Questions to ask my parents.
KBABZ
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Location: Middle Earth. Er, I mean Wellywood. Wait, Wellington.
When I was diagnosed, my mum was asked to fill in some questions about my childhood. I can't remember what exactly was asked but there were questions about whether I liked to be hugged or not, imaginative play, interests, eating the same things, having a monotone voice etc and whether or not these things persist today.
Don't phrase things in positives or negatives because you will get skewed replies. For instance, don't ask if you had sleeping problems or if you were a bad baby. instead, ask when you slept through the nights, did you have recurrent nightmares, did you sleepwalk, did you wet the bed? Did you resist bedtime or did you enjoy the schedule?
Ask specific questions about food preferences and relate them to ages and developmental stages. Don't ask "was I picky?" "Did I stick to one food like bread for weeks at a time or years?"
Some parents get defensive with general "good baby" "bad baby" questions. My parents highlight negative qualities I had as a baby/young child but will deny missing milestones or being very different from other kids. It depends on the perceived context of the story.
Depending on your age and your parents' age, their memory might be faded too. My parents have forgotten a lot. Some of the development is so slow or spotty that it's hard to pinpoint the precise day a child talked or walked. I have since forgotten when my son walked unaided, he was 13-15 months and was very late. Same with speech.
Good questions would be:
- did you get upset when regular patterns were disturbed (e.g. relocating, your mom/dad not being home when you thought they would be, etc.)?
- did you get upset when things or people didn't cooperate with what you had in mind?
- did you enjoy playing with the same toys for a very long time?
- did you dislike playing pretend games (e.g. pretending you were a doctor/nurse/cowboy)?
- could you enjoy yourself playing alone for a very long time?
- did you enjoy playing together with one friend, while often getting hurt playing together with several others?
- did you pay more attention to things and animals than to people?
- did you walk late?
- did you talk early?
- were you unusually inquisitive at a very young age (e.g. did you check things out with your eyes immediately after you were born)?
- did you have unusually complete knowledge of a certain subject at a very young age (e.g. knowing all available cars and models at age 3)?
Out of curiosity though, I would also ask what traits didn't apply to you. Perhaps after all the non-leading questions are asked, see what traits were not applicable.
I haven't been diagnosed(my blog about it), but I have a pretty good idea that I am an Aspie. I have taken the tests and got 38/50 (16.?? being "normal") on one and 182/200 on the other. I am fascinated by the traits I don't seem to exhibit though. I don't recognize patterns more so then other people from what I can tell. I don't speak in a monotone voice. I don't laugh or smile at inappropriate times or get caught "staring". I can read people fairly well, I'm not great at it but their tones and facial expressions don't totally escape my noticing. But so many other things are like, oh yeah, that's totally me. Some of those traits my brother exhibits profoundly, and I know exacly what "they" are describing.
I find the whole spectrum quite fascinating.

Ask if you had a hard time learning new routines, like Toilet training?
Did you seem sensitive to light or noise?
Did you have trouble with hair washing or other elements of personal hygene (brushing teeth)
Did you react inappropreately to events, throwing temper tantrums, or seem to not acknowledge events?
How did you react when recieving presents? Did you lack an appropreate response?
When did you start smiling and make eye contact? Did you keep it up?
Where you socially outgoing, or more into watching others from the side lines?
Did you have a hard time making / keeping friends from a young age?
Did you "really love" certain toys, or items of clothing? Did you have to have your hair "just so" or have a certain accessory on your person?
Did you fight putting on new clothes? (I know with my son, putting a new shirt on him was like breaking a horse into a saddle!)
I am going to get the DSM criteria for you, after you ask your mom these questions, ask her to look it over. Also, Sophist wrote a really good article on Asperger symptoms. Have your mom read it over too. The only thing that is really missing is a discription of the difficulty reguating appropreate emotional responses...
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# Qualitative impairment in social interaction, as manifested by at least two of the following:
1. marked impairment in the use of multiple nonverbal behaviors such as eye-to eye gaze, facial expression, body postures, and gestures to regulate social interaction
2. failure to develop peer relationships appropriate to developmental level
3. a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people)
4. lack of social or emotional reciprocity
# Restricted repetitive and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:
1. encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity of focus
2. apparently inflexible adherence to specific, nonfunctional routines or rituals
3. stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements)
4. persistent preoccupation with parts of objects
# The disturbance causes clinically significant impairment in social, occupational, or other important areas of functioning.
# There is no clinically significant general delay in language (e.g., single words used by age 2 years, communicative phrases used by age 3 years).
# There is no clinically significant delay in cognitive development or in the development of age-appropriate self-help skills, adaptive behavior (other than in social interaction), and curiosity about the environment in childhood.
# Criteria are not met for another specific Pervasive Developmental Disorder or Schizophrenia.
Last edited by EarthCalling on 14 Apr 2007, 7:44 pm, edited 1 time in total.
Sophists List: Show this to your mom too!
From: http://www.wrongplanet.net/modules.php? ... 00&start=0
Also, at the bottom of the list are other conditions that are often Co Morbid with ASD's. I was amazed to find out how many of my "quirks" like LD's, Faceblindness, monocular vision, dyslexia, oversensitivity to my senses, and auditory processing difficulties where common in Aspies! Really look into the co morbid conditions, research each one, you may learn more about yourself!
Quote:
LIST OF COMMON SYMPTOMOLOGY FOR AUTISTIC SPECTRUM DISORDERS:
GABA-related Issues:
1.OCD-like tendencies These symptoms are on a spectrum of their own within ASDs. They can include full-blown OCD issues or milder, undiagnosable symptoms such as preference for routine, difficulty with change, repetitive thought processes, and compulsions which may fall short of the full OCD criteria.
2. Anxiety issues The anxiety can vary wildly from sudden panic attacks to more specific phobias. Social Phobia is a common comorbid, or even a sub-diagnosable social uneasiness. Anxiety can also often focus around the OCD-like issues and involve compulsions and/or obsessive and repetitive thoughts.
3. Obsessions Despite that the DSM and many books imply an autistic person is usually only obsessed with one thing at a given time, the focus should be on the level of the obsession (no matter its duration, what is the quality of its intensity?) and/or whether it us an unusual interest; not the number of obsessions. Also, the duration can be longstanding (years) or even as brief as a single afternoon. The focus should instead be on the intensity and/or abnormality of the obsession, itself, and not the number or duration. ADHD symptoms can often make obsessional interests last shorter than “stereotypical”.
4. Self-stimulatory behaviors In some autistic individuals, this symptom is very extreme; in others, it may be subtle or even solely done in private. Stimulatory behaviors are common to all humans; however, autistics tend to stim more frequently and perhaps may or may not inhibit their stimulatory behavior simply due to social convention. Stimulatory behaviors (or rather an increase in these behaviors) is often triggered by a non-homeostatic emotional state (i.e., anxiety or excitement). However, stimming can also be a sensory-exploration and not simply a method of anxious calming.
5. Hyper- and Hypo-sensory issues These can involve any of the senses: sight, sound, touch, taste, smell, vestibular system (balance), proprioception (joint awareness; limb awareness), exteroception (skin awareness), and interoception (awareness of the inner body: organs such as stomach, bladder, bowel movements, etc.). Vestibular abnormalities, proprioception, exteroception, and interoception all seems to be fairly constant in abnormal functioning (when there is a deficit); however, the level of sensitivity of the five main senses can many times be contingent upon anxiety levels. Many autistics experience a consistent abnormality in several of these senses, but level of severity (i.e., an increase in discomfort) can be effected by anxiety levels.
Body Issues:
6. Coordination, balance, and body awareness Each of these areas can be effected. As stated above, issues in these areas are usually constant in nature and not quite as vulnerable to shifts in GABA functioning.
Cognitive Functioning:
7. Executive Dysfunction Autistics can have varying levels and combinations of EDF. Most have issues with multitasking even to the point that looking and listening can be a difficult task. Social multitasking can be an issue. Common ADHD symptoms are most often noted if not full-blown ADHD. Within this, attentional problems, organization, multitasking, and goal-oriented planning and carrying out of these plans can all be effected. Although each autistic will show varying levels of severity.
8. Language For some autistics, language can be impaired as severely as a complete inability to communicate verbally (either due to a larger language issue or just verbal motor apraxia). For others, language can be less noticeably affected. Prosody may be effected. Some autistics may exhibit monotonic speech, others may prefer to do voices, others still may have an unusual way with words. But this does not discount autistics who, through years of learning, have also come to blend fairly well, language-wise, into the world.
9. Social Issues This is the symptom which is often most obvious to onlookers or during interaction and the reason Autistic Spectrum Disorders have mistakenly been called “social disorders”. Issues in this area can range from very severe to very mild. Most autistics have difficulty in this area, although, as just stated, these difficulties can be very subtle in some and difficulty in this area is not a condemnation to lifelong solitude (many autistic people have friends, are married and have children). As a generalization, males tend to be more seriously effected in this area, especially those with Aspergers or High-Functioning Autism-- although that is not a steadfast rule to diagnose by.
10. Sleep Disturbances Many autistics have issues with sleep. Often it is a difficulty with sleep (i.e., getting to sleep) or staying asleep. This possibly has to do with some of the common serotonin dysfunction in ASDs. Sometimes it can be an OCD-like issue regarding repetitive thoughts and the inability to “wind down”.
11. Talent areas Many autistics seem to have splinter skills, talents, even prodigious talent areas. The areas most noted are: music, art, mathematics, languages, memory, visuo-spatial skills, writing, and analysis of information. Though this list is by no means exhaustive.
Medical Issues:
12. Autoimmune dysfunction More recent research supports the notion that a portion of ASDs may involve an autoimmune component. These immune components can include IgA Deficiency, IgG or IgM Deficiencies, Rheumatoid Arthritis, Hypothyroidism, gastrointestinal issues such as Celiac Disease, Irritable Bowel Syndrome, nondescript gluten allergies, casein allergy, lactose allergy, other sinus-related allergies, and asthma. As further research is performed, other related issues may continue to arise.
Common Comorbids:
13. Common comorbid conditions: ADHD/ADD, OCD, Depression, Central Auditory Processing Disorder, Learning Disabilities including Nonverbal Learning Disorder, Dyslexia and other disorders of written or verbal expression, Tourette's and other Tic Disorders, Bipolar Disorder, Psychosis (most often noted in the teenage or early adult years), Schizophrenia, Epilepsies, various apraxias, Prosopagnosia and other perceptual disorders (e.g., depth perception), various synaesthesias, and a host of others. For some, addictions can also be an issue.
Family Genetics:
14. Family genetics In most ASDs, it seems many genes are involved; therefore, it is likely these characteristics did not arise out of the blue. Like any other phenotypic expression, most often if a child exhibits some characteristic, members within his or her family will express similar characteristics. A “Broader Autistic Phenotype” can often be seen within these families (i.e., Shadow Syndromes). Although in females these expressions may be subtler due to a possible genetic suppression that female-sex-specific genetics may wield, so in looking back on the family the possibility of this sex-specific suppression needs to be kept in mind.
Last edited by EarthCalling on 14 Apr 2007, 7:50 pm, edited 1 time in total.
This is my discription of the Emotional difficulties Aspies often have:
To clarify the “unresponsive reaction” the observer may notice that during events that typically should result in a response, the event seemingly “washes over” the ASD individual or that the ASD individual internalizes their emotions, appearing equally unresponsive, subdued, or in extreme cases; slips into a catatonic like state or falls asleep. It is important to distinguish, that this unresponsiveness will appear as either the event had no effect on the individual (they lack awareness) or it evokes a “shutdown”.
Conversely, with seemingly little provocation, the ASD individual may over react, or seem unable to control the intensity of their emotions. It may come across as an overly strong reaction, rage, a tantrum or a nervous breakdown. It is important to note, that this will also occur for other emotions other then anger, such as sadness.
Sometimes the ASD individual has a tendency of gravitating to one side of the spectrum more then the other. For those that tend to over react, they may appear to suffer from “Emotional Dysregulation”. For those who usually show no emotion, they may be labelled with:
Aexithymia (inability to verbally express emotion)
Apathy, (a lack of emotional reactivity)
or Emotional repression (subconscious but motivated denial of emotion).
Notwithstanding, the ASD individual may not always lean towards one pole or the other concerning emotional reactivity. Some may swing wildly between the two ends of the spectrum, unable to “regulate” their feelings. This may come across as “bipolar” to the untrained observer.
One important difference between this form of ASD Emotional Dysfunction, and Bipolar is that the response is emotionally driven as an inappropriate reaction to events, not an overall predominating mood or chemical imbalance. The individual is unlikely to exhibit periods of psychoses or extreme mania, although many may appear to be suffering with rapidly cycling “hypo-mania”. Great care needs to be taken in determining if the ASD individual actually suffers from Bipolar or not. Self diagnosis is not recommended, as co morbidity of BP and ASD has been reported. Make sure that the ASD individual with symptoms of BP is seen by a professional who is knowledgeable with both disorders.
I asked my parents about my childhood. I recommend to print 2 copies of questions. Then you need to separate the parents. Make sure they answer without being able to confer with each other and in one setting. You have to surprise it on them, otherwise they might discuss what they might put. The reason for this is to get two separate accounts because people remember things differently.
richardbenson
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