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teksla
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19 Dec 2016, 5:49 am

For the past year i have been very disappointed with level of care.
Last time there was a meeting (a doctor and two mental health professionals were present), i told them that the method of therapy i have been receiving does not fit me.
They were understanding and suggested another type of therapy, but with a therapist i dislike.
I agreed to try it.
But after many visits to the therapist i dislike, the method is the same one that doesnt work for me.

Now i am in a tricky spot;
the place that is providing me with therapy, cant do more to help me.
So now i am hoping i can be transferred to a place that can provide me with therapy and know something about autism spectrum disorders (the current place is very uneducated on autism spectrum disorders).


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Tawaki
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19 Dec 2016, 6:51 am

It stinks having to shuffle doctors and therapists.

I wish my husband had the option to see ANYONE who has a clue about adult autism that is level I. There isn't really anyone around here.

The doctors told him that they would try to help with his anxiety and depression, but there is no help for things like speech therapy, OT and PT for autism related issues. I know our insurance won't pay, but there isn't a professional who will actually work with adults. It's either children or level III adults.

My husband did get CBT therapy. All is problems are with soft skills, and CBT doesn't really address that.

I hope you find someone who is a good fit, and the sessions help you. My husband was basically told, yeah you are different and you'll just have to try harder with little to no help from professionals.

Good luck.



crystaltermination
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19 Dec 2016, 1:16 pm

I discovered that the loudest patients, or their guardians - those that bother the offices demanding changes to treatment regimes - always are served first. If my parent hadn't screamed down the phone at my own local mental health services, they would have dropped me from the waiting list for an Asperger's evaluation after 2 years. The level of treatment they delivered for my prior depression was pathetic, borderline useless. Like you I had a psychologist who I didn't like. She was ultimately more interested in propagating an art therapy group that was fundamentally doomed to fail. Even weaned myself off of my last medications unsupervised because my consultant wouldn't deign see me for a new appointment.
I know these services are often stretched to the limit, underfunded, but I hope you can get better treatment and are unafraid to chase them up if they continue to sit on their hands about it, department difficulties aside, they write people off far too easily.


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On hiatus thanks to someone in real life breaching my privacy here, without my permission! May be back one day. +tips hat+


Noca
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19 Dec 2016, 1:46 pm

So your doctors and mental health workers lied to you by telling you that they would offer you a different type of therapy, which turned out to be the same type of therapy you were receiving before. Yup, sounds about right.

In publicly funded healthcare systems, there are often resources out there, but you gotta know a guy, who knows a guy, who knows a guy, who knows a guy, to be able to find them. In privately funded healthcare systems, the resources often exist in the open, but those who need them most are often those who cannot afford them.

It is sad but either you or your parents/guardians need to constantly advocate for you to be able to find you the resources that you need.

I mean even in our local psych hospital, one psychiatrist I met with in one department told me that no one in the hospital either treated, dealt with or diagnosed adults on the autism spectrum. This turned out to be a total load of baloney as it turns out there was a clinic in the hospital that did just that. I was only able to find such a clinic after constant advocating for myself, searching and searching and talking to other mental health care workers until I learned about this clinic.

This same psychiatrist didn't know jack s**t about the autism spectrum and wrote "r/o autism" in my chart (which means rule out autism as a diagnosis) when just a year later after I finally got into that autism clinic that this moron didn't know even existed, after hours and hours of the most thorough autism testing you can get, I was diagnosed with ASD level 2. Most doctors and even psychiatrists in my experience don't understand a damn thing about autism so it can be very stressful to find those who do to be able to get access to the right treatment and supports.