SteelMaiden wrote:
This post relates to hospitals under the NHS in the UK.
I had an episode that presented like a stroke. It turned out to be a very severe basilar migraine attack.
My support worker came to my house asap and took me to A&E by taxi.
I had an unpleasant experience with some of the staff. One refused to acknowledge my support worker's presence. Another said "well how am I supposed to do a blood test if I can't touch you" (when all my support worker was trying to say is keep to the blood test and don't try to hold my hand). Another didn't know what autism really was.
I have a hospital passport which I carry with me that states my autism and how I can be best "dealt with" when in distress, and what I can cope with and what I can't.
Does anyone else have experiences with such things? How do I get staff to actually acknowledge my autism if they won't look at the form? Is there a way to get a marker on my hospital records?
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you can't because they are incurably stupid....trust me i know whereof i speak
even if you do they won't read it
it IS hopeless i assure you