Online Research Participation Opportunity

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Hello,

My name is Scott Jackson. I am a PhD Student at the University of St Andrews (Scotland) in the School of Psychology and Neuroscience, and a younger sibling to a brother with Asperger's. As part of my PhD, I am currently running an online, questionnaire-based study aimed to identify specific social and emotional factors that effect the vulnerability of adults with Asperger's or other High-Functioning Autism Spectrum Conditions to episodes of depression and anxiety.

Requirements for participation are as follows:
1. UK or USA resident
2. Age 18 - 38
3. Diagnosed with an Autism Spectrum Condition (including Asperger's Syndrome and PDD-NOS)

If you would like more details about the study, or would like to express interest in participating please follow the appropriate link at the end of this post.

Thank you for taking the time to read through this message. If you have any questions, please feel free to email me at sljj@st-andrews.ac.uk

I would, but the university you represent does not fit in with my politics views.

Sorry to be a "pain" but I would like to ask some questions,

1. Have you obtained permission from Alex before posting here asking for research subjects ?

2. Who is your supervisor, and while I assume that you have been a good, well behaved and moral lad who has obtained approval from the ethics board. Please could you tell us if you have or not, plus also post a reference number for the approval by the ethics board or some other means of allowing someone to check with ease if you have gone through the correct process or not.

I hold the view that by showing a good example the responsible researchers will shame the bad ones into cleaning up their act. Also it will help raise the standard in general.

3. What does Piers think is wrong with the politics of St-Andrews University, I thought it was a good quaility Scotish university which was a good place.

Woodpecker,

Don't worry, you are not being a pain and those are all valid questions that I will do my best to answer.

1. I have not been in contact with Alex, nor was I aware that it was something that I would need to do. I will send him an email after I finish this post.

2. Supervisor and Ethics information is provided to all participants before they begin the study, but I am happy to provide both here as well. My supervisor is Dr. Barbara Dritschel, and this research project has been granted Ethical Approval through the the University Teaching and Research Ethics Committee (Ref. Number PS10557).

3. I am not sure what views Piers was referring to. Being a public institution, as far as I am aware the University of St Andrews does not hold any specific political views.

I hope you feel that these answered your questions adequately. In you have any further questions, or would like any more clarification on any of these subjects do not hesitate to ask.

Hi Scott,

I also am a PhD student conducting online research on adults on the spectrum (specifically, human sexuality and well-being among young women). I also have a family member on the spectrum. Just curious -- what is your target sample size, and what other methods are you using to reach out to potential participants? Best wishes for your study.

Hillary

scott,
is it only HFAs required?
am LFA [severely classic autistic with mild intelectual disability] but do like to help out with autism study/research.

Hillary - Our target sample size for this study is 60. I'd be fascinated to learn more about your study, and would be happy to share more details about mine if you think it could be beneficial to you. I will send you a pm.

Kingdom - Click on the link and I will send you more details on what participation in the study entails. As long as you feel comfortable taking part, then I would be grateful for your input.

...why?

ok,great-am in!

OK thanks for your reply, I just have encountered some very bad people who like to pose as men / women of science and then write harmful muck / nonsense about AS. Maybe a study should be made on those who study AS, I know that the Sociology of Sociology has been a real field for some sociologists, maybe we should have the anthropology of autism research as a new research topic. It could result in some interesting things.

Would have participated but I'm Australian. All the best with your study.

You are welcome, and I am sorry to hear about your previous experiences. It is interesting that you should mention the idea of studying those who study AS, as just this morning I received an email from a colleague at the University of Cambridge who is currently conducting a study on the interaction between autism researchers and volunteers who take part in research studies. I just completed it myself - it was very brief (maybe 10 minutes to complete) but covered a good range of topics and provided ample opportunities to expand upon answers so that you could make sure the point you wanted to make was getting across. As it is not my study, I do not feel comfortable posting a link to it here at the moment - but I will email her now, and if she provides permission, I will attach the link to this thread later.

To clarify, the reason recruitment has been limited to US and UK residents, is that I have only received permission from my department to offer compensation in either US Dollar or GB Pound denominations (as a reward for the time participants take to be a part of this study they are entered into a raffle with a chance to receive one of 7 Amazon gift card prizes).

If someone, like yourself, is from a country other than the US/UK and is fine with potentially receiving a gift card in one of these denominations, or would like to participate without being entered into the raffle, I would be very thankful for your input. Just follow the link below, which will provide you with more details about the study, and give you the option to choose your compensation preference:

Non-US/UK Resident Study Introduction

If anyone is interested, below is a quick blurb about her study, and a link to the survey if you would like contribute your own opinions and/or experiences:

I am looking for volunteers to complete a short online questionnaire (~10 minutes) about the communication between individuals with an autism spectrum disorder and professionals who investigate autism and how this affects the research that is conducted.
Previous surveys have shown that many people on the autism spectrum are unhappy with the way autism is researched or even feel left out and ignored by professionals. I would like to know more about the underlying dynamics that cause this apparent ?rift? between researchers and individuals with autism and if it is as deep as has been suggested. To this end I am planning to ask professionals who work in the field of autism research as well as individuals with a diagnosis on the autism spectrum to fill in this short questionnaire which can be found by clicking the following link:

http://surveymonkey.com/s/neurodiversity_research

Many thanks for your time and best wishes, Johanna

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Johanna J. S. Finnemann, jjf33@cam.ac.uk
Behavioural and Clinical Neuroscience Institute Department of Psychiatry University of Cambridge
CB2 3EB Cambridge