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League_Girl
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18 May 2014, 9:34 pm

I was diagnosed at age 12 but I have vague memories about it. I don't really remember what my psychiatrist looked like but I do remember his name. I remember the room and building and where it was at and the waiting room. I do remember him and Mom talking and me sitting at the back of the room and it had a window in there and it looked like a mirror but if I looked closely I could see through it. I remember him looking at the questionnaire tests I did and my parents did and my teacher. But I do not know much about it like what tests I took, what the psychiatrist said, what was said about me or if my parents paid for it out of pocket or not or if their insurance did. Is it common for people to not remember much about their diagnoses if they were diagnosed in childhood? I sometimes feel left out how people can remember the day they got diagnosed and what tests they had to do and all and I don't even remember any of it. I have to remember all these aspies were adults when diagnosed and I was a child and I was going through a rough year then so it has fogged my brain because I was depressed then and wanted to die and I blocked it out. I also know nothing about my results. But I did hate going to the place because it reminded me how sick I was (mentally) and I felt abnormal and broken. I can remember my mom saying me going there is helping me get better and even the doctor is helping me too.


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DrHouseHasAspergers
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18 May 2014, 10:16 pm

I was diagnosed with Asperger's when I was 13/14 years old. I don't remember the timing exactly but I figure the evaluations started when I was 13 and I just didn't get diagnosed until after my 14th birthday. For the evaluations themselves, first I know I saw one therapist for depression at one mental health place and she referred me to a therapist at a behavioral health place.
The behavior therapist, who is also a doctor (the Ph.D kind) gave me an IQ test and an achievement test. For the IQ test I had to remember a series of numbers and a series of words too. There were some spatial puzzles and other things that I don't remember. I can't remember what the achievement test consisted of at all but my therapist went over the results with me just a couple years ago so I know my results for it and the IQ test as well. My therapist also had interviews with my parents, teachers, and me about my behavior.
After I got diagnosed, I participated in weekly or monthly (depending on if I was in "crisis mode" requiring weekly sessions) cognitive behavioral therapy with the same therapist to improve my social skills and communication until I was 18.


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http://www.childbrain.com/pddassess.html

-Socially awkward and special interests don't mean autism.-


mr_bigmouth_502
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19 May 2014, 12:47 am

I was diagnosed back when I was 6, and to this day I don't actually know if I was diagnosed Aspergers or HFA, as I remember both terms being thrown around. I may have been diagnosed HFA due to my speech delay, though by the time they finally got around to diagnosing me, I was already fully verbal, had an advanced vocabulary for someone my age, AND I even knew how to read, when most kids my age were just struggling to learn how.

Later on school officials described it as Aspergers, though from 6-8 I remember being described as "autistic" as well.

I remember being diagnosed with an autism spectrum disorder, I'm just not sure WHAT I was officially diagnosed with. It doesn't make as much of a difference now since the DSM V merged Aspergers Syndrome and High Functioning Autism, but I still want to know.

To anyone here in Alberta, do you know how I may be able to get a hold of my old diagnosis papers, or at least my medical records? I really really really want to see my history.



ASPartOfMe
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19 May 2014, 7:09 pm

What I know about was I was diagnosed with moderately severe Aspergers and Autism Spectrum disorder last year.

My elementary school threw me out after 2nd grade and I did go to play therapy which I vaguely remember. I don't remember a diagnosis and neither does my mom. This was middle to late 1960's. I have been wondering lately if I was diagnosed with Autism but my parents were never told because there was such a stigma attached to autism due to the refrigerator mother theory which was the conventional wisdom at that time. I wonder if the psych were confused because because while I may have presented as autistic my mother was and is not emotionally frigid. Most likely I was misdiagnosed and everybody has just forgotten what the diagnosis was. Either way I will never know the psych has probably been dead a long time and my records probably thrown out decades ago.


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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Jacoby
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19 May 2014, 9:00 pm

I wasn't aware of anything about it actually, I learned about AS after I was diagnosed when I was 14 or 15. I don't remember what tests were for it or who did it.



nyxjord
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26 Jun 2014, 11:31 am

"To anyone here in Alberta, do you know how I may be able to get a hold of my old diagnosis papers, or at least my medical records? I really really really want to see my history."

Is the place where you were officially diagnosed still open? You may be able to call/ email them to ask if they keep old files, and if they have yours in particular.



kraftiekortie
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26 Jun 2014, 5:48 pm

I don't know my exact diagnosis.

I was probably diagnosed with autism by one doctor, with mental retardation by another, with brain injury by another--all in the early-mid 1960s. I was taken from doctor to doctor by my mother; I remember being dragged up and down subway steps all the time. Because I had some electroencephalograms, I thought I had "brain surgery," and that my autism/retardation was "cured" when I was around 5, since I began to talk finally, and began to act somewhat "normally"--though, in retrospect, like a classic Aspergian person.

I believe it was eventually found that I was "brain-injured," or that I had "minimal brain dysfunction," when I was about 5 years old, in 1966. As a result, I was enrolled in a "brain-injured" nursery school.

When I was 7, I went to a psychologist for an evaluation. His diagnosis: "A kid who doesn't like to lose." He didn't think there was anything wrong with me.

When I was 15, in 1976, I was diagnosed by a psychologist with "Schizoid Personality Disorder." The shrink stated, though, that he only put that diagnosis so he would be reimbursed by my parent's insurance company.

If you've read "Dibs In Search of Self," I was somewhat like that kid, though not as intelligent, nor as disturbed, as he was.

I don't believe it's worth the cost to obtain a diagnosis, since I would derive no benefit from it.



NGC6205
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26 Jun 2014, 6:43 pm

I don't remember much as I was diagnosed when I was 8. I've learned a lot just a month ago when I looked through a packet of papers they gave at my HS graduation that had among standardized test scores and grade school report cards my diagnosis report. All I do remember is my mom taking me to some sort of place to be tested, but not being told for what, and one part of the evaluation where they watched me play with I assume one of the experts behind a "one-way" mirror. (I didn't find out about my diagnosis until I was around 12 or so).



Kiprobalhato
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26 Jun 2014, 10:40 pm

i was 4 when i was diagnosed in 2001, so obviously i don't remember.
i looked through my old files (i believe that's what they're called), and i found out some interesting stuff.
i was apparently well dressed and groomed, but i appeared to be bitten.
also, i found out they my parents tried to get me help in another place, and they were turned down, and for this place, they were asked to exaggerate my symptoms to get me treatment. and, since my parents dominant language is spanish, and the assessors only spoke english, they might have mis-recorded some information, or have gotten some vital things wrong.
:hmph:
what to think of this??


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