQ of 68.
I am non-verbal.


vanhalenkurtz
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21 May 2013, 4:04 am

Your doctor is an obvious idiot of course.


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Verdandi
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21 May 2013, 5:06 am

Your doctor is needlessly reductive. It surprises me that he hasn't had you checked out by a neurologist.



invisiblesilent
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21 May 2013, 8:37 am

That must be really horrible for you, I can only imagine how frustrating it must be for you.

Have you seen a neurologist as Verdandi mentioned? Had an MRI scan or anything? It seems odd that they would say something so definite as "you will never talk again" if they are saying that autism is the reason and not the seizures. Autistic people can change and become more or less verbal. If the seizures had caused damage to some part of your brain which is responsible for speech it would be different, I could understand what they are saying then. Feels like something is missing to me.



UDG
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21 May 2013, 1:01 pm

"Will never talk again" is a bold claim. If due to autism, such things can fluctuate. If due to damage, many people with damage to speak centres in the brain, for instance due to stoke, are able to regain the ability to speak. I suggest that you seek a second opinion.



girly_aspie
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21 May 2013, 1:44 pm

It would definitely be worth it to get a second opinion from a neurologist. Your doctor sounds dismissive, I'm so sorry that you're going through this, that's terrible and you deserve to be treated with more respect.


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hans66
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21 May 2013, 2:09 pm

To be honest I would ask the opinion of a speech therapist. Having no voice is speech related and has to do with your breathing, vocal chords, larynx and throat.



Fnord
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21 May 2013, 2:21 pm

^ Seconded.

Please get another opinion!

In addition to a speech therapist, and ear-nose-throat specialist and a neurologist should be brought in.

I keep saying that people should seek a diagnosis from and appropriately-trained and licensed medical/mental-health professional for whatever ails them, and I believe this to be no exception. A General Practitioner can do only so much, and you seem to need something more.

Good luck.



hans66
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21 May 2013, 3:09 pm

Talking about voice loss: In the past I used to be somewhat hoarse and have a sore throat from time to time. I took singing lessons and for singing I learned the proper way of breathing. I also decided to apply that on speech. Since then the hoarseness was gone and my throat no longer hurt.

I sometimes lose my voice but the duration of the voice less also depends on the cause. When I abuse my voice (yelling, screaming) or eat something allergenic (causing allergic reactions) I am hoarse for one or two hours. If the cause is a cold it could be one week or so before I got my voice back.



Verdandi
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21 May 2013, 4:52 pm

hans66 wrote:
To be honest I would ask the opinion of a speech therapist. Having no voice is speech related and has to do with your breathing, vocal chords, larynx and throat.


Yes and no.

What I mean is "Yes, it can have something to do with breathing, vocal chords, larynx, and throat." And sometimes "No, it doesn't have anything to do with those things and may instead reflect dysfunction or actual neurological damage." It can also be caused by somaticization (converting emotions into somatic/physical symptoms).