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AJisHere
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24 Jul 2016, 1:16 pm

I've been very interested in some of the threads we've been getting lately. "Would you cure your autism" threads show up regularly, but the last few have had some intriguing content. Ideas about things like Transcranial Magnetic Stimulation, or using various types of unscheduled drugs to reduce symptoms of autism. I'm really very excited at the thought of this and my mind keeps coming back to it.

I'm not looking for a "cure" or anything since that's a fool's errand. I am very interested in any knowledge people may be able to share about non-standard, experimental or unofficial treatments for autism. I don't care how unproven they are (ok, I do a little bit... quackery is no good), what possible side effects are, if Autism Speaks or some other common bogeyman is involved, or about any of the myriad "anti-cure" arguments these discussions typically bring forth. I just want information and would be grateful to anyone who can share some.


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BTDT
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24 Jul 2016, 1:42 pm

The best "treatment" for autism is wealth.

Seriously. If you have money you can change your environment. Don't like the noisy kids in the next apartment--move to a quieter one. This is trivial if you can afford it.

Same thing with job choices. If you have wealth you get training to deal with issues like monotonic speech, gait, and coordination issues. You can work as an unpaid volunteer and greatly expand your opportunities.



AJisHere
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24 Jul 2016, 1:47 pm

BTDT wrote:
The best "treatment" for autism is wealth.

Seriously. If you have money you can change your environment. Don't like the noisy kids in the next apartment--move to a quieter one. This is trivial if you can afford it.

Same thing with job choices. If you have wealth you get training to deal with issues like monotonic speech, gait, and coordination issues. You can work as an unpaid volunteer and greatly expand your opportunities.


None of which would actually make me feel any better. :|


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kraftiekortie
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24 Jul 2016, 2:09 pm

Just get better at socializing with people. You'll feel better, and learn about more aspects of life.

Avoid those "treatments" mentioned. Read up on the history of "magnetic"'sorts of treatments. Magnetism has been claimed t cure many maladies.

Especially f they cost hundreds/thousands of dollars.



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24 Jul 2016, 2:14 pm

How about a relaxing hobby that lets you unwind? Any activity that untracks your mind from negative thought loops is likely to be immensely helpful.



AJisHere
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24 Jul 2016, 2:22 pm

kraftiekortie wrote:
Just get better at socializing with people. You'll feel better, and learn about more aspects of life.

Avoid those "treatments" mentioned. Read up on the history of "magnetic"'sorts of treatments. Magnetism has been claimed t cure many maladies.

Especially f they cost hundreds/thousands of dollars.


I seem to have hit a wall in terms of improving my ability to socialize. I'm way better at it than I was ten years ago. Hell, I'm better at it than some NTs I know. :lol: But not good enough. I'm not sure how I could get even better, to where I am satisfied. More information on that would be great, but is elusive.

Being better at social interaction wouldn't solve all my big problems, but it would solve many.

I have actually read a bit about TMS, and what I've read is fascinating. It is effective for treating depression, but experimental for autism. What John Elder Robinson said about his experiences with it... I couldn't stop thinking about it for weeks afterward, but couldn't find more information. I think if I were to find out about another study using it I'd eagerly volunteer, but that's hard to find.

BTDT wrote:
How about a relaxing hobby that lets you unwind? Any activity that untracks your mind from negative thought loops is likely to be immensely helpful.


I haven't found anything quite like that. I rarely have the time to. I think if I had a better social life it'd be easier; I could just go hang out with friends.


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Sabreclaw
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24 Jul 2016, 3:54 pm

I've come up with the perfect treatment for autism - jump off a f*****g bridge. I wish to God I had the guts to actually do it.



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24 Jul 2016, 5:10 pm

kraftiekortie wrote:
Just get better at socializing with people. You'll feel better, and learn about more aspects of life.

Avoid those "treatments" mentioned. Read up on the history of "magnetic"'sorts of treatments. Magnetism has been claimed t cure many maladies.

Especially f they cost hundreds/thousands of dollars.


Magnets, if you want to try them, should cost about ten dollars, maybe 30 if you want to get them sewn into something. Anything more is just price inflation. Its a flippin' magnet. You can get one at any walmart.



AJisHere
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24 Jul 2016, 8:09 pm

Sabreclaw wrote:
I've come up with the perfect treatment for autism - jump off a f*****g bridge. I wish to God I had the guts to actually do it.


That has some rather severe side effects I'd rather not deal with.

somanyspoons wrote:
Magnets, if you want to try them, should cost about ten dollars, maybe 30 if you want to get them sewn into something. Anything more is just price inflation. Its a flippin' magnet. You can get one at any walmart.


Transcranial Magnetic Stimulation is an actual medical technique using specialized equipment. Can't buy that at WalMart. Anyone claiming that pressing fridge magnets against your forehead will do anything is a quack.

Unfortunately for me, TMS is only used for depression. It has been studied for treating autism, but with inconclusive results and there isn't enough information for that option to be available. I doubt it's FDA approved, so the only way for me to get it would be participating in a study.


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somanyspoons
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24 Jul 2016, 8:17 pm

AJisHere wrote:
Sabreclaw wrote:
I've come up with the perfect treatment for autism - jump off a f*****g bridge. I wish to God I had the guts to actually do it.


That has some rather severe side effects I'd rather not deal with.

somanyspoons wrote:
Magnets, if you want to try them, should cost about ten dollars, maybe 30 if you want to get them sewn into something. Anything more is just price inflation. Its a flippin' magnet. You can get one at any walmart.


Transcranial Magnetic Stimulation is an actual medical technique using specialized equipment. Can't buy that at WalMart. Anyone claiming that pressing fridge magnets against your forehead will do anything is a quack.

Unfortunately for me, TMS is only used for depression. It has been studied for treating autism, but with inconclusive results and there isn't enough information for that option to be available. I doubt it's FDA approved, so the only way for me to get it would be participating in a study.


Ah. Yah. You're right. I didn't realize you were talking TMS. Totally different. Its a standard medical treatment, not an alternative one. And actually, early results are promising for showing an increase in underactive parts of the brain after this stuff. But its very different than what you see in alternative circles as magnet therapy, which is the same thing as sticking fidge magnets to your forehead, not that I'm judging. You gotta do you. Just don't let anyone charge you to much to do it.



AJisHere
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24 Jul 2016, 8:29 pm

Yep. Do you know of any recent information on TMS to treat autistic symptoms? It's been surprisingly hard to find.


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somanyspoons
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24 Jul 2016, 9:19 pm

AJisHere wrote:
Yep. Do you know of any recent information on TMS to treat autistic symptoms? It's been surprisingly hard to find.


I saw a study somewhere on NCBI recently. There is also that NY times article about the guy who claims that TMS turned on his ability to read emotions for a few hours and that this experience was so world-bending that he ended up getting a divorce because of it. Highly wonky if you ask me, but that's his story and he has a right to it. There's another thread on WP about it somewhere.



AJisHere
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24 Jul 2016, 9:33 pm

Yeah, John Elder Robison. Really fascinating stuff. I definitely want to know more about this.


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Edna3362
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25 Jul 2016, 7:52 am

Since you're seeking answers for a more natural, more into instinct-like kind of social functioning, I may or may not have a way.
Except it works for me so far and it's still incomplete.


Not a remedy per se, more of a tailored lesson plan. Minus the scripting, the unnatural mirroring, false selves, the mentally-draining coping mechanisms...


I cannot post it because :lol: Yay captcha! I'M NOT A ROBOT. I'M AN ALIEN!! A-L-I-E-N!!… Wait, isn't the captcha's purpose to test whether the poster is human? Ah, right...
... Wait....


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johnnyh
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25 Jul 2016, 9:19 am

There are no drugs specifically prescribed for Autism itself. They only give stuff meant for other disorders or certain symptoms to help ease it a bit or for treating co-morbid disorders. There is research in using Alzheimer medication for Autism but that's not a specific treatment either.

The only substances that may directly attack the symptoms of ASD are not for legal consumption or are damaging to one's health. (At least that's what they want us to think)

Medical marijuana (not to be confused with the stuff sold in the streets) which has been specifically bred for certain substances and not for getting high also shows promises for easing symptoms.

There was one poster who had some success with this:
viewtopic.php?t=122615
viewtopic.php?t=122297
This drug he refers to is about 35 USD a gram, like half a weeks worth. I also find drugs like Xanax greatly reduce symptoms I have if taken in high enough doses.

Autism or at least aspergers for me seems to be more of a set of symptoms that people have in common. I suspect what happens is that there is one large symptom group namely the inability to delegate actions to one's subconsious, the inability to properly process multiple actions or thoughts at once, and the inability to filter information properly (one of these may be responsible for the other three, who know!) and because of these symptoms and experiences, certain disorders develop in a child as they grow up (like feral children who started off maybe NT but developed differently due to once key factor, namely being raised among animals).

The severity of this/these symptom(s) is what creates a spectrum. The gait, executive dysfunction, lack of social skills, and several more can be traced back to this inability to process things in the world. The gait for example may occur because for people with ASD, they are having difficulty moving their entire body at once, they have to move one limb, then another, then their hips, then their torso, etc. and we have a gait. It also explains how it could exist yet most people on the ASD spectrum do not have a different appearance unlike down syndrome.

For the milder cases, possibly us as we are all verbal or can at least read and write, some sort of drug that targets this collection of symptoms/symptom may allow us a much easier life. The brain in a human is not as fixed as often thought, it is a bit more plastic, we can after taking this hypothetical treatment try to redevelop some habits and while not 100% cured, be able to truly pass, be able to relax, connect with others better, and at least be satisfactory at our workplace. Heck, we may have superiorities to NT people, like removing weights from a person they suddenly move faster, we would be mentally tougher after having to develop more mental strength through our lives than born NTs.

But if my theory were true, then the whole neurodiversity idea kinda fall apart in places. Instead of Autism being a Mac to an NT Windows, it's more like a windows with the up arrow button either entirely removed or just stuck occasionally. Imagine the gigantic domino effect it would have on the entire computer's lifetime usage! Just imagine that! Of course other conditions, namely where there is a difference in physical appearance or very low functioning autism may be the result of chromosomal damage or such, this would be like the button getting covered with cement, the main symptoms are the same but the cause is different. Autism would not be its own disease but a medical condition like blindness with many different causes.


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-Johnnyh


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25 Jul 2016, 10:27 am

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