ASD assessment
I asked my GP to refer me for an ASD assessment a few weeks ago and yesterday I had an appointment with a new psychiatrist. He obviously got her referral as he knew I had asked for an assessment. I took in the nine pages I printed out of everything I think indicates Asperger's, in case he had got her letter.
In a nutshell, he asked me many, many questions, skimmed over what I'd printed (said he'd read it properly after as appointment was limited time), and also listened to my husband's thoughts. He seemed to listen and understand, but I'm a little confused. At the end of the appointment, he said I very clearly had high functioning Asperger's, but that he didn't want to diagnose me on paper. He said he would rather verbally diagnose me, so it would later be up to me to disclose that information to people (say for instance if I was going for a job, or wanted to emigrate etc.) because it could make things difficult.
I understand this, and at the moment I don't think it bothers me if it's not on paper. But on the other hand, if it's not on my medical record then what if people didn't believe me? As in, professionals like GPs etc. I'm not sure how important that is.
My aim was to have a definitive answer either way. The thing is, I don't know if this is how it's done? I thought, as I have read, that it can be a long process rather than one single appointment? Or is it sometimes carried out like this?
I'm in the UK.
I understand his opinion about letting you disclose if and when you might need to do so. But, future educational, governmental or corporate supports might be lost if you can't provide a written diagnosis with corresponding ICD-diagnostic codes. So, I would ask him to provide you a written diagnosis on his professional letterhead, signed and dated by him, for your personal use "just in case" you eventually need to disclose for supports. He might see the wisdom in doing so while understanding that he isn't disclosing to others (government) in your behalf.
_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
For most people, yes. For government purposes, it would help to have it signed or at least on your diagnostician's office letterhead (which I presume he will use per your description of a "written report"). Either would serve your purposes well.
_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
Do they not have any concept of medical privacy in the U.K.? Why should your diagnosis matter for the average job or for when you go abroad? What, if you have a certain diagnosis, the U.K. bans you from leaving the country?
_________________
"You have a responsibility to consider all sides of a problem and a responsibility to make a judgment and a responsibility to care for all involved." --Ian Danskin
By the way, welcome to WrongPlanet.net, MoonAndStars!
_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)
I apologise if anything I've written has offended you.
I'm not really sure, I suppose people could discriminate if they knew something about you and lacked understanding, I know they're not supposed to but it could happen? I wouldn't know about leaving the country, I have never thought about that. But I think what he was getting at was that maybe some places are funny about things? I don't know.
I know that it would prove extremely useful for when I have to have a PIP assessment. I am currently in receipt of DLA which is due to be changed to PIP this summer I believe. Pretty sure I have to have an assessment for that, despite not having to if it stayed as DLA. I need proof for that, it would make it so much easier to explain things and I find those forms really difficult not to mention the actual assessment.
Yeah, geez. I have a neurological disorder and had to have a neuropsychological assessment once to get baseline IQ and whatnot in case I have a cognitive decline later (that's a cheery thought, isn't it?). The doctor did this same thing with me. Told me things verbally that he didn't document. Later, at my disability trial, I had to tell the judge the things the doctor told me and luckily he believed me. Why not just put these things on paper? I don't know why they think they're doing anyone a favor.
Once you get a diagnosis on paper, you can use this for any accommodations you need at work or anywhere else in public. It's not uncommon for autistic adults to develop anxiety or depression due to being in social or physical circumstances that are not suited for them, so they may need low dose medication. But it's good to have the autism diagnosis because may autistic people only need like half of the lowest dose. And you can still choose who to disclose or not disclose to.
Once you get a diagnosis on paper, you can use this for any accommodations you need at work or anywhere else in public. It's not uncommon for autistic adults to develop anxiety or depression due to being in social or physical circumstances that are not suited for them, so they may need low dose medication. But it's good to have the autism diagnosis because may autistic people only need like half of the lowest dose. And you can still choose who to disclose or not disclose to.
Thanks
I think a diagnosis has more pros than cons to be honest. I can see his point, if I ran into anyone who would judge me, but I don't feel that would happen frequently. Maybe I'm being naive? I'd like to think the majority don't have some ridiculous stereotype, anyway.
My husband called them earlier to ask if we will get any written report of my appointment, what was discussed, the outcome etc. and they said we would, so I'm hoping that'll be all I need.
I know the process differs between areas and here they really don't seem keen to diagnose anything, least of all a condition that's harder to diagnose in adults and more so in adult females. The only time I've encountered a psychiatrist who's given any formal diagnosis was the one almost five years ago who misdiagnosed me with bipolar. It's frustrating because other professionals read my notes and try to give me antipsychotic medication that I don't need, or want.
Started therapy after my husband died and I struggled to keep the house running. I never realized how much he did to keep me on track. My therapist suspected Aspergers and referred me to a psychologist. The psychologist is convinced that I have Aspergers but said she wouldn't diagnose me without testing. So I was referred to a neuropsychologist. I had round 1 of 2 hours of neuropsych testing last week and go again in a few weeks. Formal diagnosis...or not...is July 31. I am terrified that the doctor will say no after I finally feel like my life and what I do is starting to make sense. Anyway all that to say that nobody here would give a written diagnosis until after neuropsychological testing. Not sure what the formal diagnosis will get me other than maybe some personal understanding but perhaps if I continue to struggle with holding a job I will be able to get some kind of government assistance.
Apologies for such a delayed reply!
I'm so sorry for your loss. I can relate, my eldest son's dad passed away five years ago. We had been split up for three months but I still loved him dearly, we had just grown apart. Even though we had split, he lived just down the road and I saw him frequently because of our son. I don't think I really realised just how much I still needed him to be a part of my life. I'd hoped we would remain close still. I met him when I was 15, almost 16 and we were together 11 years so he was a huge part of my life.
It's indescribable. If you ever need someone, you're welcome to PM me any time.
Are you in the UK? I do hope you get the answers you're looking for. I'd really like to hear how things go for you, if you don't mind?
Thanks for your reply obviously I'm not very good at replying quickly either so no problem there - it's not that I don't try it just seems that I get sidetracked and then forget to check. Sorry for your loss as well. I don't think people that haven't lost someone like that can really relate and at 49 I don't really know any younger widows. I'm in the US not the UK. Got to meet with the neuropsychologist today who confirmed Aspergers and ADD but because I had to do some additional testing we didn't really get time to discuss the results other than a quick overview. I am to receive the detailed report next week. Looking forward to seeing what it says in more detail and then to research his analysis. Feel free to PM me any time as well. Hopefully we have more in common than the loss of a spouse.

