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Rhyolite
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10 Jan 2014, 1:24 pm

Hi everyone, I have just registered for this forum and I wanted to relay the basics of my story to you. My parents pretty much ignored my symptoms (I didn't speak until I was 2, I was never socialized and when this was pointed out by their friends they were either shut out or ignored) for many years. I lacked basic social skills and on top of that, I also have dyscalculia. By the time I reached second grade it was very apparent that something was wrong, three separate meetings (at least) were held with my parents in an attempt to have me put on an IEP, get me testing etc. This never happened. However, I was put onto anti-psych meds in second grade (which is why I remember almost nothing from that year of school). This only lasted the year however, I was again put onto meds in 7th grade (for the second half of the year). My Aspergers and dyscalculia never improved and I ended up spending many years struggling in school when it was all unnecessary. All of this comes down to my parents saying "There is nothing wrong with him!" and their denial over the years.

Has anyone else dealt with this?



redrobin62
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10 Jan 2014, 3:37 pm

Don't feel bad. I was never diagnosed as a kid, either. It's not exactly something parents are looking for.



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10 Jan 2014, 7:25 pm

Been there. My mom even recognised symptoms of AS in me at the age of eight or nine but still didn't do anything to get me diagnosed because we couldn't afford it. She didn't tell me she suspected AS until I was seventeen, after I'd spent years wondering what was wrong with me. I wish she could have found some way to get me diagnosed, or at the very least told me of her suspicions, it would have made my understanding of myself a lot clearer a lot sooner.


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Ashariel
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10 Jan 2014, 8:59 pm

Welcome!

My parents meant well, but they were always frustrated with me for not being normal. I was always being scolded to smile, and speak up, and look people in the eye, and not be so annoyingly shy, and then when I'd have a meltdown, they'd just get so frustrated with me... I forgive them because they honestly had no idea they were dealing with an autistic kid, but I hear you – I wish I'd been diagnosed a lot earlier too!



stabilator
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10 Jan 2014, 9:02 pm

I spent 38 years being oblivious to what my condition was. People thought I was weird and freakish and loved picking on me or excluding me from things, and they thought I had a bad attitude, and that maybe I was evil and dangerous.

It would have been great if people understood my issue, and it would have been great if I didn't have to be so confused by it and been through so many years of unnecessary struggle.



CivilSam
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10 Jan 2014, 11:56 pm

Rhyolite wrote:
Hi everyone, I have just registered for this forum and I wanted to relay the basics of my story to you. My parents pretty much ignored my symptoms (I didn't speak until I was 2, I was never socialized and when this was pointed out by their friends they were either shut out or ignored) for many years. I lacked basic social skills and on top of that, I also have dyscalculia. By the time I reached second grade it was very apparent that something was wrong, three separate meetings (at least) were held with my parents in an attempt to have me put on an IEP, get me testing etc. This never happened. However, I was put onto anti-psych meds in second grade (which is why I remember almost nothing from that year of school). This only lasted the year however, I was again put onto meds in 7th grade (for the second half of the year). My Aspergers and dyscalculia never improved and I ended up spending many years struggling in school when it was all unnecessary. All of this comes down to my parents saying "There is nothing wrong with him!" and their denial over the years.

Has anyone else dealt with this?


Hi,
I am 30 and was diagnosed with Autism Spectrum Disorder last year. I feel your feel man. I actually had speech therapy as a child too. Unfortunately for me my issues were misdiagnosed as hearing problems and up until middle school people just thought I had an issue with hearing. After that my hearing problems magically went away and then people just thought I was odd. Stinks that as children there wasn't much awareness for Autism and Aspergers right? My parents were also until denial until they started thinking about how different I really was. My mother said it best when she said, "Well, I did have to remind you to hug family members and even me for that matter."



ASPartOfMe
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11 Jan 2014, 3:44 pm

Welcome to the board Rhyolite. I hear you. I did not know until last year at age 55. But we made it, we are here. Hope you can find help and explanations here.


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“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


ASPartOfMe
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11 Jan 2014, 3:53 pm

Ashariel wrote:
Welcome!

My parents meant well, but they were always frustrated with me for not being normal. I was always being scolded to smile, and speak up, and look people in the eye, and not be so annoyingly shy, and then when I'd have a meltdown, they'd just get so frustrated with me... I forgive them because they honestly had no idea they were dealing with an autistic kid, but I hear you – I wish I'd been diagnosed a lot earlier too!


Pretty much my story. Nobody really knew what they were dealing with. They just knew it was frustrating that their kid's intelligence was pretty much useless in the real world. They are good people so I really felt bad about frustrating them. Truth be told even though I know there was nothing more we could have done I still fell bad about it.


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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman