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invisibleboy
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27 Jun 2015, 5:23 pm

Does anyone else feel like an autistic in hiding? I was diagnosed by a specialist and friends who are familiar with ASD can see it, but doctors who see me regularly say things like my hobbies are not the usual for typical people with ASD. (Actually, they just say someone with autism would never be interested in that. Let's just say my "interest" usually involves a lot of outgoing people. And we all know people with ASD can't be outgoing, right? :roll: Oh and they can't use sarcasm either so there's another strike.)

I'm a friendly person. I socialize, and even like it sometimes (I'd say about 40% of the time, but I have a lot of trouble initiating). But I also meet enough criteria for a diagnosis, and have had one bestowed upon me by a doctor with a lot of experience with autistic adults. But nowadays I don't even mention it to new doctors or even new friends because it's not worth putting up with "you don't look at all autistic". Sometimes I feel like maybe I'm not, until I feel that invisible box between me and others and then I feel like maybe I am.

Therefore, I feel like an autistic in hiding. I guess on the internet, it's different.


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Waterfalls
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27 Jun 2015, 5:34 pm

Yes, that's a problem with the way the ASD label is applied and used. If you work hard and can appear normal, people want to relabel you as normal; then, they don't know how to see you when you do something they didn't expect.

I hope you enjoy it here at Wrong Planet! :)



DevilKisses
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27 Jun 2015, 5:44 pm

I feel like an NT in hiding. I was diagnosed with autism when I was young, but I don't think my autistic traits are supposed to be there. They're usually caused by being sick or having fatigue issues. Since I'm sick right now I'm noticing some sensory issues.


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kamiyu910
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27 Jun 2015, 6:04 pm

Because I'm quiet and "shy" people don't think "autistic." They know I'm weird and different yet I still get people saying they don't think I'm autistic because... I don't know. One psychologist said because I could recognize the expression on a cartoon frog... even though she agreed I fit the DSM5.

So I tend not to mention it. Too many people think they either know better or refuse to think of autism as anything other than non-verbal rocking in a corner.


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invisibleboy
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27 Jun 2015, 6:05 pm

Waterfalls wrote:
If you work hard and can appear normal, people want to relabel you as normal; then, they don't know how to see you when you do something they didn't expect.


That's what it feels like.

Waterfalls wrote:
I hope you enjoy it here at Wrong Planet! :)


Thanks. :)


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everybody's playing the game
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invisibleboy
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27 Jun 2015, 6:07 pm

kamiyu910 wrote:
Because I'm quiet and "shy" people don't think "autistic." They know I'm weird and different yet I still get people saying they don't think I'm autistic because... I don't know. One psychologist said because I could recognize the expression on a cartoon frog... even though she agreed I fit the DSM5.

So I tend not to mention it. Too many people think they either know better or refuse to think of autism as anything other than non-verbal rocking in a corner.


I tend to come off as quiet and shy, but I think I wouldn't be as shy if I was more confident socially. I guess I think I'm weird because I prefer solitary activities, but I get lonely.


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everybody's playing the game
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kamiyu910
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27 Jun 2015, 6:11 pm

[ quote="invisibleboy"]

kamiyu910 wrote:
Because I'm quiet and "shy" people don't think "autistic." They know I'm weird and different yet I still get people saying they don't think I'm autistic because... I don't know. One psychologist said because I could recognize the expression on a cartoon frog... even though she agreed I fit the DSM5.

So I tend not to mention it. Too many people think they either know better or refuse to think of autism as anything other than non-verbal rocking in a corner.


I tend to come off as quiet and shy, but I think I wouldn't be as shy if I was more confident socially. I guess I think I'm weird because I prefer solitary activities, but I get lonely.[/quote]

I like solitary activities too, but with others around. Like my husband and I hang out together by playing our own separate games or painting. Doing things in the same room without talking.


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invisibleboy
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27 Jun 2015, 6:23 pm

kamiyu910 wrote:

I like solitary activities too, but with others around. Like my husband and I hang out together by playing our own separate games or painting. Doing things in the same room without talking.


That actually sounds like my ideal situation.


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everybody's playing the game
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nick007
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27 Jun 2015, 9:15 pm

I have lots of issues in addition to Aspergers & even the so-called experts I've dealt with are misinformed about Aspergers because they said I communicated too well verbally & seemed too intelligent to have anything on the autism spectrum & one also said I have Aspergers but it's not due to autism. The individuals where I'm from don't know what Aspergers is or think it's like a less sever form of mental retardation. I never mention autism or Aspergers offline except with my girlfriend who's also on the spectrum.


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ASPartOfMe
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28 Jun 2015, 12:30 am

The specialist is right and the non specialists are wrong. It is all about the intensity and repetitiveness of the interest and has nothing to do with what the interest is.


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egf25
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28 Jun 2015, 5:38 am

I can act like a normal social person when I have to, but
I'm always aware of that "invisible box" you mention.

I've read other Autistic people describe it as a "glass
wall" between themselves and humanity.

I find that glass wall never really disappears....



EzraS
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28 Jun 2015, 6:45 am

Having been in school with scores of asd kids, I can tell you many of them have been on the social side. And I was voted the most sarcastic member of 2014 on one of my (NT) forums. I have a psychical disability called dyspraxia. Some people who have a mild form of it have minor coordination issues that could easily go unnoticed. Others have it so severe they need most stuff done for them and have to be in a wheelchair some of the time. But they all have it.



Dariusz_V
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28 Jun 2015, 8:28 am

'Autistic in hiding' is a good description of how I feel too.
I have been diagnosed with ASD, but with some effort, I have learnt to mimic the behaviour and interests of NTs, and I am generally quite social.
These characteristics have become embedded in my personality, and I now have trouble proving my Aspergianism to people who haven't known me long and aren't experts (we are not big on Aspie certificates in South Africa).
I now only attempt to convince fellow Aspergians of my diagnosis.



Rocket123
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28 Jun 2015, 11:01 am

egf25 wrote:
I've read other Autistic people describe it as a "glass wall" between themselves and humanity.

I find that glass wall never really disappears....

I remember, when I was young, watching "The Boy in the Plastic Bubble". At the time, I felt like I was an outsider looking in (or, I suppose, an insider looking out). Generally, I would rather observe human beings than interact with them.



invisibleboy
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30 Jun 2015, 4:27 pm

It's good to know some people feel similar. Makes me question the diagnosis less.


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synesthete, diagnosed with ASD April 4, 2012.

everybody's playing the game
but nobody's rules are the same
nobody's on nobody's side