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sharkattack
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17 Aug 2014, 5:03 pm

Let me just say many people have things much harder than me and while I feel my life to be aimless it is comfortable in many ways.

Anyway here goes I am living with my parents who are in their 70s.

I have drifted away from my brother and sister.
I had an uncle and an aunt neither had kids and they were like a 2nd mother and father to me.
My aunt is dead 21 years and my uncle is dead 4 and a half years.

I am a 40 year old virgin and I have no social life.

On the up side I have a job that I am happy enough in.

I was bullied for years but this is over.

I just feel empty.

Now I know the only person who can help me is me what I am posting this thread for is to see if other people on the spectrum can relate to where I am in life right now?



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17 Aug 2014, 6:14 pm

The hardest part for me was that in my cultural background, it is expected that you become a doctor, nurse, lawyer or investment banker and look good while doing it. Even if you grew up poor like I did. A lot of people didn't meet the criteria, but for me I blame my condition rather than the economy. The super hard thing for me is being so afraid to pass down my autism and schizoaffective that I'm not raising the passel of perfect kids. And if I do have kids, the fear of them being taken away because I'm too severe.

The super hard thing is seeing NT people I grew up with join major firms and drive those Mercedes and have those white picket fence lifestyles, and look at them through Instagram. The perfect weddings. The jobs they could get, that you lost because you disclosed your autism. The pain of not being able to say where you went to school, to friends because you were in full seclusion sped. Not even having a fighting chance at nice colleges because you were full seclusion special ed. The size 2 dresses you can't wear because your medication causes weight gain, or the loss of spoons from fighting your way down to a size 00. Fear to even get a noselift or some Botox because of sensory issues.

The sensory issues that make you rip your bangs right off your head and cut off your acrylic nails with scissors. Ripping weave right out of your head. Not being able to be where you want to be, where you visualized your life to be. Because of something you can't even explain to people. When you're physically disabled you're seen as an inspiration, even bipolar is more understood, but when you have autism and schizoaffective and are a wall head banger it's seen as dangerous.


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starkid
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17 Aug 2014, 8:42 pm

EsotericResearch wrote:
or the loss of spoons from fighting your way down to a size 00. Fear to even get a noselift or some Botox because of sensory issues.


Wait...what? Those aren't things to aspire to do. Unless you are naturally a size 00. But plastic surgery? WTF?



NiceCupOfTea
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17 Aug 2014, 8:46 pm

m8, I could have written large parts of your post.

It's depressing. I have an okay brain, but with the way it's been wired, it's all been for nought. Never had a relationship, never held down a long-term job, and so on.

Somehow I have a feeling that this thread isn't going to get too many replies. It's not quirky enough. It's a bit too real about life as an autistic person.



Suncatcher
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17 Aug 2014, 9:08 pm

EsotericResearch wrote:
The hardest part for me was that in my cultural background, it is expected that you become a doctor, nurse, lawyer or investment banker and look good while doing it. Even if you grew up poor like I did. A lot of people didn't meet the criteria, but for me I blame my condition rather than the economy. The super hard thing for me is being so afraid to pass down my autism and schizoaffective that I'm not raising the passel of perfect kids. And if I do have kids, the fear of them being taken away because I'm too severe.

The super hard thing is seeing NT people I grew up with join major firms and drive those Mercedes and have those white picket fence lifestyles, and look at them through Instagram. The perfect weddings. The jobs they could get, that you lost because you disclosed your autism. The pain of not being able to say where you went to school, to friends because you were in full seclusion sped. Not even having a fighting chance at nice colleges because you were full seclusion special ed. The size 2 dresses you can't wear because your medication causes weight gain, or the loss of spoons from fighting your way down to a size 00. Fear to even get a noselift or some Botox because of sensory issues.

The sensory issues that make you rip your bangs right off your head and cut off your acrylic nails with scissors. Ripping weave right out of your head. Not being able to be where you want to be, where you visualized your life to be. Because of something you can't even explain to people. When you're physically disabled you're seen as an inspiration, even bipolar is more understood, but when you have autism and schizoaffective and are a wall head banger it's seen as dangerous.


I agree with the last part. People will think one of the following when you say you have AS :

-You are mentally ret*d & a danger to society
-You are a pervert



NiceCupOfTea
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17 Aug 2014, 9:22 pm

I agree with the last part. People will think one of the following when you say you have AS :

-You are mentally ret*d & a danger to society
-You are a pervert


No they don't.

People don't really care about your diagnosis, least of all if it's invisible and they can't detect any sign of disability or illness from the outside.

I think I may already be getting too crabby for this forum and I'm not even 10 posts in yet.



em_tsuj
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17 Aug 2014, 9:43 pm

I relate sometimes to the feelings you have, especially the emptiness. I don't have any close relationships, anyone I can call a buddy. I don't date. I spend all of my free time alone. The thing that scares me is think that it will always be this way. I guess it doesn't have to be. I can make friends if I put forth a little effort. But honestly, I am not willing to put forth that much effort right now.



jk1
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17 Aug 2014, 9:56 pm

I can relate to the OP. I am an underachiever and feel empty. I did well academically but that was as far as I could go. I have an ability to magically put people off almost instantly. When you are hated by most people around you wherever you go, you won't get anywhere as it's so scary to even try. I have developed "peoplophobia" (fear of people, not hate) as a result of all the traumatic experiences throughout life. I feel like a big failure.

Luckily, I have no desperate desire to find a partner or have kids. I can honestly say I don't feel envious of people who have a partner and/or kids. I did try in the past and I know I'm better off on my own. The only annoying thing about that is that people project their dirty mentality to me and sometimes interpret my innocent well-intended behavior as unwanted sexual advances. A quirky single man is subject to pretty gross prejudice.

As I live in a foreign country, I don't live with my parents or anyone. If I lived in my country, I'd happily live with my parents. I wonder why some people think as if it were something to be ashamed of to live with their parents. I think it's really good. When my parents and sisters are gone (unless I end up going before them), I will be completely alone.



EsotericResearch
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17 Aug 2014, 10:25 pm

Quote:
People don't really care about your diagnosis, least of all if it's invisible and they can't detect any sign of disability or illness from the outside.


Not everyone is NT passing. You can tell I'm very not NT when you meet me. It's to the point where people are actually shocked to find out that I'm employed, or have a degree. (I've overheard them saying to each other - SHE has a JOB?!) Also some of us are really into dieting / fitness / beauty and see our idols getting nose jobs, boob jobs, wearing sample sizes (Size 0), and then our sensory crap gets into the way of doing this. Some of us are also in industries where we have to look good.



Last edited by EsotericResearch on 17 Aug 2014, 10:55 pm, edited 2 times in total.

TerryD
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17 Aug 2014, 10:37 pm

sharkattack wrote:
Let me just say many people have things much harder than me and while I feel my life to be aimless it is comfortable in many ways.

Anyway here goes I am living with my parents who are in their 70s.

I have drifted away from my brother and sister.
I had an uncle and an aunt neither had kids and they were like a 2nd mother and father to me.
My aunt is dead 21 years and my uncle is dead 4 and a half years.

I am a 40 year old virgin and I have no social life.

On the up side I have a job that I am happy enough in.

I was bullied for years but this is over.

I just feel empty.

Now I know the only person who can help me is me what I am posting this thread for is to see if other people on the spectrum can relate to where I am in life right now?


I can relate to your situation very well. I am 57 years old now, but I lived with my parents until my mother died in 2005 and my father died in 2010. I was never in a relationship and still have no social life. I am satisfied with the job I have now and will stay in this position until I retire. I was bullied throughout my years in school, and it's hard for me to forgive or forget those bullies. I just live day to day, trying to be content with my solitude. As you said, there are many who have it much harder , but I hope it gets a lot better for you.



Sweetleaf
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17 Aug 2014, 11:42 pm

Well I feel my life is aimless, that is for sure....at least I currently have a bedroom that contains a comfortable mattress to sleep on.


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17 Aug 2014, 11:56 pm

em_tsuj wrote:
I relate sometimes to the feelings you have, especially the emptiness.


I can relate as well. As I have had these feelings of emptiness ever since I was young. Despite the fact that I am married with children, the feeling of emptiness permeates my thoughts almost every day.



sharkattack
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18 Aug 2014, 12:00 am

Rocket123 wrote:
em_tsuj wrote:
I relate sometimes to the feelings you have, especially the emptiness.


I can relate as well. As I have had these feelings of emptiness ever since I was young. Despite the fact that I am married with children, the feeling of emptiness permeates my thoughts almost every day.


Married with children does this bring a new level of pressure?



NiceCupOfTea
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18 Aug 2014, 5:23 pm

EsotericResearch wrote:
Quote:
People don't really care about your diagnosis, least of all if it's invisible and they can't detect any sign of disability or illness from the outside.


Not everyone is NT passing. You can tell I'm very not NT when you meet me. It's to the point where people are actually shocked to find out that I'm employed, or have a degree. (I've overheard them saying to each other - SHE has a JOB?!) Also some of us are really into dieting / fitness / beauty and see our idols getting nose jobs, boob jobs, wearing sample sizes (Size 0), and then our sensory crap gets into the way of doing this. Some of us are also in industries where we have to look good.


Being weird doesn't mean people will recognise and respect your autism diagnosis. There are many non-autistic reasons for behaving oddly: mental or physical illness; being under the influence of drugs or alchohol; madness (or eccentricity if you're rich). Most people will assume that you're just weird rather than you have a neurodiverse condition.

Physical illnesses can be just as invisible. I was ill with Crohn's for years. Nobody knew how ill I really was. Likewise, nobody apart from my mum knows how socially impaired I really am. And it's not because I'm any good at putting on a social face (quite the opposite): it's because most people don't think that deeply about other people. An aunt of mine has seen/heard the worst of me that there is to be seen and heard by now, and she would still say something like "it's just the way you are, NCOT" rather than "you are having a meltdown, NCOT, due to sensory overload caused by your lifelong autism spectrum disorder". In fact she literally would not understand such a sentence. It would be gibberish to her.

As for your being unable to have plastic surgery, I'm the last person in the world to express sympathy over being unable to have a facelift, sorry. Nobody has ever looked better after a facelift or nosejob. Nobody.



rugulach
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18 Aug 2014, 7:59 pm

sharkattack wrote:
Let me just say many people have things much harder than me and while I feel my life to be aimless it is comfortable in many ways.

Anyway here goes I am living with my parents who are in their 70s.

I have drifted away from my brother and sister.
I had an uncle and an aunt neither had kids and they were like a 2nd mother and father to me.
My aunt is dead 21 years and my uncle is dead 4 and a half years.

I am a 40 year old virgin and I have no social life.

On the up side I have a job that I am happy enough in.

I was bullied for years but this is over.

I just feel empty.

Now I know the only person who can help me is me what I am posting this thread for is to see if other people on the spectrum can relate to where I am in life right now?


Your post resonates with me. My life is very similar to yours except I don't have a job right now. Marriage and kids look increasingly impossible. I kinda have made my peace with that but my health seems to be deteriorating rapidly lately.



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19 Aug 2014, 3:06 pm

sharkattack wrote:
Married with children does this bring a new level of pressure?


It certainly did bring pressure. As my wife informed me after having our first child that she intended to become a stay-at-home mom. As a result, I was subsequently responsible for financially supporting the family. This was not a foreign concept to me. As this was the same arrangements my parents had.

Because of this, I spent 60-70 hours a week at work while my wife pretty much raised the children. It wasn?t unusual for me to leave the house at 7am and return home at 9pm (in time to read them my favorite Dr. Seuss books). My wife used to refer to me as an absentee father.

This arrangement was quite stressful for me. As I struggled in the workplace, trying to find a job that I didn?t absolutely hate. During a 15 year stretch, I had 12 different jobs.

Fortunately, things are more stable these days. As my kids are older and my wife is no longer a stay-at-home mom (and has a stabile career). My employment situation is still tenuous (while I am doing a part-time contract job, it can end at any time and my future prospects look fairly dim, particularly at my age in my industry, with my skill sets).

As I write this, I think my general emptiness has to do with the following:
- I don?t tend to ?live in the present?. I am always thinking about what?s next.
- I don?t have any goals.