My Son Echolalia Scripting: need some answers and help

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AutismDad
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20 Jun 2012, 5:26 pm

Hello,

This is my first post on this forum. This seems to be mostly a place for aspies,, so please forgive me if I need to go somewhere else. I'll sure take suggestions about where else to go.
My son is 12 and has moderate to high functioning autism. Of all the issues that his autism has produced- both good and problematic - the most nerve wracking currently is his increasing scripting echolalia.

Since he was four years old, he spends hours (when my wife and I let him go that long) walking in circles and repeating tv, dvds, or computer games (in perfect pronunciation and pitch as he heard it). We know he is doing what is called “scripting” (repeating verbatim the scripts from these media). Some call it “tv talk.”

I have read another post on this forum that asked the same question… what the hell to do? Or how to reduce it? It really plays havoc in public, social interactions – or attempts to have them. It is difficult to even have a conversation with him (actually impossible). It takes a great deal of effort to snap him out of this scripting trance that he gets into. The only response (I’m summarizing here) from someone was that “it would eventually go away and to live with it patiently.”

Well, unfortunately, I’m here to tell you that it DOES NOT go away, at least for him in our instance. It has become increasingly worse in the past 8 years. My wife’ solution now is to ban him (when possible) from all media that he could memorize such as tv, dvd’s or vdeo games. Anything that has a talking audio track is fair game for his “scripting.”

I have read many forums from people asking for help from this same issue. All advice involves some sort of therapy or social stories or some “intervention” to address the issue. In not a single post I can find has anyone suggested cutting off the source of the scripts (all media). So, are my two specific questions:

Has anyone had any success with anything to reduce (even eliminate?) the scripting in such children?

What about taking away the main source of the scripting (tv and videos etc)? Or at least greatly reducing them. We have currently decided to do this and see if there is any improvement. Still, I’m open all and any things to try. Thanks in advance for answering.



Kinme
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20 Jun 2012, 5:45 pm

There's a Parents' Discussion Forum. Maybe this should be posted there.



Last edited by Kinme on 20 Jun 2012, 7:23 pm, edited 1 time in total.

MeshugenahMama
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20 Jun 2012, 6:06 pm

You should not discourage your son's use of echolalia. Many times it is an attempt to communicate wants and needs, and by trying to limit it or punish him for it, you are in effect discouraging his communication. There are things he is trying to communicate but does not have the words for. Is there some reason that you are against therapy for it?



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20 Jun 2012, 6:25 pm

I have HFA, rather than AS. I did scripting like that - still do it although much less than I did as a child. I'd repeat lines from movies, tv, etc. often - as well as repeat them over and over. I don't remember anything being done about that, by my parents, but I'm not sure if they did nothing about it. I had (and still do have, for many of those movies) all of the dialog memorized, with accent and pitch and all of that spot on.

Either way I do know that I did in general get worse with symptoms as I got older, and then as I got into my teens many ones, such as scripting, relaxed. So while I don't know how to help you make your son do less scripting, I know that at least in my case, it started relaxing on it's own as I got older, but that was not until somewhere around 14-16. From ages 8-13 I got worse with my symptoms.

I don't know how it is for other autistics but I would not personally be surprised if some of your son's symptoms relaxed with age - but I wouldn't be surprised if things get worse before they get better.

How has taking away media been working? It seems logical. Has he felt like he's being punished, though? That's how I think I'd feel.

Also while WP may have a lot of aspies, I notice a decent amount of auties on here.

I don't know if my post was helpful but I thought I'd share my experiences either way.



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20 Jun 2012, 6:28 pm

MeshugenahMama wrote:
You should not discourage your son's use of echolalia. Many times it is an attempt to communicate wants and needs, and by trying to limit it or punish him for it, you are in effect discouraging his communication. There are things he is trying to communicate but does not have the words for. Is there some reason that you are against therapy for it?


I do support this post, as well. It was very distressing when people would make me stop things like that, or most of my repetitive behaviors and stims as well.



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20 Jun 2012, 6:46 pm

I don't think removing media will help. He obviously has an amazing memory, he could easily remember these scripts for the rest of his life. By removing media you just ensure that you will always hear the same ones instead of new ones.



MeshugenahMama
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20 Jun 2012, 6:51 pm

AutismDad wrote:
Hello,

This is my first post on this forum. This seems to be mostly a place for aspies,, so please forgive me if I need to go somewhere else. I'll sure take suggestions about where else to go.
My son is 12 and has moderate to high functioning autism. Of all the issues that his autism has produced- both good and problematic - the most nerve wracking currently is his increasing scripting echolalia.
My 13 year old son has classic autism. He presents as being high functioning due to a lot of therapy, and this has always been an issue to varying degrees. When he was younger and his symptoms were intense, it was nerve wracking, but I found it very helpful to remind myself that he was in much more pain than me, and it was much more nerve wracking for him, then I could ever imagine.
Since he was four years old, he spends hours (when my wife and I let him go that long) walking in circles and repeating tv, dvds, or computer games (in perfect pronunciation and pitch as he heard it). We know he is doing what is called “scripting” (repeating verbatim the scripts from these media). Some call it “tv talk.”
This was most likely stress relief through stimming and possibly entertaining himself. My other kids always enjoyed the tv talk. It provided good entertainment on trips. It never bothered me and I never tried to stop it.

I have read another post on this forum that asked the same question… what the hell to do? Or how to reduce it? It really plays havoc in public, social interactions – or attempts to have them. It is difficult to even have a conversation with him (actually impossible). It takes a great deal of effort to snap him out of this scripting trance that he gets into. The only response (I’m summarizing here) from someone was that “it would eventually go away and to live with it patiently.”
[b]You have to remember this is a communication disorder. Is it possible that he is feeling your tension over it, and that is causing him to do it more-vicious cycle kind of thing. You're stressing him out and this is what he does to deal with his stress-just a thought.
Well, unfortunately, I’m here to tell you that it DOES NOT go away, at least for him in our instance. It has become increasingly worse in the past 8 years. My wife’ solution now is to ban him (when possible) from all media that he could memorize such as tv, dvd’s or vdeo games. Anything that has a talking audio track is fair game for his “scripting.”

I have read many forums from people asking for help from this same issue. All advice involves some sort of therapy or social stories or some “intervention” to address the issue. In not a single post I can find has anyone suggested cutting off the source of the scripts (all media). So, are my two specific questions:

Has anyone had any success with anything to reduce (even eliminate?) the scripting in such children?

What about taking away the main source of the scripting (tv and videos etc)? Or at least greatly reducing them. We have currently decided to do this and see if there is any improvement. Still, I’m open all and any things to try. Thanks in advance for answering.


BTW, I forgot to say-Welcome to WP :) (and hang in there!)



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20 Jun 2012, 7:09 pm

MeshugenahMama wrote:
You should not discourage your son's use of echolalia. Many times it is an attempt to communicate wants and needs, and by trying to limit it or punish him for it, you are in effect discouraging his communication. There are things he is trying to communicate but does not have the words for. Is there some reason that you are against therapy for it?


Have to agree.

To take this away would be cruel. There is a reason he is responding to this stimulus. He relates to it and repetition is his way of expressing this.



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20 Jun 2012, 7:19 pm

It sounds like he is having fun. If he were my son I would expose him to some better media, like some good documentaries. Carl Sagan's Cosmos series would be an excellent one. He could learn so much by memorizing those.



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20 Jun 2012, 7:56 pm

Force him to watch only undubbed martial arts movies from China.

Either (a) he will become so exhausted trying to mimic the dialogue that he will outgrow the behavior.

Or (b) he wont outgrow the behavior and he will become fluent in both Mandarin, and in Cantonese!


And by that time he graduates from highschool those will be very lucrative skills to have in both government and in business!

Either way it will be a plus!

I know this sounds like a flippant joke, but seriously-I dont think you can force him out of this behavior so why not go with the flow a little bit and expirament?

Many parents are into "foriegn language immersion" for their kids.
So why not encourage him to watch the Spanish language soaps on Univision, and see what happens? Or to watch Lawrence Olivier do Hamlet on PBS, and see if he can duplicate the archaic language of the bard as spoken by a high brow actor. He might become the next Ralph Richardson, or Lawrence Olivier.

Also if a kid is forced to DO something ( as opposed to being punished for doing it)- theres a good chance he will get lazy and NOT do it!



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20 Jun 2012, 7:59 pm

McAnulty wrote:
I don't think removing media will help. He obviously has an amazing memory, he could easily remember these scripts for the rest of his life. By removing media you just ensure that you will always hear the same ones instead of new ones.


This is true - for example I -still- remember every line to Ghostbusters even though I have not seen it in years - just because I memorized it all as a child.



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20 Jun 2012, 8:14 pm

One comment - this scripting doesn't have to be non-interactive. I do interactive scripting echolalia with both my father and my brother. When he's scripting, if you know the next line, try saying it to him. You could make a game of alternating lines from a script.



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20 Jun 2012, 8:28 pm

AutismDad wrote:
Hello,

This is my first post on this forum. This seems to be mostly a place for aspies,, so please forgive me if I need to go somewhere else. I'll sure take suggestions about where else to go.
My son is 12 and has moderate to high functioning autism. Of all the issues that his autism has produced- both good and problematic - the most nerve wracking currently is his increasing scripting echolalia.

Since he was four years old, he spends hours (when my wife and I let him go that long) walking in circles and repeating tv, dvds, or computer games (in perfect pronunciation and pitch as he heard it). We know he is doing what is called “scripting” (repeating verbatim the scripts from these media). Some call it “tv talk.”

I have read another post on this forum that asked the same question… what the hell to do? Or how to reduce it? It really plays havoc in public, social interactions – or attempts to have them. It is difficult to even have a conversation with him (actually impossible). It takes a great deal of effort to snap him out of this scripting trance that he gets into. The only response (I’m summarizing here) from someone was that “it would eventually go away and to live with it patiently.”

Well, unfortunately, I’m here to tell you that it DOES NOT go away, at least for him in our instance. It has become increasingly worse in the past 8 years. My wife’ solution now is to ban him (when possible) from all media that he could memorize such as tv, dvd’s or vdeo games. Anything that has a talking audio track is fair game for his “scripting.”

I have read many forums from people asking for help from this same issue. All advice involves some sort of therapy or social stories or some “intervention” to address the issue. In not a single post I can find has anyone suggested cutting off the source of the scripts (all media). So, are my two specific questions:

Has anyone had any success with anything to reduce (even eliminate?) the scripting in such children?

What about taking away the main source of the scripting (tv and videos etc)? Or at least greatly reducing them. We have currently decided to do this and see if there is any improvement. Still, I’m open all and any things to try. Thanks in advance for answering.

Hi Autism dad,

I support the comments here that echolalia/scripting is typically the mode by which HFA kids learn to speak.
Temple Grandin (a prominent HFA) made two pertinent comments based on her experiences. Firstly Echolalia is a way the kids with HFA learn through repetition. The trick is to get the child to repeat the correct use of language in the right context. Secondly scripting is their way of making sense of situational language where HFA kids needs more practice to connenct the dots between appropriate context and language that they already absorb through echolalia. Temple's main point is the parent must not give up and keep repeating to the child the correct usage of the language in the right context. Over time the kid will eventually get it.

One other point I will make from my own experiences is that like Aspergers, kids with HFA cross a wide spectrum. Labeling a kid HFA does not mean they will learn at the same pace. Some HFA kids will not need much practice beyond 4-5 yrs old to start using vocabulary in sentences in the correct way. Others may need longer. I have heard of HFA adults only starting to transition from echolalia to proper speech as late as 18-19. There is one case of a HFA adult who was 26 yrs old who began to transition and moved from a group home to living independently and finishing a university degree.

So bottom line is be patient with your son. If he is capable of at least average intelligence then things will click for him eventually.



Last edited by cyberdad on 20 Jun 2012, 8:30 pm, edited 1 time in total.

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20 Jun 2012, 8:29 pm

You can use memorized lines to communicate too. If you can't figure out your own words, you can use someone else's.

Cutting off media wouldn't work; would be worse than useless, actually. Say you stop the kid from memorizing TV, books, and music--he starts memorizing stuff from magazines, the writing on the cereal box, the way the garbage truck sounds on Thursday mornings, the recorded message on the answering machine.

If you have access to media, you have access to lots of different ways of saying things. You start building your library. You have lots and lots of different things that are said in different situations, and you start making patterns out of them. Eventually you pick up on the patterns, and say things that fit into the situation you're in. You start to get more practice with that, and eventually you're varying the expressions in your library to fit the specific pattern.

Don't think of this as an unwanted behavior you need to squelch. Some therapists think of it this way--usually the ones who think "normal is better, even at the expense of function"--but I don't agree with them. Memorizing and repeating things back can be a favorite game, a way of learning to understand patterns in communication, a way of understanding new things. Some people have mentioned "interactive scripting"--why not join his game? It could be fun for him, especially if you can memorize as well as he can.


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20 Jun 2012, 8:54 pm

AutismDad wrote:
Hello,

This is my first post on this forum. This seems to be mostly a place for aspies,, so please forgive me if I need to go somewhere else. I'll sure take suggestions about where else to go.
My son is 12 and has moderate to high functioning autism. Of all the issues that his autism has produced- both good and problematic - the most nerve wracking currently is his increasing scripting echolalia.

Since he was four years old, he spends hours (when my wife and I let him go that long) walking in circles and repeating tv, dvds, or computer games (in perfect pronunciation and pitch as he heard it). We know he is doing what is called “scripting” (repeating verbatim the scripts from these media). Some call it “tv talk.”

I have read another post on this forum that asked the same question… what the hell to do? Or how to reduce it? It really plays havoc in public, social interactions – or attempts to have them. It is difficult to even have a conversation with him (actually impossible). It takes a great deal of effort to snap him out of this scripting trance that he gets into. The only response (I’m summarizing here) from someone was that “it would eventually go away and to live with it patiently.”

Well, unfortunately, I’m here to tell you that it DOES NOT go away, at least for him in our instance. It has become increasingly worse in the past 8 years. My wife’ solution now is to ban him (when possible) from all media that he could memorize such as tv, dvd’s or vdeo games. Anything that has a talking audio track is fair game for his “scripting.”

I have read many forums from people asking for help from this same issue. All advice involves some sort of therapy or social stories or some “intervention” to address the issue. In not a single post I can find has anyone suggested cutting off the source of the scripts (all media). So, are my two specific questions:

Has anyone had any success with anything to reduce (even eliminate?) the scripting in such children?

What about taking away the main source of the scripting (tv and videos etc)? Or at least greatly reducing them. We have currently decided to do this and see if there is any improvement. Still, I’m open all and any things to try. Thanks in advance for answering.


Let me play devil's advocate. When my nephew was young he did this exact same thing, although I would definitely consider him high functioning. It wasn't just TV shows, it was music too. His parents didn't discourage it, now he is a fairly successful singer as an adult. When I was young I would fixate on various things like baseball cards, comics, legos, construction sets, etc,. When I say fixate I don't mean hobby, I mean autistic fixate. My mother wanted me to be more social with the other kids in the neighborhood so she would throw away the things that I fixated on. For me the result was that I didn't socialize anyway, I still don't, and I am almost 40 and pretty f****d up. You'd think she would have learned after having to patch the walls in multiple places. But, back then Tough Love was new and very popular, I wonder today how many parents f****d their autistic kids up with tough love. My only friend when I was younger fixated on comics, in particular spiderman. He was an AMAZING artist and pretty much sat home all day drawing his own versions of spiderman comics. His mother went to tough love meetings with my mother where they were basically taught that 'addictive' behaviors should be eliminated cold turkey. Well, my friend commited suicide in his early 20s, TY Tough Love. Now Dad I don't know if you are on the spectrum but for many of us the things we fixate on are the only island of sanity we have in a world of chaos. Maybe he fixates on these things rather than being social but maybe he will learn (in his own way) how people interact through his particular fixation. Maybe he will be an actor. Or a singer. Do you guys not see any possible benefits to what he is doing?

I have absolutely no advice for you. I'm just saying, look at it from all angles. Many times parents can do the wrong things for the right reasons.



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20 Jun 2012, 9:02 pm

I agree with the other posters -- especially if he is repeating with perfect "accent" as he heard it, encourage him to harness this ability and try his hand at learning foreign languages.

When someone on the spectrum succeeds in life, it is almost always by taking a special interest and making it financially successful. Knowing languages is always a marketable skill. This talent could lead him to special interests in languages that he has not yet tapped into.


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