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randomeu
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03 Jun 2016, 6:05 pm

I just told my mother about this, at first she didn't believe me but now she is making a GP appointment in order to get a referral and such.


i feel kind of nervous....is that normal? im kind of doubting myself, is that normal to?

in every way its logical, my half brother has it so its logical to assume that my dad (whose the father of my half brother) could be a carrier of the gene. im sure but also really kinda confused and all in a mess haha. i guess i kind of just need reassurance or something


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kraftiekortie
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03 Jun 2016, 6:20 pm

There is no specific "autism" gene. Nobody is truly a "carrier" of autism.

It's not like Sickle Cell Anemia, which has a clearly genetic element, and "carriers."

Yes, there is a genetic COMPONENT to autism--but there are other factors at play which might not be genetic at all.

Additionally, I am of the feeling that there are many "autisms," rather than one "autism."

At least your mother is receptive, and not in denial, and seems to want what's best for you.

Did you tell your mother you might be autistic--or that you are on WrongPlanet?



kraftiekortie
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03 Jun 2016, 6:57 pm

I'm glad your mother is receptive, and is not being forcefully ignorant about the whole thing.

I know I came on a little too blunt about the "genetic" bit.

But I don't like it when people assume we can't have kids because we carry some "autistic" gene or something.



skibum
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03 Jun 2016, 7:00 pm

It is very normal to be nervous. I was so nervous before my diagnosis that I cried for days. And like Kraftie said, it's great that your mom is helping you with this. That is really good.


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randomeu
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04 Jun 2016, 11:11 am

kraftiekortie wrote:
There is no specific "autism" gene. Nobody is truly a "carrier" of autism.

It's not like Sickle Cell Anemia, which has a clearly genetic element, and "carriers."

Yes, there is a genetic COMPONENT to autism--but there are other factors at play which might not be genetic at all.

Additionally, I am of the feeling that there are many "autisms," rather than one "autism."

At least your mother is receptive, and not in denial, and seems to want what's best for you.

Did you tell your mother you might be autistic--or that you are on WrongPlanet?


yes i told my mother that i might be that (thats what the subject is about really...sorry if that doesn't come across) i also told her about this website, also about the genetic thing, i don't know much about it so it was kind a presumtion on the fact that i believe i have read it somewhere/been told so.


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randomeu
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04 Jun 2016, 11:14 am

skibum wrote:
It is very normal to be nervous. I was so nervous before my diagnosis that I cried for days. And like Kraftie said, it's great that your mom is helping you with this. That is really good.


im just wondering, after the GP thing, how long does it take to actually get an appointment usually?


im glad im not alone with the worrying though, after "sleeping on it" which apparently is where you go to bed with the idea in your head and see what you think about it in the morning, i have lost that doubt, it makes too much sense, and my mothers doubt kind of put me off but this morning i was actually diagnosed as severely dyslexic, and my mother thought i wouldn't be showing that she doesn't notice signs of these things. its all in the waiting now...


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crazybunnylady
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04 Jun 2016, 11:30 am

I was referred by my GP and told it was over a year though I'm in the UK. I'm going private and have an appointment in a week and a half. My mum's first reaction was 'I wouldn't be surprised', then shortly after I think she was in denial, then soon after was convinced and has been very supportive since then. This was about a year ago.

I'm actually seeing her tonight, we're going through a questionnaire she has to fill in and also looking through old pictures and doing a bit of 'investigating'. Think it might be a bit intense and pretty cathartic. She's already remembered some details from my childhood for example when my first school teacher told her I was a 'disturbed child'. Also telling her I injured people when she thought they were accidents i.e. pushing my cousin off a slide when I was 4, because he was on MY slide. He broke his arm, my mum thought it was an accident and I always assumed she knew, but why would I tell her?


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kraftiekortie
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04 Jun 2016, 11:30 am

Somebody in the UK could probably give you a better idea as to how long it takes to get a diagnosis in the UK.

Alas, both Skibum and I are Yanks. It's very different in America.

Autism is a (partial) genetic disorder--but it's not "genetic" in the sense that Sickle Cell Anemia is genetic. Not even in the sense that Down Syndrome is genetic. It's more random than that, usually. And there seems to be more than one genetic "cause" of autism (as well as epigenetic and non-genetic).

Even though twin studies have discovered that identical twins tend to both have some sort of autism spectrum disorder together--though one, usually, is more "severe" than the other.



randomeu
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04 Jun 2016, 11:54 am

crazybunnylady wrote:
I was referred by my GP and told it was over a year though I'm in the UK. I'm going private and have an appointment in a week and a half. My mum's first reaction was 'I wouldn't be surprised', then shortly after I think she was in denial, then soon after was convinced and has been very supportive since then. This was about a year ago.

I'm actually seeing her tonight, we're going through a questionnaire she has to fill in and also looking through old pictures and doing a bit of 'investigating'. Think it might be a bit intense and pretty cathartic. She's already remembered some details from my childhood for example when my first school teacher told her I was a 'disturbed child'. Also telling her I injured people when she thought they were accidents i.e. pushing my cousin off a slide when I was 4, because he was on MY slide. He broke his arm, my mum thought it was an accident and I always assumed she knew, but why would I tell her?


isn't private really expensive? (im in the UK too) i doubt my parents would go so far...., guess ill have to wait how ever long


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AQ score: 45

Your neurodiverse (Aspie) score: 174 of 200
Your neurotypical (non-autistic) score: 30 of 200
You are very likely neurodiverse (Aspie)


Officially diagnosed 30th june 2017


crazybunnylady
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04 Jun 2016, 12:18 pm

It's not cheap, £750 for me. Luckily my partner is paying half, I think he's desperate for me to get a diagnosis!

Where in the UK are you?


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randomeu
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04 Jun 2016, 12:19 pm

crazybunnylady wrote:
It's not cheap, £750 for me. Luckily my partner is paying half, I think he's desperate for me to get a diagnosis!

Where in the UK are you?



North Yorkshire, near leeds


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AQ score: 45

Your neurodiverse (Aspie) score: 174 of 200
Your neurotypical (non-autistic) score: 30 of 200
You are very likely neurodiverse (Aspie)


Officially diagnosed 30th june 2017