Page 1 of 1 [ 11 posts ] 

r.steiner4
Tufted Titmouse
Tufted Titmouse

Joined: 5 Nov 2016
Age: 30
Gender: Female
Posts: 43
Location: Colorado

26 Dec 2016, 11:22 pm

So I received some wonderful hearing aids for Christmas from my partner and I have found that they help significantly with understanding spoken language. I have a weird combination of some hearing loss and Auditory Processing Disorder. Does anyone else here use hearing aids or any other hearing devices? How do they work for you? What issues have you found with them and the way they interact with your ASD?



TheSilentOne
Veteran
Veteran

User avatar

Joined: 10 Aug 2015
Gender: Female
Posts: 2,820
Location: Torchwood Three

27 Dec 2016, 12:46 am

I have a hearing aid that my doctor suggested in my right ear. I got it only about a year ago. I have trouble hearing people when they are talking and it helps me a lot.


_________________
"Have you never seen something so mad, so extraordinary... That just for one second, you think that there might be more out there?" -Gwen Cooper, Torchwood


ConceptuallyCurious
Velociraptor
Velociraptor

User avatar

Joined: 19 Aug 2014
Age: 30
Gender: Female
Posts: 494

27 Dec 2016, 5:25 am

I have two hearing aids.

Out of interest, have you have had an ABR test AND been officially diagnosed with an auditory processing disorder? If not, you may well have auditory neuropathy spectrum disorder which can present very similarly to auditory processing disorder but instead of being a central processing issue it's to do with how the cochlear passes information to the auditory nerve (in some cases it's due to absent/damaged auditory nerve but you wouldn't be getting good results with hearing aids if that was the case).

My teacher of the deaf thought I have it and my audiologist agrees it may be the case but isn't going to test for it as there is no cure - everything that can be done has been (short of a CI but those are reserved for more severe functional loss). But it is a pain as I do wonder whether it's my ears or my brain doing it.

Anyway, I find that hearing aids help in very quiet settings but, especially in noise, it just seems to amplify the clutter I hear. My hearing is also prone to odd things like seeming to temporarily mute itself. I find that they are too loud, but then I'm also sensitive to noise without hearing loss - how much of that is recruitment (SNHL) and how much of that is hypersensitivity (ASD), I couldn't tell you.

I simply can't wear mine for long periods of time - despite specialist programming and a variety of moulds etc.


_________________
Diagnosed with:
Moderate Hearing Loss in 2002.
Autism Spectrum Disorder in August 2015.
ADHD diagnosed in July 2016

Also "probable" dyspraxia/DCD and dyslexia.

Plus a smattering of mental health problems that have now been mostly resolved.


teksla
Veteran
Veteran

User avatar

Joined: 29 Jul 2015
Gender: Female
Posts: 783

27 Dec 2016, 11:45 pm

For the people on this thread:
How did you get hearing aids? And do you have impaired hearing or is it due to autism/auditory processing you have the hearing aid?


_________________
Diagnosed with
F84.8 (PDD-NOS) 2014
F33.1 Major Depressive Disorder, recurrent, moderate.


ConceptuallyCurious
Velociraptor
Velociraptor

User avatar

Joined: 19 Aug 2014
Age: 30
Gender: Female
Posts: 494

28 Dec 2016, 10:18 am

teksla wrote:
For the people on this thread:
How did you get hearing aids? And do you have impaired hearing or is it due to autism/auditory processing you have the hearing aid?


Mine are NHS hearing aids. I got them through the audiology service (though my Nana has some better, private, ones). I have hearing aids due to sensorineural hearing loss but they have specialist programming owing to my processing difficulties.

I know someone (personally) who has NHS hearing aids for APD (but has a normal audiogram), though to my understanding they are programmed only to filter background noise rather than to compensate for varying loss across frequencies.

You (or your parents) would need to contact an audiologist with access to ENT doctors too, either through a local service or directly.


_________________
Diagnosed with:
Moderate Hearing Loss in 2002.
Autism Spectrum Disorder in August 2015.
ADHD diagnosed in July 2016

Also "probable" dyspraxia/DCD and dyslexia.

Plus a smattering of mental health problems that have now been mostly resolved.


TheSilentOne
Veteran
Veteran

User avatar

Joined: 10 Aug 2015
Gender: Female
Posts: 2,820
Location: Torchwood Three

28 Dec 2016, 1:37 pm

teksla wrote:
For the people on this thread:
How did you get hearing aids? And do you have impaired hearing or is it due to autism/auditory processing you have the hearing aid?


My first one came from a medical store near me and then my current one is from an audiologist. As for your second question, I genuinely don't know.


_________________
"Have you never seen something so mad, so extraordinary... That just for one second, you think that there might be more out there?" -Gwen Cooper, Torchwood


eggheadjr
Veteran
Veteran

User avatar

Joined: 3 Oct 2012
Age: 59
Gender: Non-binary
Posts: 1,370
Location: Ottawa, Canada

28 Dec 2016, 2:52 pm

When I pay attention I can hear very well - it's the not paying attention part that is the hearing problem in my case.

Of course, being aspie - hearing someone talk in a crowd or noisy place is tough. In those cases I tend to lip-read.

I do have a bit of tinnitus which can be annoying from time-to-time. The tinnitus is probably a precursor of future hearing issues...


_________________
Diagnosed Asperger's


ConceptuallyCurious
Velociraptor
Velociraptor

User avatar

Joined: 19 Aug 2014
Age: 30
Gender: Female
Posts: 494

28 Dec 2016, 5:20 pm

TheSilentOne wrote:
teksla wrote:
For the people on this thread:
How did you get hearing aids? And do you have impaired hearing or is it due to autism/auditory processing you have the hearing aid?


My first one came from a medical store near me and then my current one is from an audiologist. As for your second question, I genuinely don't know.


If your audiogram is predictable (e.g., doesn't seem to go up and down and have different configurations on each visit) then your loss is almost certainly sensorineural. Though there are circumstances where SNHL will also show an unpredictable response.

It could be tested objectively with an ABR but obviously wouldn't be worth it for responding to a thread.


_________________
Diagnosed with:
Moderate Hearing Loss in 2002.
Autism Spectrum Disorder in August 2015.
ADHD diagnosed in July 2016

Also "probable" dyspraxia/DCD and dyslexia.

Plus a smattering of mental health problems that have now been mostly resolved.


teksla
Veteran
Veteran

User avatar

Joined: 29 Jul 2015
Gender: Female
Posts: 783

28 Dec 2016, 6:22 pm

Im going to a doctor for pain my ear. How can i bring out difficulties with hearing what people are saying (difficulties differentiating/separating background noise)?


_________________
Diagnosed with
F84.8 (PDD-NOS) 2014
F33.1 Major Depressive Disorder, recurrent, moderate.


EclecticWarrior
Veteran
Veteran

User avatar

Joined: 28 Nov 2016
Gender: Female
Posts: 2,001
Location: Cool places

28 Dec 2016, 8:44 pm

I don't (I have quite the opposite problem with my hearing), but I've noticed a strong link between HI and autism.


_________________
~Zinc Alloy aka. Russell~

WP's most sparkling member.

DX classic autism 1995, AS 2003, depression 2008

~INFP~


teksla
Veteran
Veteran

User avatar

Joined: 29 Jul 2015
Gender: Female
Posts: 783

28 Dec 2016, 10:45 pm

ConceptuallyCurious wrote:
TheSilentOne wrote:
teksla wrote:
For the people on this thread:
How did you get hearing aids? And do you have impaired hearing or is it due to autism/auditory processing you have the hearing aid?


My first one came from a medical store near me and then my current one is from an audiologist. As for your second question, I genuinely don't know.


If your audiogram is predictable (e.g., doesn't seem to go up and down and have different configurations on each visit) then your loss is almost certainly sensorineural. Though there are circumstances where SNHL will also show an unpredictable response.

It could be tested objectively with an ABR but obviously wouldn't be worth it for responding to a thread.


The person whom you know personally, what hearing aid does s/he use?


_________________
Diagnosed with
F84.8 (PDD-NOS) 2014
F33.1 Major Depressive Disorder, recurrent, moderate.