Got My Diagnosis Report. Some Questions.

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jayjayuk
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23 Apr 2014, 7:04 am

Got my report from the psychiatrist today, the one she sent to the doctors.

At the end she says: "It's my opinion that James does fulfil the criteria for Aspergers Syndrome, according to my clinical assessment, and considering the following diagnostic issues, according to Gillberg's criteria and the ICD 10 classification system". Which is what I knew already.

The concern is, she's written stuff I don't agree with. And this is now on my medical record for life. It's unlikely she will change her opinion.

She also suggest I be taken off Citalopram, and be moved onto Quetiapine. She says ... "James reports recurrent depressive illness, which is not fully responsive to antidepressant medication and it may be worth while augmenting the action of his antidepressant with a small dose of an atypical antipsychotic medication such as Quetiapine which appears to have a favourable response in many with Aspergers Syndrome".

What is this drug? Never heard of it.

She says a lot of stuff that was quite painful to read that I didn't even know. Stuff from my mother and my partner.

I also feel like there was some stuff we didn't address. I am no good with initiating conversation, so unless asked a question I will not answer. But I suspect further meetings in the future will address these issues. At least I hope.



kraftiekortie
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23 Apr 2014, 7:11 am

I'm an American. Will this formal diagnosis make it easier for you to collect benefits?

I can understand your discomfiture on having untoward things in your lifelong file.

I've heard of the drug; I don't know anything about it.

is there a way you could, eventually, get off ALL drugs?



jayjayuk
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23 Apr 2014, 7:18 am

kraftiekortie wrote:
I'm an American. Will this formal diagnosis make it easier for you to collect benefits?

I can understand your discomfiture on having untoward things in your lifelong file.

I've heard of the drug; I don't know anything about it.

is there a way you could, eventually, get off ALL drugs?


I'm not sure. I really don't want to be dependant on benefits :( I have brains and skillset to do something (as discussed in a recent post with you), and would like to. Even she says: "He declined to attend school after the age of 14 and despite his IQ being well above average has been unable to complete a degree".

I would love to get off drugs, but I can't see that happening right at this moment.



kraftiekortie
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23 Apr 2014, 7:20 am

I'm glad you feel that way.

You do have to obtain some sort of qualifications.

When I mentioned "benefits," I meant in the present, since I was under the impression you were having housing issues at present. I wasn't advocating one being dependent on benefits WHATSOEVER.



jayjayuk
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23 Apr 2014, 7:31 am

kraftiekortie wrote:
I'm glad you feel that way.

You do have to obtain some sort of qualifications.


:) Although I do disagree with the need for qualifications. In programming employers will favour a person with hands on experience, with an excellent portfolio over a graduate. Still, even with a portfolio and many many years of programming, actually working in a company is the bigger issue. The reason I left university was because I didn't like lectures, and I felt like there was nothing I was learning that I didn't already know.

In one assignment in the Web Development module the tutor tells us to submit it with all HTML in uppercase. I said I'm not doing that, that's not a requirement in the HTML/XHTML spec. The spec did mention uppercase tags, but he took it out of context. If these graduates went into a job and done that they'd be told not to. I submitted it without uppercase, and got less marks. Took me months to prove my point and they later removed that requirement from the assignment criteria.

It just felt like I was being taught by idiots who read from a book who have no commercial experience. Hence why I left, it was a waste of my time ... and money!



jayjayuk
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23 Apr 2014, 7:32 am

kraftiekortie wrote:
I'm glad you feel that way.

You do have to obtain some sort of qualifications.

When I mentioned "benefits," I meant in the present, since I was under the impression you were having housing issues at present. I wasn't advocating one being dependent on benefits WHATSOEVER.


Ah, ok. I think the housing benefits are normal anyway as I don't work.



kraftiekortie
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23 Apr 2014, 7:39 am

I know what you mean about "being taught by idiots." There are more than enough to go around. I know what you mean about the "cost" aspect.

With benefits, aren't there ways to obtain a qualification for free? Aren't there ways to show 'real-life experience" and "real-life knowledge," thereby precluding one from having to attend University or college in order to pick up the formal qualifications? Maybe there's an exam which could be taken in lieu of logging class time?

Also: I'm an American LOL (though I should have known about Housing Benefit, since I've done research on it LOL)



linatet
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23 Apr 2014, 11:33 am

jayjayuk wrote:
Got my report from the psychiatrist today, the one she sent to the doctors.

At the end she says: "It's my opinion that James does fulfil the criteria for Aspergers Syndrome, according to my clinical assessment, and considering the following diagnostic issues, according to Gillberg's criteria and the ICD 10 classification system". Which is what I knew already.

The concern is, she's written stuff I don't agree with. And this is now on my medical record for life. It's unlikely she will change her opinion.

She says a lot of stuff that was quite painful to read that I didn't even know. Stuff from my mother and my partner.

what stuff you didn't agree with? That is weird because usually when they go through the diagnostic criteria they ask the patient if they agree. I think it is very important to address those issues as it is going to be written In your record
also did they say things about you you didn't like? My sister said I am not caring when people show their problems and that made me sad :( she said as if I was nice when younger but developed into an uncaring person



Minionkitty
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23 Apr 2014, 11:53 am

Another name for Quetiapine is Seroquel. It is, like she said, an atypical antipsychotic medication usually used to treat psychosis and, in some cases, depression. It can be very effective for depression. Don't let the term "antipsychotic" scare you. Although it's not approved for AS. Abilify and Risperdal are the only antipsychotics approved for Autism, as far as I know.


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(Diagnosed using the DSM-IV, not DSM-5)


Willard
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23 Apr 2014, 12:20 pm

linatet wrote:
jayjayuk wrote:
she said as if I was nice when younger but developed into an uncaring person


People don't "develop into" not caring, they are made that way by the treatment they receive at the hands of others.



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23 Apr 2014, 12:28 pm

Willard wrote:
linatet wrote:
jayjayuk wrote:
she said as if I was nice when younger but developed into an uncaring person


People don't "develop into" not caring, they are made that way by the treatment they receive at the hands of others.


Just like how people can turn into a**holes because of treatment in life and the way people are. I felt I have gotten less nicer over the years because I got sick and tired of how people act and treat me. Apologizing for one. I used to always apologize every time I upset someone but I kept getting "No you're not" and someone not accepting it and still continuing doing what they are doing so I am like forget it and don't apologize anymore.


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AmandaMarie
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23 Apr 2014, 12:33 pm

Hey there! I am a med student and I thought I could tell you what I know so far about Quetiapine and treating depression. It sounds like she is suggesting that your depression may be somewhat resistant to treatment. Commonly when depression shows resistance to treatment, they augment that treatment with other medications of several different varieties. If SSRI's, TCA's, and other common antidepressants aren't working or aren't working completely, a doctor might prescribe lithium, another mood stabilizer, or a 2nd generation antipsychotic (which Quetiapine is). Totally normal. When a doctor augments with another medication, he or she uses a low dose of the new medication and can then keep the patient on the other medication but hopefully will get better results. From what I know about Quetiapine, it can be effective for depression and the common side effects I know of aren't terrible (sedation and weight gain).

But the best way to find out about a new medication and your doctor's ideas about treatment would be to ask lots of questions when you see the doctor! Maybe bring a list with you (I have trouble remembering and I need to prepare to ask things so I feel more confident). I could be off on my interpretations and your doctor would certainly know more.



jayjayuk
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23 Apr 2014, 12:37 pm

linatet wrote:
jayjayuk wrote:
Got my report from the psychiatrist today, the one she sent to the doctors.

At the end she says: "It's my opinion that James does fulfil the criteria for Aspergers Syndrome, according to my clinical assessment, and considering the following diagnostic issues, according to Gillberg's criteria and the ICD 10 classification system". Which is what I knew already.

The concern is, she's written stuff I don't agree with. And this is now on my medical record for life. It's unlikely she will change her opinion.

She says a lot of stuff that was quite painful to read that I didn't even know. Stuff from my mother and my partner.

what stuff you didn't agree with? That is weird because usually when they go through the diagnostic criteria they ask the patient if they agree. I think it is very important to address those issues as it is going to be written In your record
also did they say things about you you didn't like? My sister said I am not caring when people show their problems and that made me sad :( she said as if I was nice when younger but developed into an uncaring person


It was stuff she had written when I wasn't present that I didn't agree with. Such as "James stated he drink 3-4 times a week, but said he doesn't have an alcohol problem.". No, I said I do drink, and sometimes on the higher end it's 3-4 times a week, and other times I don't drink for weeks.

My partner and mother said stuff to her that I didn't like - although true. It's in the report. But they were just being honest.

My mother also said that I had gotten worse as I grew up, but this was rejected in my report with the counterargument that my mother wasn't around until my late teens so she couldn't have observed how I was growing up. The report says "mother denies problems with James as he was growing up but later admits to problems when questioned".

If I could upload it I would, but there's some personal stuff in it. It makes an interesting read to say the least.



jayjayuk
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23 Apr 2014, 12:39 pm

AmandaMarie wrote:
Hey there! I am a med student and I thought I could tell you what I know so far about Quetiapine and treating depression. It sounds like she is suggesting that your depression may be somewhat resistant to treatment. Commonly when depression shows resistance to treatment, they augment that treatment with other medications of several different varieties. If SSRI's, TCA's, and other common antidepressants aren't working or aren't working completely, a doctor might prescribe lithium, another mood stabilizer, or a 2nd generation antipsychotic (which Quetiapine is). Totally normal. When a doctor augments with another medication, he or she uses a low dose of the new medication and can then keep the patient on the other medication but hopefully will get better results. From what I know about Quetiapine, it can be effective for depression and the common side effects I know of aren't terrible (sedation and weight gain).

But the best way to find out about a new medication and your doctor's ideas about treatment would be to ask lots of questions when you see the doctor! Maybe bring a list with you (I have trouble remembering and I need to prepare to ask things so I feel more confident). I could be off on my interpretations and your doctor would certainly know more.


Thanks Amanda :D



kraftiekortie
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23 Apr 2014, 12:52 pm

Hi Jay,

Are there ways to take tests to obtain qualifications in lieu of class time?

How's the music coming along?



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23 Apr 2014, 12:56 pm

I just want to second what Amanda said. They aren't trying to take you off of your anti-depressant. They want you to take Seroquel in addition to the medicine you already take. If you have any questions about specific prescription drugs, go to drugs.com and type in the name of the drug. It will give you the information you would normally get when you get the prescription filled at the pharmacy, including side effect and recommended uses.