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Almajo88
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27 Nov 2012, 8:41 pm

Hey people. I believe that I have been misdiagnosed with Asperger's. I realise that people on the internet aren't capable of giving me any sort of appraisal about my diagnosis, but if anybody is capable of answering my general queries, then that would be a massive help.

I'll start by explaining the circumstances of my diagnosis. At the time I was around ten years of age. I don't remember anything very clearly except seeing a psychiatrist.

Now, I didn't socialise properly in primary school, at least as far as I can remember, but I believe my behaviour may have been influenced by a number of things. Both of my parents had mental issues and they both went to stay at the hospital a few years prior to my diagnosis, as a result of those issues. Me and my siblings were placed with foster parents who were abusive and I wonder if this could have influenced my behaviour at the time of my diagnosis. I have relatively vivid memories of my appointments with the psychiatrist; I recall avoiding his attention by playing with the toys in his room. Outside of those sessions I'd often play around with these toy spaceships, although this stopped around the time I started at secondary school.

During my years at the secondary school, which was a mainstream school with an Asperger's unit, I had constant support in lessons and was encouraged to go to the unit during break periods. I didn't really relate to the other kids with Asperger's - I thought their interests were often either childish or just overly focused on trivial details - and I was far too shy to speak to any of the other kids, although I obsessed over the idea of doing so. I became isolated from everybody. Any help I received during education was purely about academic achievement. I did manage to get good grades but I later fell out of sixth-form due to depression and did nothing for a few years, having been completely dropped with no idea how the real world works and with very little social skills whatsoever.

What I'm trying to get across is that I think the diagnosis was actually detrimental to me. In fact, I left school far more reserved than I was when I began. I have a lot of emotional difficulties around people, in addition to anxiety. However, I've spoken to people recently who think that I can handle myself relatively well, socially, considering my circumstances. One of them was a psychiatric nurse who was probably the most helpful person I've spoken to so far; she gave me a full psychiatric assessment at the hospital, said my diagnosis was probably incorrect and told me that the psychiatric doctor I was due to see would assist me in figuring out my diagnosis.

Unfortunately I believe that the doctor who visited me was not quite competent. When I brought up my diagnosis he told me that it would have been properly considered at the time, which seems like an awfully stupid thing for a trained psychiatrist to believe given the number of factors that could influence a diagnosis. He told me that my parents would have been involved, but they both had mental health issues and surely would have considered the benefits of it to them (most obviously that they claimed DLA through it). Besides that, I know from experience that explaining things to a bad psychiatrist can feel like a prolonged version of Chinese whispers, with the psychiatrist asking leading questions and seeming predisposed to whatever conclusion they have already made; what you try to say can come back as something completely different. That was basically my experience with the doctor I saw.

I guess I'd better sum up the main question that I am asking:

- Has anybody got any general information on Asperger's misdiagnosis? I'm especially interested in hearing about how often this happens or any first-hand reports of it.

But I'd also appreciate any other discussion relating to this. Either way, thanks for reading.



littlelily613
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27 Nov 2012, 9:21 pm

Yes, misdiagnoses do happen. I don't think you've provided enough info to make a suggestion either way. Clearly though, your childhood would have had an impact on your emotional wellbeing, and would have impacted the way you acted. Doesn't mean you WERE misdiagnosed though, just that you could have been. I would suggest seeing another psychiatrist because this one should have listened to your concerns rather than brushing them off.


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glow
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07 Mar 2013, 6:20 pm

[quote="Almajo88"']Hey people. I believe that I have been misdiagnosed with Asperger's. I realise that people on the internet aren't capable of giving me any sort of appraisal about my diagnosis, but if anybody is capable of answering my general queries, then that would be a massive help.

I'll start by explaining the circumstances of my diagnosis. At the time I was around ten years of age. I don't remember anything very clearly except seeing a psychiatrist.

Now, I didn't socialise properly in primary school, at least as far as I can remember, but I believe my behaviour may have been influenced by a number of things. Both of my parents had mental issues and they both went to stay at the hospital a few years prior to my diagnosis, as a result of those issues. Me and my siblings were placed with foster parents who were abusive and I wonder if this could have influenced my behaviour at the time of my diagnosis.' (quote)

Glow wrote
i heard what you were saying on your misadiagnosis and its very sad to hear they may have got it wrong based primarily on your upbringing .
ive been through the lowest times myself and simply saying to someone or putting it mildly across about how you may be feeling about your
circumstances to anyone may seem like trash. Let me offer you some advice. despite me not being qualified. im not wanting to appease your
judgement or common knowledge of your past life but if you're honest about things and attempt to open up about your mindset
then the worst is over. a great stress has been lifted off of your mind. if you're saying you were misdiagnosed then it is up to you to put forwards why
you think you were until you get someone to see your point of view. of course they should be qualified to diagnose as an end result but maybe
in the meantime you could go and see a lifecoach who could guide you through life. Gradually the anxiety or paranoia you are be feeling will simply
drain through its course and you may see that in time you dont need anyone at all. just yourself and thats all. and the old advice are not cures but they can be the best ones.
if you dont feel like going in for another casual chat about you're health, talk to someone like a good samaritan,-another likely avenue.
if all else fails try a short course of anti-depressants or anything related to your anxiety and if they get really bad for you stop taking them unless
your own g.p states otherwise.



Ettina
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07 Mar 2013, 7:06 pm

It's certainly possible. Especially if you were preschool-aged when you went to a foster home, or if your parents were extremely neglectful when you were younger - Reactive Attachment Disorder can sometimes be mistaken for AS because they both involve social impairment. Later trauma, doesn't tend to be easy to confuse with AS (though it could happen) but RAD definitely can be misdiagnosed as AS. (Though more often post-institutional RAD than RAD from abuse and/or foster care.)



glow
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07 Mar 2013, 7:20 pm

i think that this kind of advice is pre-emptory of what someone may want to do in the future. we do not know the ins and outs of his health dialysis and neither should we be writing in volumes as to what his own wishes are.
is your pre-meditative advice to imply meerly that he seeks immediate help from an a nd e department or find a holy testament to his prognosis.?
we're not finding cures for fighting off colds. :cry:



neko
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05 Jun 2013, 2:01 am

I have near the exact same story, I was diagnosed by a most likely incompetent doctor at the age of seven and throughout school I became more withdrawn, I am well read but do not have obsessive interests, likewise I never get anything remotely similar to sensory overload, and have no trouble with nonverbal communication