Solely what are the cons to seeking a psychiatric evaluation
I understand the pros. Really the only pro for me is closure which is a big deal to me. Somedays I think I'm surely messed up and different and other days I think there's no way I'm anything but NT. I want a definitive answer. I've suspected since I was 15 and the uncertainty is frustrating. Parents are no help regarding it by the way. One firmly believes I have AS and the other doesn't like discussing the idea. Neither want a psychiatrist's opinion.
I only want to know all the cons / disadvantages or whatever of seeking an evaluation with AS as the prime suspect.
The clear ones in my view are the following:
Expense
Assuming I did have AS, I'm a little concerned that the knowledge that I have it could change my behavior and demeanor.
Being on the all to prominent and evil government list. As a libertarian, this is no small matter to me.
Assuming I told my family, I'm concerned that they'd... take it with a negative connotation.
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I'll be 18 in less than a year. Once I'm 18 them it's really up to me. I'm weighing the factors now. Thanks in advance for input.
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Do I have HFA? Nope, I've never seen a psychiatrist in my life. I'm just here to talk to you crazies. ; - )
I only want to know all the cons / disadvantages or whatever of seeking an evaluation with AS as the prime suspect.
I'll be 18 in less than a year. Once I'm 18 them it's really up to me. I'm weighing the factors now. Thanks in advance for input.
Some things I see here ...
1. If you want a job that asks you if you have a mental-illness disorder, say as a solider in the military, then a diagnosis may disqualify you.
2. You may get offered say Resperdal to "help your symptoms" and be on psychiatric medicine rather than suffering through you symptoms. If you don't go, then no psychiatric medicine dilemma (to take or not to take).
3. You might get a bloated ego/mentality, lose your humility, and think, "I am an official ASPIE now with all these awesome mental powers! I am so much cooler now". Better to keep your humility no matter what you decide.
4. In the U.S., the health records are stored electronically, and there is a movement to put them into a national system. It is possible that your psychiatric history might forever be stored and accessible in a national system - even if they are uploaded to the system say ten years from now. If you run for political office, or any high visibility job then a history of mental illness could be a negative. You are forever marked.
I only want to know all the cons / disadvantages or whatever of seeking an evaluation with AS as the prime suspect.
I'll be 18 in less than a year. Once I'm 18 them it's really up to me. I'm weighing the factors now. Thanks in advance for input.
Some things I see here ...
1. If you want a job that asks you if you have a mental-illness disorder, say as a solider in the military, then a diagnosis may disqualify you.
//I don't plan on military work and I'd prefer to avoid a draft, but this is of course still a factor.
2. You may get offered say Resperdal to "help your symptoms" and be on psychiatric medicine rather than suffering through you symptoms. If you don't go, then no psychiatric medicine dilemma (to take or not to take).
//Without a doubt I will never take drugs for my head. I've already resolved not to. Still good to present though.
3. You might get a bloated ego/mentality, lose your humility, and think, "I am an official ASPIE now with all these awesome mental powers! I am so much cooler now". Better to keep your humility no matter what you decide.
//I strongly agree on the last sentence. I plan to tell no one except maybe my mother if I was diagnosed with it. Good point all the same.
4. In the U.S., the health records are stored electronically, and there is a movement to put them into a national system. It is possible that your psychiatric history might forever be stored and accessible in a national system - even if they are uploaded to the system say ten years from now. If you run for political office, or any high visibility job then a history of mental illness could be a negative. You are forever marked.
//I read on another post that if you pay in cash, give a fake name, etc then this effect can be completely nullified. You'd still end up with closure though. Not sure how effective this would be though...
Thanks very much for your reply.
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Do I have HFA? Nope, I've never seen a psychiatrist in my life. I'm just here to talk to you crazies. ; - )
I got my diagnosis privately, by a psychiatrist, who is bound by confidentiality. (Double-check that, of course.)
That way, only 2 people know about it, me and the doctor, who is not sharing it.
There's no hurry to decide what to do about it. There are ways to improve your situation without disturbing the world, such as reducing sensory input. I feel so much more relaxed with pale blue light bulbs, for example.
The only thing I would suggest is that if you do get a Dx, it would be best by a psychiatrist, since autism is defined in the DSM which is psychiatrist territory. Also a psychiatrist trumps any other authority re this Dx. Have you noticed how many people think they're entitled to an opinion? It can complicate your life.
I asked for and got a one-page written Dx on letterhead, signed by the psychiatrist. It says he met with me, lists the AS symptoms, and says he diagnoses me with Asperger's. I show that to anybody who wants to argue the point. I also have a few inches high of paper from the doc; I show that to nobody.
Best of luck. Remember you don't have to decide everything all at once.
I totally understand your need to know and get closure. I'm going through the same thing with regards to that. I cant stop thinking about it. Autism has become an obsession of mine for the past couple years. I haven't talked to my dad about it yet but I did tell my mom, It took a bit of explaining, and now she agrees with me that I probably have it.
I have told a few people about my suspicions, and it didn't go over too well with a couple of them. One just blew it off as not important and another kinda blew up when I first told him. He said that its a "fad Dx, and is over-diagnosed to anyone who is a little different. This hurt a lot because at the time this was a huge thing to learn about myself.
Be prepared for people to have negative reactions to it, or worse (in my view), just blowing it off as not even a possibility.
About it possibly changing your behavior; I think that it could, but for the better or worse would be up to you. I've changed since I was first told I might have AS. I started limiting my exposure to things that cause stress and eased off of "suppressing" my quirks. By doing this I started feeling more comfortable with myself and I'm learning a lot about myself. As long as you don't go overboard with it, it can be a benefit to let your "aspieness" show a bit more.
I think it's easy to get the mentality that since you have AS that you're somehow superior to everyone else. As long as you can avoid that, you should be fine.
I'm also worried about the potential legal and employment discrimination, but I think my mental health (ending the obsession of "do I have it or not" and getting help with my issues) is more important.
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Standing on the fringes of life... offers a unique perspective. But there comes a time to see what it looks like from the dance floor.
---- Stephen Chbosky
ASD Diagnosis on 7-17-14
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This is one of the things that concerns me. It kind of makes me want to find out where the electronic records of my diagnosis are stored, and pay someone a good sum of money to delete them from the system, or maybe just destroy the server that they're stored on and whatever backup copies of the records there may be. That way I'd get myself off the 'blacklist', and do a bunch of other people the favor of getting them off the 'blacklist' too; it seems like the moral thing to do. I've always wanted to do something heroic, like saving a lot of innocent, disordered people from the tyranny of the masses. Alas, it is extremely unlikely that I'll ever end up doing this, because I don't have nearly enough motivation too; it's a nice thought though. I could at least try to get my own diagnosis deleted from the system anyway.
If my medical records were to suddenly dissapear, would I get re-diagnosed? No. Without a diagnosis I would still know that I was autistic. The ONLY reason that I got diagnosed was that I hoped any information on me, might help with my sons treatment for neurological pain. Being many decades from being a minor, there is actually no support for adult autistics other than social support groups. In these groups there are no requirements of proof of diagnosis, and those in my GRASP group who have not been diagnosed are every bit as obviously autistic.
Youngest son is extremely upset by his diagnosis. He has problems far beyond those caused by being autistic. He is hoping that eventually he will overcome these other problems[ which have been slowly growing less severe] and hopefully adopt a child some day. He fears that because of his diagnosis that he will have a more difficult, if not impossible opportunity to do so.
Alternative negatives to this are that you will realize you don't have any particularly awesome mental powers but rather some kind of underlying processing disorder that effs up most of your attempts to use the parts of your mind that work well.
You may further realize that this diagnosis represents a reality that you are cut off from the rest of the species, no matter how much you might like to have connections with people... You have been born into a prison that you cannot taste or see or touch. Like a nightmare you are unable to wake from.
Another thing that can happen is that after the diagnosis you start to remember years and years of things that people said that you thought sounded strange at the time but now recognize were thinly concealed comments about you and your strangeness. You may not have been as successful at passing for normal as you thought, and the reevaluation that you do after diagnosis may bring this home in a shocking and demoralizing way.
Many people here seem to report that they wouldn't have done x, y or z with their life if they had been diagnosed as a child or young adult. They persevered through problems they otherwise wouldn't have. This, of course, might be construed as a positive even though it's undoubtably a negative in terms of productivity.
The problem with such negatives though (your behaviour and demeanor changing) is that the very act of suspecting you might have it might be enough to alter these in yourself anyways.
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Not autistic, I think
Prone to depression
Have celiac disease
Poor motivation
@Adamantium That doesn't just happen if you're officially diagnosed. I'm someone who's just doing some reading on Asperger's, and the degree of "Oh, god, this fits far too well," combined with the overwhelming flood of painful memories (times I hurt or ignored people, melted down from sensory overload, had to use favorite--usually soft and fuzzy--toys or clothes to support me through a school day, even into late elementary school, etc.) is crushing. I'd gladly trade in my ability to learn languages and think in system 'nets' for the ability to have a group of friends and know that I had the potential to be a truly empathic supportive spouse and parent some day, as opposed to someone who will always need a degree of caretaking and leniency in expectations.
I can't imagine a diagnosis would make those feelings worse! Though perhaps I'm wrong.
My main concern with getting a diagnosis, myself, is expense, fear that doctors will not recognize me as a potential ASD patient because I'm a woman and I'll be told I'm pretending, and fear of employment discrimination. Though increasingly I think I won't be able to support long-term employment and will need self-employment eventually, so maybe that's not such an issue...
Aspergers doesnt confer any mental advantage at all. All the supposed mental prowess is counterbalanced by the traits that make AS a disorder.
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That way, only 2 people know about it, me and the doctor, who is not sharing it.
There's no hurry to decide what to do about it. There are ways to improve your situation without disturbing the world, such as reducing sensory input. I feel so much more relaxed with pale blue light bulbs, for example.
The only thing I would suggest is that if you do get a Dx, it would be best by a psychiatrist, since autism is defined in the DSM which is psychiatrist territory. Also a psychiatrist trumps any other authority re this Dx. Have you noticed how many people think they're entitled to an opinion? It can complicate your life.
I asked for and got a one-page written Dx on letterhead, signed by the psychiatrist. It says he met with me, lists the AS symptoms, and says he diagnoses me with Asperger's. I show that to anybody who wants to argue the point. I also have a few inches high of paper from the doc; I show that to nobody.
Best of luck. Remember you don't have to decide everything all at once.
My diagnosis was done by two psychologists who focus in adult autism and then I was referred to a psychiatrist for medication (haven't gone yet). Is there any difference having your official written diagnosis done by a psychiatrist or psychologist?
_________________
Good guys don't care what place they finish; only jerks do. - Me
Alternative negatives to this are that you will realize you don't have any particularly awesome mental powers but rather some kind of underlying processing disorder that effs up most of your attempts to use the parts of your mind that work well.
You may further realize that this diagnosis represents a reality that you are cut off from the rest of the species, no matter how much you might like to have connections with people... You have been born into a prison that you cannot taste or see or touch. Like a nightmare you are unable to wake from.
Another thing that can happen is that after the diagnosis you start to remember years and years of things that people said that you thought sounded strange at the time but now recognize were thinly concealed comments about you and your strangeness. You may not have been as successful at passing for normal as you thought, and the reevaluation that you do after diagnosis may bring this home in a shocking and demoralizing way.
Holy cow, it's like your my twin.
_________________
Good guys don't care what place they finish; only jerks do. - Me
All I can say is:
a.) do NOT go to or listen to your GP for a diagnosis ("verbal" doesn't count + they don't know what they're talking about).
b.) do NOT go to a psychologist for your diagnosis (again, "verbal" means nothing). Unless this person is in the Autism field.
ONLY go to a doctor specializing in Autism/Psychiatrist (only if they have Autism experience). Look up all Autism clinics and specialists in your area and make some phone calls (or have someone do it for you) and ask about adult assessment, this is what I did because it is very hard to find someone for adults. I pursued mine so vigorously I found a doctor who my story touched and they ended up doing a $2000 assessment and official diagnosis for free. I had to drive almost 2 hours to them but I did it and visited them for 4 hour testing sessions (about 4 of them) and then received my diagnosis. I believe "If there is a will, there is a way". If you really need to have yourself evaluated for accommodation, medical and/or benefit reasoning then I highly suggest pursuing diagnosis.
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